T.E.P (tunica expansion mesh procedure) and implant journal

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jj21

Eaudecologne - thank you, best of luck with your peyronies journey as well!

Sonic - It does seem that way, I am still a bit swollen I think, I'm really not sure, but this morning I saw some crinkles at the top of the shaft, I think that's an indication that the swelling has gone down and the device isn't fully inflated or maybe it was just my imagination, or the way the skin was in the morning. You're right though, the dents and narrowing on the underside in my pic posted before surgery, compared to now, is remarkably different. The surgeon himself said, when he degloved the penis, there was significant narrowing all the way up to the glans. I assume this is what was causing all the pain and Erectile Dysfunction. My curvature itself, was not too bad. This is also the reason why I chose to be circumsized, degloved, and have TEP all the way up the shaft. I had a lot of people on FT comment that getting circumsized was a bad decision, but I chose the fact that, with circumsiscion, the surgeon could deglove the entire penis, see what was going on, and perform TEP all the way up the shaft for maximal girth/length restoration. I believe I made the right choice, but time will really tell.

Pfract - I had a lot of thoughts in that post, but my main message was not to let peyronies get you down, try not to spend 4 years depressed like I did, staying stagnant in life, but rather, excel in every other aspect of your life, and peyronies won't seem like a big deal. Once you overcome it, you will even be in a remarkably better position than before.

Update: Exactly 4 weeks:

Still swollen a little I think, I think almost ready to be deflated. I called the doctors office last week and asked to see another urologist there as my surgeon is on holiday till the 14th, also requested to see my surgeon on the 14th. I called them up today after 2 business days and got told to just wait and they will contact me tomorrow. As you can guess, this is what frustrates me about the service in Australia, as discussing with Pfract via skype the other day, we are just another number to them sometimes. The office doesn't realise that, I am interstate, I was suppose to eb deflated 3 weeks ago and fly back interstate but couldn't due to swelling, the surgeon and nurse has gone on holiday, and I am left here with reception staff who are not very accommodating. I finally feel like the swelling has gone down a bit and request to see a diff urologist at the practice who may be able to deflate me so I can get on a plane and back on with my life, and I get told to wait, after waiting 2 business days already, and 4 weeks in total since surgery.

Apologies for the rant, but I just want people, especially in Australia to know, that aftercare isn't always the best here. To be prepared. It's been 4 weeks now, I am interstate in a hotel room. When comparing aftercare to surgeons in the USA like Hakky or Eid, the difference is remarkable, Dr Eid is even known to come visit patients in their hotel rooms.

Don't get me wrong, my surgeon was still great, and I definitely can say he is skilled, I feel like I have improved and am eager to see the final results.

This morning I woke up, I felt like some of the swelling had gone down and at the top base of the shaft it looked like a bit crinkled - is this a sign that the swelling is down and the device just isn't fully inflated? Or perhaps it was just the way my skin was in the morning. I can also feel more in my penis, I think some of th nerves are healing, I am getting more feeling and I can do a kegel which feels comforting. With my peyronies penis, if I did a kegel, it would result in pain. For anyone else ever going through this same procedure, I read a lot of studies that stated vitamins B12, B-complex and ALCAR can help with nerve regeneration, I have been taking these since the day of my surgery.

Hope everyone is well, if all goes to plan, I will be on a plane back with the next week and should be able to start cycling.

J

34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

jj, when it comes to the circumcision I am incredibly curious to see how you will compare sex now while cut versus being uncut.

I've read about so many guys saying there is less pleasure or sensation when cut due to the nerve endings in the foreskin but at the same time some guys said it feels better when cut!
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

Sonic, I did some research into it prior to the procedure, all had mixed reviews. I found as many reviews of adult circumsision online as I could find. Some preferred sex with foreskin (more sensations as you said), some say circumsized feels better as there's more feeling when inside the vagina, and some said it made no difference at all. 

The only major issues were the rare number of cases who received a botched circumcision and something else went wrong. 

I spoke to a girl recently who told me that she prefers a circumsized penis because the knob (head) feels better inside her vagina, she said foreskin can feel like a condom. Then I have also heard girls say they enjoy the gliding feeling of foreskin inside them. 

So, it seems either way, there's pros and cons. 

I guess the next few months will tell for me. 
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update Day 29

Uploaded some pics, my scrotum swelling has gone down quite a lot, I can comfortably feel the pump. I should be able to get deflated easily soon. Consider, my scrotum was still the size of a grapefruit about a week ago lol.

Pain: Pain generally has improved, however, I seem to have noticed today that as the swelling has gone down, the pain in my shaft has increased, not sure if this is me getting use to the cylinder or tips perhaps or just results of TEP healing.

My shaft I believe is still a little swollen, I really can't tell. I think there are some crinkles at the top which is an indication that the swelling has gone down and the device isn't fully inflated?

Unfortunately, my surgeon, and nurse are both on holiday. I am still in a hotel room interstate, just waiting it out for now.

Shaft doesn't seem too oval shape either, I am not sure if this is due to still being swollen or just the result of the surgery. Also noticed that my sensitivity is now coming back, I have good sensation on my glans and shaft, it's starting to feel like it did pre-surgery.

The only thing a bit concerning to me is if you can see in front of the bit of foreskin left (where I was circumsized) how the pink shaft skin is swelling, it's looking a bit unattractive. Hoping this isn't permanent, I have been advised this may go down, especially after deflation.

Eager to start cycling and see some gains. I estimate that I am at 5 inches Non-bone pressed, I think this is good considering I was 6.5 Bone pressed pre surgery, plus I am currently not fully inflated and have not started cycling.

I'm feeling excited, grateful, happy, compare these to pics to my pre-surgery pics above and tell me what you think. I think the fact that the dents seem filled out (not sure if this is a result of being swollen or they have actually filled out this well) is a good sign.

Suffered 4 years with peyronies. Starting to feel grateful.

Let me know if you have any opinion on how the healing is going, if you think the swelling has reduced enough to be deflated, if you think the shaft is swollen or not, or on the swelling by the circumsision. Really appreciate the support I receive from all you guys.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

Pics look great what a massive difference. It is very clear the implant has gotten rid of your dents and narrowing completely, trust me it has nothing to do with the swelling they are just simply gone. I think in 6 months you are going to be ecstatic with the results. Compared to your old pics it's like a completely different penis!
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

ohnoohno

Glad to hear all going well for you JJ! Gives us all a positive reminder seeing people defeat this thing! Thank god for the knowledge of doctors to be able to perform such intricate surgeries. Looks great also btw.

I need to learn what these terms mean "bone pressed / non bone pressed" and I see people use "cycling" a lot... Is this like after surgery you pump it up or something to try get the biggest size possible?

You got a lot to look forward too soon! Take care
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Pfract

Quite the difference from last time you shared pictures! You have a long way to go, but it just looks so promising!  8) Got my fingers crossed for you, still. I hope we can talk again soon!

jj21

Sonic - Thanks, it's definitely an improvement. Appreciate the supportive words, its reassuring as sometimes I do second guess myself.

Ohnoohno - Thanks for your support. Don't worry, I had to learn these terms too after getting peyronies, so basically bone pressed is when you measure your erection pressed into the pubic bone, Non-bone pressed,  is measuring just the penile shaft and glans itself. Can make a difference, especially for people with higher body fat. Yes, cycling, is post-implant where you pump the device, leave it pumped for a while, then deflate, it results in the penile tissue stretching and most people eventually end up with the size they had pre-surgery (some more, some less).

Pfract - Thanks a lot man, and I appreciate you calling and checking in on me via skype every now and then. You have a wealth of knowledge when it comes to implants.

Update Day 30

Swelling has definitely gone down on the shaft, but it seems a dent has returned (pic attached). Right side bottom of the base is where the largest dent was pre-surgery. All the journals and people I have spoken to seem to indicate that these dents etc will most likely fill after months of cycling. Anyone have any experience?

Other than that, as the swelling has gone down, I am getting sharp pains along the shaft. These seem to be prominent in the morning when I have some engorgement. I wake up with what would normally be wood, it just kind of feels like blood rushing throughout part of my shaft and then there is this aching pain. I noticed if I get aroused as well, I can feel blood rushing throughout the shaft followed by pain. I'm guessing, as the swelling is going down and the sensitivity and feeling is returning, my body is now adjusting to the device within the shaft, as more feeling is coming back, I am feeling pain in different areas.

I finally got an appt with my surgeon on the 16th, should be deflated and will be able to get on a plane and back to my state. I was suppose to be partially deflated 3 weeks ago but due to the swelling, they could not locate the deflate valve. So, for anyone reading this and considering going through the same procedure, just know that your recovery may not be as long, don't let my journey put you off. If they partially deflated me weeks ago, comfort would have been a lot better, I wouldn't be peeing in a bottle for 4 weeks. I also probably would have gotten onto a plane and back into my state and been home by now.

Will the results be worth it? Time will tell.

Appreciate any feedback from you guys.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update day 4 weeks 4 days

A lot of the swelling has gone down. I am now getting some pain along the shaft and in the scrotum, I am not sure what this is, I am just assuming it's my body adjusting to the device. I am also inflated quite a bit still. I also feel burning feeling on the glans, I am guessing this is the glans being used to being circumsized.

As you can see in the pic, bot right side, the dent is more pronounced now that the swelling has gone down. This is causing the slant to the right. I am expecting this will improve with cycling.

I also have a stitch which has not dissolved, anyone know if this is  common almost 5 weeks post-surgery?

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Curvekiller94

Wow you're healing very well it seems. Surgery takes time. I got a hernia surgery and I thought I'd never feel normal. But I did just with time. I think you could be still swollen a bit and that would might be exaggerating the dent. But it seems like you're headed in the right direction — unfortunately I'm unsure about the stitches hang jn there dude this shiz is almost over
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

jj21

Curvekiller - thank you, appreciate the support. I'm in a hotel room on my own, inflated, these messages remind me I am not alone on this journey.

Update day 33

I have been getting pain in the shaft, glans and scrotum lately. It is more prominent after using the bathroom. It's pretty bad and makes it difficult to walk around or do anything as I am also still inflated.

Another dent has showed up, although it's completely insignificant in comparison to how it use to be. I notice that there is pain in this exact area where the dent is. I wish I knew what's going on. Just leaving it for now.

Appt. on thursday with the Doctor to get deflated and hopefully start cycling.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Curvekiller94

No problem, to me the dents don't look bigger to me. But pictures don't always tell the whole story. I'm not a doc, but it is possible that the dents are just stretching as you are more filled out then you have been in along time. Maybe it's pulling the scar tissue considering it is in the place of former dents. Hang in there, glad you get to go in to the doc and hear back soon as well as your swelling coming down also good to hear keep on heeling dude.
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

jj21

Curvekiller - Thanks man, should be okay I think, all the journals seem to indicate that, over time, with cycling, the dents should fill out. In the rare case they dont, the titan is so rigid that, dents will not make any difference in rigidity. A member once told me, if you have a rigid penis with dents, try to think of it as a ribbed condom, it will add pleasure for the female. Kept me kinda positive.

Update 5 weeks

I had an incident where I pushed a little hard when going to the bathroom yesterday. I had some pain a while after, it was pretty bad. Anyway, this morning I was fine, I woke up, moved around a bit, next thing you know the pain is back. The pain was throughout my groin area, shaft, glans, scrotum, upper thighs, perineum. I was also leaking fluid drops out of my urethra (this really worried me). After a long conversation with a doctor he eventually established that I caused inflammation after going to the bathroom. He explained that the fluid is prostatic tubal discretion (I may have got the wording wrong), and there is no infection. I was then prescribed a strong anti-inflammatory and some pain killers, I am okay now.

What's worrying me, is that I have been inflated about 70-80% since surgery (5weeks). I am wondering if there is a risk of auto-inflation (the reservoir not healing with the full amount of saline etc). Big thanks for Pfract for the support and bringing this to my attention (we talk over skype). I told the nurse this today and she just dismissed it. I will have to see what the doc says on Thursday, I think they will just dismiss it until an actually issue arises.

Would anyone know, would the fact that the titan one touch has a lock out valve prevent auto inflation?

Other than that, I would just like to add that, my whole life, ever since I was  a kid, I use to enjoy sleeping on my stomach. Ever since peyronies about 5 years ago, I stopped sleeping on my stomach as it would aggravate my condition. I started sleeping on my sides only to prevent any further injury from nocturnal erections. Even in my sleep peyronies would affect me. I am really looking forward to being able to sleep in peace, without having to worry about nocturnal awkward positioned erection erections causing further damage. I am especially looking forward to being able to sleep on my stomach again after 5 years!

I have included a pic which shows the dent a bit more clearly, you can see it's causing the penis to slant to the side. I am hopeful that with cycling this will either fill out or will not cause any issues. The other issue is, if you look at how the skin is swollen under the glans where I have been circumsized, I really don't like the look, it almost looks a bit like large genital warts. Hoping this subsides.

Appreciate any feedback.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

I wouldn't worry about that thing you have highlighted on the pic. I've seen similar stuff on other forums with implant patients and they pretty much all were resolved with the cycling process.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

Sonic - I appreciate the encouraging words, literally been in a hotel room, interstate for 5 weeks, inflated, peeing in a bottle, on my own. Your messages really give me encouragement and reassure me I am not alone. Thank you.

Update 5 weeks 1 day

I have quite an interesting update today. Last night I took some painkillers and finally got tired of this erection. I have been inflated the same since surgery 5 weeks ago, was suppose to be partially deflated 2-3 weeks ago but never happened due to swelling and my doctor being on holiday. The TEP procedure I had done requires 4-6 weeks of inflation.

I tried to find the deflate button, I just could not, no matter what I tried. I found the keychain (thanks to Pfract for making me realise that this keychain was actually with my aftercare package) and practiced but just could not find the valve and groove. At least when I thought I had, I squeezed, nothing happened. I squeezed and pressed my penis, nothing happened. I thought maybe if I pull down on the pump it will help, I pressed the pump, it was hard like a marble, I pressed it twice thinking it would do nothing, my penis inflated a bit!!! Lol.

Now after two minor pumps, there is good news and bad news.

The good new is that girth seems to have really improved, pic attached. Look at the top view and side view pics and you can definitely compare it to the pics in the above posts, the girth has improved just in two pumps which is great! It is now more stable and less wobbly too!

The bad news is that firstly, there's a dent on the left side which I have circled, there seem to be more slight dents popping up. These are definitely not significant and I don't think they would effect sex in any way, I also think they may resolve after cycling. Secondly, now this part worries me a bit, the penis is now significantly flatter and oval shaped. I hold it in my hand and it feels like I am holding something wide and flat? I love the extra girth but it is very flat n oval. I am wondering how this will effect women for sex, most dildos etc are all shaped round? Can anyone advise on whether the penis becomes rounder over time, or with natural engorgement, or how an oval shaped penis affects sex?

What I did next was went into the shower and sort of touched myself to see how the sensitivity was. The penis was significantly less sensitive than pre-surgery. However, this may be expected as I had the T.E.P procedure which requires nerve healing (may take 6-9 months). I was also circumsiezd. I noticed that the part behind the glans (frenulum I think) is rather numb, this use to be the most sensitive part of my penis before when I was uncircmsized. Is anyone able to comment on whether this sensitivity here may return or is this just part of a circumsizion?

If anyone is able to give any tips on deflating, I would really appreciate it. I have tried everything, when I feel like I locate the groove and button, I squeeze but nothing happens, I squeeze then squeeze the penis too and nothing happens. It started to get painful so I stopped.

Doctors appointment tomorrow, looking forward to having this thing deflated.

Appreciate any feedback from you guys. The support is reassuring.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Have posted a before and after, the difference is quite remarkable. The amount of narowing on my peyronies penis was just crazy. You can clearly see how that's been fixed and the girth I have now, I am confused if it will actually be this girthy or if it's just swelling.

Looking at that after pic, I feel like a porn star HAHA!.

Either way, definitely a big improvement, has me very happy and hopeful.

Wishing the same for any of you's still suffering.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

I hope this gives you some comfort but even if after the cycling process there are "dents" left they will only be a purely cosmetic/visual thing however you want to put it. They would basically be there but they will not have any negativeme effects at all.

Fully inflated you will be extremely hard and stable whereas dents in a peyronies dick causes softer erections and wobblyness.. You have gotten from severe narrowing to a donkey kong level thickness of cock, lmao!!!
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

Thanks Sonic, ya Dr Eid did say that with a titan, even with dents, it doesn't affect rigidity of the penis.

Donkey kong lmao.. Man honestly,  has to be swelling right? Im flabbergasted lol
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

Hawk could probably tell you more accurately. But I don't think it's all due to swelling. Definitely partially but usually Titan implants make patients gain significant girth.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

That's amazing if this is the girth lol. I did have the TEP done as well, and the surgeon made incisions to increase length/girth. I feel like a porn star  8) lol

There's hope out there for us all man.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

lmao, I can say for certain based on those pics you have definitely gotten an alien/monster type cock now!  ;D

Probably most women are going to be in pain when you take them to poundtown lol!!

It's great to see the progress you are making.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

Thanks Sonic, feels good to see the difference. I wish the same for you. I actually saw my doctor today and he did say there is some swelling still in the penis, so this could be why it looks so girthy lol

Update 5 weeks 2 days - First Deflate

Finally deflated today! The deflate valve is behind my scrotum, it isn't directly above the pump. My scrotum is very small and compact now. It was quite painful being deflated. The doctor advised that there is still some swelling in my penis and scrotum (perhaps the reason why my penis is so girthy). I was able to pump and deflate myself.

I am going to start cycling from tonight, thinking of taking some pain killers, pumping as much as possible, then leaving it as long as I can and deflating. I think deflating may be the hardest part.

Any deflating tips? Atm, I press the deflate valve then squeeze the penis, it takes both hands and some skill, time and effort to do.

Something I was not entirely prepared for is that when flaccid and deflated, the cylinders are very noticeable. I can feel them in my penis whenever it moves. I can feel it with my hands if I touch my flaccid. I know this will just take adapting/getting use to.

I have also gotten some more pain now within the shaft and scrotum, probably just my body adapting to being deflated.

The doctor and nurse were very apologetic for leaving me on my own while they were on holiday, and for the fact that a diff nurse/doc could have partially deflated me 2 weeks ago. Overall my experience with them has been good and I am very pleased with the result.

Overall I am happy, seeing my comparison pic above, major difference.

Might update again tonight when I try to cycle for the first time. Will try to measure as well.

J

34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update 5 weeks 2 days - First Cycle

Okay, I took some pain killers and decided to cycle for the first time. I pressed the bulb, it was tough, the skin gets sore from so much pumping (eventually I pumped with a tissue over my scrotum for anyone else reading this and starting cycling). Used both hands, helped. I probably squeezed it 50 times, with some being half squeezes.

I left it fully inflated for 45 minutes, the pain was mostly in the glans, it was pretty bad but I just didn't move around much. I can feel the stretch that people talk about.

My biggest issue is deflating, it is so difficult to locate that deflate button and groove. My deflate valve is behind the scrotum which is still a bit swollen and the doctor said there is a sac of blood still in there. It's a bit difficult to tell when I am fully deflated at this stage, I have just been estimating. I am guessing I have to wait for the cylinders etc to soften over time.

Now, fully inflated (see pics), the penis is rigid, I estimate it's about 6 inches bone pressed, or maybe 5.75. I was 6.5 inches bone pressed pre-surgery and about 7 inches pre-peyronies.

I have a lot of pain now when deflated, I am guessing this is normal? Any tips on deflating, or knowing when you're fully deflated at this stage?

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

5 Weeks 3 Days

I made a before and after with my fully pumped penis, you can really see the difference and how remarkable it is. Doesn't look like there is too much length lost atm. I am very pleased with the result, eager to see the length I end up with. I am also very grateful. The narrowing I had, especially at the base has been fixed. My peyronies penis was very narrow, with dents causing major hinges and a very unstable erection. I am very girthy atm, I think some of this could be due to swelling.

I wanted to talk about the mental aspect of peyronies. In the past, I use to always have my peyronies in the back of my mind. I just always felt incomplete by the fact that, my male sexual organ was damaged and I could not have sex. I use to get attention from girls but I always knew, I would not be able to do much, this use to get me so down. This feeling of incompleteness and depression seeped into other aspects of my life. I could never fully enjoy social settings, time with my family, happy moments with my nieces n nephews, cousins etc. Peyronies was just always in the back of my mind, where other people around me would be happy in social settings, enjoying their time, I would be down, just not being able to feel any happiness. I would reject girls that were into me, and then I would feel so down after.

Now, this depression and feeling of incompleteness is slowly leaving me. I feel empowered, comfortable, happy. I know I can pursue women, and I can perform sexually, and I feel comfortable dating soon. I feel that slowly, a newfound confidence will also come. The dark feelings of the past, are in the past. This peyronies journey has been empowering, I am now more disciplined than ever, and a much better, wiser, calmer, more grateful and open minded person.

Feeling grateful and Looking forward to the future.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

Yes, that before and after is astonishing. Truly a massive difference no pun intended. It is absolutely unbelievable that a penis can just decide to basically eat itself up and become so narrow like it had in the first pic.

Your journal is a great read. Very happy for you J.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Pfract

jj!!!! i am so happy for you man! these last updates are so reassuring.... The pain you describe, everybody says it's normal so you seem to be on track for a good recovery like you have been told. But what's really striking is the last comparison picture and seeing the old and new side by side. damn! The narrowing is completely gone, and i can only imagine that the curvature will fix itself once you start cycling on the regular.

 
Have they given you a ball park estimate on when sex will be possible for you?

jj21

Thanks heaps guys. Pfract - No, my surgeon was great, very skilled and competent, I am pleased with the result so far. However, their aftercare is not very good at all. Haven't been advised on a cycling routine, or when I can have sex at all. Was rushed out by the nurse in my last appointment while I was still trying to deflate for the second time.

Update 5 Weeks 3 days

This is my second day cycling. I did 1 x 45m session and 1 x 30m session. The pain is pretty excruciating but I am putting up with it. I can feel so much pain in my glans when fully inflated.

If anyone has any cycling routine recommendations, please share. I am very interested. I Haven't been advised on a cycling routine, or when I can have sex at all. Was rushed out by the nurse in my last appointment while I was still trying to deflate for the second time.

A new thing that happened today was, the second time inflating, my pump started to squeak. I have a titan one touch, I thought squeaking was more common with the classic? Can anyone advise if the squeak gets better over time as the cylinders/pump softens.

Appreciate all the support here, either way, looking at the comparison pic above, I am pleased with the result and very grateful to be putting this chapter of my life to an end and moving forward.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Gap63

Great news JJ, I too had the issue deflating and took a few weeks to master the operation..................Dr Clavell has a good video on Youtube regarding deflating and I watched it numerous times, and yes that key ring is a big help.................btw it takes me about 20 pumps to get rock hard


I would email your doctor asking when you can have sex, I was 6 weeks, but your operation was more complicated so will probably be longer.
Peyronie's Disease for 6 years
Titan touch 20cm + 1 RTE
Dr J Clavell, Houston, Sept 2022
Age 58

jj21

Gap, Thanks a lot, you're also from Australia? I have heard nothing but good things about Dr Clavell. Did you have any appts with Aus docs?

Update 5 weeks 4 days

Getting used to cycling, I changed to 2 x 30m sessions. I pump to pain, and then pump more. It is so excruciating, feels like the tips of the cylinders are going to burst out of my glans. The dents are still there, they're no where near as significant as pre-op, I am guessing they will fill and even if they don't, I can't see them causing any issue for sex. When even 85% pumped, the erection is very rigid.

I slept last night and when I woke up, my penis looked erect. I am not sure if this was morning wood or if the device auto-inflated in the night some how. It felt more round, so I thought this may be some natural engorgement, but then it didn't go down much. I am worried as I was about 70-80% erect for 5 weeks and have been wondering if the reservoir healed with scar tissue around it without the full amount of saline, whether auto-inflation is a risk, as now when deflated, it wont be able to accommodate for all the extra saline. I was suppose to be partially deflated on week 3 but my doc and nurse were away on holiday and I wasn't able to get another appt. I didn't even realise this could be a risk of being inflated for so long, for anyone else reading this, going through this procedure, just remember to be aware of this risk as well.

One thing I did want to talk about is peyronies pain. Pre-op, moving a certain way, sleeping (I would have to sleep in certain positions to avoid awkward nocturnal erection risking more damage) etc would all result in pain. Sometimes, just driving I would randomly get pain in my penis related to peyronies. This would happen randomly, when flaccid and erect. Sometimes I would be scared playing with my niece n nephew and jumping around etc ,worried I might cause further damage. I can say now, that the peyronies pain I had has disappeared. The pain I have now is kind of different, it's like I know there's cylinders in my penis and it's trying to adapt. It feels good to know that these feelings that once haunted me, will now be part of the past. I am grateful.

My surgeon was great, but I have not been very happy with the aftercare I received. I will be back in my state in a few days and am thinking of booking in with a surgeon there. There is one who is a professor and has the most publications on peyronies in Australia, would be good to get a second opinion.

The squeak when pumping is still there, if anyone has any advice, experience or tips on this, please share. I have the OTR and squeaking was suppose to be less common.

Looking forward to one day being able to sleep properly on my stomach again after 5 years.

Hope you all are well, anyone reading this still on their peyronies journey, just remember, it does get better and there is hope out there.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Pfract


jj21

Thanks Pfract, I have seen that video, it is very informative. It's great you guys have access to these Doctors in the U.S, they seem very understanding and knowledgeable, and their aftercare practices are amazing. Eid, Hakky, Levine, Clavell (in no particular order) seem to be the best of the best. The plan is to get rich and never have to worry about a revision as I would just come to the U.S and go with one of the top surgeons there. With the currency conversion and accomodation etc, it would probably cost us 60k AUD to do the procedure in the U.S.

Update 5 weeks and 5 days

I have been cycling consistently for the last 3 days. First day  I did 2 x 45m sessions (with painkillers), second day I did 2 x 30m sessions (no painkillers), 3rd day was just 1 x 30m session... Today, I will try for 2 x 30m sessions. The pain is quite excruciating, but if it means I will regain length/girth, I will put up with it.

I am finding deflating very difficult, the valve is behind my scrotum and difficult to access but I manage to do it. I can half deflate easily, then after that, it seems to deflate very very slowly or not at all. In my sleep, I feel like it auto-inflates itself a little (perhaps triggered by nocturnal erections?).

The titan flaccid at this point is very difficult to conceal, It hurts to point it down, and it hurts to point it up. It naturally points out, almost like an erection and still looks like an erection. I know this will change over time, but makes things like going to the gym very difficult. I also have to get on a plane in a few days and I will have to endure an uncomfortable few hours with my flaccid titan pointing up secured with tight clothes and a long jumper.

If anyone has any advice on deflation, or whether I should be worried about the device auto inflating in my sleep, I would appreciate it. I am going to see another surgeon for a second opinion when I am back in my state. I also get pain and burning in the perinium area post-cycling.


As for the circumsision, the doc told me after surgery that the foreskin would cover half my glans when flaccid. The foreskin does not move or change when flaccid or erect. I really am not sure if this is due to it not being fully healed, still healing from being stitched, or what. If anyone has any advice, I would appreciate it. On a positive, I think my glans is finally becoming accustomed to being exposed.

Another positive is that my natural engorgement seems to be improving, when flaccid, I wake up with some wood and my penis just looks round and full.

I do feel less sensitivity in the glans and shaft, but this is expected with the tunica expansion procedure, it may take 6-9 months for the nerves to heal.

As always, appreciate all the support from you guys.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Curvekiller94

Jj that's great to hear your Peyronies pain seems to be resolved. Can you touch back about what type of pain you had and when the pain was a problem etc ?

I know it's hard to describe. But I have a pain that seems to get worse with activity and get better without. It is almost like a sore muscle pain but it is a bit of sensation loss as well, but I would be thrilled if it fixed any of my pain.
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

jj21

Curvekiller94 - My first two years of peyronies was pain free, after that, I would get pain that would sometimes be random, like a sharp sting.. Sometimes if I moved my penis a particular way. I could not sleep on my stomach as that would result in pain. It is kind of hard to describe man, especially now that it's gone. I know tight clothing would get uncomfortable due to pain as well. Sometimes doing leg raises in the gym would cause pain (my penis would be forced to move up). VED and Restorex did always help with this. Sex/Masturbation would always aggravate and result in more pain. This is what actually made getting an implant a lot easier for me.

My surgeon and Dr Eid, both stated that usually with an implant, peyronies pain disappears.

I am still only about 6 weeks out, just started cycling, so things should get better.

Hope this helps.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update 5 weeks 6 days

Almost 6 weeks, cycling has become a bit easier. Today is my fifth day cycling. I now go in the shower, let warm water run down my scrotum, then I will pump to 90%, leave it like that for 10m, go back to the bed and pump to 100%, leave it like that for 20m. Total of 30m per session, 2 sessions a day. This has become a bit more comfortable, the first few cycling sessions were quite excruciating. The skin does start to hurt as well. To anyone reading this, remember it does get better, just hang in there.

I decided to pump to max and use my iphone to get some kind of estimate of where my size is. I bone pressed my iphone 14 pro into my pubic bone, about the same place I did pre-op,  it just so happens that the tip of my penis is about exactly at the end of my iphone. So, I am almost exactly 5.81 inches (height of an iphone 14) bone pressed, with no glans engorgement. I can't imagine getting my glans engorged at this point, it just seems painful. I have also lost some sensation and sensitivity which is normal with TEP, it may take 6 months for this to come back. Considering I was 6.5 inches pre-op fully engorged, I am happy to be 5.81 inches now with no engorgement. This as well, only after 5 days of cycling.

Another great thing is, the dent's seem to be filling when fully inflated, I have attached two pics. If you compare them to the pics above, it seems like on the left side of the shaft and bottom right, the dent's have filled a bit or at least are filling when fully pumped. They are still quite prominent when flaccid.

Some issues I have been having:

1. Peeing, it is still difficult to pee. My flaccid is still pointing out, I still pee in a urinary bottle. I am guessing this will improve as the cylinders soften. I also get a lot of dribble which I trust will improve over time, if anyone has any experience with this please share.

2. Auto-inflation. In my sleep, I kind of feel like the device auto-inflates a bit. Am going to book in with another surgeon. I was left inflated for 5 weeks so I am worried that the reservoir has healed with a smaller amount of saline and does not accommodate for a full deflation.

3. Shape. My penis is still very oval, when inflated even to a comfortable level of inflated, the bottom of my penis is almost completely flat. This would make blowjobs and some sex quite difficult I presume. Again, I can't really get engorged atm so this could improve. If anyone has any experience please share.

4. Pain. I am getting pain in the scrotum, perinium area, and in the shaft. It is worse after cycling. I am guessing this is just my body adapting. Unfortunately, I do not want to contact my doctors office as, the nurse there will just tell me I am being too anxious. I will book in to see another surgeon when I am back in my state and get a second opinion.

5. Deflating. I am still finding it very difficult to deflate. I press the deflate valve then squeeze. Now, when my penis is fully inflated, it's easy to tell that it's deflating. I get to a point where it just won't deflate more or deflates then inflates again. It is very difficult to tell at this point as my flaccid is like a semi-erection. I squeeze quite hard but at the same time, am worried about causing damage. Also worried about the reservoir not being able to accommodate the full amount of saline as described in point 2. If anyone has any experience, please share.

Some advice to anyone reading this is to have a good GP. About a week ago, I strained myself when in the bathroom and caused quite a bit of pain through my shaft and scrotum. I waited overnight before calling my surgeons office. The nurse just brushed it aside and told me I was panicking and everything was fine despite the fact, the pain persisted for a long period of time. I spoke to my GP over the phone (he's back in my state) who is very good with men's health and is knowledgeable with implants, he asked for all my symptoms (even asked if I had dribble of post peeing etc), and told me it's likely that I caused inflammation after going to the bathroom. He then prescribed me a very strong anti-inflammatory, and after 1 hour of taking this, all the pain was gone and I felt so much better.

Finally, I would like to talk about how peyronies actually has made me such a better person. I am so much more logical and methodical, so much stronger and wiser. When peyronies first hit, as a 28 year old, I was very destroyed. Now, I have grown to be so much better. I have learnt so much about myself, mental health, life, relationships etc.. Most importantly, learning that, when life throws a problem at you, to handle it appropriately. Control your emotions, look at things logically, weigh up pros and cons. I know I have become a much better person today.

Appreciate all the support and any feedback.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Pfract

Hey jj21... Sorry for not being able to address the whole post, but are you squeezing your penis as well or just hitting the deflate button and letting it be? Because to fully deflate, you should squeeze the penis too. So I read,but there's some videos about it too, I think.

jj21

Pfract, yes I am squeezing the penis, quite tightly too, worried about causing damage. My scrotum is very small and the valve and button are in the back area, I also still hav some swelling and a pool of blood in there I believe (as per what the surgeon said).
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

Quote from: jj21 on March 20, 2023, 01:36:54 AMFinally, I would like to talk about how peyronies actually has made me such a better person. I am so much more logical and methodical, so much stronger and wiser. When peyronies first hit, as a 28 year old, I was very destroyed. Now, I have grown to be so much better. I have learnt so much about myself, mental health, life, relationships etc.. Most importantly, learning that, when life throws a problem at you, to handle it appropriately. Control your emotions, look at things logically, weigh up pros and cons. I know I have become a much better person today.

This is great to hear. Hope I can reach this stage with time.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

@Sonic, you definitely will man. Just hang in there, try out all the treatements, stay positives and focus on improving other aspects of your life. Always here if you need to talk.
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Did anyone's one touch squeak in the early days? I am exactly 1 week into cycling (6 weeks post implant) and a few days ago, my one touch started squeaking when pumping.

This is the only thing I dislike about the implant so far.

I chose the one touch over the classic for this reason. I am hoping that, as everything softens, the squeak will stop. Currently, the bulb etc is still very hard.

Any thoughts?

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update 6 weeks 2 days

I am finally back in my state. The plane ride was very painful, I had to tuck my penis up tightly, I had sharp pains all throughout the plane ride.

I cycled today, switched to 2 x 40m sessions instead of 30. It does get easier and more bearable. I am now exactly 1 week into cycling.

I am starting to get the hang of deflating, today I deflated for about 10s, waited, then deflated again. I did it 3 times. Waited 5s then pressed the bulb to lock out. It still points out, is hard like a semi-erection, the only way to conceal it is pointing it up which causes pain. I don't want to push down on it, so, I am kind of waiting it out until the flaccid starts to hang lower.

Some issues I have been having include:

- I am getting burning and pain in my scrotum and shaft, my scrotum is very small and it is almost like it's rejecting the pump.

- The pump squeaks when inflating, I have the one touch and squeaking is uncommon. This is one of the only things I dislike about the implant so far. Hoping as everything softens (the pump etc is still very hard), the squeak will stop as well. Please let me know if you guys have any experience with this.

- The penis when inflated is very oval and flat. I just started taking daily cialis again to help with natural engorgement.

- Behind the glans is completely numb. I am guessing this is due to being circumsized. I was told it can take months for the nerves to heal.

I measured today (pic attached) with the same ruler I used to measure my pre-peyronies penis. You can find the original post where I was 6.5 inches BP here https://www.peyroniesforum.net/index.php/topic,17693.50.html . Today I measured just under 6 inches BP fully inflated with no engorgement. I tried to measure exactly the same way I did originally.

Other than that, it feels good to be back home. I use to do restorex for 1 hour, VED for 30-40m a day. It feels good to know that I no longer have to do these. I also feel happy and relieved, like a huge burden is off my shoulders, before I use to be in my room, depressed about my condition at times. I use to stop myself from pursuing girls who were interested in me because my peyronies got to the point where I could not have sex. I feel happy and relieved now, knowing that all this is behind me, I can move forward.

Appreciate all the support and feedback.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

While maybe not typical, an occasional squeak is not rare, especially when the pump is new.  It can be minimized or eliminated by squeezing slowly or doing half pumps rather than a full-blown rapid pump.
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

Thanks Hawk, mine is very new, I am only 1 week into cycling.

Hope it settles as everything softens.

I really dislike the squeak, other than that, the implant is great so far.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

There is an error in the above post, where it says I measured "pre-peyronies penis", it is suppose to be "pre-surgery penis". The 6.5 I measured was pre-op, with peyronies, as per my traction journal.
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Hawk

I think the "squeak" is much fainter than you imagine because you can actually feel the vibration that is associated with the "squeak.  Experiment pumping slowly, releasing slowly, doing half pumps, etc.  I promise you that even now, you could pump it up even if receiving oral sex without anyone noticing.  It just takes technique and practice.  With healing and breaking in the equipment, it will be fine.
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Sonic

You are pretty much almost the same lenght already while at the same time having gained significant girth. Visually the results are mind blowing. Probably in a year you will be even longer than pre Peyronies is my guess. If I had access and money to any surgeon who could do that on me I would literally do it right now lol!! Your penis right before surgery was bent, severely narrowed and damaged. Now you have pretty much straight as an arrow perfect dick and super girthy. I am jealous and also stoked about your progress!
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

Thanks Sonic,

Give it 6 months and we'll see. I just started cycling 2 x 60 minute sessions today.

I'm sure you could save up and find a doctor who performs the same procedure.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

Update 5 weeks 4 days

9 days into Cycling, it has become considerably easier, I am now doing 2 x 1 hour sessions daily. I pump to the point of pain, where it feels like the tips of the cylinders might burst out of the glans and my perineum area is hurting. I am not sure if I am over doing it? Some say, pumping to discomfort rather than pain will have the same effect?

I have been having a lot of flaccid pain, sleeping is uncomfortable still, moving in certain positions I get burning and pain in my scrotum and shaft. I can just assume that, it is the body adjusting to the device.

Anyone reading this, recovery is quite long with TEP.

On a positive, my sensitivity is very slowly returning each day. I now have considerable sensitivity along the shaft and glans. It's only behind the glans that is quite numb atm, I assume due to having a sub-coronal implant and circumsision.

With the squeak, I took Hawks advice and, if you pump slower, or do half pumps, it does not squeak. Although, at this rate, it can take 80 pumps to get an erection. Im confident that this will improve as things soften and break in.

Any feedback is appreciated.

J

34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

jj21

I had an issue just now, as I was finishing my second cycle session, I deflated. For some reason, I was only able to deflate down to about 80% of what I usually deflate too. Didn't think much of it, left it for about 30m, then tried to deflate again.

No matter what, I just could not deflate. I thought, maybe the pump has repositioned? Because it's easier to know when the device is deflating once it's pumped up, I pumped it up to about 90% erection. Now, I still can't deflate it. I am pressing where the deflate valve is, squeezing the penis, nothing is happening. I have done this twice a day for the last 9 days without any issues.

At this point, I am a bit worried, it's late on a Saturday night here, my only option would be to go to the Emergency Hospital with a pretty much 6 inch unnaturally hard erection and wait for a urologist.

I tried one last thing, I pressed the deflate valve and the pump at the same time, after this I deflated as usual, pressing the valve and squeezing the penis. It worked! Well, somewhat, I managed to deflate again to about 80% of what I normally deflate too. No matter what, it will not deflate more. I can tell it's about 80% as, it is pointing out more, and when I go to pee, I have to lean forward a bit more.

I have no idea what has happened? Now I am about 80% deflated, I will have to sleep like this and try and figure something out in the morning. My surgeon is in another state, so, my only option is to try again in the morning, failing that, maybe go to emergency or try an appointment with a urologist here on Monday.

Really getting tired of this. I've had flaccid pain in my shaft, scrotum and perinium. I have to tuck it up to walk around which just causes more pain. I can't really go anywhere or do anything.

Really not sure what to do about this deflate issue. I have no idea what could be wrong.
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Sonic

Hopefully someone with experience can give you advice on this.

I hope the issue resolves.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

jj21

The same thing happened this morning as I finished my cycling routine. This time nothing worked, I was inflated for probably 2 hours freaking out. I tried pressing the deflate valve and the bulb at the same time, it just would not deflate.

I eventually tried to squeeze the deflate valve extremely hard, this seemed to work! Instantly, my penis started to deflate! I then squeezed the penis a bit while squeezing the deflate valve and managed to get down to a reasonable flaccid.

Of the 9 days of cycling, this has never happened before, I really want to know what happened. I was definitely doing everything correctly, I cycled and deflated twice a day for 9 days and had no issues.

I am really worried about cycling again tonight and if the deflate doesn't work again.

On a positive, while inflated for so long, I calmed myself down and got myself naturally engorged, the shape is much more round and girth is really nice.

On one hand I don't want to cycle again until seeing a Uro incase I get stuck inflated, on the other hand, I want to keep cycling to make progress.

Any feedback would be really appreciated. 

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).