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FlyGuy876

Well, after finally getting through the insurance nonsense, my Xiaflex injections were approved in an office setting and not in a pharmacy setting (well duh, not like anyone would want to administer this on himself). Once approved by insurance, the copay paid ($95) to CVS and shipment sent, the Dr's office called to set up the appointments (Gulp, I guess this is really happening). After being approved, things went very quickly. Quite impressed for once.

Wednesday (11/30) and Friday (12/2) I received my two injections. I will admit I was very nervous and scared with this whole idea of an injection in my man parts. For those who have not experienced it yet, I must admit, I felt more pain with the shot for my Ultrasound for diagnosis. It wasn't too bad and didn't last too long. The next morning there was some bruising and swelling down the shaft but nothing to be concerned with other than it not being pretty. Friday, having been through this once before two days prior, the shot wasn't as bad considering the bruising and swelling. The second shot has added a little more bruising and swelling but no other side effects. It is a little more sensitive but once again, nothing nearly like what we read about it when researching this. I think between both shots I have only taken two doses of Tylenol (325mg) and to be quite honest, probably could have forgone that.

I was able to do some stretching exercises Wednesday and Thursday (non-erect ones) and didn't have any pain. After Friday's injection I have not done any as it is a little more bruised and sensitive. Once that clears up, per the Dr., I can then start stretching it.

Please do not ask for pictures as I will not be sharing them, but will happily answer any questions. Hopefully by sharing my experiences, it can ease other's minds who are in the same situation. I will also post progress reports on how things go. I have my follow up scheduled in January and will also see and share what the Dr. says.

For those of you in my shoes, you've got this!
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Dorian

Thanks for the report. Glad it was overall fairly seamless for you.

I'm right behind you in that my insurance just approved and CVS pharmacy is trying to coordinate with me and my doc office. So, I'm on the cusp.

I have a few questions:

Are you using RestoreX? Or are you just doing manual stretching exercises?

Did you doctor wrap you? I was reading Dr. Trost's explanation of his method which seems to have higher rates of success. I'm not understanding how stretching would work exactly if you are wrapped. (Not that I'm sure if my doctor even does or recommends wrapping.)

Was VED mentioned? As goal is to stretch, or maybe even break, the plaque while it's compromised from the Xiaflex, I'm also curious why VED is seemingly not talked about with Xiaflex. Per Dr. Trost, Cialis is to create internal traction so it would make sense to me that VED would do the same. And especially so for folks like myself with hourglassing and denting.

Thanks again.

Dorian
47
Noticed less morning, and less strong, erections 2020
Noticed dents/groove/hourglassing/hinge near base 2021.
Urologist had me start Pentox, Vit E, Cialis, RestoreX.
I also started VED and all supplements in the guide.

FlyGuy876

To answer your questions:

1. RestoreX - I am not using it. I was able to do some manual stretching the day after shot 1, but had to wait until last night after shot 2.

2. He didn't wrap me. The shots were administered and the stretching explained.

3. VED - the booklet I received from Xiaflex strongly recommend NOT using VED's due to how the shot works and the damage I guess it can cause.

Update: bruising/swelling is going away, sensitivity coming down and can tolerate stretching more. Pain has been non-existent and "junk" is slowly not becoming an eye sore anymore.  
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Mr man

Hello flyguy,

Have you experienced any positive results?
Latest routine. Started l-lysine 3mg daily, l-proline 5mg daily. Increased vit c intake. Accompanied with almost daily vacuum therapy. Pumping to 100% Exercise caution! Made good progress. L arginine supplements and prescribed potaba are helping.

FlyGuy876

Hello!

My apologies for not posting back sooner. Been busy with work/life/family. So, after the first round didn't really see any change. We decided to go for round 2 (which should be administered soon) as it can take a few rounds to see change, per the Dr. Curious if it is even worth it and if surgery is the better solution then this game and drawn out process, especially after seeing the cost/insurance break down for this. CVS Speciality sure misled me on the cost. Oh well, ugh!

I'll update again after 2nd round. Sure hoping minimal pain and bruising is the same as the 1st time.
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FlyGuy876

OVERDUE Update

So, back in late March, I had my 2nd round of Xiaflex administered. Yep, the two shots still sucked but this time, I knew what was coming. However, after my 2nd shot and some modeling with an erection a few days later, felt something pop on left side, bruising was accelerated and per the handout, called the doctor and got in to be seen fearing the worst.

My doctor informed me I could have felt some scar tissue loosening up and maybe some we didn't know was there as the injury was a little more to the top of the penis. He said the bruising would get even worse but assured me it was penial fracture despite how the pamphlets make it sound. It was UGLY! I had to ICE and rest for a week. I didn't do any more modeling until the bruising had subsided a lot.

Afterwards, I continued some of the non-erected stretching as I was still mentally shaken at the thought of what happened. It was almost like I was scared of getting an erection for the sake of not believing the doctor. Then one morning I woke up with some morning lumber and had to pause for a moment because what I was seeing was no where near the angle I was used to seeing. Literally no more 60 degrees as originally diagnosed. It was literally almost 0 percent on the angle tool originally given. Checked this several times again prior to my follow up appointment.

After my follow up and the pictures I have taken and the erections I have experienced, Xiaflex worked after two rounds of treatment. With a solid erection it is pretty much straight. Nothing worth doing round 3 per the doctor. Is it perfect like when I was 20, no, but considering where I am in my life and how straight it is and how it has helped with naturally getting erections, no complaints from me or the wife.

Now time to get snipped! After having four injections in my penis, getting snipped should be a walk in the park (or at least I hope).

Hopefully, my story helps someone else who is contemplating on surgery versus Xiaflex. If the doctor suggests, Xiaflex as an option, try it folks but don't get hung up on the scary crap on the pamphlet like I did. Keep fighting!!
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MRowdy

Did you see little to no improvement after the first round of injections? I had it down three weeks ago and I definitely had hoped for more improvement on curvature. Dr Trost says a second procedure should do the trick.

Still wondering if you ever get back to feeling or looking normal again.  
55 yo. 2019 lower right indentation, resolved with daily Pentox, CoQ10, Restorex. Came back Nov 2022 with upper slight right curve, May 2023 upward curve started. Since Sildenafil, Pentox, CoQ10, Restorex recent PRP injections & VED.