Worn down a bit im surviving though easily

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Curvekiller94

Man it's annoying being a young dude with peyronies when all the old people asking you where your girlfriend is during the holidays. For the first time in my life I think I'm successful but mostly my work life. Obviously, no one is doomed to be single because of peyronies and there are exceptions etc. but I couldn't help but feel lonely while other single men discuss dating prospects with the others I just sit there thinking while pretending to have a smile and be engaged in the conversation like one day will my dick not hurt  ?

It was a strange uncomfortable feeling given that this year my gf broke up with me and I've really only found myself comfortable talking about work life or video games and struggling with social life. But for now my dating life is on the gaming pc aka just gaming instead of dating and praying the pain goes away. I'm starting to be more active and workout more like my old self but it's a struggle and there are many moments throughout a day that trigger me to wanting to be by myself. It makes me uncomfortable how much our society talks about sex when I'm not so much a part of it.  I mean I am and I still find woman attractive and all it's just a big difference for me and marking my 2 year point and still no pain resolution is really getting to me. Just needed to tell someone that I don't like sharing much with others about this except here really.

There is something very distressing about having pain in your groin for that long that begins to way on my mind. It wasn't bad at first as I had hope that the doctors were right and I would stop being in pain eventually but it really never happened. I just can't wait until boxing starts back up again to take my mind off of things. The hard thing is that with this problem it isn't something you can confront once and just be over it there are a variety of reasons I am stressed/not feeling myslef. It's a marathon forsure Having a bit of a cramp right now but I'll get over it . I hope someone can relate to this post but maybe I'm just complaining and wanting someone to relate to this might be not such a good thing . I want to post to give more hope but I'm just being real with it things are tough rn.
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

IwillbeatPD

Hey Curve,

First of all, myself and probably most single guys here can relate to how you feel. I'm 4 months in, and for me that's a long time of not having sex. I'm 36 so I consider myself to be in my prime and I certainly don't want to waste this time. I do take comfort in knowing this is temporary and there will be an end to this story one way or another. Whether it be natural healing, surgery or implant...I'm getting past this.

Can I ask what your next steps are? 2 years is a long time, so I'm assuming you've tried some things in your bio but they haven't been successful. What's the next step for you? And how far are you willing to go to get back to your normal sex life. I don't want to be naive since I'm new here, but there's no way I'm waiting more than 2 years to be having sex again. If I haven't reached a comfortable place by then I'd imagine I'd have an implant.  
Fit 37 year old athlete. Hinging and hourglass began Sep 2022. Tried VED, Restorex, tadalafil with no improvement. Implanted by Dr Hakky 11/28/23 with Titan touch XXL 26 cm no RTE's. Pre op 8.25Lx 5ish G. Post implant: 8.25 L x 5.5 G

Bud luck

I completely understand you, this forum is the only place where people understand me because we are going through to the same nightmare. My condition is getting worse and I can't do anything about it, my penis is literally dying slowly but steady, some guys mention that the implant is the "solution", well I visit regularly a forum with hundreds of men share their lifes with implants and so many are horror stories, can't take the risk to make my life even worse.
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

IwillbeatPD

I think I read that 75% of penile implants are done by low volume doctors (less than 4 per year) which plays a massive role in the outcome. I'd imagine much of that population are the 75%. Though anything can happen with anything surgeon of course. In any case, I think it's important to compare your reality to determine how worth it an implant is to you. If you can have sex it's probably not worth it. If you can't have sex at all, to me it's obviously worth it. I mean, what do you have to lose if you can't have sex right? Can only go up from there.
Fit 37 year old athlete. Hinging and hourglass began Sep 2022. Tried VED, Restorex, tadalafil with no improvement. Implanted by Dr Hakky 11/28/23 with Titan touch XXL 26 cm no RTE's. Pre op 8.25Lx 5ish G. Post implant: 8.25 L x 5.5 G

thegreycat

Hey man

We're all in this together. I'm so sorry to hear you're still experiencing pain, that must be awful.

I totally understand what you mean about society and sex. Before my Peyronies Disease, I never threw a second thought at it. Now? I get super uncomfortable if there's a Netflix advert for a remotely provocative show. It's horrible. Society doesn't know afflictions like ours even exist, so it's tough.

Have you tried VED? It hasn't made any difference to my dent/hinge but it has resolved my pain, in around 2 months. Might be worth looking into.

Please always feel welcome to share here, you're not complaining. You're amongst friends. None of us know each other IRL but that doesn't mean we can't offer support.

Be well.
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

FrankPD



Hey, I hear you.  I'm uncomfortable with topics of sex too.  It's like if everyone is gonna get in to the convo, I try to redirect it.  My situation isn't as bad than many others here, I wish them well.  I do know the pain though.  I'm even more uncomfortable when I'm watching a sport with friends, at the parents' house and a bent carrot commercial comes on.  I mean, we're watching football on Christmas with like 15 people and they played that commercial.  Come on!

Just last week I had a friend text me and he said he's in pain because he needs sex so bad.  He has no idea what the last year has been like for me.  I felt like saying, you don't know what pain is like, that's the wrong reference but I didn't.  Is he a good friend, sure 30 plus years but I only told one of my friends and I wish only for him to know.  I don't feel like explaining this all over again.  My friend and I have had so many convos and texts about this.  He's married with children and he still took time to read links and asks tons of questions which I appreciate more than him listening.

This forum is awesome, I can't imagine living with this disease without it.  We're here to listen.

I know it sucks.  I always wonder if I'll get worse when I have a regular sex life again.  No one knows.

Be strong, think positive.

Be safe and well.
I have a girlfriend
Age 47, No injury
Diagnosis January 2022  
Six plaques
Hourglassing when flaccid and semi-erect
Only have my congenital curve
Massaging with vitamin E cream twice a day 
5mg Tadalafil, Healthy diet
Discomfort/aching sometimes

Indenialguy

Hey curve,

My situation is complicated (I feel like I start a lot of posts saying that haha) but I was 27 when I first injured myself so about the same age as you, in hindsight I know now that injury probably caused me peyronie's as there were distinct changes to my penis, things that I now know to be hinge and indents at the left base, loss of length/girth (although in truth I never really measured girth before) and erection quality issues etc. I think at the time, I was so in denial about it all (hence the name) that it has taken 5 years and a second injury to acknowledge it all only this summer.

The reason I'm rambling about all this though is to tell you that in those 5 years I managed to keep a relationship together and get engaged, have a 3 year son and now have another child due in march. Ignorance was oddly bliss for me, looking back now I have no idea how I didn't look into peyronie's sooner, but I didn't and as a result, despite having several symptoms I managed to live a pretty normal life, until my second injury forced me to face up to the reality none of us wanted.

My point is, everyone can have a family, everyone can find love, you're a young guy and have it all in front of you. I never thought about peyronie's in those 5 years, if I had my life could be very different now, I believe the more we let it play on our minds the more in the way of our lives it'll get.
32 yo UK
Engaged with two young children
Injured 2017, healed
RE injured Sept 2022
Chronic flaccid pain since 2nd injury
Starting 5mg cialis daily, trying to obtain pentox online

Possible hard flaccid, possible Peyronie's, possible nerve damage

Curvekiller94

Thank you all for the kind words and I appreciate the replies.
@iwillbeatpd - you know my next step I'm not so sure what it is. So I have ongoing penile pain that no one can give me an answer for and I can't sleep from it on days where I use my penis, it gets worse after masturbation or sex of any kind and has been this way for about 2 years. One peyronie special said he would avoid an implant (dr. Trost) but then the implant specialist said in general he's unsure why peyronies related pain disappears with the implant in majority of patients(dr. Eid). My dick seems like it gets "hard enough" but the hinge affect near the base makes sex very difficult and it feels like I am Injurying further. The implant would definitely help the hinging but this biggest thing is pain without pain I think my erection would be good enough but I just can't seem to shake it.


@budluck yeah I know what you mean but at the same time it still sounds worth it to me. For instance I have pain and I miss sex and fear sex because of reinjury. Well an implant will prevent further injury however you may have additional pain. But I may be willing to sacrifice that if in the end I can F~@< normally and enjoy myself

@thegraycat I'm sorry you experienced that too. Interesting it helped your pain maybe it will help with mine what protocol did you use? I'm adfriad to try many more things everything seemed to make me worse. Traction gave me exaggerated pain and the last time I did Vaccuum i think I over pumped slightly and I had some pain for a few days. The only thing that has helped me with pain is not wearing pants, heat, loose fitting clothes if wearing clothes.

@frankpd oof the carrot commercial is brutal happened today me too!! Dude I know the feeling mybfieemd stet to get me to go out to talk to girls and stuff.  That's not my problem I actually have a girl  interested in me but I can't do anything about it lmao. Well at least with my dick

@indenialguy - while I do understand your point I have a feeling you weren't in the same inital phase as myself. I had a gf but  lost her not because I wallowed but because I didn't want to be intimate enough cuz my penis always hurts. I try not to let it take liver but it just dies it changed what underwear I wore, how I sleep, how I pee, how I orgasm. And not because "it's in my head".  Starting with what I wore I used to wear boxer briefs but everytime I wear them by the end of the day I have pretty serious groin pain.

When I sleep sometimes my dick rotated and gets hooked on my leg like under my leg. I wake up form the pressure/erectile pain and it's like impossible to move and you have to be careful otherwise I could literally snap my dick with the weight of my leg
I now have a very hard stream to control and curves toward my curve
My orgasms lack flow

Basically I ignore it but I still have very obvious symptoms that make me adjust my life so it's hard to look the lather way. The biggest thing is the pain but all those suck


28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Sonic

Quote from: FrankPD on December 26, 2022, 11:06:11 PM
I'm even more uncomfortable when I'm watching a sport with friends, at the parents' house and a bent carrot commercial comes on.  I mean, we're watching football on Christmas with like 15 people and they played that commercial.  Come on!

LMAO!! I saw that commercial for the first time last night during a sports stream!!

I was like you gotta be feckin kidding me. It literally felt like life pranked me.

A xiaflex commercial full of curved carrots in all different shapes and forms.

Follwed by the slogan: Visit Www.Bentcarrot.com for more info.

;D ;D ;D
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

richie2222

When you talk about being in pain, where specifically are you in pain.  Over the last month or so I've had pain near where my right hip bone meets my groin.  Not sure if it's related to peyronies or a muscle pull from working out.   I do of course get the occasional pain in my testicles but that happens on and off randomly for a short period of time.  My pain near my groin is constant.

Just curious where the pain in related to peyronies.  I'm at about 20-25 degrees to the left and haven't had any hinderance from sex yet, thankfully.
41 M
20 degree curvature to the left
Diagnosed Aug 2022
Also have BPH (I think finasteride caused my Peronies)
Currently on 2.5mg cialis  and 400mg of Pentox (twice a day)
Started Restorex on 11/17/22

FrankPD

Quote from: Sonic on December 28, 2022, 06:05:07 AM
LMAO!! I saw that commercial for the first time last night during a sports stream!!

I was like you gotta be feckin kidding me. It literally felt like life pranked me.

A xiaflex commercial full of curved carrots in all different shapes and forms.

Follwed by the slogan: Visit Www.Bentcarrot.com for more info.

;D ;D ;D


@Sonic

Yooo!  When I see this commercial I feel guilty!  It came on during football on Christmas or Christmas Eve and I felt like everyone was staring at me!  Also feelings as if I'm guilty of something but I won't admit to it!  

;) :-[

I have a girlfriend
Age 47, No injury
Diagnosis January 2022  
Six plaques
Hourglassing when flaccid and semi-erect
Only have my congenital curve
Massaging with vitamin E cream twice a day 
5mg Tadalafil, Healthy diet
Discomfort/aching sometimes

gobbler

im 25 and I have not been able to have sex for close to 3.5 years now. I have seen no improvement and I do not expect that it will ever improve in my lifetime again. my relationship with the opposite gender is quite pathological at this point and I dont even engage in anything, basically live life as an asexual by force at this point. sometimes I even forget that it is this way because its been SOO long its just a normal state now. first I panicked, the first year, then I just got depressed  
diagnosed with peyronies disease in Feb. 2020
mid 20
tried VED without much success, Cialis and potaba
single

Indenialguy

Quote from: gobbler on December 29, 2022, 07:14:46 AM
im 25 and I have not been able to have sex for close to 3.5 years now. I have seen no improvement and I do not expect that it will ever improve in my lifetime again. my relationship with the opposite gender is quite pathological at this point and I dont even engage in anything, basically live life as an asexual by force at this point. sometimes I even forget that it is this way because its been SOO long its just a normal state now. first I panicked, the first year, then I just got depressed

Why can't you have sex? Do you have too strong of a curve/bend? Or is it erectile-dysfunction related?

Sorry to hear things are bad for you but don't give up hope, from the information youve provided it seems like you haven't exhausted options such as surgical routes yet? You're a young man and nothing stays the same forever, good or bad, so don't give up hope just yet.  
32 yo UK
Engaged with two young children
Injured 2017, healed
RE injured Sept 2022
Chronic flaccid pain since 2nd injury
Starting 5mg cialis daily, trying to obtain pentox online

Possible hard flaccid, possible Peyronie's, possible nerve damage

Curvekiller94

So in theory I probably "could" have sex but it feels like it will be the last time. My ex and I tried a few times and it ended with me in total embarrassment. With my curve and my indentation near the base my penis Is prone to bending to the left. I also don't get as hard as I used and I need a lot of manual stimulation to get to wear I would be able to penetrate. But then I have pain still and I have had pain for over 2 years and it causes me trouble staying hard because it hurts. If I have further injury idk what I would do. I seem to have 2 plaques one just under my glans on the shaft(this is the one that hurts most during sex it's a cold numb pain that gets worse with duration of erectile and sex) the next is near my base which causes a pretty severe dent that my penis rotated towards

My penis used up stand up on its own now I would need to  hold it during sex to make sure it doesn't move in the wrong direction. I even bought a special "fleshlight like silicone toy that has a wide entrance for men with Ed" to practice with my "new" dick and I couldn't even with like alot of lube I had to be in a super specific position and even that felt scary like I was risking every thrust. I tried cialis for some reason the peyronies doc near me doesn't prescribe it and the specialist is out of my insurance. So I had to ask a family friend as a personal favor to perscribe me it because my dad had hearing problems and flushing come up with viagra and he told me to not even try go to cialis. He is a doctor as well.  


I already have sensation loss, constant pain worse after sex always, a pretty significant curve to the point where I can't even masturbate the same because it is more of a "hook" the way the head curves and it's very unnatural to wield lol

I really appreciate the positivity I'm not giving up don't worry it's just really hard sometimes and I don't have anyone to talk to and I really can't afford a councilor at the moment. I recently became abnormal engineer  but I still have all sorts of school debt. It's just so damn annoying to me. What bothers me more is most of the doctors here don't even help. I had to beg a rumatologist for pain meds because none of the other docs believe my pain I have neuropathy and groin pain 24/7. Had to beg to get out on pentox cuz the peyronies "speicalist "wouldn't so I went to my primary, Every time I have sex it's worse than before sex, they say it's not connected to the pain in my penis but it's the same pain I feel it!  but I've had mri's, been to back specialists, peyornies specialists, a billion different bs opinions that got me no where and I spent thousands and wasted months. I don't even know wtf I have cuz no one seems to believe me and they act like it's in my head. I used to be a boxer I know what pain is and this crap hurts. I wasn't sleeping and waking up due to pain and when I took pain meds all the sudden I could sleep (tramadol actually generally has an awake feeling not a tired feeling but I need it to sleep)

They're like oh yeah you do have peyornies.
Im like Oh so that explains the pain right?
They're like Oh no peyronies doesn't typically have peyornies pain.
Im likeWell I never had this pain pre  peyornies  and post peyronies I do? Well it seems pretty obvious where my pain is from.

They're like go see other specialists
Other specialists well you look good here

I even got a hernia repair that did F^@$!ng nothing lol it's just so exhausting not knowing what I have and then having peyronies on top of it I'm sorry for venting I'm just at my witz end everyone makes crap way harder than it needs to be and I have to put up with it. But that's life I guess


28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Curvekiller94

The specialist near me isn't a true specialist she just knows the most about peyornies in Wisconsin which is pretty much nothing. The real "specialist" told me to take pentox but was out of network  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Curvekiller94

My next step is to find a new doc for cialis because I don't want to ask the family friend for a refill again they are really not supposed to be doing that anyways way out of their field  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

gobbler

Quote from: Indenialguy on December 29, 2022, 04:52:10 PM
Why can't you have sex? Do you have too strong of a curve/bend? Or is it erectile-dysfunction related?

Sorry to hear things are bad for you but don't give up hope, from the information youve provided it seems like you haven't exhausted options such as surgical routes yet? You're a young man and nothing stays the same forever, good or bad, so don't give up hope just yet.

it is a combination of erectile dysfunction and pain. I do have a deformity however my biggest problem is the stretching discomfort. it is not the usual pain that one might have during active phase of peyronies, it is not an inflammatory pain. more so, when I get an erection, it feels like stretching a tendon that has been surgically shortened, like there is some loss of overall elasticity. as if the tunica around the erectile bodies is way to tightly sealed for it to expand. and this is on the entire left side of the penis making erections very uncomfortable and not enjoyable. my theory is that there is some diffuse fibrosis across the left side of the penis that causes this sensation upon expansion. I think the sensation influences the ED to some extent and vice versa

I have talked to my doctor and there is no surgery for this, my main thing is hour glassing and he deemed a grafting surgery way too risky and invasive at my age which I agree with.  
diagnosed with peyronies disease in Feb. 2020
mid 20
tried VED without much success, Cialis and potaba
single

ohnoohno

Quote from: IwillbeatPD on December 26, 2022, 05:26:45 PM
Hey Curve,

First of all, myself and probably most single guys here can relate to how you feel. I'm 4 months in, and for me that's a long time of not having sex. I'm 36 so I consider myself to be in my prime and I certainly don't want to waste this time. I do take comfort in knowing this is temporary and there will be an end to this story one way or another. Whether it be natural healing, surgery or implant...I'm getting past this.

Can I ask what your next steps are? 2 years is a long time, so I'm assuming you've tried some things in your bio but they haven't been successful. What's the next step for you? And how far are you willing to go to get back to your normal sex life. I don't want to be naive since I'm new here, but there's no way I'm waiting more than 2 years to be having sex again. If I haven't reached a comfortable place by then I'd imagine I'd have an implant.

I really like and appreciate your positivity, I am wondering why you mention you take comfort in knowing its temporary, as you believe there will be a cure or some sort? Or you can just get implant for example?

Thats kinda where my mind shifted recently like, well hey if end all and be all I'll just get a flipping implant and I'll be great again haha - the thought makes me feel a whole lot better than I'm screwed for life, despite still being in my twenties
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Curvekiller94

Yeah the implant is a good step for most - the problem for me is that there is no studies to show patients with pain prior to implants vs after. And pain is my main symptom. Ovvusouyl curve and indent is a problem too for structural reasons but if I wasn't worried about future other problems involving pain or making my current pain worse I would be much better off. I really hope someone figured out a breakthrough soon but if all else fails I will get an implant. I will likely go to visit eid this year as I have already had a virtual appointment. It will be interesting to see what his opinion is etc
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

IwillbeatPD

I think we all need to determine what our end goal is to really be able to say "I've beat pyronies". Is your goal to eliminate pain? Maintain a hard erection?

For me, I just want to have a normal sex life where my dick works and feels like normal. Take normal with a grain of salt because I'm not expecting the exact same dick I had before. Even if I can get my hinge to be 25% better, and the appearance of the hourglass to improve through ETG, I'd be happy. That would be success to me. If I can't achieve that with natural methods or ETG, I would absolutely be pursuing an implant at the 2 year mark. There's risks with any surgery including an implant. That's life. But most of the time they are successful and life changing. So this is what I mean by I will get past it one way or another. I'm certainly not going to be on this forum in 5 years. I think a lot of people are here for years but it's for reasons within, or beyond their control as to why they can't reach a resolution. I understand some people don't have access to great surgeons, and I truly feel for those. For others, it's money. And for others, maybe their condition isn't bad enough to warrant any type of surgery (ETG or implant)-which I understand also. So many people in so many different situations.

But for me, I feel confident this story will have a happy ending one way or another, just not sure how the "story" will play out over the next 2 years. I guess that's up to my penis lol
Fit 37 year old athlete. Hinging and hourglass began Sep 2022. Tried VED, Restorex, tadalafil with no improvement. Implanted by Dr Hakky 11/28/23 with Titan touch XXL 26 cm no RTE's. Pre op 8.25Lx 5ish G. Post implant: 8.25 L x 5.5 G

ohnoohno


My end goal to this is to just have a working penis, regardless of how different it'll be from my original one. If it can get hard and I can have a normal sex life I've "beat peyronies" so to say.

I've taken a step back from dating since this has happened but going to try get back into it  
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

blex

Quote from: Curvekiller94 on December 29, 2022, 10:26:43 PM
They're like oh yeah you do have peyornies.
Im like Oh so that explains the pain right?
They're like Oh no peyronies doesn't typically have peyornies pain.
Im likeWell I never had this pain pre  peyornies  and post peyronies I do? Well it seems pretty obvious where my pain is from.

How similar experiences can be around the world.
Had about 30 appointments so far in total, no help so far.

It's the 24/7 pain that gets me. No sex sucks, especially when you had an awesome sex life before.
There is a lot of other things to do in life, but I can't enjoy them because of the pain.

Starting to loose track in my job and studies. Use games to distract me but cant enjoy them really.
I want to travel, go out, have fun with friends, mod my car... It's like all colors from life are gone.
At least I have a wife that got my back but I feel guilty for dragging her down.

Honestly sometimes I consider chopping the thing off.
Sex be damned, I want a moment of painfree happyness again.
Going to literally beg for pain meds at my next docotors appointment.
36 years old, married
---
Symptoms since trauma in July 21:
First calcified nodule in septum near glans
Multiple calcified plaques developed on top
Pain (flaccid/erect), 75° upwards curvature, hourglassing
---
Nothing helped, looking for surgery now

thegreycat

Quote from: blex on January 09, 2023, 05:45:01 AM
It's like all colors from life are gone.
At least I have a wife that got my back but I feel guilty for dragging her down.
Good god this hit me hard. I 100% could have written this. I'm so sorry you're feeling like this, friend.
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

Curvekiller94

Yeah I totally feel the black and white life. I'm in Florida and there are pretty woman everywhere and it just feels like they are colored in black and white for me. Girls want to go party everyone is excited but me.

My goal is to eliminate my pain but so far nothing has proved effective. Even tramadol and Vicodin can't fix the inflexibility of my flaccid dick which results in a stretching feeling and pain depending on the position I am in(not sex just laying down or standing somehow no matter what my dick finds a way to be noticeably uncomfortable.

I plan to go to the fanciest hospital I can find in New York and tell them if my undiagnosed groin pain, penile pain, testicle pain, and all the things I have tried including a hernia surgery.

If they can't find anything else I will go on with the implant process. I can no longer waste any more of my life to this terrible disease.

Having this In my late twenties really f'~c<+d things up. The relationship it ended, the girls I've turned down since the relationship, my friends wanting me to go chase girls when I know very well if I actually "scored" when I got to the goal line I wouldn't be able to tap it in, it all jjst wares on my salinity. My social interactions took a major nose dive across the board and just fighting the urge to turn anything into an outburst I just want my sex life back. I want my pain free life back I need to have both or at least close to both. I don't need my penis perfect but I need to be able to use it and feel pleasure from it. I can feel I'm not numb but I have this full burning sensation that gets worse with activity and i feel like a straw could break my back at this point. I can no longer "take a joke" I take everything so literally especially sarcasm. I pray something goes back to normal in my life. Until then I'll be pissing crooked on the floor and jerking off slowly with two fingers trying not to damage anything but it doesn't matter it'll hurt after
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

ohnoohno

Quote from: blex on January 09, 2023, 05:45:01 AM
How similar experiences can be around the world.
Had about 30 appointments so far in total, no help so far.

It's the 24/7 pain that gets me. No sex sucks, especially when you had an awesome sex life before.
There is a lot of other things to do in life, but I can't enjoy them because of the pain.

Starting to loose track in my job and studies. Use games to distract me but cant enjoy them really.
I want to travel, go out, have fun with friends, mod my car... It's like all colors from life are gone.
At least I have a wife that got my back but I feel guilty for dragging her down.

Honestly sometimes I consider chopping the thing off.
Sex be damned, I want a moment of painfree happyness again.
Going to literally beg for pain meds at my next docotors appointment.


Could you get an implant?
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

blex

36 years old, married
---
Symptoms since trauma in July 21:
First calcified nodule in septum near glans
Multiple calcified plaques developed on top
Pain (flaccid/erect), 75° upwards curvature, hourglassing
---
Nothing helped, looking for surgery now

Bud luck

If you don't have Erectile Dysfunction or a deformity that makes penetration impossible do not do the implant.  
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

ohnoohno

Quote from: blex on January 14, 2023, 01:08:49 PM
Why would I? I don't have Erectile Dysfunction.

I thought it might just cure anything related to this Peyronies Disease mess, say if you got a bend, ED, pain, anything if just getting an implant solves it? I have no idea so if anyone knows?
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Curvekiller94

Well it is of a last ditch effort is my opinion. For curve, stability during sex and preserving length it's a great option. Dr eid said he is unsure why but when men get the implant their peyornies pain is "gone" sounds to good to be true to me. But I am going down the list trying to fix the pain, if I can't then I willl try implant with eid. I plan on proceeding this spring or winter with dr. Eid for further consultation  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

ohnoohno


Well that sounds like a good sign if it could fix the pain, I haven't really had pain for most my 5 month journey but the last month or so its started to feel some pain whilst im getting hourglassing. unfortunately.

Has anything helped your pain?

Mine doesnt hurt when flacid just when hard. I want to have sex soon so wondering what I can do in advance to make it as OK as possible lol!  
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

thegreycat

Curvekiller94 - I have found that using a VED daily has reduced my pain to almost nothing. I still get the flaccid aches here and there, but my daily discomfort and erection pain are mostly things of the past.
Unfortunately it's done nothing for my deformity or associated ED, but pshychologically at least I'm in a better place than I was a few months ago in the midst of constant flaccid ache and extreme erectile pain and I have the VED to thank for that.
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

Indenialguy

32 yo UK
Engaged with two young children
Injured 2017, healed
RE injured Sept 2022
Chronic flaccid pain since 2nd injury
Starting 5mg cialis daily, trying to obtain pentox online

Possible hard flaccid, possible Peyronie's, possible nerve damage

blex

Quote from: ohnoohno on January 15, 2023, 01:02:08 AM
I thought it might just cure anything related to this Peyronies Disease mess, say if you got a bend, Erectile Dysfunction, pain, anything if just getting an implant solves it? I have no idea so if anyone knows?
I did not mean to sound harshly.
If an implant means I will be done with all this, I will gladly go down that route. But till now, my doctors do not seem to agree.
I have another appointment at Monday, seeing the only German doctor who did xiaflex injections, will report how that goes.
36 years old, married
---
Symptoms since trauma in July 21:
First calcified nodule in septum near glans
Multiple calcified plaques developed on top
Pain (flaccid/erect), 75° upwards curvature, hourglassing
---
Nothing helped, looking for surgery now

orriw

Hello Greycat.
Do you had Flaccid pain that got solved?

Also here is a general advice for doctor visits:
You have to make a list before the meeting what you want from them. Because yes, most do not know much about this disease. So reserach before which prescription medications (2-3 for every doctor meeting) you would like from them, explain why, and from my experience, they will usually give it to you. Then you can test that for some time, and if nothing works, search for new medications or treatment options, like osteopathic therapy or pelvic floor therapy.
26y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

Curvekiller94

What was your VED protocol I can never not get a full erectiio. In the vacuum tube so I am scared of it. I hurt myself once trying VED and haven't gone back  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Hawk

A reminder this is the Psychological Aspects board, not one of our many penis treatment boards.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums