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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: Rationalizing my life with Peyronies.  (Read 7115 times)

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GS

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Rationalizing my life with Peyronies.
« on: July 13, 2011, 03:40:03 PM »

Gentlemen,

First of all, I just turned 61 and I got Peyronies on my 58th birthday, so I have been dealing with this SOB disease for 3 years now.

The other day I started thinking about how much it has changed my life and I came up with the following:

Before Peyronies, I was having sexual intercourse a couple of times a week.
With the help of the VED and the PAV cocktail, I am now having sex a couple of times a week.

Before Peyronies, I very seldom woke up with an erection.
Now, I wake up with one almost every morning...it's curved, but it's a bonafide hard-on.

Before Peyronies, I very seldom thought about how long and straight my dick was.
Now, I think about how long and straight it used to be on a daily basis.

My final thought was...2 out of 3 ain't bad?!?!

GS
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restore

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Re: Rationalizing my life with Peyronies.
« Reply #1 on: July 14, 2011, 12:35:44 AM »

GS,

  Regarding your last point, I do the same.  Guess you don't know what you got til it's gone.
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fubar

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Re: Rationalizing my life with Peyronies.
« Reply #2 on: July 15, 2011, 01:23:10 AM »

Rationalizing and putting things Into perspective  are two different things.Rationalizing,  I have this disease.Perspective, where do I go from here.

To rationalize, yes this sucks. To put in perspective this is our lives and change.What we are trying to occomplish cope or resolve?

I like to think we are working on both! You have to open your minds to the treatment it is not a cure but an ongoing manual to what has worked many men here.

Most of what I have read here has helped me I get better everyday.Remember all these treatments take time for change.


What do you have to lose,  keep working your own therapy and do not give up!
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TSteve

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Re: Rationalizing my life with Peyronies.
« Reply #3 on: July 15, 2011, 05:58:35 PM »

GS, what do you put your continuous morning erections down to?

The VED use? Not the Peyronie's I take it.
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torn

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Re: Rationalizing my life with Peyronies.
« Reply #4 on: July 17, 2011, 03:30:30 AM »

Started showing symptoms of peyronies about 3 years ago. I am 28 now. You are so lucky to have made it to 58 before you got this curse. I'd do anything for another 30 years of a normal dick again.

Then and now...

Before Peyronies Disease I was waking up with rock hard erections everyday.
Now, I wake up hard maybe 3 times a month, and it isn't even a full erection.

Before Peyronies Disease I was able to achieve an erection instantly whether from a thought or visual stimuli.
Now, I couldn't get hard from a thought if my life depended on it.

Before Peyronies Disease I was having sex about 4-5 times a week.
Now I am able to have sex maybe 3-4 times a month with a lot of effort.

Before Peyronies Disease my penis was straight and full.
Now my penis has a slight bend to the left and has the hourglass appearance to it. It feels cold and numb even if I'm outside in 90 degree heat. It shrivels up and retracts into my body...

Before Peyronies Disease I was a happy person loving life, and this may sound shallow, but a big part of my happiness came from the intense pleasure I got from sex.
Now, I wake up every morning with my limp noodle hoping that something will happen to me at some point in the day that will take me out of this life. I'm definitely ready to go.

When I think back to 3 years ago and prior when I was healthy and normal my mind instantly goes into a very dark place. I sometimes wish I never had a normal dick because then I wouldn't know what I was missing so it wouldn't bother me as bad. But now, remembering how intense and great sex was and living with what I have to live with now just kills me so emotionally that I feel nothing but despair and hopelessness.

Anyways, sorry for being so depressing. As you know we can't just talk to anyone about our condition outside of the internet, so I vent out my frustrations here.
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sgtnick

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Re: Rationalizing my life with Peyronies.
« Reply #5 on: July 17, 2011, 05:59:45 AM »

torn

Most everyone here has been through, or is going through, or will go through the same thing, although, each circumstance may be somewhat different.  We all have run the gamut of negative emotions: denial, embarrassment, pity, contempt, anger, depression, etc. etc. etc..........Some of us travel very rapidly and some of us travel very slowly.  Personally, I got stuck in anger but even that worked to my advantage.  I learned in the Marine Corps that there is a solution for every problem.  After I worked through the anger "the problem became an unsolved opportunity."

The more I learn about Peyronies Disease, the more I am convinced that knowledge is power. To get through this disease, I had to go through this disease.  After almost 4 years I am experiencing a relatively successful recovery.  I am persuaded that my solution was/is a Penile Prosthesis.  I am into my 7th week and progressing nicely, (but not without a lot of pain).

I can guarantee you one thing:  You will find a solution if you do the deal.  Listen to Old man, George, Hawk and the rest of the guys that are responsible for the success of this forum.  Also, consider trying anything that produces positive results.

Good luck

Semper Fi
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Old Man

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Re: Rationalizing my life with Peyronies.
« Reply #6 on: July 17, 2011, 08:03:24 AM »

Sgtnick:

Well said, could not have said it better myself.

Torn:

As the Serge says, listen to what your peers are saying in their posts on the forum. You have to overcome the negative with positive and press on. Remember, I have been dealing with this horrible mess for over 58 years now and still have sexi with a straight and hard dick even if it takes the VED to get it up!!!

Old Man
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Age 92. Peyronies Disease at age 24, Peyronies Disease after radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction.
Many other surgeries in the last 10 years.

GS

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Re: Rationalizing my life with Peyronies.
« Reply #7 on: July 18, 2011, 10:05:29 AM »


GS, what do you put your continuous morning erections down to?

The VED use? Not the Peyronie's I take it.

TSteve,

I don't think there is any doubt; the improvement of morning erections is a combination of the Pentox, Arginine and Viagra cocktail along with the VED.   I'm using 100mg generic Viagra pills which I divide into 20mg pieces.

GS
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infiniti

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Re: Rationalizing my life with Peyronies.
« Reply #8 on: December 30, 2011, 02:26:27 PM »

Torn,
I am 39 and have had Peyronies Disease since I was 35. The points you have noted are all too familiar in my own circumstances. It's one helluva curse to get your head around. I do not think my head is straight over this yet either.
I was always very sexually active (but no tart !) but be very lucky to even have the urge anymore. I want my mojo back !!
Is Pentox a viable option from a British GP ?


Started showing symptoms of peyronies about 3 years ago. I am 28 now. You are so lucky to have made it to 58 before you got this curse. I'd do anything for another 30 years of a normal dick again.

Then and now...

Before Peyronies Disease I was waking up with rock hard erections everyday.
Now, I wake up hard maybe 3 times a month, and it isn't even a full erection.

Before Peyronies Disease I was able to achieve an erection instantly whether from a thought or visual stimuli.
Now, I couldn't get hard from a thought if my life depended on it.

Before Peyronies Disease I was having sex about 4-5 times a week.
Now I am able to have sex maybe 3-4 times a month with a lot of effort.

Before Peyronies Disease my penis was straight and full.
Now my penis has a slight bend to the left and has the hourglass appearance to it. It feels cold and numb even if I'm outside in 90 degree heat. It shrivels up and retracts into my body...

Before Peyronies Disease I was a happy person loving life, and this may sound shallow, but a big part of my happiness came from the intense pleasure I got from sex.
Now, I wake up every morning with my limp noodle hoping that something will happen to me at some point in the day that will take me out of this life. I'm definitely ready to go.

When I think back to 3 years ago and prior when I was healthy and normal my mind instantly goes into a very dark place. I sometimes wish I never had a normal dick because then I wouldn't know what I was missing so it wouldn't bother me as bad. But now, remembering how intense and great sex was and living with what I have to live with now just kills me so emotionally that I feel nothing but despair and hopelessness.

Anyways, sorry for being so depressing. As you know we can't just talk to anyone about our condition outside of the internet, so I vent out my frustrations here.
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reality

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Re: Rationalizing my life with Peyronies.
« Reply #9 on: February 01, 2012, 05:31:57 PM »

Hi

Good to hear some lighthearted comments...congrats on only getting this at 58...i got it a couple of years ago,....hope your treatment options keep giving you results...
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Worried Guy

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Re: Rationalizing my life with Peyronies.
« Reply #10 on: February 01, 2012, 06:25:24 PM »

I believe you will struggle to get a British GP to prescribe pentox!  You will have to go to a urologist who you know prescribes it and that involves a referral from a GP.  PM me if you like. 
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infiniti

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Re: Rationalizing my life with Peyronies.
« Reply #11 on: February 08, 2012, 02:46:35 PM »

My GP will not prescribe pentox as the drug was not designed for Peyronies and wants to refer me back to my urologist who in my honest opinion was not the most helpful the last time I seen him ::)
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LWillisjr

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Re: Rationalizing my life with Peyronies.
« Reply #12 on: February 09, 2012, 05:49:02 PM »

Find a new doctor..... don't let them bounce you back and forth.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
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Worried Guy

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Re: Rationalizing my life with Peyronies.
« Reply #13 on: February 09, 2012, 06:44:06 PM »

If you live in the UK under the "right to choose" option you can ask your GP for a referral to see whatever Uro you want. 
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