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Author Topic: How long are wait times usually?  (Read 206 times)

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restoringdthrowaway

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How long are wait times usually?
« on: December 05, 2022, 09:40:40 AM »

From requesting an initial consultation to the date of the surgery
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24M, following injury in 2019 have 35 degree lateral curvature, pain, mild to moderate erectile dysfunction, hard flaccid.

Muttley

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Re: How long are wait times usually?
« Reply #1 on: December 07, 2022, 07:19:54 AM »

Hi,
I had a consultation on the NHS in May. I was advised that surgery would be in December or Jan. I have not received any notification since then.
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Late 50s
Official diagnosis 12/2021
Bend at the end @70 degrees upwards/@20 left
RestoreX twice daily
Daily Supps: L-Citrulline, Pycnogenol, Cialis 5mg daily, Mg and Cu

Muttley

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Re: How long are wait times usually?
« Reply #2 on: December 07, 2022, 07:21:10 AM »

I forgot to add that going private is of course much quicker with waiting times counted in weeks rather than months.
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Late 50s
Official diagnosis 12/2021
Bend at the end @70 degrees upwards/@20 left
RestoreX twice daily
Daily Supps: L-Citrulline, Pycnogenol, Cialis 5mg daily, Mg and Cu

thegreycat

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Re: How long are wait times usually?
« Reply #3 on: December 07, 2022, 04:27:21 PM »

I got my referral in early August, still waiting. I had a letter last week saying that I was now on the waiting list, so I guess that's 5 months just to get ON the waiting list.
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35. No injury. Lump Feb 22.
Still waiting on Urologist referral.
Large dent, left hand & upward hinge 50deg. Bad erections.
Supportive partner but severe depression.
Vit E 1000mg, VED Oct 22. Cialis 5mg Dec 22. Only worsening since.

MiddleAgedMan

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  • 55, diagnosed Peyronie's in 2019, surgery 2022
Re: How long are wait times usually?
« Reply #4 on: December 08, 2022, 04:32:18 AM »

I was put on a waiting list in September and was lucky to get a last minute cancellation, had the surgery yesterday. Will be posting separately about it, but so far so good.
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Diagnosed in 2019 initially ventral indentation, hourglassing w/ slight rightward curve
In 2020 developed dorsal curvature, ~70 deg
Tried traction (PMP), VED, heat, vitamin E, no change
Modified Nesbit surgery Dec 2022, <10 deg

Gap63

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Re: How long are wait times usually?
« Reply #5 on: January 11, 2023, 10:15:36 PM »

My consultation was in June 2022 (by video)

Dr confirmed I required an implant (no insurance)

Surgury in September 2022 - Dr Clavell

Could of been earlier but I had to organize flights from overseas, and accomodation in Houston
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Peyronie's Disease for 6 years
Titan touch 20cm + 1 RTE
Dr J Clavell, Houston, Sept 2022
Age 58

ohnoohno

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Re: How long are wait times usually?
« Reply #6 on: January 14, 2023, 09:08:48 AM »

I forgot to add that going private is of course much quicker with waiting times counted in weeks rather than months.


Are you waiting on a certain doctor or just any? I'm thinking of finding someone with real experience. I'm also from the UK.

Any knowledge on how much private could cost too lol? I have no idea..
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28yo, diagnosed Peyronies Disease 13/6/22, 30dg curve to right/slightly down, Erectile Dysfunction, indentation, shortening 1inch+

urologist gave me cialis 5mg to take daily and SOMAcorrect

praying i can get this under control asap, restore length/avoid Erectile Dysfunction

ohnoohno

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Re: How long are wait times usually?
« Reply #7 on: January 14, 2023, 09:10:53 AM »

I got my referral in early August, still waiting. I had a letter last week saying that I was now on the waiting list, so I guess that's 5 months just to get ON the waiting list.


Would you not go private to speed it all up? Is it costly?

I'm only 28 but this pretty much messed up my sex life the past 6 months (none), and I want to at least be in my early thirties with a "normal" penis - want to just get an implant or something...

Does it fix everything?
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28yo, diagnosed Peyronies Disease 13/6/22, 30dg curve to right/slightly down, Erectile Dysfunction, indentation, shortening 1inch+

urologist gave me cialis 5mg to take daily and SOMAcorrect

praying i can get this under control asap, restore length/avoid Erectile Dysfunction

Stepone

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Re: How long are wait times usually?
« Reply #8 on: January 15, 2023, 07:33:30 AM »

Dr Eid is located in NY.
I think  his implant surgery is about $28,000, but you can Google him and obtain lots of information via YouTube and his websites.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC
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