Hello from Wisconsin

[depreciated]

It was tough to diagnose because every symptom led to the same conclusion: prostate infection.

I'm 48/male and had them on and off for 30 years.

One thing I've learned is that not much is really solid (no pun) on what is it we should be looking for. I had pain while urinating, painful erections, flat spot on shaft (sorry to be graphic), and it was dismissed as yet another prostate, albeit viral infection.

One day I woke up with an erection and was like, "Man, this looks messed up." That was the key for diagnosis, but I will be honest - there are other things that don't make sense to the professionals. I've had swelling in the testes, excruciating pain in the Perineum, and even leg and muscle pain - all things that don't go with normal symptoms, but even ultrasounds cannot find that cause.

Sorry for rambling. I'm nervous. I'm ashamed. I'm in pain. I just don't know where else to turn.

Next up is the penile ultrasound. I just don't get this stuff. I want to yell and scream and get angry. I'm probably the only white dude who didn't mind urology or other routine exams because I was like, "Yeah, I'm comfortable with this thing." Haha. Sorry to laugh. I was comfortable, but now I just feel like shutting out my gf, becoming a monk, and just not dealing with it. TLDR, I liked my penis. Now, I'm angry and scared.

[gsc55]

Welcome to the forum, depreciated! You are among friends here who are either going through ED and/or PyD or, have gone through it and have found effective treatment.

Let me first say don't be embarrassed. Like you, I was initially and it was hard to discuss, with not only my wife, but a couple of very close friends that I shared my condition with. It was spoken of in whispers and using language that was not too graphic. Now, since I have started the process of treatment, discussion with the Dr. and other appropriate individuals is open, and descriptive.

Like you, my next step is a penis ultrasound (mine is on 3/21). Until that takes place, and my blood work is analyzed, I won't know specifically what treatment protocol is right for me. I would say that the same would probably go for you.

It certainly sounds like you have Peyronie's from your description. You did not mention who you are seeing but, it is really important to go to a urologist that is very knowledgeable of PyD as there are so many facets to treatment. "One size does not fit all". Additionally, your other symptoms may be something else that is going on that is not related to PyD. I'm no doctor and I'm not qualified so, push for answers from the urologist about your other symptoms.

Keep us posted!

[LWillisjr]

You are among friends here.

[FrankPD]

Hello and welcome.

No need for embarrassment here.  It's better for the mind to talk openly and honestly about it, great group here.

Be well.

[thegreycat]

Hello and welcome. Sorry to hear you're going through this.

This is a safe space to talk openly and honestly about both the physical and mental aspects of this wretched disease. Nothing to be embarrassed by or ashamed of here.

Your experience is similar to what we've all experienced, so please feel free to reach out at any time here.

All the best

[olowshinenine]

Welcome. I am new to the community as well. I am in the acute phase of Peyronies Disease.

[Pfract]

Welcome aboard, depreciate: If there is one thing that you should not do if you can, is shun your partner away. Nothing good will come out of it. Include her in this process, learn as much as you can whilst you are dealing with this and try to find a good sexual medicine specialist that you can work with to steer you on this.


Stay with us. We are all in this, one way or another.