Very recently noticed Peyronie's

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supernova

Hi, I'm 22 y/o and I've very recently (As of yesterday) discovered a new upward curve right under my glans combined with some pain, mild ED and hourglassing at the site of the bend. I can't see a urologist for at least two weeks and none are specialised in Peyronie's where I'm from. I've read the survival guide and browsed the forum all day but I'm still feeling very overwhelmed and confused about what to do and how quick I need to act since I didn't have any symptoms before yesterday.

Keep in mind that I have very severe anxiety and depression, and this new condition has already made it exponantially worse. Thanks for the help  
22y/o (Started Jan. 19/Diagnosed Feb. 8th) Plaque on right side Hourglass and dent filling up when erect/Propolis, Ginkgo Biloba, Oral Vitamin E, Omega-3, Q10, L-Arginine, Pentox and Colchicine and cold water submersion x4 to x5 a day/4 min

Trapper

get daily Tadalafil for the mild ED from your GP then setup appointment with a urologist preferably one with a fellowship in andrology and a member of sexual medicine society. You getting NTE's?  
33 years old, symptoms started early 20's but never really bothered me until the last two years
Trimix worked well but caused more scarring. 
Titan 24CM XL+ 1 CM RTE'S Dr. Hakky 4/4/23
Hyaluronic acid penis filler by Dr. Hakky June 2023

Hide on Bush

Hello, i'm a little bit older than you.
The first advice i can give you it's to slow down and relax.

I was in your same exact situation. Sufferining from depression since 2018, i got a slight curve in October and I felt that like a punishment from God.
It's already unlikely to be depressed at this age; and when this deasease come to me, i took it as i was the unluckiest person on the earth.
But it's not, it's another problem that life force you to face, but you can easily overcome it.

I got too much stressed about it, and I almost ruined up my life.

Keep calm, it's just the beginning, and you have plenty of time to cure it.
There are plenty of people with these condition, and most of them will just heal by themselves.
A sad truth is that in forums you only read about stories of people whose problems got worse and worse; and it's just because people who heal up doesn't search for forums.

To let you understand why I said that, since i talked about this problem with some friends of mine, i discovered that this problem happens more often than you can imagine, and most people will heal.

I talked literally to a friend of mine, a really close one, and he literally said "Ah yeah once my dick got bend during sex and got blue for some days.
I'm used to injure my body (he plays soccer a lot), and I just waited, but i was not worried because I was sure it was about to heal"
And now he has literally the same dick.

And literally, talking to 9 people of our age about this, 3 of them told me they had something similar to what happened to you, and they healed up.

I didn't healead up (lol); and probably because I was a bit too much worried about it.

So my man, chill out and focus on something else; most important, don't get stressed too much about this, as stupid as it might seems.

You will overcome also this one.
And talk to your friends about this.
I talked to mine, and despite my concerns (they are not really polite people) they were always really helpfull.

Also, talks to some girls about this; you will be surprise.
They will just don't care.
Also consider that having some ED it's not that uncommon at our age, so probably some of your female friends already have faced problems like that.

Sorry for the terrible english.

Anyways good luck, i'm confident you will overcome this one.
That's my psychological advice; also, use this problem as an excuse to improve your lifestyle.
Try to improve your habits, go out, go exercise a lot, ecc.
25yo from Italy.

Recently diagnosed in December.

Looking for some hope.

Sonic

30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

supernova


Thanks for the encouragement, it happened very suddenly so I'm still quite in shock, what would be the first thing you'd recommend me trying ? It already has gotten a bit worse. For some contest I'm very short on momey so as of now I can only either go the antioxidant way or the Extender way, I can't buy the RestoreX but I've also read that extender aren't too useful for case right underneath the glans and even less when the scar is circular.
22y/o (Started Jan. 19/Diagnosed Feb. 8th) Plaque on right side Hourglass and dent filling up when erect/Propolis, Ginkgo Biloba, Oral Vitamin E, Omega-3, Q10, L-Arginine, Pentox and Colchicine and cold water submersion x4 to x5 a day/4 min

Hide on Bush

Don't worry, i'm here to try to help.
I'm not the most competent person here tho; also, i don't have problems of hourglassing so.

For what i could learn about this disease, i will suggest you to improve first of all your daily abits.
Stop smoking, drink wisely, go exercise as much as you can, try to be in the best health shape possible.
Stress is also a big factor; it's pointless to tell someone to don't stress about a problem, but you just need to have faith about that it will fix up.

You can take some vitamins and antioxidants in pills, or you can just try to have a better diet overally, expecially if you are low on money (vitamin E, ecc).
I am not familiar with Traction; maybe a VED device could be more helpfull.
But VED are also kinda scary, you can hurt yourself more.

Anyways you are really in a early stage; probably this symptom will fade away in the next days and you will just forgot about it.
You did a good thing searching on forums, but now stop it, because it's really dangerous for people who are already depressed or easily impressionable.
You already read the survival guide, so most of you could done you already did.

My best advice is to adjust your lifestyle, taking antioxidants from veggies, and just have an appointment with the doctor for some cialis, it can help a lot also from a phsycological point of view (that's what i would do with a limited amount of money).
If you need to just chat about this, just pm me.
Good luck
25yo from Italy.

Recently diagnosed in December.

Looking for some hope.

supernova


Thanks again for the kind words, I'm a bit calmer now, being gay I also realised that this isn't the end of my sex life if it becoes worse or permanent. I already started getting into healthier habits ans I'll be continuing. I'll go with antioxidants for the time being and I'll look into other treatments if it doesn't seem to get better with time
22y/o (Started Jan. 19/Diagnosed Feb. 8th) Plaque on right side Hourglass and dent filling up when erect/Propolis, Ginkgo Biloba, Oral Vitamin E, Omega-3, Q10, L-Arginine, Pentox and Colchicine and cold water submersion x4 to x5 a day/4 min

MunichPatient1989

Welcome,

maybe you can post your area. After posting my intro post someone could recommend a Peyronies specialist nearby. Just having an appointment scheduled feels good.
34 yo, first symptoms 2021 (32 yo)
ED, dent, shortening, 30° up, 10° left, right behind glans
Plaque calcification
5 mg Tadalafil 1-2/week

Trapper

I don't know if I would use Restorex without supervision from a urologist. sometimes it helped me but other times it made me worse like I feel like it made my erection less stable at the area of the dent/HG. If I were you I would consult a sexual health urologist that knows about traction first.  
33 years old, symptoms started early 20's but never really bothered me until the last two years
Trimix worked well but caused more scarring. 
Titan 24CM XL+ 1 CM RTE'S Dr. Hakky 4/4/23
Hyaluronic acid penis filler by Dr. Hakky June 2023

thegreycat

Quote from: Hide on Bush on January 21, 2023, 02:09:55 PM
There are plenty of people with these condition, and most of them will just heal by themselves.
A sad truth is that in forums you only read about stories of people whose problems got worse and worse; and it's just because people who heal up doesn't search for forums.

I don't think it's fair to be suggesting to someone who is in the throws of the early panic phase that "most" people heal by themselves, they don't.


When I first discovered my lump and had the associated pain/hourglassing was emerging, I kept coming across that bloody Google result that says that most people heal on their own. I went to a GP who told me it was fine and that in "10 years" it "might" turn into Peyronies.

These claims are backed up by no science whatsoever and so I just sat and did nothing and just got worse for months before I discovered this forum.
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

Hide on Bush

Quote from: thegreycat on January 23, 2023, 06:31:28 AM
I don't think it's fair to be suggesting to someone who is in the throws of the early panic phase that "most" people heal by themselves, they don't.


When I first discovered my lump and had the associated pain/hourglassing was emerging, I kept coming across that bloody Google result that says that most people heal on their own. I went to a GP who told me it was fine and that in "10 years" it "might" turn into Peyronies.

These claims are backed up by no science whatsoever and so I just sat and did nothing and just got worse for months before I discovered this forum.

Hello there.
I said that also for a very specific reason; he's still kinda young and already really anxious and depressed.

Anyways, i do believe most people will heal by themselves.
I had the same idea as you; how it's possible that urologist says that most of the people will cure themselves, while i am just getting worse and worse and forums are full of people who got worse?

But the reality is that, from what my esperience is talking to common people, most of them healead up for real; obv,  changing the lifestyle, antixossidants, ecc (and that's what i suggested to him).

I just wanted to point out, for someone like him who is already stress, that there are evidence that he will be fine.
And infact he's already doing the best to improve its condition, if you followed his post.

I get your point of view, but, statistically, most of the people will somehow cure (or at least, reduce the damage to the minimum); if you don't or most people here didn't, that exactly the reason why we are in this forum.
It doesn't prove that most people will not "cure".

Because often we are also convinced from other experience or just the stress and the depression coming off of this that this disease will slowly and only go worse.
But reality is that it's not the most frequent scenario.
In the internet we read only stories about people getting worse, simply because most people who heal themselves they are so less concerned about that anymore that they never dig the internet enough to find this forum, nor to write on it. In your own story indeed, you found this forum after it was getting worse; i doubt, in the case you would have healed up, you will be in this forum today writing about how you got better (sorry sorry for terrible english)

For your particular case, the fault is that of urologist; also in my case they were pretty superficial about this.
I am sorry if i sounded superficial to you; i just wanted to avoid him to stress too much about this.
He will do the best to improve a condition that most likely will cure by themselves, and I think it's pretty much different to just do nothing.



25yo from Italy.

Recently diagnosed in December.

Looking for some hope.

LWillisjr

Quote from: Hide on Bush on January 23, 2023, 07:52:31 AM

In the internet we read only stories about people getting worse, simply because most people who heal themselves they are so less concerned about that anymore that they never dig the internet enough to find this forum, nor to write on it. In your own story indeed, you found this forum after it was getting worse; i doubt, in the case you would have healed up, you will be in this forum today writing about how you got better (sorry sorry for terrible english)


This is still a feeling and assumption, and no real data exists to prove either way. So to take a chance to wait and see if you happen to be one to heal yourself is risky as you may be in that percentage (assume any percentage you want) that doesn't heal on your own. So that is why we encourage everyone here to avoid the "wait and see" and to be proactive in treating Peyronies Disease.



I am locking this as an introductory topic as it has reached its 10-post limit. Feel free to post questions in other areas of the forum.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History