Dr Trost Xiaflex Results

[36chambers]

I have a video interview set up with Dr Trost.

If anyone has experience with being treated with Xiaflex by Dr Trost, can you please let me know what your initial curvature was and the results?

Thanks!

[Sebtp1973]

This user went from a curve of 110 degrees to 10 degrees, after on series of Xiaflex from Trost. https://www.peyroniesforum.net/index.php/topic,17739.0.html

[36chambers]

Those are a great results. I think he does more Xiaflex injections than anyone else in the world.

[LWillisjr]

That is very rare, most people are lucky to see 30 degrees of improvement.

[Bak]

I doubt the truthiness of this report to be honest.
https://www.peyroniesforum.net/index.php/topic,17739.0.html
I believe this is an advertisement post - Take as my opinion.

On another note, I did Xiaflex injections, 6 cycles and it did nothing. Nothing. Just pain, time and money waste.  

[36chambers]

Any with Dr Trost? From what I know he has a different protocol than most.

[P11050]

So, I had the 110 degree ventral curvature correction.   It actually happened.

This is an anonymous forum.  There is absolutely no way for you to verify any results - positive or negative.  It's simply meant to point you in a direction and offer encouragement.

What you can do is ask your doctor.

When you have your consult with Dr Trost, why don't you ask him about what kinds of ventral corrections he's seen?  Share this thread with him.  Ask him yourself - Is it believable?  

My results were extra ordinary.  I'm grateful.  Which is why I posted.  I wish you the best on your journey.  Hang in there.  

[36chambers]

I had my consultation with Dr. Trost.

He is extremely good and is getting great results. He is in this to help people and I believe what he said.

He is very adamant that of the correct protocol isn't followed by an experienced Dr., the results will not be as good as what he is seeing.

I am very hopeful and will be scheduling injections with him.

[Jack1909]

Sorry guys, where Dr Trost is exactly located again? Thanks in advance.

[Pfract]

Sorry guys, where Dr Trost is exactly located again? Thanks in advance.

A simple google search will help you with that.

[Pfract]

I doubt the truthiness of this report to be honest.
https://www.peyroniesforum.net/index.php/topic,17739.0.html
I believe this is an advertisement post - Take as my opinion.

On another note, I did Xiaflex injections, 6 cycles and it did nothing. Nothing. Just pain, time and money waste.

There are plenty of reports of users not being responsive to the medication. It really depends on the person, unfortunately. Although the doctor's experience is a key factor in a better outcome.

I don't think that Dr. Trost needs to do shady advertisement. His results and work ethic speak for themselves. Restorex for example, just to name one thing.  

[36chambers]

His results seem pretty good - of course everyone is different.

There also may be a bit of an issue where if someone is now happy with their treatment they may not be on the forums and vice versa.

[Sebtp1973]

Xiaflex hasn't been around that long, and the recommended protocols most doctors follow are too conservative. These protocols were designed to avoid fractures, but they probably are too cautious. Trost has been pushing the envelope and came up with these new "aggressive" protocols that cause xiaflex to work faster and work better. He's avoiding fractures and other injuries by keeping the penis wrapped while it heals for the first 2-3 days.

[36chambers]

Correct. Did you have Xiaflex done by Dr. Trost?

If so what were the results?

[Sebtp1973]

Not yet. Considering traveling there this spring to see him.  

[36chambers]

I will let you know how things go. I sent my insurance info in to the office and am just waiting on a scheduled appointment.

He seemed very optimistic of results even though he did give me a disclaimer.

[Sebtp1973]

Thanks. How severe is your curve? Have you tried anything else yet?  

[36chambers]

90 degrees straight up

[danh]

I have a video interview set up with Dr Trost.

If anyone has experience with being treated with Xiaflex by Dr Trost, can you please let me know what your initial curvature was and the results?

Thanks!

I had injections with him two weeks ago. I still have some pain, but it's getting better. So far, I went from 50+ degrees to I'd say 20 degrees. That's just a guess. But, it looks a "LOT" straighter than before my trip to Utah.
I posted some history here...
https://www.peyroniesforum.net/index.php/topic,6362.50.html

[john.doe.550]

Sorry guys, where Dr Trost is exactly located again? Thanks in advance.

Jack: The US State of Utah.

[36chambers]

Quick question-

I have w family trip planned on March 9 and am getting my shots on Feb 20 and 21. Do you think the pain will be unbearable to ski and drive 6 hours in early march or do you think 2 weeks should be enough for me to actually enjoy that vacation trip?

[danh]

On my recent experience, I'd say you should be able to enjoy your trip. At the beginning of week three, my pain was much more tolerable. To almost, but not quite normal. Erections still a little sore, but getting better everyday. Had injections Jan. 30-31.

[36chambers]

Thanks. Driving there tomorrow for Monday and Tuesday appointments. Kinda nervous but know Dr. Trost is probably the leading expert and from you have all mentioned, it seems like a pretty decent experience overall.

Any words of wisdom, pro tips, or suggestions based on your experience?

Thanks!

[danh]

No pro tips. Maybe take the laughing gas. Haha.  I did not and had no issues. You'll do fine. The clinic is really nice. Like nicest I've ever been in. And Dr. Trost is great and undoubtably has a wealth of knowledge/experience on peyronie's. And it shows.

[richestorags]

My first round of shots with Dr. Trost is booked for mid March. While the concept is unpleasant, your comment does provide a level of comfort/assurance.  

[36chambers]

I have my appointments today and tomorrow. Will try and take good notes and post after the procedure.

I'm nervous to say the least.

In retrospect, I am just glad I am going to Dr Trost vs someone else.

[36chambers]

Actually in office now. Numbing shots are not bad. I had laughing gas which helped relax me for sure.

Waiting for Dr Trost to come in and administer Xiaflex...

[36chambers]

Just finished shots. Not that bad. He's an amazing Dr.

Keeping wrapped is most important thing.

[Sebtp1973]

Just finished shots. Not that bad. He's an amazing Dr.

Keeping wrapped is most important thing.

Congrats! Keep us up to date.

As far wrapping, how often do you need to replace the wrap? Do you leave the wrap on while peeing and doing traction?

[36chambers]

Since I am only done with one round (round two is tomorrow) you are not to take the wrap off no matter what. As an FYI he measured me at 70 degrees with 10-20 degree corkscrew side curve. I have some hourglassing at fulcrum, which he said may get worse as it heals.

Keep on while urinating and I just figured I wouldn't shower as I don't want to take the chance of messing with it.

Also he mentioned that I was not calcified, and that because of my girth and size I probably will need a second round at some point but that we will assess as time goes on.

Upon leaving they give you Dr. Trost's cell phone number and tell you to call them if anything comes up. This is probably the best medical experience I have had in my life.

Pain right now isn't bad. Can definitely drive right after. Numbing  agents are wearing off right now but we will see as the night goes on. I asked them if I could take pictures of the documentation they give you and they said yes, so I will post when I have good lighting.

[Sebtp1973]

So how is it going 36chambers? How was the second shot?  

[Sebtp1973]

Yeah, I went through three rounds of Xiaflex with another doctor. I saw some improvement, but the curve is still unacceptable to me. My doctor, well known in the field and who I like (good guy), is not as thorough as Trost. For example, he'd just ask me to bring an erection picture into the office, he'd look at it for two seconds and say "looks about 30 degrees". He does not induce an erection in the office.  I only saw improvement after the first round.I believed him, but then I saw other pics on this forum and elsewhere of 30 degree curves, and I knew my curve was more severe.  especially when I take Cialis and am sexually aroused (taking pics for my urologist doesn't turn me on all the way!).

This doctor is very cautious and conservative. I read about Trost's more aggressive protocols, and want to give that a try.

So I contacted Trost. I sent him an erection picture, and he actually measured it and said it's 55 degrees. We then did a zoom call.

He's doing a study, funded by Endo, to try his aggressive protocols on men who did not get enough improvement following the standard protocols most doctors follow now. Perhaps Endo will recommend Trost's protocols based on this study?

Trost says I qualify for the study. I need to wait six months from my last round which was October. So I am going there in April.

 

[richestorags]

A bummer to hear that your first set of injections didn't bring optimal results, but great news about the Dr. Trost/Endo study. After becoming disenchanted with a local urologist I have booked the first series of injections with Dr. Trost for mid-March. His office has already been incredible to work with.....they secured insurance authorization in no time flat. I asked if a Xiaflex prescription would be sent to a local pharmacy for me to pick up. "No" need they said as they keep Xiaflex in stock. Wow! It looks like this is not going to be a walk in the park as he described his regimen as military in nature which I took to mean post-injection modeling. Bodybuilders have a saying, "No pain, no gain" and that might be the case as well for Xiaflex modeling. Hopefully Tylenol and Motrin will take care of it.    

[danh]

This doctor is very cautious and conservative. I read about Trost's more aggressive protocols, and want to give that a try.

Sebtp1973.

I second your post. I had a Urologist I thought was too conservative also.  Seems he just followed the ENDO protocol from the pamphlet. I went in on a Monday, and it was Friday before he did stretching in office. I mean, I was a week or so into the shots before he prescribed daily Cialis. Felt I wasted valuable time. Anyway, One set (two shots) from him and I decided to go the Dr. Trost route. So far it was a good decision. I have gotten great results (IMHO) from one round with Trost. (Jan 30) May not go for more rounds.

Of course like they say in this forum... everyone reacts different with this disease. Whichever method they choose to take.

 

[Sebtp1973]

I'm interesting. Can you say what your curvature was pre Trost and what it is now?
 

[danh]

If I recall, Dr. Trost mentioned 45. But, I was not fully erect. The trimix shots didn't work on me, so he pumped me up with a saline solution.
I've been measured at 55+ degrees left with other urologists.
Now, after one round, without using a protractor, I would guess less than 20. I'm about 3.5 weeks out from my second shot.
I'll eventually send a pic to Dr. Trost. He said he'll measure it and give me the correction result.

[Freshnewstart2523]

Keep us posted  

[Sebtp1973]

Just got back from Utah where I got Xiaflex treatment from Dr Trost. Excellent doctor. Today was day two, and he ripped the plaque during hand modeling. It was weird to feel/hear it. We both recognized it at the same time. Me with wide eyes, him with a congratulations.

More about my experience at a later date...

[Pfract]

Sebtp1973:

I can only imagine how the feeling must have been! Curious to see if you felt pain during that manipulation or you had a numbing agent in your penis!

[Sebtp1973]

Didn't feel a thing. I was numbed up. He said I'd be in extreme pain if I wasn't numbed up.

It was great when it happened (and he was tugging for awhile and I didn't think it was going to happen). It's great because this usually means vast improvement. My member already looks a lot longer (Trost said people who get the rip usually gain an inch). So, we'll see what it does to the curve. Trost told me my job now is to make sure the tear doesn't heal, by doing traction daily. If it heals, if contracts again. So don't let that happen.

[Sebtp1973]

So, I flew into Salt Lake City arriving around noon Monday. Rented a car and drove to Orem, which takes about 40 minutes. My appointment was at three, so had time to kill and checked into hotel. Then drove to the clinic. Nice facilities in a nice setting.

Day one summary:

*Injected numbing agent.
*Took length measurements with ruler.  
*Teaches wrapping and traction methods. Will reiterate on Day 2.
*Always leave wrapping on, except once a day quickly replace it. Said penis can blow up in front of your eyes, so move fast when replacing. Says he'll replace day one wrapping for me tomorrow.
*Says all you have to do tonight is straighten your erection if you get one.
*Says urine leak age will be a problem, advises getting padding. I swallowed my pride and bought incontinence diapers after the appointment.
*Induced an erection with an injection. Measured the curve with a protractor.
*Located the point of maximum curvature. My curve goes up and to the left. Asked me which curve I would like to reduce the most. The upward is sharper and more noticeable, but I said the left one is uncomfortable for my wife. He said yes, the vagina does not expand as much left and right as it does up. Anyway, both curves will be addressed.
*injected the Xiaflex.
*Day one appointment lasted 45 minutes.

After I went to the store to get diapers. The erection medicine really kicked in by then. I was able to pull my shirt out in front to cover my "circus tent".

I went back to the hotel, and really needed to pee. After I was done and put my penis back in my pants, well...I wet my pants really good. It looked like I peed my pants. I brought some gym shorts, put a diaper on then the shorts, and washed my jeans in the laundry room at the hotel. Learned my lesson, I wear the diaper all the time as long as I am wrapped. The compression from the wrapping makes it feels like you are done, but there is still pee in your uretha that comes out when you put your penis away.

No discomfort or pain that night. Had some boners that I straightened out.

Day two.

*My appointment is at 12:20.
*Trosts assistant gives me laughing gas and numbs my penis.
*No erection on day 2. Trost comes in, takes the wrapping off, and finds the location using a ruler and measurements he took day one.
*He injects the Xiaflex.
*He grabs the head of the penis and pulls HARD (grabs it with the sheet so it doesn't slip out of his gloved hands). He pulls straight out and up and to the right. This is going on for awhile. We are talking, although he is pulling so hard at some points he is not talking and almost grunting like someone lifting weights at the gym. Then suddenly, "riiiipp". The plaque is torn apart.
*Both me and Trost are very happy. He says something like "you might be a one series guy". He says it's like how glass is cut, you score it first then break it. The Xiaflex at the point of maximum curvature is weakened there, then when he pulls, that's were it rips. His techniques are making more sense to me now.
*He said if I wasn't numbed up, that rip would have caused excruciating pain. I felt nothing, other than the sensation of it tearing.
*He said my job now is to make sure the tear doesn't heal. If it heals, it will contract. You disturb the healing process by using using a Restorex and hand modeling once a day.
*I need to keep it fully wrapped for three days (quickly changing the wrap once a day). Then for three nights after that, wrap at night while sleeping and in the morning while doing traction.

 

[richestorags]

Best wishes for a "one and done" injection series. This is my experience and that of others will differ, however, early and aggressive use of Restorex seemed to be a major factor in success.  

[Sonic]

*He grabs the head of the penis and pulls HARD (grabs it with the sheet so it doesn't slip out of his gloved hands). He pulls straight out and up and to the right. This is going on for awhile. We are talking, although he is pulling so hard at some points he is not talking and almost grunting like someone lifting weights at the gym. Then suddenly, "riiiipp". The plaque is torn apart.

This sounded so funny!!    

Seems like in general you had a very good experience, wish you the best of luck, Dr Trost is awesome.

[Sebtp1973]

Best wishes for a "one and done" injection series. This is my experience and that of others will differ, however, early and aggressive use of Restorex seemed to be a major factor in success.

Trost wants me to use Restorex just once a day and just straight,  no counterbending.

I think this is because we got the rip in the office. Without the in office rip, I believe the objective of Restorex would be to try to pull apart the plaque. But since that has been achieved in the office, the objective now is to not let the "wound" heal with a contraction.  

[richestorags]

Good deal. Yes I am Captain Obvious with this, however, compliance with what Dr. Trost says is recommended as he is a quintessential expert. Not to belabor the point, I am now one month post injections and am able to reach RestoreX length and counterbending gains that were inconceivable pre-injection. Every person is different and results will vary. Best of luck on your healing journey.  

[Sebtp1973]

Thanks. Yeah, he said something like once a day so the wound doesn't contract, but not too often because it needs to clot.

For me, everything is under wraps and bruised and on the mend, so I can't make any assessment yet. Other than, it does look longer, but maybe the wrapping is making it look that way?

I can take off the wrapping tomorrow around midday, then only have it on at night for three additional days. He said have my supplies handy at all times, in case it starts to swell. But if all goes well, starting tomorrow, it's off until around 9pm. I put it on then and do hand stretching and Restorex. Then sleep with it wrapped. Then shower with it wrapped (the heat and steam can cause swelling), then take it off the rest of the day after showering. By Monday, I shouldn't have to wrap anymore (if everything goes right) and I can get rid of these sexy diapers.  

[FrankPD]

Man, if I ever had to do this I don't know how.  Just reading it makes me a bit queasy, I will always read it though.  No offense!  Wish you the best, keep us updated.  

Everyone be well.

[beaulieu1008]

Then for three nights after that, wrap at night while sleeping and in the morning while doing traction.

What do you mean by wrapping while doing traction?

[beaulieu1008]

Sebtb1973, thank you for your excellent report  

[richestorags]

What do you mean by wrapping while doing traction?

It is quite feasible to do Restorex tracton while wrap. A thin layer of gauze goes on first and then Coban. Both will stretch and flex during traction. Dr. Trost recommended removing the upper makeup pad to allow for a bit more clearance.