I'm 47 now but my issue with Peyronies started when I was 41. I have no health issues whatsoever. I workout and run daily. I eat fairly clean. I have no high blood pressure, cholesterol or diabetes. I'm just a normal 47 year old. It seemed like overnight my penis developed a hard curve to the right. There was no "event" that caused the curve but it was extremely embarrassing to even show my wife of 15 years. I like most everyone on this forum googled what the issue could be and discovered that Peyronies was most likely the culprit. I scheduled an appointment with a urologist and hoped for the best.
My first meeting with a urologist resulted in him telling me I should take a bunch of vitamin E and give it a year or two. He said it may go away on its own. I'd like to know the percentage of Peyronies that goes away on its own but I bet that number is extremely low. Any way, I did what he said and it seemed the problem only got worse. Keep in mind that I am embarrassed of my new deformity so my wife and I are no longer having sex. That led to a LOT of other issues I won't go in to here but I will say, if I had it to do over again I would be more aggressive in fixing this problem just for that reason. A little tidbit about me, I own part of and run a company that deals in the engineering, design and manufacturing of aviation parts. I HATE when I give someone a solution and they tell me how it won't work so I tend to just listen to and go along with people in a different profession that is telling me what I should do in their field. Looking back it didn't work out for me this time.
After two years I sought the opinion of another doctor in the area that specializes in Peyronies and
Erectile Dysfunction. She suggested
Xiaflex to break up the
plaque. I read the statistics and decided to give it a shot even though I didn't expect my penis to ever be back the way it was. Anything was better than nothing at the time. I went through the
Xiaflex treatment and me personally, I would rather run through hell with gasoline underwear on than to do that again. The second to last round of injections, something busted and I seriously thought my penis was going to explode. I called the after-hours line at the urologist and I was sitting in the parking lot of the ER when they called back. I was told that the ER wouldn't know what to do, that this happens sometimes with
Xiaflex and that it will be OK. So, I went home, my penis didn't explode but when the dust settled I now had narrowing around the base of my penis. I am convinced that the reaction I had to the
Xiaflex that last injection caused more
plaque to build so now I had not only the curve to the right but the narrowing, hinge effect at the base.
I took a break at that point and almost resigned to the fact that my issue was here to stay. Fortunately I found this forum and started doing some reading. I went back to my urologist and asked if surgery was an option. Whether it be a graft or implant I didn't care. I just wanted to be done. She suggested one more round of
Xiaflex. About that time I reached out to Dr. Lentz and scheduled an appointment. I saw him this past February and we agreed that an implant was going to be the best option. Of course initially he was hesitant because I could still get an erection. The problem was, the erection wasn't stiff enough to overcome the hinge I'd developed.
So here we are. I go in for an implant tomorrow morning. Dr. Lentz from Duke will be doing my implant. Up to this point he has been absolutely amazing. He's very knowledgeable and takes the time to talk through any and all questions I have. If I have any advice for "younger" healthy men going through this I would say be aggressive. You have to advocate for you. This forum is a GREAT place to gain info from guys going through the same stuff. I man with an experience trumps a man with an argument all day long. The doctors out there are good but it's best to talk to actual people going through it.