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Jamesevan

Hi, this is James. 29 years old.

I am new here as I'm recently been diagnosed with peyronies disease. I'm 29 years old and my symptoms started 2 years back with a constant urethral Bruning. I have been to different uros then and every single one of them diagnosed as chronic prostatitis. They might have been right too since the symptoms pointed to prostatitis/cpps, reduced urine flow, constant pain in urethra, burning after urination.

Fast forward 1 year I felt my erections were hard to get and felt like a stone. I have been prone Masturbating since early teens and this might have caused microtrauma over the years. I have been noticing my penis feeling disconnected, pointing to one side on flaccid, but then oneday I noticed a bent to the left. I freaked out as it was there when I was erect too. Combined with Ed, bent and Erection, I visited a uro. He did tissue sonography and found calcified plaques on the tunica and cc. I was shocked as I heard it, was this end of everything?

Forward to two months, I have come to terms with this, I still have anxiety as I might never have a functional penis again. My curve hasnt got worse but the ed is still bad. It works on cialis but I don't know for how long. I'm still young, so worried about my future relationships and can't think of Implants at such a young age. I really hope there were more treatment options in this disease. My doc said there is nothing much that can be done other than surgery. I am currently on vitamin e and colchicine. Xialfex won't probably work as plaque is calcified. I hope oneday I will get this diseases behind me, for now it's difficult to live with it messing you. I am still hopefull, and trying to have a positive outlook towards life, and hopefully we have some effective treatments in the future.  
Replace this text with critical info about your case
such as age
first symptoms (deformity, Erectile Dysfunction)
official diagnosis, date, doctor's name
treatments tried
relationship status
Etc

Jamesevan

Did anyone have similar symptoms to begin with? Anyone found relief with Ed or is it sure I will end up with the implant one day?
Replace this text with critical info about your case
such as age
first symptoms (deformity, Erectile Dysfunction)
official diagnosis, date, doctor's name
treatments tried
relationship status
Etc

thegreycat

Hey James, welcome to the forum.

I have found that VED and traction have both improved my EQ.

Sorry to hear you're having a hard time with this - glad you're remaining hopeful.
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

Hawk

Welcome to the forum.  This is by far the largest database of info and the largest Peyronies Disease support forum on the internet.  To get the most out of it, it is critical you fill out your signature line.
This explains --->https://www.peyroniesforum.net/index.php/topic,10819.0.html

Your erections could be at least partly psychological.  If you have underlying concerns and stress about your penis, it causes adrenalin which binds to the receptors needed for erections.  If it is all physical, the Cialis will likely work for years at the current or greater dose.  After years of ED drugs no longer work, an implant is always an option, so you will never be without an erection.

 
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Mr man

Hello James,

I wouldn't start thinking about implants. Not at your age. Being young is a positive. Your body will heal better.

Go with VED. To get some blood flow. If you can. Try and give up mastubation. For a few months. Give penis a rest and relaxation to recover.

Improve your diet. If VED is causing pain
. Then stop. Remember pain means no gain. Do read the survival guide on this site..

All the best James. You have a lot to be positive about.  
Latest routine. Started l-lysine 3mg daily, l-proline 5mg daily. Increased vit c intake. Accompanied with almost daily vacuum therapy. Pumping to 100% Exercise caution! Made good progress. L arginine supplements and prescribed potaba are helping.

FrankPD

Hi James,

You're in the right spot for support.  Must try to stay positive as much as you can.  Attitude does so much.

Use the search tab, it's full of personal experiences.  I learned more here than googling.

Best of luck to you.
I have a girlfriend
Age 47, No injury
Diagnosis January 2022  
Six plaques
Hourglassing when flaccid and semi-erect
Only have my congenital curve
Massaging with vitamin E cream twice a day 
5mg Tadalafil, Healthy diet
Discomfort/aching sometimes