T.E.P (tunica expansion mesh procedure) and implant journal

Previous topic - Next topic

0 Members and 10 Guests are viewing this topic.

Sonic

Great to hear JJ and honestly kinda expected. I thought it was strange that the nurse came to the conclusion of an infection even though the fluid was clear, without any smell and your overall health seemed fine, perhaps she just wanted to be safe and not risk anything??
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Hawk

Congratulations JJ.  Now that you are past that scare, I will explain something I did not want to explain while you were worrying.  

According to Dr. Eid, a penile infection from an implant is NEVER treatable with antibiotics. Instead, it requires removing the implant as soon as possible, irrigation, healing, and another implant (months later).  Sometimes a malleable implant is put in to prevent size loss until the new inflatable implant is placed.

I think I will probably split out all of those posts on "How many pumps" and "Is pumping concealable" since it was a general question not specific to you.  That topic probably requires some in-depth discussion.  In fact, It should be indexed in the board index since it is a frequent question by those who have not read the journals.  However, I will defer to you if you do not want them split out, and I will start a new topic to address it.

 
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Thanks guys, I think the nurse was just being extra cautious. Better to be safe I guess. I did know that an infection on the actual device would require surgery for it to be removed, and usually would result in a few inches length loss (I presume). If the infection was in the blood, then anti-biotics would work. This is what is so stressful, going through an infected device, really can be devastating, my heart goes out to the guys who had an infection.

Hawk, I trust you know what's best. Whichever you believe is best to have the journal as a resource for future members. I think splitting it up as you suggested makes sense. I think it's great that we can provide this resource for future members, this journey really is not easy. Thanks for all your support during this infection issue as well, appreciate it.

Clarification on Squeak

I think I need to clarify, today when pumping, if I pump quickly, the pump squeaks quite loudly. If I pump slowly, it does not squeak. This is a little disheartening, if one were trying to discreetly sneak in a few pumps. Perhaps it will change over time. Nonetheless, if you pump slowly but with force it does not squeak.

Other than that, I can say that sensitivity it slowly returning.

Will update in a month or so.

J  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Hey guys,

Just wanted to post a few things as it would be interesting to reflect back on it in a few months. I also think that anyone else going through this procedure may benefit from reading about these issues.

Glans

The tips of the cylinder go about 3/4 into the glans. When flaccid the tips seem really hard. If I press down on the glans, it feels almost like a solid rock in there. This causes some pain. I am wondering if this is normal or do they soften over time? The cylinders in my deflated shaft feel like plastic, it is strange that the tips in the glans feel hard like a rock? It's not really a big issue, but I am worried if I am not deflating properly and that's why the tips are still hard.

Maybe it's normal and will stay like that, or maybe they will soften over time.

Auto Inflation

The strangest thing happened, I fell asleep last night, when I woke up the penis was probably 70% inflated. I have no idea how this happened. I highly doubt I would have pumped the device in my sleep. I know sometimes  if  I sleep after deflating, the device inflates maybe 20% in my sleep. This time was very different. I will wait and see if it happens again.

Sensitivity

On a positive note, my sensitivity is returning very quickly. My glans and shaft are sensitive, behind the glans is slowly becoming more sensitive as well. These use to be very numb just a few weeks ago. I do take B Vitamins and Acetyl L Carnitine which are suppose to regenerate nerves, perhaps these are helping.

I haven't said much about circumcision as a lot of people say it makes you less sensitive. In my case, I am currently less sensitive, but it is slowly returning. I can see sex etc would be very different.  

I'll write down some pros and cons of TEP circumcision, circumcision was one of the only things that made me hesitant to proceed with TEP.

Pros:

- may regain all your length lost to peyronies;
- may regain some girth;
- TEP is permanent, if you gain any length/girth, you will keep it for life.

Keep in mind that the urethra is not touched during this procedure, so the length gain you make is limited to the neurovascular bundle I believe. So, it is unlikely that you will gain 1-2cm over your pre-peyronies penis, it is more likely that you may gain back the 1-2cm which you lost to peyronies.

My surgeon confidently told me I would get 1cm length gain from TEP, his surgical notes stated approximately 1.5cm. User Tortao  who did the same procedure gained back 2cm he had lost from peyronies and was back to his pre-peyronies length.

So, you may gain back some length and girth, but at what cost?

Cons:

- Circumcision, you may lose your foreskin. Whether circumcision causes less sensitivity on the penis is debatable. There are studies which state it results in less sensitivity, and some studies that state it makes no difference. You just have to be prepared to adapt to the difference. For me, it took some time, but I can see sex being just as pleasurable as before. User tortao who went through the same procedure also states that sex is just as good, just different. He also states that all his sensitivity returned over time.

- Increased risk of infection. The TEP is quite a long procedure, and this can increase the risk of infection.

- Risk of permanent damage to nerves. The neurovascular bundle is move as this procedure is done. There is a small risk that you can end up with permanent nerve damage.

- Longer recovery. I am certain if I went through with just the implant surgery, I would have been fully recovered by now and walking around normally. I am at 9 weeks. I estimate at around 12-14 weeks I may start to feel normal again and be able to function. So, keep in mind, you may not be able to comfortably go to your job, gym etc for 3-4 months.

I did a lot of research on adult circumcision, most males said that sex was just as good, some said they lost some sensitivity, some said they gained sensitivity. You will find mixed reviews online, and it is also difficult to find someone who was circumcised as an adult and can give a good review and comparison of what sex was like with foreskin and without. It is quite rare for someone to go through an adult circumcision.

Most women do not care if you are circumcised or not, and the ones that do are very shallow, these aren't the types of women you want to date. Online you will find mixed reviews, most women say they don't care, some prefer circumcised, some prefer uncircumcised but they will usually say, that it is not a deal breaker.

I personally asked some women that I know and I received mixed reviews, some prefer uncircumcised as it is more fun to play with and they like the gliding feeling of foreskin inside them. Others, said the opposite, that the gliding feeling of foreskin felt like a condom inside them, they said they preferred circumcised because the head feels better inside them. One thing to note is that, with foreskin, it helps maintain lubrication as the woman's 'wetness' (for lack of a better term) will stay on the foreskin. A circumcised penis may require more lubrication, as over time, the head will become dry.

So, basically, it's important to weigh up, you may gain back your length/girth you lost from peyronies, but you may have to adapt to sex with a circumcised  penis, have a longer recovery and have a slightly higher risk of infection.

I have typed all this here as I wish I knew some of these things when going in for the procedure. I still would have made the same decision, but it definitely would have helped being prepared and knowing what to expect.

J
 
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Seems to be this bulge. It is a little hard, and may cause issues when inside a vagina. Although, it is more prominent when fully inflated. Less prominent at about 80-90%.

Would love some feedback. If anyone thinks it will soften up, straighten out, if the dent will fill.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

Quote from: jj21 on April 14, 2023, 11:13:34 PMI did know that an infection on the actual device would require surgery for it to be removed, and usually would result in a few inches of length loss (I presume). If the infection was in the blood, then antibiotics would work. This is what is so stressful, going through an infected device, really can be devastating, my heart goes out to the guys who had an infection.

You would be wrong to assume you would lose a few inches.  That is incorrect.  A few inches would be more than half of most men's penis length. If handled properly by a great implant specialist you would lose nothing.  In no case would you lose a few inches.  Also, antibiotics would combat an infection that spread to the blood but if the infection started with the implant it would have to be removed very soon. Oral or IV antibiotics will NEVER clear up the infection surrounding the device.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Thanks Hawk, that's good to know. I do know that they usually put a malleable in there to preserve size, wait 6 months then put in the 3 piece. It would be a very daunting process to have to go through.

The problem here in Australia is, I would have to go to emergency then risk doing the removal by an inexperienced urologist, who may not even have a malleable to install. I would then have to wait 3-4 weeks for a high volume implant surgeon to see me. Or, possibly, fly back interstate to see my surgeon, who also, may be unavailable for weeks.

This really makes me appreciate surgeons like Eid, Hakky, Clavell, who give you their personal phone numbers, and keep in contact and understand what you are going through.

As always, thanks for the support.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update

Just today, I seemed to be getting much better engorgement, even at higher levels of inflation. I inflated to maybe 90% and still get engorgement and have a bit more of a round shape (although still predominantly oval). Previously, I could only pump to 80% to get good engorgement with a round shape. The cylinders do start to become stiff, so the sides are slightly harder than the top and bottom of the shaft. If I pump any more, it would probably be unnatural as it becomes unnaturally hard, the cylinders start to feel like a hard stick.

This is some great improvement!

Other

Length is about 6.2 inches BP. This is an improvement from my post-surgery length of 5.8, and of my BP length of 6 inches 2 weeks ago. This is with no engorgement. I am not convinced that engorgement makes a big difference atm, the glans just swells a little, and the underside of the shaft fills slightly giving a bit more of a round shape. I don't think this makes a major difference to length/girth, at least not now. As time goes on, engorgement may improve, and things may change.

Pain after orgasm

If I orgasm, I am left in pretty severe pain for about 1-2 hours. I know this probably isn't permanent, but I would really like to know when I can expect this to improve.

cycling

Doing the same, pump to max for 20m, then pump more for another 20m, then pump more for 10m. 50m total. By the time I reach that last 10m, I am in excruciating pain. I feel like cycling has helped a lot. I feel like after each cycling session, my flaccid pain is reduced, and my penis just feels more normal.

I've really come to realise that, recovering from this procedure is a marathon. Just have to be patient. It can be difficult as, there isn't many journals out there on TEP, you just don't know what to expect.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Pfract

Hey jj! i read all your updates and it is very exciting to see that you keep recovering at a steady pace. It was surprising to read that you experience pain after orgasm? i recall reading on diaries that folks have pain during or post intercourse, but don't remember reading that they experienced this... not sure what to make of it, but i hope it goes away too!

Hawk

Quote from: jj21 on April 18, 2023, 09:24:36 PMUpdate

1. Just today, I seemed to be getting much better engorgement, even at higher levels of inflation. I inflated to maybe 90% and still get engorgement and have a bit more of a round shape (although still predominantly oval). Previously, I could only pump to 80% to get good engorgement with a round shape. The cylinders do start to become stiff, so the sides are slightly harder than the top and bottom of the shaft. If I pump any more, it would probably be unnatural as it becomes unnaturally hard, the cylinders start to feel like a hard stick.

2. I am not convinced that engorgement makes a big difference atm, the glans just swells a little, and the underside of the shaft fills slightly giving a bit more of a round shape. I don't think this makes a major difference to length/girth, at least not now. As time goes on, engorgement may improve, and things may change.

3. Pain after orgasm

If I orgasm, I am left in pretty severe pain for about 1-2 hours. I know this probably isn't permanent, but I would really like to know when I can expect this to improve.

cycling

4. Doing the same, pump to max for 20m, then pump more for another 20m, then pump more for 10m. 50m total. By the time I reach that last 10m, I am in excruciating pain. I feel like cycling has helped a lot. I feel like after each cycling session, my flaccid pain is reduced, and my penis just feels more normal.

I want to briefly address the points that I numbered.

1. Are you getting engorged and then inflating or inflating and then trying to get engorged.? I think you will find it works better getting engorged first.

2. This makes me smile because it doesn't matter at all how you feel about your size. A ruler and a tape measure give an objective answer to the question.  Then we will read what you know, not what you feel.  ;)

3. Pain where?  I do not understand what your surgery would have to do with that pain.  It might make more sense if you were more specific.

4. Pain, when inflated, is evidence of tissue expansion.  Don't wish it away.

Finally, I read somewhere that if you had to have your implant removed because of an infection, a non-implant specialist would probably have to remove it. Maybe you could let the local nurse do some exploratory brain surgery at the same time  ???  My point is that letting some general surgeon remove an implant is the most bizarre thing I ever heard.  It would not be much better than just having him cut your dick off and spray some antiseptic on the nub. I hate to be so blunt, but I doubt any surgeon could even be talked into removing an implant if they did not install implants.  Don't ever even let such an idea cross your mind again.  You do not let general surgeons chop on your only penis.

Oh, one more "finally."  I doubt you have an implant infection, but it is important to know that a blood test would only pick up an infection if the infection spread to the blood, which becomes a very serious health risk. That is not typical of an infection.  



 
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Quote from: Hawk on April 19, 2023, 10:57:31 PM1. Are you getting engorged and then inflating or inflating and then trying to get engorged.? I think you will find it works better getting engorged first.

2. This makes me smile because it doesn't matter at all how you feel about your size. A ruler and a tape measure give an objective answer to the question.  Then we will read what you know, not what you feel.  ;)

3. Pain where?  I do not understand what your surgery would have to do with that pain.  It might make more sense if you were more specific.

4. Pain, when inflated, is evidence of tissue expansion.  Don't wish it away.

My point is that letting some general surgeon remove an implant is the most bizarre thing I ever heard.  It would not be much better than just having him cut your dick off and spray some antiseptic on the nub. I hate to be so blunt, but I doubt any surgeon could even be talked into removing an implant if they did not install implants.  Don't ever even let such an idea cross your mind again.  You do not let general surgeons chop on your only penis.

Oh, one more "finally."  I doubt you have an implant infection,



1. Good to know. I guess that's where foreplay is beneficial.

2. I agree, I have to stop thinking about things like size etc. Take measurements and be patient.

3. Pain in shaft and glans, just a sharp pain. Quite severe, does not subside for 1-2 hours. I think Tortao also spoke of it (I may have mixed it up with another journal).

4.Patience is key.

I am not sure if you're referring to my post above? But my point was that, if I had an infection (on the device, thus the leaking fluid issue), my option would be to wait 3-4 weeks to get an appt with a high volume implant specialist, or go to the ER and have a  non-implant or low volume implant urologist remove the device. I never mentioned a general surgeon. In this case, I would be worried if 3-4 weeks with an infection, would cause more complications. I am not sure how it works in the USA, but I assume, as you guys have access to private numbers of your surgeons, you could have the device removed a lot quicker.

I am confident I do not have an infection, I have passed the blood test, but also, the swab test from the fluid leaking from my urethra was cleared. I was advised that, if the fluid leaking from my urethra was infected, there is most likely an infection on the device.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Something to note, for future members considering this procedure, is what you would do if you have complications 7-8 weeks post surgery. Being in Australia, we are very limited for high volume surgeons. Further, surgeons here will not give out their personal phone numbers, it can take weeks to get an appointment with them. If you're having the procedure done interstate (which in my case was the best option), can be even longer.

Before doing this procedure, I expected that, if I make it back to my state in 6 -7 weeks, all should be fine. However, it may be important to consider that, in rare circumstances, you can have issues 8-9 weeks post surgery. If your surgeon is in another state, and you don't have access to a high volume implant surgeon in your state, you could be waiting a month just for an appointment.

I knew TEP would have a longer recovery, how long, I wasn't sure of.

Sometimes, I am just writing my thoughts in this journal, and also trying to include things I didn't think of pre-surgery for future members. For example, the pros and cons of having this procedure done interstate. I specifically stayed interstate where my surgeon was for 6 weeks, to ensure he could see me in the event that there were any complications. I wasn't prepared on what to do, if I had complications 8 weeks post surgery back in my home state.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

JJ,

Do you mean if you went back to your state, it would involve a long travel time to see your surgeon?  

It sounds like you are saying there is some other added restriction that would become an issue in delaying your appointment if you went back home.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Stepone

JJ
IF you would have a serious problem with your implant, I would think your surgeon would not make you wait 8 weeks.
By the way, all of us perceive pain differently and we all have different bodies and penises and surgeries.
Perhaps you have increased pain from the "expansion" surgery. I don't know as all I had was an implant.
As far as girth, when I am pumped a lot, my penis becomes more oval and very hard. But let me be clear, when I was young, my penis became just as hard.
Like vaginas, penises come in various shapes, sizes, colors, etc., so you may want to reconsider what you term "natural".
I luckily have never been to a penis inspector, but my spouse loves it!
Good luck and keep on pumping.
No pain is no gain.
PS, give it time, I still had pain at 1 year, considerably less, but it was still there. Things will get better, be patient.
StepOne
 
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

jj21

Hawk - I am back home now, I have been for about 4 weeks. My surgeon is interstate.

StepOne - Thanks a lot, really appreciate the messages and support.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

I am really struggling today, I might just use this post to vent/rant. Please feel free to ignore. I really apologize in advance as this may be a negative post, I've tried really hard to stay positive for you all and only bring inspiration here, but I can't do it today.

Exactly 11 weeks post surgery

Some issues that have been bothering me:

Squeak

The squeak is really loud, I noticed it happens more when pumping on a certain angle, or holding the bulb in a certain way (hope that makes sense). But, if I am to pump quickly, the squeak is very loud and noticeable. I can just see this killing the mood and being embarrassing. This also makes quick discreet pumping a lot more difficult. I wanted the OTR specifically because its known not to squeak. Imagine picking up a 22 yr old girl and you go to show her your penis and pump it and it squeaks and inflates. She would laugh, the next day she'd probably tell all her friends about the squeaky inflatable penis. I know, I know, these aren't the types of girls you want to sleep with, but lets face it, if we could sleep with hot 22 year old girls, we would. We all want to.

Picture getting a girl to pump, and she pumps it and it squeaks loudly as your penis inflates. It's a bit of a mood killer. In a long term relationship, maybe this would be okay.

Auto-inflation

The device is auto-inflating in my sleep. Sometimes just randomly. This itself is frustrating, I am now deflating 2-3 times a day. Is this just going to be for life? Is it going to aut-inflate when in clothes and point out?

Flaccid

I am struggling here, my flaccid is still at 4:00 clock, I really want to point it down so I can walk around, but I don't want to affect the erection angle. This has really gotten to me. I can't go anywhere for long periods. If I point my penis up, it eventually results in a lot of pain. It basically looks like a semi-erection pointing out.

Intermittent pain

There is pain sometimes, usually after using the bathroom. I don't know why this happens.

Pain after orgasm

I wouldn't even consider having sex, the pain after orgasm is really excruciating and lasts 2 hours. I noticed to orgasm, I have to kegel a bit, what does this means? It is quite uncomfortable.

Sensitivity

Sensitivity is there but still hasn't returned fully. I know there's guys on FT with just implant surgery where it took 6 months. It's is difficult being this patient, and having all these other issues to deal with.

Circumcision

I am still adapting to circumcision. There is keloids or raised skin that looks like genital warts just where the foreskin finishes and the pink skin starts. I don't know if this will improve but it is quite unattractive and does look like genital warts. I think it's less prevalent when erect. My glans are still adapting to having no foreskin.

I kind of didn't think this through when deciding on circumcision with TEP, but I use to find it really intimate getting a handjob and kissing and fingering. This wouldn't really be possible anymore without lube which would just get messy. I will always miss that part of foreplay.

Some guys say that they permanently became less sensitive after circumcision, although they went through adult circumcision for different reasons. I don't know how true this is, I am worried about it. Ideally, I would have loved to save my foreskin, but my hourglassing and narrowing was so bad, the best option was for the doc to deglove the penis and see what was going on throughout the whole penis. He did say there was narrowing all the way to the top, he could only see this due to circumcising me, and he was able to make incisions in the tunica to fix the narrowing.

girth

The girth looks impressive in pics, but the girthiest part of my penis is 5.3 inches, which I think is above average but not impressive? The penis is very flat and oval, giving it the illusion that it is girthier than it is. This is still a great improvement to my peyronies penis which had thinned out completely (see pics in previous posts). But, to go through TEP for just slightly above average girth? I don't know if it was worth it. I don't like the flat oval shape. Maybe when I can use it more, and I get engorged naturally it will have more of a round shape. It is just so difficult to tell. This is just another thing on my mind, at 11 weeks, I didn't think I would have these issues.

Guys on FT do say that an oval shaped penis works just like a round one, but the guys who say that are 70 years old and  having sex with 1 female they've married to for 30 years. Their wives are probably just happy they can get an erection at 72 years of age.

I never measured my pre-peyronies girth, I know girls told me it was above average, but I know it wasn't massive. So, I can't really compare the difference. The reason why I want to be able to compare, is to know if TEP was really worth it.

I pump to about 80%, I can get engorged, my penis is round, but it is still a bit squishy. I pump to about 85-90%, my penis is nice and hard, still get a big engorged, but the penis is a bit oval (but not flat, if that makes sense), still rigid. Anything above 90% and the penis becomes completely flat and rectangular. I am confused what would be ideal for sex.


One great positive

One great positive I have noticed recently, is the improvement of post urinary dribble! After peyronies, I use to get a bit of dribble. This use to be embarrassing. No matter how much I would squeeze, shake, squeeze my perinium, afterwards, I would get a few drops of dribble, sometimes even a small squirt. I remember in the early days, this use to improve with VED. None of the urologists could explain why this was happening. My surgeon even did a cystoscopy to ensure there was no blockage in the urethra etc. There wasn't.

I remember being with an ex gf, we were naked, I went to pee, did everything I could to squeeze every last drop. We were both naked after, and fooling around, I kind of grabbed her n went close to her, my flaccid penis slapped her leg and some dribble dripped onto her leg. She noticed it straight away, she was funny about it and was like "you got your dick juice all over me". It was embarrassing, nonetheless. Dribbling pee over your gfs leg is not an attractive thing, especially at 30 years old when urinary incontinence and Erectile Dysfunction aren't common at all.

Today, I go to the bathroom, when done, I might have 1-2 small drops after. This is a massive improvement. I am happy about this. I don't have foreskin either so it would get inside the skin and smell. This improved over the last few weeks. Straight after surgery I had a lot of dribble still. Compared to when I had peyronies, this is one thing that is almost a miracle for me.

Imagine being naked with girls, going to pee, coming back and worrying that you'll drip onto them. At 60+ where urinary incontinence for both men and women are more common, this may be more acceptable. At 34, it's just very embarrassing.

I am glad that these days may finally be over!

General thoughts

I don't know, I am really negative atm. I have been immobile mostly, I can't gym, I'm not back at work, it's really taking a toll on me. Sleeping can be difficult as my flaccid is so large, I am still getting accustomed to circumcision. I don't know why my recovery is so much longer than others.

People say an implant is godsend. I don't know. I think for guys under 50, Godsend would be a cure to peyronies where we have our natural penises back. We don't have this unnatural flaccid, and this plastic in our dicks, and a mechanical squeaky erection.

Merrix writes this in his journal as an example of a young alpha guy with an implant who picks up two 22 year olds:

"Back home, our guy sits back at the edge of his sofa, the two babes kneeling in front of him, starting their dual oral. One is working on the dick and one on his balls. Only there are three of them and one is hard as a rock. He's in for an embarrassing situation when asked what it is, and he just hates it. Sure, he can do them both really good for a couple of hours, but that thorn in his side is there, and he knows those two 22-year-old babes will have a funny story to discuss tomorrow. Maybe they will share it with someone who knows one of his buddies. He doesn't want the guys in his gym to know. Neither the guys in his downhill MTB team."

I have to agree with him. I really don't want to think this way. I haven't even used the implant yet, and I can't, it's just too painful. But I think it is important to note that, being implanted at under 40, single, is different to being implanted at 60+ married.

I'm really sorry guys, I wanted to stay positive, I wanted to come back with good news and give you all inspiration. I am just not feeling well. Maybe it's from being immobile for so long, with my life on hold. I know I took some medication last week for about a week, it was called 'Tramadol", it was a pain killer, I had some leftover and decided to take it to help me sleep. I looked it up and it turns out it's an opiate and SNRI, maybe I am just having withdrawals from the medication? I don't know if that's likely after only 1 week of use.

I miss being able to walk around. Even with my peyronies penis, I could walk around comfortably, go for walks by the river, go out to bars, go for drives, go to the gym daily. I can't do any of that atm.

I typed this up then was going to delete it, but I decided to keep it here to reflect back on in a few months.

I know  I have to keep remembering that, despite all these negatives, I am still in a far better position than I was with my peyronies penis. I could not even have sex with my peyronies penis. I mean, I still can't have sex with my implanted penis, but this should change over the next few months, I think, I hope. It's just very difficult to stay positive at the moment.  

Please don't let this post discourage you, I think I am just going through a bad phase.

J
 
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bud luck

I really appreciate your honesty on your posts, having an implant probably has its cons and pros like anything else.
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

GaussRifle

Thanks for your post and expressing your raw emotions. Could you please tell us where exactly in your penis do you feel pain after orgasm.I am asking out of curiosity only. I know this will get better and better with time, you are not even at the 6 month mark and given you had TEP, you can't compare your recovery time to others.  
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Hawk

Your thorough, honest posts are appreciated but as you pointed out, todays post was from a negative perspective and attitude.

You opted for an extreme increase in healing time with the hopes of getting a little bit of an increase in size. This is just part of that choice.  It is an extra-long marathon. If you had gotten a standard implant, you would've been having sex three months ago (three weeks after surgery). Also, keep in mind that Merrix's post was a thought, not a real event. And, I believe he posted that before having sex with at least a couple of single women in which she was pretty happy with the results.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Thanks guys, appreciate it. Really struggling lately.

Quote from: GaussRifle on April 25, 2023, 01:26:39 AMCould you please tell us where exactly in your penis do you feel pain after orgasm.I am asking out of curiosity only.

Gaus - the pain after orgasm is mostly in the glans, some in the shaft. Maybe where my plaque was/is? I am really not sure, its just an aching pain in glans and shaft, hard to describe. This happens even if I leak out semen sometimes, which happens when going to the bathroom, and sometimes happens randomly. Wish I knew what was going on.  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Can anyone comment on what would happen if I tuck my flaccid downwards in tight clothes to conceal it, how likely is it that it will affect my erection angle?

Some seem to believe that, up to 4 months post surgery, any downwards pressure on your flaccid, will result in a downwards erection angle.

Then I've read about guys wearing tight clothes and tuck their flaccid down at 8 weeks and have completely fine erection angles. Merrix is one example. Also, seen guys that have downwards erection angles on FT.

Can someone please comment? I'm going a bit insane being so immobile not being able to walk, drive, go out. I really want to just put clothes on, conceal my flaccid and go out. It's been 11 weeks exactly.

Thank you,
J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

I just felt like releasing some thoughts, so I might vent here. This may have nothing to do with the implant, but maybe just some history of my peyronies and relationships.

I was 29 years old when peyronies hit, June 2018

Never in my life did I think such a disease would even exist. Until this event, my greatest health problem was probably allergies. I had some general anxiety, but never any physical health issues. Maybe asthma when I was a kid, which I grew out of it.

It started randomly, there was no particular incident or event. Some people recall having really rough sex and being sore, then developing peyronies symptoms the next day. Mine just showed up one day. The only thing I can put it down to is, when I was younger, I was in relationships where we were addicted to sex. We use to have sex maybe 2-3 times a day. Sometimes, all day, we would just take breaks for food and water. One of my relationships was just very passionate, there was a lot of attraction, she was addicted to sex, it was her outlet and so was I. So, perhaps what caused my peyronies was micro-trauma over a prolonged period of time.

My first symptom was a semi-erect curve, with what looked like 2 large veins around the sides of my flaccid penis which were never there before. When erect, there was just minimal curvature of maybe 10 degrees, maybe even less. It definitely was not severe at all, and one may have even mistaken it for congenital curvature. I don't think at this point I had lost any length or girth. My very first reaction was actually to laugh, I thought hmm this is funny and interesting, what's happening. I then started researching, learnt about peyronies disease but also penile mondors disease and I think its called genital lymphedema (Mondors and genital lymphedema are known to mimic peyronies disease). The latter two, are easily reversible. Peyronies was not. Now, I was no longer laughing, but worried. My first reaction was denial. I thought, this is nothing, do nothing, it will go away soon. It didn't go away. Now, mentally, I was devastated, the thing about damaging your penis is, it's the one organ that makes you feel like a man, damaging it, is like damaging your masculinity and manhood.

This hit me hard, I am a reasonably attractive guy, of mixed east Indian and Fijian origin, born and raised in Australia. I have been in the gym for years and have a great physique. I have had women comment how they think I am exotic and should be a stripper or a model. I had somewhere around a 7-7.2 inch penis, with above average girth. I had women comment on how big my dick was and how it made them feel, and how addicted they were. So, getting peyronies really took a toll on my mental health.

I let it slide and did nothing for probably 3 months. The first urologist I saw, told me it was normal, said he dealt with a lot of dicks and there was nothing wrong with mine. At this point, I started having sex with one of my ex's, the first two times, is when I realized that I had erectile dysfunction. She would be on top of me and if she stopped for just 10 seconds, I would start going soft. She wanted anal one day, I couldn't keep my dick hard enough to enter her a$$hole. I couldn't understand what was happening, I had never dealt with Erectile Dysfunction in my life, and never thought it would be possible at 29. So, I went back to the same urologist, explained my situation and he prescribed me 20mg as needed cialis. I took the pill, had sex, the sex was great, I was rock hard, and could keep going.

Weeks past, I continued having sex too. Pretty rough. I realised things, for example in doggy position, when my ex would push back, my penis would slip out. This had never happened before peyronies. I figured now, the curvature is increasing and my erection is not as rigid. I started to panic, but continued having sex (my mistake).

I got referred to a urologist who specialises in transgender surgery. He advised that I do in fact have peyronies or what you would consider pre-peyronies and he can feel some fibrosis in the penis. He prescribed me the 5mg cialis daily, Pentox (called trental in Australia), and 100mg viagra as needed. Bout 6 months I lost here, I should have seen a urologist who specialised in peyronies and received the pentox, cialis, viagra straight away. He also recommended VED, said it improves about 30% of cases.

On this concoction of pentox, 5mg daily cialis and 100mg viagra, I had some amazing sex. I could pull out, orgasm, put back in to her vagina and keep going. Basically, very minimal refractory period. I was however, limited to 3 positions, doggy, missionary, cowgirl. If my ex tried to do reverse cowgirl, my penis would slip out. I would always be hesitant when she was on top too, if my penis slipped out and she hit it, game over! Doggy was okay, but couldnt go too hard, if it slipped out, game over again!

This ex is someone I have had sex with since I was 19, so now being 29, she knew my penis very well. I could make her orgasm 6+ times in one session. She commented that she could notice significant loss of girth but not length. But, that it was fine, as I could still make her orgasm.

Eventually, I went in for the ultrasound, no abnormalities were found. However, the urologist explained that this didn't mean there was no fibrosis int he penis, it just meant it was subtle or would not show on the ultrasound. They did however, confirm that I did not have a venous leak. They injected me with something similar to trimix, I think it was it started with an A (may just be a generic brand in Australia). After the ultrasound, my erection would not go down. I went straight to my ex's house and had some crazy sex with her. She was very satisfied and exhausted after it and commented on how much girthier I felt, she said it felt kind of like a didlo. I think the injection made the penis feel a bit more rubbery. Women love girth, they love that feeling of being filled up, when you leave, they will say they feel empty. I have had this said to me from women after I slept with them and left. They feel empty and long for you, it's a nice feeling to know you can do that to a woman.

Fast forward a few months, I stopped seeing this ex. I started using VED regularly and would see results. I have posted in the improvement forum somewhere in 2018/2019 with my VED improvements in curvature and girth. I started seeing another girl, I would use viagra to have sex with her. She was a squirter, so I knew every time I was making her orgasm, even with my peyronies penis. There was a time when she was in my state for a few months, then moved back to her home state. So, I saw her after 1 month. During that month I was alone, I did a lot of VED and continued with cialis daily and pentox. When I saw her in her state a month later, she commented that my girth had increased. And it continued to be that way for the week I was with her, despite the fact I was not continuing VED. So, I think in some cases, VED really can be beneficial.

I stopped seeing this girl and continued with VED. I would see results, the funny thing is, the results would always come about 2-3 months after using the VED. This was a sex shop VED, I was using it 15m a day with the protocol found on this site. I really believe at this point, if I didn't continue to have sex, I may have been on my way to being healed. I eventually purchased the medical grade 3 cylinder VED for $500. I remember, 3 months after using this, my erectile dysfunction greatly improved. I had nocturnal erections that would point straight up in my sleep, I would move around and accidently slap it! This was a clear sign that everything was improving! Now, my stupid self, continued having rough sex, and what happens? What seems to be another injury or micro-tear. Something just went backwards, my penis lost some girth and gained some curvature. I tried again with VED, this time 2 x 15m sessions a day. At some point, I left my penis in the chamber for slightly too long and I didn't realise that my penis had inflated upwards and penis was hitting the chamber in the VED. I released and took my penis out and straight away there is a new dent on the right side and some pain. This pain did not stop for about a year.

This incident was the beginning of the end.

Ever since then, I could not do VED, it would just result in my penis inflating upwards and causing pain. Now, I was confused what to do, how will I conquer this disease. An implant did not even cross my mind. I bought a restorex for $1250 here in Australia.

Started restorex, used the smaller rods and was seeing improvements. My Erectile Dysfunction was improving. Changed to the longer rods, I couldn't see too much improvement. Tried stretching against the curve, just caused more pain. Stuck to straight traction.

Now, during this year, which was probably year 3 with peyronies. I was stuck, no VED, no Restorex. How will I see improvement. I felt helpless, lost, worthless, emasculated. I was struggling in uni, struggling with my mental health. I hesitated talking to girls. My peyronies continued to progress, I saw increased hourglassing, new dents, narrowing. All these were not there for the first 2 years of peyronies.

Somewhere here, I had a message from Pfract, he wanted to skype for me to show him how to use restorex. I still remember, he was in his truck, using the restorex, but over the foreskin. I showed how I would pull my foreskin back, clamp the device, and release the lever. He tried it, and he liked it, it gave him a satisfying stretch. He thanked me, then asked me about implants. He said, why not just get an implant, it solves everything. I said to him, I don't really want one as I intend for restorex and VED to cure me, implants are more suitable for older people (that was my understanding at the time). He said, I am not trying to discourage you, just giving options.

At this point, my penis had narrowed quite a bit, dents were more prominent, length was a little less, and girth was substantially less.

I tried the shockwave therapy. Didn't do anything. Not sure if it made things worse, I just know I did not see any improvement.

At this point, I was passing on a lot of girls. I had girls that came from overseas and wanted to meet up, some from interstate that wanted to meet up. I would just make excuses for them. My penis looked so narrowed, that I just couldn't try to have sex. I also knew, sex/masturbation, was making things worse. This really took a toll on me, passing on girls that I liked, some wanted sex, some wanted relationships, I just made excuses for not seeing them.

At some point, I purchased the XL Cylinder and started VED again. My penis would inflate and if being careful, would not hit the top of the chamber. This was good. I continued this, 2 sessions a day. I did notice, that some of my pain decreased.

After that one conversation with Pfract, I started researching implants a lot more. I learnt that, yes, you can't get a natural erection, but you can keep an erection for as long as you want. Seemed like a reasonable trade off. I read that, you may gain back some length, but almost always, all girth. I thought, this is the best option to have. I found the two best implant surgeons in Australia. I had my first consult with one, he was in my state, he rushed me a little, but he was confident, and competent. He is known to be a skilled surgeon, he's a professor, and he has the most publications on peyronies in Australia. He also knows Dr Eid. He also offered to give me young guys numbers who he had operated on. The appointment with the second  surgeon was a few months later, I thought, I will wait and talk to him and decide who to go with. The second surgeon was in a different state but had a lot more experience.

The day I had my zoom call with the second surgeon interstate, I just felt like he emanated an air of competence. He explained all my options, and he also offered TEP, told me the risks, and directed me to where I could find the studies on it. He explained it may need a circumcision. He also explained that, nothing is going to bring my pre-pryonies penis back, but it may get close to there. As I explained above, I use to have a nice penis, was good looking, never had issues with getting girls. Peyronies took so much out of me, it just made sense to do TEP and gain back as much size as possible. Almost like compensation for the past few years of having this disease.

My surgery was booked for 7th Feb 2023.

As I waited for the 7th of feb, I had about 4 months. During that 4 months I did 2 x 30m restorex sessions (straight traction), and 2 x 20m VED sessions, with the XL cylinder. I only used the XL cylinder as my penis would inflate upwards and I didn't want it to hit the top chamber and cause more damage. In the XL cylinder, there was more space to accommodate for my penis inflating upwards.  At this point, I don't think  VED was making much difference. It's just strange how at the beginning of this disease, VED sessions would make a noticeable difference. Now, made barely any difference in Erectile Dysfunction, girth or deformity. I can't tell if the restorex made much difference either, I know the stretch was very satisfying. I feel it may have increased length a little. If you are interested, have a look at the pics in my traction journal then compare it to the pics I posted in my implant journal just before surgery. It looks like I may have slightly gained some length, but I can never be sure now as I didn't really measure. I just stuck with my measurement of 6.5 inches I had made few months before my surgery. I also think that, the slightest change in angle when measuring can obscure your measurement by 1-2cms. Further, erection quality can differ on different days. So, you may never get an accurate measurement.  

Something Merrix talks about in his journal (I've been reading his journal out of boredom these past few days), is diminishing impact. How, over time, the impact of something diminishes. This is so true, when I first got peyronies I was destroyed, and it wasn't even that bad! Over time, I learnt to accept it, the impact of peyronies diminished quite a bit.  

I do truly believe, if I had stuck with VED in the very beginning, and just didn't have any sex, there is a good chance I may have healed myself. Unfortunately, I will never know.

What made the implant decision a bit easier for me, was that, I could not have sex at all. My penis was so narrowed, it had multiple hinge points, any form of sex, would result in more injury. My only option to having a sex life again was the implant.

The rest is where my implant journal begins.

J  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

I think a very important aspect for people who are reading this journal and just people who are thinking about implants in general is to first let your pshycological issues be delt with before having the procedure done so that you don't fall down the same pattern of thoughts as JJ.

To you, J, I can only say, thinking about the past or what could have been is just a waste of time that will drag you down a pit of negativity. You have gotten implanted on now, it's game over, no way back, therefore it is crucial that you just live in the now, look at where you are right now and only think forward from there.

You are suffering right now and we are all with you, your recovery process will take longer than usual due to the advanced procedure you had done. I read both your posts fully, of course any man would prefer his natural penis to be working at a 100% that's just a fact, but another fact is your penis was severely damaged, you had tried literally everything without long term success, you had only one option left and you went for it. Trust me in the future you will be rewarded for it, your sex life will most likely be at it's absolute best, short term pain for long term gain.

Ride through this tough period and on the way please try find a way to implement a more positive attitude take every day as it comes, live in the now, do not dwell about the past, or think about the future with revision etc, it's a waste of time and will make things miserable.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

GaussRifle

Hello,
I am younger to you and can assure you I have been dealing with this since 2020 and can tell you I have never once been able to have penetrative sex in my life. I am considered a attractive person and get hit on by girls at clubs and I know the feeling of forcing yourself to avoid the opposite sex and repress all sexual thoughts. Looking to forward to things working out for you. Because you serve as an inspiration for me and many here.  
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

jj21

Quote from: Sonic on April 25, 2023, 09:14:54 AMI think a very important aspect for people who are reading this journal and just people who are thinking about implants in general is to first let your pshycological issues be delt with before having the procedure done so that you don't fall down the same pattern of thoughts as JJ.

Thanks Sonic, I appreciate what you're saying. Generally, I have been quite positive about everything. I really think it's just the toll of being immobile for 11 weeks, having my life on hold, not being able to gym, go out, be active. This has just taken a toll on me and I was just having a negative episode yesterday.

I do know that, this is 100% a great improvement compared to my peyronies penis, I could not even have sex with my peyronies penis. My current penis is girthy, and very rigid, definitely be able to have sex with it, probably amazing sex in multiple various positions too! And I am sure women would love the girth and rigidity of it.

You'll understand when you get an implant. We go through a phase in the beginning where we think, "what have I done". Most implant journals have this phase. Usually, it subsides with time and healing, as your body adapts to having the device in you. It is different for us younger guys.

It is very true what you said, you need to be psychologically prepared. There were some things I was not prepared for. For example, the unnatural flaccid, the increased recovery time, the prolonged period of pain, the prolonged period of being immobile. Most people implanted are ready for sex by week 3 (but they only had the implant surgery). Tortao who did TEP, was only in discomfort at week 11 I believe.

So, I think I may also have a unique case of perhaps prolonged healing. I am not sure.

Appreciate your response Sonic, and I know you're considering an implant for the future, so read through these journals and be prepared too!

Wishing you the best in your journey brother!

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Quote from: GaussRifle on April 25, 2023, 03:44:46 PMLooking to forward to things working out for you. Because you serve as an inspiration for me and many here.

Thanks brother, I am very sorry you have to deal with this disease at such a younger age. I know exactly what it's like getting hit on by girls then having to make excuses. Everyday you just feel incomplete and emasculated. Honestly, sometimes I would just feel like crying.

If you're looking into an implant, all I can say is, read the journals, especially the ones of younger guys and be prepared. Im sure you already know to use a high volume surgeon.

I hope you overcome all this soon, keep in touch.

Always here if you need any advice.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Quote from: GaussRifle on April 25, 2023, 01:26:39 AMCould you please tell us where exactly in your penis do you feel pain after orgasm.I am asking out of curiosity only.

Gaus, just to add to this. Last night, I went to pee, leaked out semen after (I am guessing because I have not done anything in a while). I had the pain, I would describe it as burning in the glans, especially where the tips are. And, some pain in the shaft, I think where my dents use to be, and where the dog ears are.

Perhaps, its from the glans swelling? I know I was oversized, maybe this could be a reason. Really not sure.

Will update if/when it improves.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

Can you book an appointment with your surgeon even if it is several weeks out?  I do not understand and pain after leaking "semen."  Why would a few drops of semen hurt your penis, and passing a stream of urine would not?  If your prostate hurt, it might make some sense.  Nothing going on inside of your urethra should be affected by this surgery, especially this far out.

I assume you had a urine test for a urinary tract infection.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Quote from: Hawk on April 25, 2023, 08:43:19 PMCan you book an appointment with your surgeon even if it is several weeks out?  

Thanks Hawk, seeing a high implant surgeon tomororw.

 
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Hawk, can I get your advice on what you think about wearing tight clothes and pointing the flaccid down? It's been 11 weeks, I really want to walk around and get out, but don't want to affect erection angle.

I noticed Merrix was wearing tight suits and pointing his flaccid down at week 8 I think, and it didn't affect his erection angle.

Appreciate your advice.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update - Saw Implant surgeon in my state

I saw an implant surgeon in my state, he also does the Tunica Expansion Procedure. He advised that, it may take another 1-2 months to heal completely. Said everything is normal and I just need to wait it out. He also advised to keep the penis pointing up.

Unfortunately, he couldn't continue to see me as a patient, and advised that I need to go back to my surgeon interstate for any other issues.

He also advised that I hadn't deflated fully. This was a bit of a shock as I had deflated as much as I could prior to going there. He advised that auto-inflation was rare. But, it seems that I am getting some auto-inflation, especially when waking up. I asked him if I should deflate the device a few times a day, he agreed.

In regards to the pain after leaking pre-seminal fluid, he said it would be unrelated to the implant. But, this only started happening after I got the implant. I have leaked pre-seminal fluid before when doing nofap and was not in any bad pain.

In regards to the pain after orgasm, he said that it should improve over the next few months.

I think I will just have to wait it out. The pain is improving a bit, but it is very difficult tucking the penis up and walking around. I wouldn't be able to gym or go for long drives or even back to work at this point.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

If you are not totally deflating, it will, of course, be very difficult to comfortably position your penis. It is CRUCIAL you totally deflate, or you may never be able to do so without surgery.  I would literally use a rolling pin if needed.  Once totally deflated, If you are auto-inflating, once I deflated, I would wrap my penis snugly with Coban wrap that sticks to itself, especially at night, to see if you can still stretch the reservoir scar capsule at this late stage.

I think you know my position on pointing your penis down, plus you now have the other surgeon who shared his advice.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Quote from: Hawk on April 27, 2023, 04:39:44 PMI think you know my position on pointing your penis down, plus you now have the other surgeon who shared his advice.

Thanks Hawk, there's just so many conflicting views. My surgeon who did the surgery told me it was okay to point it down at my follow up appt. at 6 weeks. But, I think leaving it up is best for now.

Do you think once I hit 4 months, it will be okay to point it down?

Thanks as always, you have no idea how much the support from this forum and all you guys messages have been a sense of hope and comfort for me during this difficult period.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

J, The short answer is that I don't know.  I think it is OK to do it in the first month if you are not passionate about every degree of erect angle.  Your surgeon said it was OK, so it "probably" is ok.

But, this is what I know or a fact.  You cannot have a negative impact on your erection angle by pointing your penis up or up at an angle in the crease of your leg.  You are probably ok point g it down.  For me, that is all I need to know to point it up.  If my inflated angle is not satisfactory to me, I want to be damned sure it was NOT because of something I did.  Everyone has to make their own decision because I am certain there have been no large randomized study on two groups of men, so how could anyone possibly know the answer?  They can't.  They can only apply logic and present their theory.

If you recall, I did post that when you decide to point it down, you have the option (if you wear snug underwear) of bending or hinging the shaft an inch or less from the base.  That way, the base still enters the body pointed up or at least straight out.  There is no downward force on the crus where the scar capsule stabilizes the base of the cylinders.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Quick Update

Deflation

After seeing the urologist yesterday, I started deflating 2-3 times a day. I squeeze very hard when deflating. I finally started to deflate properly. For anyone interested, see the pic attached. This is what a deflated titan should look like, basically, a crinkled up water bottle (that's what it feels like too).

I was probably only deflating 90/85%% before, then getting auto-inflated about 20%.

The flaccid angle is a bit lower now too and it doesn't point out as much. Makes it a bit easier to walk around.

Ups n Downs

Last few days I had some ups n downs. I cycled a few days ago and my erection was completely slanted. No idea what happened. Next day, it was less slanted but completely flat. Next day it was slanted but also the erection angle was lower than 3 o clock. It was troubling me a lot. It seemed like I lost some girth too. I purposefully chose not to journal about it, as I did not want to obsess over it.

Today I cycled, my erection angle is above 3 o clock, there isn't much of a slant. Girth is back.

The only thing I can put it down to is, I was taking pain killers before cycling for the last few days, they must've affected my engorgement, which affected my erection angle and girth.

Doing your procedure interstate

I once again would like to re-iterate for anyone out there in Australia. When I saw a urologist from my state yesterday, he made it clear to me that this would be our last appointment. Despite the fact that he was a high volume implant surgeon, who also specializes in TEP. He told me I need to go back to my surgeon interstate and he would not take me under his care.

I understand it's best to stay with the surgeon who did the surgery, as he knows the procedure best.

This isn't something I thought of when choosing a surgeon interstate. And, this can make things difficult when having issues, or fear of infection, knowing if you have deflated correctly etc. Especially since, the surgeons here do not give out personal numbers to contact them on like in the U.S.A.

Something to consider when choosing your surgeon.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

GaussRifle

Is that image, picture of your deflated penis ?  
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Hawk

J, it is also important to deflate the cylinder volume behind the scrotum. It takes two hands.  After deflating the shaft, Pinch the cylinders at the base of the penis so fluid cannot move back into that area when you squeeze the cylinders behind the scrotum.  This is of course only necessary at this stage when you're trying to get all the fluid you can back into the reservoir.

To Gausrifle, yes, that is his totally deflated penis. When the titan cylinders are new, they are very much like a crinkled water bottle when they're deflated with time they take on more of a rubbery feel.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

GaussRifle

26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

jj21

Quote from: Hawk on April 28, 2023, 08:02:19 PMPinch the cylinders at the base of the penis so fluid cannot move back into that area when you squeeze the cylinders behind the scrotum.

Thanks Hawk, I do squeeze base of the penis. By behind the scrotum, do you mean the perineum area? I note, this is what merrix states in his journal too, to squeeze perinium.

Is that what you mean?

Also, once the cylinders get more of a rubbery feel, to they look/feel any more natural?

Thanks as always.
J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Quick update

I slept and woke up, looks like I didn't get any auto-inflation. My penis looked the same in the morning.

Pointing it up is also more comfortable now that it is fully deflated. Might actually start going out for walks/gym etc soon.

Some good news :)

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

orriw

Hello JJ i am sorry that so far your recovery is rather tough and it does not go so well like you hoped. But time will tell i think it will get better.
Your urin drip story on the leg was funny! I have pee dribble too. What helps greatly is to push with two fingers an inch behind your scrotum. Urologist recommened this to me.

Also i think you could benefit from lowering your testosterone level or sex thrives maybe, when it is so hard for you at the moment to think of sex youre missing. Try to distaract yourself. As long as you have no flaccid pain everything is fine. I am right now starting a reseller business, and this is just on my mind all the day, i dont even miss sex at the moment. I masturbate every 2-3 days , 10 minutes and im doneand its fine to me, not thinking much about girls then afterwards. Sex or desire for sex is just a feeling like anything else and you can try to stop or reduce that feeling, if it helps you for better recovery.

I have some pretty good success right now with my pain by lowering masturbation frequency, being more gently now using a lot of lube and Therawand and pelvic exercises. Eating 1 pound vegetable mix every day. I think i am on the right track. Praying for.
27y, injured at 21 y!

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

orriw

Here is another advice: Try rising your vitamin D levels. 5000 I.U. each day + 200k2 and some magnesium- this can help with so many things , Peyronies Disease too. Especially for dark skinned people it is important, you absorb less from the uv rays.
27y, injured at 21 y!

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

jj21

Quote removed by administrator - Refer to forum rule #7
7. Limited Use of the Quote Button - Normally, we should use the REPLY button to reply to a post.  We can use the quote button on a member's post only when we want to quote a small portion of another post.  We can also use it when responding to anything that was previously posted BUT NOT when we are responding to the post immediately before our own post in the same topic.  When we do use the quote button, we should trim the quote down so entire posts are not repeated. That way, the reader can more easily follow the conversation.


Thanks appreciate your advice.
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

To Hawk and anyone else out there,

I am just after some advice.

Lately, as I have been deflating fully, it has been comfortable tucking my penis up and walking around. I have noticed that my erect angle has improved, it is now maybe 2:30/2:45. My flaccid angle has also started to naturally point more up.

This is good, but there is only so much you can do with a tucked up penis in your pants.

When can I expect the flaccid angle to drop to a point I can comfortably tuck it down without affecting the erection angle.

I really want to be able to walk around comfortably and go to the gym. It has been 3 months since the operation.

Thank you,
J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

No one can answer your question J. The answer is, when your scar capsule in you crus is totally healed. That will very with each patient and each procedure.

Ultimately it will be your call.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Curvekiller94

How do you know when the scar capsule is fully healed?
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

jj21

Hey guys, I am going to try and make this my last post for a while, I don't want to obsess over every little thing that happens with this implant. I just want to leave it to heal now. Some updates below

Auto Inflation

The device still auto-inflates, I deflate it after cycling about 2-3 times then point it up in my pants. I noticed, when pointed up it does not auto-inflate. I will continue to do this for probably another month, maybe more.

Pain after orgasm

This seems to have subsided substantially.

Deflated/Erect Angle

As advised in my post above, as I have started to tuck my deflated flaccid up, my erect and flaccid angle has also moved up. This is great for my erect penis, but in terms of comfort and continuing life with a flaccid that sticks out, things are not so good.

I have read people on FT, also Merrix journal, where they started to tuck their flaccid down in tight clothes and go to the gym or the pool, and it had no affect on their erect angle. Then I have read the opposite, where some people ended up with an erect angle that was below 3 o clock. I am just leaving it as is for now, tucking it up and doing what I can.

Erect slant

Sometimes my erect penis is completely straight, pointing up. Sometimes it is slanted. This could be from laying down in different positions. I am really not sure, I just know that sometimes I inflate to cycle and the penis is erect but slanted, other times, it is completely straight.

Peyronies curve

The curve when erect is completely gone. However, when flaccid, my penis seems to have taken the shape of my peyronies curve/twist. It twists to the left. When inflating to cycle, it kind of inflates by untwisting and going up (if that makes sense). No idea why this is or whether it will improve. Either way, it doesn't make a big difference, just affects comfort at the moment.

Length/girth

I have not measured, I just don't want to obsess over these things. I will probably measure at the end of May and report back. I do feel like visually it has gained some length and girth, but time will tell.

Engorgement

I seem to have some engorgement. I did need Viagra, pre-implant. I would prefer not to have to use it now. But, when I am ready to test the device out more, I will check and report back. The natural engorgement does add more of a round shape. Without engorgement, the device can be very flat, rectangular and hard like a stick (I assume that would be very uncomfortable for a vagina). This is something, I was not aware of going into the implant surgery. I thought, getting the implant there would be no need for viagra/cialis. So, something to be aware of for others, you may still need to use pills.

How I am Mentally

I am struggling. It has been 3 months, I thought I would be back to the gym by now, I am very limited in what I can do. I have to tuck my penis up and walk around everywhere which is very uncomfortable. I haven't even had a haircut in about 3 months. Looking forward to finally getting back to normal life soon.

I will log in every now and then and check messages incase anyone needs some help or advice.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Just wanted to add this:


Dent and Flaccid curve/twist

There's a Dent on the left, my flaccid penis, will sit to the left comfortably, but will not move to the right. If I try to move it to the right, there is some pain and it will not lean onto my leg, it will point out.

There seems to be a dog ear on the right side which is painful, it sort of sticks out, almost like it's balancing out the left side of the dent. One side is dented, other side sticks out (hope that makes sense).

In the pic you can see the dent on the left, this is mostly prominent when flaccid. When, erect, it is not really noticeable. When inflating, the penis sort of inflates by untwisting, if that makes sense.

This is rather uncomfortable, but I guess, I can live with it. I intend for it to straighten out, so I can tuck it down comfortably. At this point, I just don't know what to expect. I feel like leaving all this and just coming back in a few months to see what happens.

I know Merrix in his journal talks about a flaccid which mimics his peyronies curve (this is exactly what is happening). I need to re-read his journal and see what happened.

For anyone reading this, just remember, your erect curve may be cured, but you may have to deal with an uncomfortable flaccid curve. Will this improve? I really hope so. I am so done with all of this.

If anyone has any ideas or theories on how this will end up, very interested to know. Especially if any of the peyronies guys have experienced this before.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Stepone

Jj21,
I love reading what you write. It sounds like you are sharing all your personal inner thoughts, it is refreshing.
This is my take on things
First, "time" will cure many of these issues. I am trying to think back about my own personal experience and I seem to remember thinking much of the same.
BUT, things will get better over time.
When you say "auto inflate", I wonder if it is slightly inflating because you do not lock out the pump.
I am not very good at explaining, but when you deflate and have squeezed as much out of your deflating penis as you want...Grab the pump and give it a squeeze which will prevent the pump from allowing fluids to back flow into your penis.
I know sometimes I forget this and over timr, my penis will do a semi-inflate, then I feel it and I get excited and before I know it, I have a nearly erect penis in my pants.
The curve in my penis even deflated. I have always worn my penis to my right. And when I had Peyronie's it curved about 90 degrees to the left. So after I received the implant and things calmed down, I started wearing my penis to the right again which feels the most comfortable.
Now then I am deflated my penis curves slightly to the right, which is fine for me. I don't worry about it, because when it is rock hard, it's a beautiful cock.
I am married, and my spouse loves my girth and when it is pumped to max, it becomes a climax creator for my spouse.
I hope this helps.
Best wishes and prayers
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Pfract

Thank you for mentioning that to jj21, stepone. I spoke with him about it, but maybe it will put him at ease, coming from somebody that has an implant. That trick about locking out the valve after deflating.

jj21: I am sorry to read that you are still going through some minor issues with your procedure and outcome. But from the outside, it looks very good, your result I mean. If Erect you have no curvature and very minor dents, I think in time and with the tissue stretching out you will be fine.

As for not getting a haircut, may I ask why you didn't feel confident to go?