T.E.P (tunica expansion mesh procedure) and implant journal

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jj21

Quote from: Pfract on May 03, 2023, 07:10:04 PMAs for not getting a haircut, may I ask why you didn't feel confident to go?

It's just a bit too painful tucking my penis up and walking/sitting that far.

Thanks for all the advice guys, much appreciated.  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

ErectAngle

This is my current erect angle, I estimate around 2 o clock maybe higher.

The funny thing is, this improved recently, as I started to deflate fully and tuck my penis up in my pants more. I guess this means that my crus has not fully healed.

Things are looking okay, just hanging in there. I think patience is key.

J

 
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bud luck

You have one of the best erection angle I've ever seen, your surgeon is the best
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Stepone

I agree it's a good angle to the dangle, lol.
I am amazed how fast your penis is healing. It looks great.
I have a good angle too, because of wearing my penis in upright position too.
Keep on pumping and thanks for sharing.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Pfract


Curvekiller94

Yeah your surgeon did a very good job looks very natural hope recovery speeds up for you  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

jj21

Quote from: Stepone on May 04, 2023, 03:23:47 PMI have a good angle too, because of wearing my penis in upright position too.

StepOne, how long did you keep yours upright for? Any idea when I can expect to tuck it down and walk around comfortably? Thank you.

Thanks guys, appreciate it. Keep in mind, I improved my erect angle 3 months after surgery by tucking it up most of the time. Guessing my Crus has not fully healed, but it is good to know that, this late into the recovery, it is still possible to improve things.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Trapper

Hey guys, just chiming in if you still think your angle is low after tucking up experienced surgeons can do surgery to raise your angle. Not really sure what it is called but hakky said that is the fix for this issue and that he did it for a guy who's gf was bigger than him and he had trouble penetrating in certain positions.
33 years old, symptoms started early 20's but never really bothered me until the last two years
Trimix worked well but caused more scarring. 
Titan 24CM XL+ 1 CM RTE'S Dr. Hakky 4/4/23
Hyaluronic acid penis filler by Dr. Hakky June 2023

Sonic

JJ, how does masturbation feel now vs being uncut? The erection angle looks great.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Stepone

jj21,

I am trying to remember, but I think it was months and months, maybe 5 or 6. I could tell it was working, because when I would get naked, my penis still pointed up at a good angle.
I sometimes wore tight jeans that were a little to low rise and my penis would be under my belt buckle, so I had to be careful when bending. But I never got any people pointing at my bulge. Lots of men have belly fat, so it sort of looked like that.
I also tend to wear my penis to the right in a upward angle, so I think that helped too.
I know some guys like to have their penis down with their balls. I have never liked it, mainly because I used to have an 8+ inch penis and easily got erections, so it would be painful, if my penis was pointing downward with my balls. I always thought that was one of my reasons for the Peyronies disease.
When i was circumcised at birth, I think they cut too much of my skin, because for years I had to put lotion on my penis, because the skin was so tight, it would hurt when I got an erection.
Probably too much information, LOL,
I hope you progress well, it sounds like it.
StepOne
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Curvekiller94

Are you still getting the pain? I know originally you had thought the procedure fixed the pain. But then you said you were having pain from dog ears. Is the pain you have now a different pain and the previous "peyronies pain" is gone?  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

jj21

Hi guys, I will respond to your questions soon.

In the meantime could someone please help me, preferably Hawk or other senior members.

I have attached two pics, this is about as deflated as I can get. I have tried everything.

It kind of looks and feels like the left side is deflating more than the right. The cylinder on the left side is just easily malleable, on the right side it is still a bit stiff.

Could this mean, the left side is deflating more than the right? Or is it simply due to the dent on the left side? I am getting some pain and discomfort on the left side.

I am trying to book in to see my surgeon, it may take a few weeks till I can see him, and that will be a video consult.

Please help. I am 3 months out and really doing my best.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

Either you are still swollen, or you are only about 60% deflated.  A brand-new Titan will look like a flattened, misshapen water bottle when TOTALLY deflated.

If you read my earlier post, I told you that I did everything I could to TOTALLY deflate and wrapped my deflated penis with Coban to prevent any auto-inflation. It might be that your reservoir capsule scared in on a partially empty reservoir, and it is too late to correct it.

Keep in mind that total deflation is very important.  If you spend a couple of years with partial inflation, there is not only annoyance and discomfort but also some risk of erosion.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Quote from: Sonic on May 05, 2023, 08:20:27 AMJJ, how does masturbation feel now vs being uncut?

The biggest complaint people have of being circumcised as an adult, is loss of sensitivity. I can honestly say, I don't think I have become much less sensitive. I don't think TEP requires a full circumcision. There are different cuts to circumcision, so, it can be difficult to compare.

To answer your question, masturbation is different, not better or worse. It requires lube, but there is different sensations, as the glans and  other areas are exposed.

Behind the glans is a bit less sensitive, but this is also close to my incision. So, this may improve. Even if it doesn't, I get good sensations when stroking slowly, and fast. It isn't better or worse, just different.

If you're considering this procedure in the future, just remember, it will be difficult to compare adult circumcisions. People get circumcised for different reasons, and each cut is also different.

Hope this helps.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Quote from: Curvekiller94 on May 05, 2023, 07:19:45 PMAre you still getting the pain?  

Hey curvekiller, the peyronies pain is definitely gone. The pain I had from the dog ears has improved a bit. Nowadays, the pain is more like discomfort, I think this is just part of the healing process.

I have a few issues which I will journal about soon.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Hey guys,

I have some great news. I spoke to my surgeon  yesterday. He was just amazing, he listened to everything I said and advised the following:

Auto-inflation issue

My surgeon advised that:

-  it could be true auto-inflation;
-  it could be  the graft around the left side of the penis (I had a curve to the left), is what I am feeling as there is less tissue there. So, it looks like it's more deflated on the left, but really it's just I am feeling it through the graft;
- it could be an issue with the titan deflate valve.

He was very kind and empathetic about this issue, he also explained it a lot better and in a lot more detail than I have. Towards the end of the conversation he advised that it did sound like true auto-inflation, and that he can do a minor surgery and fill the reservoir up to fix it.

Pump too high issue

I am not sure if I journaled  about it, but my pump is a bit high and in front of the testicles. It is causing discomfort. It would also would hit a woman's body in certain positions during sex.

My surgeon was very honest and straight up about this. He advised that, because I had a sub-coronal incision, pump placement is quite difficult. He advised that, this will most likely stay the same, but he can do a minor surgery together to fix the auto-inflation and the pump. He will add tubing to the pump and lower it to a more comfortable position.

Other

My surgeon advised that the pain after orgasm will improve, so will the pain that I am having in the tips of the cylinders in the glans. This is due to being oversized.

He agreed to do the revision surgery for FREE, I am very happy about this. He will not charge gap.

I also requested the scrotal web procedure, I believe they remove the scrotal web and do a tuck, to give the illusion that the penis is bigger. It's just a cosmetic procedure.

Please note

I think the past few weeks, I have been very stressed. I really should have just spoken to my surgeon. I can confidently say that my surgeon is very knowledgeable, empathetic, kind and helpful. I avoided contacting him, as I didn't think he would be able to help from another state, but I was wrong. He was extremely helpful, gave me all the possible reasons for what was going on. He also didn't try to hide or cover anything up and just told me straight up what could be happening. And, he agreed not to charge for the revision!

A few weeks ago when I was stressing about having an infection and was under the impression that the surgeons here wouldn't be able to help much. I admit, I was wrong. I am sure if I had called my surgeons office interstate, he would have made the time to see me and talk to me.

I am calling in tomorrow to book in the revision, so, I will be travelling interstate again to get the auto-inflation and pump fixed, as well as the scrotal web/tuck procedure.

Squeak issue with pump

One great thing that has happened, and I have purposefully waited a while before journaling about it so I could be sure, the pump no longer squeaks!

I feel like the pump moved around or changed positions. I can now pump discreetly, quietly, as fast as I want. It will only squeak maybe when trying to force in a few pumps towards the end.

This makes me so happy!!

Cycling/gains

Still cycling 2 x 1 hour sessions a day. I can visually tell that I have gained some girth and length. I also put my finger around my shaft and can tell some girth has improved. I will measure at the end of May and report back with pics.

Thanks guys, I feel so much better now knowing that these issues can be fixed and also having the great support of my surgeon interstate. I will be preparing to travel and to have another surgery within the next few weeks.

If anyone has any experience with the scrotal web/tuck procedure please let me know.

J

 
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Pfract

Knowing that he offered to do a revision free of charge, to correct both issues at once is amazing. Seems like a genuinely good guy! Very interesting also to know that he could fill up the reservoir more to combat auto inflation. Never read about it, and I assumed it would have to be replaced so a new capsule could form.

Hopefully you get this fixed so you can be happy for good!
 

Curvekiller94

I'm sorry this is happening JJ but thrilled to hear the surgeon is open to revising it. This is great news I'm happy that it will not cost any more and that he is compassionate about your situation and not dismissive as many people are  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Stepone

Jj21
Sounds like you have the perfect surgeon! He seems so responsive. I wish some of the England people had him, as they were met with indignation and denial from the physicians.
I am so happy for you to get things fixed.
By the way, 3 months in penis improvement healing time after an implant is nothing.
I am 4 years into my implant and I still have improvements, smaller of course. I think even after 16 months, I was still experiencing small gains, flexibility, and greater comfort.
I feel now I am back into the mode of mind blowing sex......and I have been married for nearly 24 years.
Stay well and best wishes for your continued improvements.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

jj21

Thanks StepOne, my surgeon is great. I have heard Dr Ralph is really good for the England people.

The fact that you are having mindblowing sex at 66 years old makes me so happy!!!! And, tells me that at 34, I have over another 30 years to have great sex!!

So happy for you, keep enjoying your life!

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

I want to say that at 73, sex is no less exciting, enjoyable, or adventurous at 73 than it was at 18.  Correction, it is better than at 18 because I thought I knew what I was doing then, but I had a lot to learn.  The only difference is that though I can still enjoy sex every day, I don't have to have sex every day to keep from going crazy.  

I think sex is one of those things that is so intense that each time it is as though it's better than you ever remembered.  It cannot be verbalized, so I think the mind has trouble remembering the intensity and each time is like a brand new form of temporary insanity.  It cracks me up when young guys think sex is somehow different to older men.  It is; its better  :D  
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Hawk - I wish I could like your post twice! It makes me so happy knowing that you guys are enjoying sex at 73. Just shows that us younger guys shouldn't be down about ED ect. Once implanted we may have another 30-40+ years of sex to enjoy :)
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

RexRG

Quote from: Hawk on May 14, 2023, 09:35:05 PMI want to say that at 73, sex is no less exciting, enjoyable, or adventurous at 73 than it was at 18.  Correction, it is better than at 18 because I thought I knew what I was doing then, but I had a lot to learn.  The only difference is that though I can still enjoy sex every day, I don't have to have sex every day to keep from going crazy.  

I think sex is one of those things that is so intense that each time it is as though it's better than you ever remembered.  It cannot be verbalized, so I think the mind has trouble remembering the intensity and each time is like a brand new form of temporary insanity.  It cracks me up when young guys think sex is somehow different to older men.  It is; its better  :D
Seconded. At 66 it's better than in my 20s. Less emotional baggage and more general knowledge about sex makes it much better. And, although I'm not into astrology, I'm a Virgo who's supposed to enjoy sex each time because it's always like the first. Kinda true really.  

Stepone

Rex,
I am a Virgo too. I guess that explains it.
I am 70.5 now. I can't believe it. Many of my married friends my age no
Longer have sex. I want to ask them, I know one friend who had a 10 inch penis went for injections and they damaged his penis and since his wife died, he said he just gave up on sex.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

jj21

Update 14 Weeks post surgery - Possible revision surgery required

Revision

Auto-Inflation

Spoke to my surgeon, they have me booked for possible revision on the 11th July. The device seems to auto-inflate quite a bit which is stopping me from living my life, it's also causing me a lot of discomfort. There is also pain where the dog ear is, and because the device is partially inflated, the dog ear sort of points out and causes this poking pain/sensation on the skin of my shaft.

The auto-inflation could be caused from the fact that I was partially inflated for 5 weeks, or it could also be that I was not properly deflating for a while. I really don't know and I just want to get it fixed and move on.

Pump placement

The pump is awkwardly placed, it's sort of high up, pointing up, on an angle, with the deflate valve lower and behind than the pump. It's quite uncomfortable. It can be uncomfortable sitting. This is also something that is to be fixed in revision surgery.

My surgeon advised, he can make an incision in the scrotum and overfill the reservoir (assuming auto-inflation is due to a reservoir issue and not the deflate valve) to fix the auto-inflation issue, and add tubing for better pump placement. This will not require a full revision (I will still have the same device).

I have tried to get the surgery moved forward, but unfortunately, my surgeon is away on holiday. He is writing a referral to a surgeon in my state who may be able to do the surgery quicker. For anyone reading this, I would just like to re-iterate how choosing a surgeon in your state, can make a difference in situations like these. If my surgeon was in my state I would have seen him earlier, and I am sure he would have taken the time out to see me earlier. Atm, I think my surgeon is also concerned making me fly interstate in this state of pain/discomfort when there is a chance he physically examines me and decides a revision is not warranted.

Length/girth

I have gained some length back. I'm at about 6.3 inches, which is very close to my pre-operation length of 6.5 inches. The girth has improved as well, I have not measured girth. Measuring can be complicated as, I have measured at 100% inflation which is impractical for sex.  I have a pic but it is on my phone, I'll upload it later in the week. Have been trying to stay off these forums as sometimes they just remind me more of my symptoms and the fact that I am not fully healed.

I will do up another post with pictures of length, girth and shape (oval, cylindrical) at different levels of inflation. This will show what is most practical to use for sex. As an example, at 80% inflation the device takes a nice round shape, however, at 90% there is more length, girth and rigidity but the device is more oval shaped.

I am cycling usually twice a day for 1hr each session. Sometimes I will skip when I have pain, and sometimes I will only do 1 session. On average, lately, it has been 1hr x 2 sessions 3 days a week, 1 hr x 1 session 2 days a week, no sessions/rest 2 days a week. I have cut down on cycling due to pain and discomfort.

Auto-inflation

As advised in the intro to this post, the auto-inflation issue is still happening. I deflate 5 times a day and tuck my penis up to stop it from auto-inflating. As soon as my penis is down, it will inflate about 20% within 30 minutes. I can also feel the cylinder on the left, as in it crinkles and moves, but on the right it is rigid and hard. This could either be that the left side is deflating more than the right or that I am feeling the left side through the graft. I feel that, the left side is simply deflating more. Either way, if I deflate as much as I can, press the pump to lock the valve, then leave it out (not tucked up), within 30m it will inflate and I can no longer feel the cylinders.

I will know better when I see one of the surgeons.

Erection Angle

The erection angle was looking good in one of my earlier posts. Unfortunately, I can only maintain that angle if I keep my penis tucked up 24/7 (which causes a lot of pain, possibly because I cannot keep the device fully deflated). Last week, I have been leaving my penis out, there may be some slight downwards pressure on it when wearing loose clothes (from trackies). I've noticed my erection angle when fully pumped is slightly above 3 o clock. This may improve slightly if I was engorged.

I can't do much about this, if I tuck my penis up, there is pain, tuck down, pain. If I leave it out, it sticks out as it is always partially inflated. My only option is to leave it out as much as possible and not wear tight clothes.

Squeak

I spoke too soon in my earlier posts. The pump does squeak, sometimes. It seems to me that the pump has moved,  sits on a bit of an upwards angles. So, sometimes it squeaks, sometimes it is silent. Nonetheless, if you pump very slowly, it will not make noise.

This is still a bit frustrating as, if one wanted to pump quickly, the device would squeak. The squeak is more like a loud honk too. A bit unattractive and can be a mood killer, but work with what we have, it's still an improvement to a peyronies penis.

When/if one of the surgeons does the revision to improve pump placement, I may ask if he can position in a way where it does not squeak or if there is anything to do to improve this issue. It seems when the pump is angled a bit lower (I think), it squeaks less.

Pain after orgasm

I had to do a fertility test, so this required me to orgasm. Unfortunately, I still have pain after orgasm. I spoke to my surgeon about this and he said it was uncommon this far into healing. He said it was more common 1-2 months post surgery. I am almost at 4 months post-surgery. I do think the pain isn't as bad as before.

I will be banking sperm in the next week. So, I will try to update and advise whether I think the pain is improving or not.

My surgeon advised, he will be able to give me a better idea of what's going on, once he physically examines me.

Sensitivity

Sensitivity has definitely been returning. I think due to the grafting done, it can take few months for sensitivity to fully return. I noticed just in the past few weeks that my sensitivity has improved. Behind the glans where the frenulum was before circumcision/TEP is still a bit numb, this is also where the incision site is. The glans and below the glans and shaft seem a little more sensitive than pre-circumcision/TEP. Kind of a gain and loss at this stage, more sensitive in some areas, less sensitive in others. Keep in mind, I don't think TEP requires a full circumcision, so comparing a person circumcised for different reasons can be unrealistic.


General thoughts/state of mind

It's been tough, I am almost 4 months post surgery, and I am still quite immobile. I have pain and constant discomfort. As the device auto-inflates, the dog ears are partially inflated and poke out, this causes quite a bit of pain and discomfort during the day. On top of that, I haven't been able to go back to the gym and resume my normal life. Sleeping with a partially inflated shaft is uncomfortable.

I actually realise now how much I took for granted, just being able to go out for a walk, run etc without having pain/discomfort in between my legs seems like such a privilege.

I am a bit nervous about having another surgery, there is a risk of infection again, and going under anesthesia can be a bit daunting. Worried about waking up with a sore scrotum due to a scrotal incision. Also, I won't be able to cycle maybe 1-2 weeks post revision surgery. I know this probably won't make much difference to length/girth gains but it's still on my mind.

Haven't regretted anything yet as, when inflated, my length/girth is coming back. If you scroll up and see my comparison pic from peyroneis to now, there is quite a significant improvement still.

I just want to get all this fixed so I can start moving on with my life.

Appreciate any feedback.

J

 
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Stepone

JJ21,

I don't understand why they would have kept you inflated for 5 weeks. It seems to me that with everything I have read, that always creates problems with the reservoir.
Angle, the angle is what it is. I hear your concerns, but you have so much to deal with...it almost seems like this is one of those things not to worry about now.
Squeak, ugh, I don't get it, sometimes mine squeaks, sometimes it doesn't, I have gotten over it.
Pain after orgasm, I seem to remember having it sometimes, but it only lasted a few months and not every time. I no longer have any orgasm pain.
Sensitivity, I lost a lot of sensitivity when I had the Nesbit surgery. I never recovered it, but I am still able to have orgasm each time. Good for you.
State of mind. I am sorry you are going through this. Personally, I was still in a fair amount of pain at 4 months. I still had problems with pump, etc. I don't think things got better until I was at a year, and still had pain from time to time, but NOW, no pain, all pleasure.
We all heal at different rates, based on age, health, etc. so I feel for you. I hope you are able to get things fixed and you can resume mind blowing sex, sometime soon.
StepOne
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Pfract

Hey jj21! I am so, so sorry to read that you are experiencing this. It turned out auto inflation was in fact happening... :/

If I understand right, you are having surgery with another surgeon because yours is on vacation? Or you don't want to travel again out of state?

Having someone do your revision could be tricky. Definitely think well about it.

Maybe we can chat on Skype soon, again? I would love to catch up.  

jj21

StepOne - really appreciate your msg. To answer your question, the TEP procedure requires you to stay partially inflated for 4-6 weeks. However, this isn't why I was left inflated. I was about 80/90 percent inflated for 5 weeks. I was suppose to be deflated partially on week 1 (too much swelling), then week 2 (still too much swelling). On week 3 the swelling subsided, I called the doctors office, my surgeon and the nurse were on holiday, I tried to get an appointment, the receptionist would not get back to me, she also wouldn't let me speak to the receptionist I had been dealing with (strange). Same thing happened on week 4. By week 5, my surgeon and nurse were back, I called them up and advised what happened so they saw me straight away and deflated me.

I have been trying not to blame anyone or complain, but this could be the reason I have had such a terrible experience, and perhaps the reservoir healed without the correct amount of fluid, causing the auto-inflation.

Pfract - Definitely would be nice to chat over skype again, when the timing works out. Ill msg you on there. Appreciate your support as always.

Hey guys,

Appreciate your messages, I actually ended up in Emergency over the weekend. I went to the bathroom and was just in extreme pain. This has happened a few times, apparently it's not normal this far into the procedure.

The doctors at emergency got a hold of the urologist in Brisbane I've been referred to, I have an appointment with him next Tuesday. This urologist was my second choice, I have seen him before. He's a professor and has the most publications on peyronies in Australia. He is a high volume surgeon. They also gave me a referral to do an abdominal and pelvic CT scan which I am doing tomorrow.

Since then, I have had pain on and off. Really not sure what's going on. Perhaps the auto-inflating is causing issues, tissue damage or erosion. Or, perhaps because I was inflated for so long, it caused abnormal healing, I know the doc did say that it was pushing the scrotum forward. I will hopefully find out soon.

I am just really over all this, even with my peyronies penis I could walk around, go to the gym, sit comfortably, sleep comfortably, I didn't have constant pain between my legs.

I  have been blocking everything out and trying to be positive and saying that this is just a part of the healing process. But, it's now 4 months post surgery, the surgeon also said this wasn't normal.

I am really hoping for some answers.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

Hope you get answers and clarity soon because that seriously sucks. Whatever it is let's hope they find the issue and fix it soon.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Gap63

I hope all goes well for you jj21 and you dont need a revision, fingers crossed its a simple fix


BTW I dont think the problem will have anything to do with being inflated for too long, my surgeon left me inflated for 6 weeks before he wanted me to deflate, my Titan works perfectly, 9 months on I still sometimes have problems finding that deflate button, one day it will take seconds to find, next time could be 10 min  :D  
Peyronie's Disease for 6 years
Titan touch 20cm + 1 RTE
Dr J Clavell, Houston, Sept 2022
Age 58

Curvekiller94

Jj I'm sorry to hear you're having trouble still but so keep in mind 4 months is relatively recent so there are instances of pain I know some more severe than others. I know for my hernia surgery four months out I was not my self by any means and was stil in pain. I hope this goes away asap. We're here for you. Im sorry it's been a rough ride but I think it will all work out in the end. In the pictures you look really good so it could just be stretching pain from the auto inflate Always being inflated. On the bright side you're not losing length or girth so that's a plus (just keeping the positive vibes if you will) hang in there my dude we are all rooting for you  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

jj21

Quote from: Gap63 on May 22, 2023, 09:56:24 PMmy surgeon left me inflated for 6 weeks before he wanted me to deflate,

GAP - thank for your message, I have also heard that Dr Clavell keeps his patients inflated for 5-6 weeks. How inflated were you? I was about 90%, and it was pushing the scrotum forward. Dr Clavell is one of the best, if you were 90% inflated for 6 weeks, then I think you're right. My issues may be for different reasons.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

CurveKiller and Sonic - Thanks for your positive messages, really appreciate it. It's been a really tough journey. I need to bank sperm so I can start TRT, and at the moment, I am dreading it. I am in pain for hours after an orgasm, my surgeon confirmed this is not normal this far into healing. Have done the CT scans for abdomen and pelvis, and am seeing another surgeon in 6 days. Hopefully I will get some answers.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Pfract

damn... Quite the setback! I am rooting for you jj21!

orriw

Hey jj21 sorry to hear its not going as great as expected. I dont have the knowledge about any surgery and not even the best english skills to express so this may be a stupid post, but: I expect your worst enemy is the pain? If you lie on your bed all day anyways then try deep diaphragmatic breathing. Recently i had great success with this and some other things (can be seen in my newest thread) so its worth a try. In the begginings it even triggered or increased some sensation that has now become better than before. After all it relaxes the pelvic floor, which may be tight for you right now too as you still have pain and worry a lot. Keeping this more relaxed may maybe help the tiniest bit.
Recent studies find that for so much pains in the body with no clear diagnosis muscle fascia is at work. Working on this (by deep breathing for example) could help.
26y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

jj21

Some complications recently at just over 4 months from surgery

Saw my GP, I had done CT scans. The GP advised that everything is very cramped in my pelvis area, the reservoir is hitting the bladder (another urologist also advised this).

I've been having the following symptoms:

- Pain after leakage (leakage seems to be pre-ejaculate or secretions), the pain is in the shaft, scrotum and perinium area, it also occurs after proper ejaculation/orgasm;
- Warm penis (this was strange but I have noticed it), my penis is usually cold but has been warm, a urologist also noticed this.
- My temperature is sometimes 37.8c which is 100 farenheit, I recently noticed this, I also have a blocked nose (it's cold here and I think I might just be getting sick but keeping an eye on this).
- I have done the blood test 2 weeks ago to check for infection, it was negative.

I suspected that I might have prostatitis (inflammation of the prostate), I have started some medication for it, then may be doing an ultrasound soon of the bladder.

Really not sure what's been going on.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Stepone

Jj21
My last reply somehow disappeared, so if this is a duplicate I am sorry.
I see m sorry you are going through this, I can't imagine what you are going through, stay strong.
You are the first on this forum, that I can recall who had the TEP procedure and the first person I can recall who had had the issues you have had. So I am wondering if these issues are more related to the TEP, than the implant or a combination of both? Has any of the doctors said this?
I have read your report, but I didn't see what the surgeon plans to do?
What are they saying needs to be done?
So what did they say about your warm penis?
Stay in touch.
StepOne has
 
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

jj21

Quote from: Stepone on June 03, 2023, 06:53:28 AMthan the implant or a combination of both? Has any of the doctors said this?
I have read your report, but I didn't see what the surgeon plans to do?
What are they saying needs to be done?
So what did they say about your warm penis?


Thanks StepOne, I appreciate the support.

To answer your questions, the 2 surgeons I saw in my state wanted me to go back to the surgeon who did the procedure. One of them said they can operate an do a revision but I will have to get a cystocopy done first. He looked at my CT scans and did say it looks like my bladder is pushing against th reservoir. He also said the tips of my cylinders didn't feel right but the CT scan showed no abnormalities.

User Tortao also had TEP, his journal is in this forum and he recovered and was working n comfortable by month 4.

Regarding the warm penis, one urologist just said it could be a sign of possible infection but it's not that bad that it needs anti-biotics yet.

I am grateful I have a regular family doctor and all the symptoms I am suffering could be an indication that I have prostatitis.

I have had a light fever some days (37.8celcius/100 farenheit. It comes and goes.

I am a bit stuck as I dont know what will happen. I dread going to the bathroom because sometimes I get leakage after peeing etc and then end up in really bad pain.

Hoping for an end to all of this soon, I am almost regretting getting the implant, as before the implant I was active, in the gym, working, reading. Now I am mostly immobile, dread going to the bathroom, constant discomfort and extreme pain after leakage or ejaculation.

J  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bud luck

You have my full support, I love your honesty about your Implant process.
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Stepone

Jj21,
Thanks for update.
So if "all the symptoms you have look like prostatitis, and you are having pain and your quality of life is diminished, what is the reason for no treatment?
Hoping for an end will not fix anything.
Perhaps another visit to family doctor, etc., is needed?
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

jj21

Quote from: Stepone on June 04, 2023, 06:41:53 AMwhat is the reason for no treatment?

Perhaps another visit to family doctor, etc., is needed?
StepOne

Hey StepOne, I am currently taking colcicine which is suppose to help with prostatitis, it's usually used for gout, my GP advised it may help within 5 days. Also am doing some blood and urine tests.

I am seeing my original surgeon in early July to see if I may do another surgery to fix the pump placement and auto-fill issue.

If I could fix the issue of pain after ejaculation/leakage, my only real issue is auto-inflation and pump place which I believe are minor problems..

I have read a lot of journals but have ever come across anyone who suffered prostatitis post-surgery.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Pfract

I am really perplexed to read about your current symptoms and I don't really have any suggestions as to a course of action since you are doing everything you should to address it. Just so sorry to hear this. Try to hang on jj21!. Hoping better days will come for you.  

jj21

When I get a finger and press down on my glans (while flaccid), I can feel the left tip of the cylinder is slightly lower than the right. Maybe by about half a cm.

Could anyone tell me what affect this would have on my erection? Currently my erevtion is very slanted to the right and I have pain mostly on the left side of the shaft while cycling.

Thanks,
J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

** when I say my erevtion is slanted, it's sort of twisted to the left a bit.  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Stepone

I don't recall anyone getting prostatitus. It seems to me like there are lots of issues. I don't recall anyone with this many issues. Who knows other May have, but didn't report.
Let's all hope you get some relief soon.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Sonic

Devastated to hear about this setback and I really hope it gets fixed soon.

You are an awesome person J, you'll get through it.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

Thanks guys, the support really means a lot. It's been a crazy time.

I just cycled today and the tips are even when inflated.

I'm just going to leave it be and wait till I see my surgeon on the 10th July.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Hawk,

I used your trick of taping the penis. I deflated as much as I could and wrapped it in a wrap for about 45m.

Just took the wrap off and left my penis open for ten minutes and it hasn't auto-inflated yet. It looks and feels quite deflated and flat.

I might try doing this 2-3 times a day for 1hr intervals to try and fix the auto-inflation.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update: after unwrapping,  I left my penis down for an hour and it did auto-inflate. Funny thing is, when I point it up, there seems to be less fluid in there, when pointed down it seems to fill a little.

This is causing a lot of discomfort.

At this point, all I can do is wait to see the surgeon in July.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Anyone out there have a twisted erection when fully inflated? If so, did this improve with cycling?

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).