Confused about progression.

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Sierra2014

Hey guys. I just joined that forum and man I wish I had found it earlier. I'm 32 years old.

This confusing journey started 8 months ago when I noticed a definite hourglass when becoming erect. Things filled out okay after that and since then I've noticed the hourglass in flaccid and semi erect state only but it is very hit and miss. I made an appointment with a urologist but they couldn't get in me until last week. In the mean time doing a lot of online reading I just hopefully chalked it up to hard flaccid because my penis has always gone between and long flaccid to shrivelled. And since there was never any pain with or without an erection I was hoping it wasn't peyronie's

At my appointment the doctor felt my penis for about 2 seconds, said there was very minor calcification. Said there was nothing he or I could do about it and come back in 2 years if I can't get an erection because at that point I would have nothing to lose and we could talk about surgery. Since the appointment I have felt a dull pain in my flaccid penis come and go.  Does it make sense for pain to start 8 months after first noting it? At this point I'm not sure if I'm making it up in my head. I left the doctors more confused and lost than before.

After reading this forum I realize there is quite a bit of stuff you can try and really wish I had started it earlier. Made me even more disappointed in my doctor visit as he really didn't seem to care or know there are other options.  Sorry if I lost anyone in all that but my question is it normal for pain to start after 8 months? I'm not even convinced the doctor didn't just say I had calcification and he couldn't do anything to help just to get me out of his hair. He was answering my questions while he was walking out the door lol.  
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Indenialguy

I would probably seek a second opinion based on that appointment buddy. Some uros really couldn't care less. There are a number of problems that occur in the penis, peyronie's is just one of them and some bloke having a quick feel no matter how qualified he is doesn't scream "sufficient diagnosis" to me  
32 yo UK
Engaged with two young children
Injured 2017, healed
RE injured Sept 2022
Chronic flaccid pain since 2nd injury
Starting 5mg cialis daily, trying to obtain pentox online

Possible hard flaccid, possible Peyronie's, possible nerve damage

Indenialguy

Just to add to this, most uros haven't even heard of hard flaccid, and the symptoms you have certainly sound more like pelvic floor issues to me.

I'm not a doctor, but I'd say you have probable cause to seek further legitimate medical assessment.  
32 yo UK
Engaged with two young children
Injured 2017, healed
RE injured Sept 2022
Chronic flaccid pain since 2nd injury
Starting 5mg cialis daily, trying to obtain pentox online

Possible hard flaccid, possible Peyronie's, possible nerve damage

Jimmy123

Agree with the above two posts. I had a uro suggest that I had "early Peyronies Disease" then, a full 8 months later, a different uro said not...  
No deformity or ED. Discomfort (which is improving gradually). Months of stress preceded symptoms. Discomfort can be palpated on practically the whole penis but it comes and goes. I can't find plaque. Latest urologist doubts that it is Peyronies Disease.

Sierra2014

Thanks guys. I've convinced myself he was just brushing me off but started taking some of the supplements mentioned in this forum just in case because I know it might take a while to get into an actual specialist in Toronto. Mostly because I noticed it get way worse after the appointment as my anxiety went up. Also it's most noticeable in the morning after my straight erection goes down, then gets better through the day as I move around. Good for the penis but my pelvic muscles might be screaming at me for having to work for however long while sleeping. I'm going to set up an appointment with a pelvic physio as well.

I'm not saying for sure this doctor was wrong because I really don't know but if it is the case something has to change about that. They have no idea how a loosey goosey diagnosis of this with absolutely no follow up, information or support can damage someone. I won't lie my first instinct were not very good thoughts but I've reined myself in, mostly all because of this forum. The doctors always say don't read into the stuff on the internet but when they leave people with zero answers or even an interest in answering anything where else are you suppose to go. There are a lot of saints on here for guys like me. Many thanks. .

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Jimmy123

Agree with you. The second uro seemed to suggest that some will diagnose Peyronies Disease on the basis of flaccid pain/discomfort only. I was devastated after my first diagnosis but clearly it doesn't seem like Peyronies Disease. I think that quite a few people on here - flaccid discomfort, flaccid but not erect changes in appearance- may not have Peyronies Disease at all.  
No deformity or ED. Discomfort (which is improving gradually). Months of stress preceded symptoms. Discomfort can be palpated on practically the whole penis but it comes and goes. I can't find plaque. Latest urologist doubts that it is Peyronies Disease.