Calcification -- What are my options???

[Gap]

Hello, I am new to the board, but I've done a lot of reading so I hope to get some answers. I am 33 years old and I remember the exact incident that caused trauma to my penis, and I've been paying for it ever since. Unlike a lot of you, my symptoms didn't present themselves very suddenly, it was actually almost a year and a half later that I started to notice I slight bend at the base, which has now come a nearly 90 degree bend to the left. I recently had an ultrasound and there is a 2mm piece of calcified tissue and then hardened (but not calcified) tissue surrounding it. My doctor at UCLA wants to do surgery to remove the calcified tissue, but after reading this site I am absolutely terrified. He seems convinced that injections and pills won't have much of an effect on me bc the tissue is calcified, but I'm wondering I can get some semblance of my penis back if I can manage to help the section that isn't calcified. I have read about topicals, orals, VED's and everything else. Please please give me some feedback. I can get and maintain an erection, but my fiance is extremely uncomfortable with sex ("It feels like it's hitting my hip") and it's also very awkward and uncomfortable for me. I really need some help. I have lost size due to the bend and I want my penis back.

**Also, I live in California, but I'd be open to traveling to see a doctor who has handled cases like mine.**

[Skjaldborg]

gap2117,

I got this at 29 so I know how hard this is to deal with at a young age. You should get a referral to see Dr. Tom Lue at UCSF medical center in San Francisco. He is one of the best Peyronie's doctors in the U.S.. Next, get a prescription to pentox (trental), it is one of the few oral medications that has studies backing its efficacy. It's not a magic bullet or a cure, but it has been proven to stop inflammation, shrink scar tissue and reverse some calcification. I used it for 8 months and it really helped with pain and I am now 90-95% what I used to be size and appearance-wise, which ain't too shabby. Note that I only have hourglassing, some slight shrinkage and minimal curvature. Severe curvature may require surgery to correct. Dr. Lue is a male sexual health specialist as well as a surgeon. He is one of the best guys to go and see. Good luck and PM me if you have specific questions.

-Skjaldborg

[slowandsteady]

If it were me, I'd start with the vitamin k. I have plantar faciitis and an x-ray showed a heel spur (they often go together), which is calcification of the soft tissue of the plantar fascia. After dosing myself with about 400 mcg of K2-MK7 and 5 mg of K2-MK4 a day, I have no trouble running on my foot now. It would be interesting to get another x-ray to see whether anything has changed.  

[jcb]

Where does one obtain these K vitamins? Did you experience any side effects from the K? Do you continue to take it? Did it have any effect on your Peydonie's?

[newguy]

Pentoxifylline has a very good track record for calcification. I think it's best to try conservative options first, rather than jumping in at the deep end.

[slowandsteady]

Where does one obtain these K vitamins? Did you experience any side effects from the K? Do you continue to take it? Did it have any effect on your Peydonie's?

You can get it at lots of places. I use iHerb. Note I'm referring to K2-MK4 and K2-MK7, not K1. I like the Jarrow, which comes in an oil filled gelcap.

I've had plantar fasciitis with a bone spur on the heel, and it's been simply outstanding for that. It has effects on fibroblasts that I wrote about in the vitamin K thread that would seem to be a good thing for Peyronies Disease. I would guess that taking it with arginine/pycnogenol at night would be a good idea to help it to reach areas with low circulation. I dose it twice a day, about 300 mcg each time.

Other effects: it keeps my teeth noticeably clean and smooth. Calcium is a component of tartar, and the vitamin K binds to it. I think it should help take the calcium out of your arteries too; that's a big deal.

[newguy]

Sounds promising S&S. Hopefully a combinations of the options in this thread will help. Calcification in many ways seems to be more of the more managable aspects of peyronie's disease.

[Gap]

Great information guys! I am taking the pentoxy, but only for a month now and I've been getting antsy, so I need to stick with it. I will contact Dr. Lue. Any new information is appreciated!