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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: Introducing myself - slight dent+Erectile Dysfunction+pain  (Read 105 times)

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hope4thebest

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Introducing myself - slight dent+Erectile Dysfunction+pain
« on: November 24, 2022, 09:44:12 AM »

Hello everyone,

I'm really glad I've found this forum. I'm 29 yo, I haven't been to the doctor yet, but I'm pretty sure this is what I have. I have been having some issues with low libido/erection for the past year, and I think I made a huge mistake by masturbating with a semi-erect penis a number of times about 3 months ago. I've felt some soreness approximately at the place where the dent has developed. It's not big, but I think I'm still in the active phase and I'm very afraid that it may get worse. I have significant pain when fully erect. Full erection is very rare and only happened once in the past 3 months. I have almost no, or extremely weak night time erections and can usually only achieve a partial erection (maybe 60-70%) by manual stimulation.

I think the loss of erection before the injury was caused by copper deficiency, which I'm now trying to address and I'm seeing some very mild results, but it's only been a week since I began supplementing. I have no issues with testosterone or other hormones. However, I had pretty good morning wood (almost daily), before the injury, so I think Peyronie's is probably playing the major part here, unfortunately...

I've started taking vitamin E, as it seems to be the easiest first aid and least likely to cause issues, but I don't know what to do next. I'm gonna visit the doctor, but I don't expect much from them.

For the time being, my biggest issue is Erectile Dysfunction and I'm wondering if it gets better once the active phase has passed?

Psychologically, I'm beyond devastated as I have other health issues like ME/CFS and POIS, which were already preventing me from having a life and now I can't believe I'm gonna have an additional problem that is so difficult to treat. If only I knew that this disease existed and masturbation could cause it...
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Sonic

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Re: Introducing myself - slight dent+Erectile Dysfunction+pain
« Reply #1 on: November 24, 2022, 10:15:10 AM »

Welcome to the forum. First and foremost, yes, masturbating with inadequate erections can and will cause worsening for us men who are prone to getting Peyronies so it's best you give it a rest for a prolonged period, tough as that may seem. Secondly try get hold of a decent urologist who can do a thorough exam to see what is going on and what's causing the Erectile Dysfunction.

For the Erectile Dysfunction what you need is a prescription of daily 5mg tadalafil or 25mg Sildenafil.

These help promote the firmest possible erections you can get to try prevent further injury.
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28 years. Started to develop a rightwards curve in June 2020.
narrowing on right side and about a 20-25° curve to the right.
Weakened erections and instability due to narrowing.

hope4thebest

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Re: Introducing myself - slight dent+Erectile Dysfunction+pain
« Reply #2 on: November 24, 2022, 10:24:49 AM »

Thank you. I don't really have problems not masturbating. I have very low libido, so it's not an issue. At least for now. I just want to prevent as much damage as possible (if possible). I'm just wondering what are the best things to do early on, to prevent further deterioration. I see that pentoxifylline might be a good option? Sorry, if these things have already been answered 100 times I just have a hard time concentrating plus peyronie's anxiety now makes it impossible to make sense of all the information.
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Sonic

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Re: Introducing myself - slight dent+Erectile Dysfunction+pain
« Reply #3 on: November 24, 2022, 11:58:39 AM »

https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057

It is a long read but you need to read it. You will gain lots of valuable in depth information.
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28 years. Started to develop a rightwards curve in June 2020.
narrowing on right side and about a 20-25° curve to the right.
Weakened erections and instability due to narrowing.

IwillbeatPD

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Re: Introducing myself - slight dent+Erectile Dysfunction+pain
« Reply #4 on: November 28, 2022, 10:44:20 PM »

Hang in there buddy. We all feel your pain, but there is hope. Stay in touch with us and let us know how we can help support you.
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36/Male/No underlying conditions: Symptoms began Sep 2022. Indentation mid-shaft right next to plaque. Mediocre erections with hinge effect. Taking Pentox 400mg 3x/day, Tadalafil 5mg daily, L-arginine, using heat, manual traction and VED.

FrankPD

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Re: Introducing myself - slight dent+Erectile Dysfunction+pain
« Reply #5 on: November 29, 2022, 10:59:33 PM »

Hello and welcome.

You’re in the right place for support.  This is a very safe place to talk.

Use the search tab, it‘s so accurate.

We’ve all been there or are there.

Be well and safe guys.
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Age 46
No injury
Diagnosis January 2022  
Have plaque
Hourglassing when flaccid and semi-erect
Still have my congenital curve, no severe curving
Massaging with vitamin E cream twice a day 
Low carb diet
Discomfort/aching sometimes
Best to all!
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