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Author Topic: I swear nothing is changing it  (Read 316 times)

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ohnoohno

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I swear nothing is changing it
« on: October 09, 2022, 04:18:16 AM »

I am doing manual traction, cialis 5mg daily and ved pump... doesnt seem to be straightening me out.. maybe girth a little bit has come back.. it still curves to the right and drops down, it looks like my glans is about to pop off.. ugly

Havent told a soul, scared to show any girl it when i just want to have some fun in my twenties still, i want to casually date and meet new great girls, back of my head i just feel like i cant be the person i used to be, i used to love having s*x and not having to be careful, feels like ill just be so timid and sh*t next time
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28yo, diagnosed Peyronies Disease 13/6/22, 30dg curve to right/slightly down, Erectile Dysfunction, indentation, shortening 1inch+

urologist gave me cialis 5mg to take daily and SOMAcorrect

praying i can get this under control asap, restore length/avoid Erectile Dysfunction

PeyroniKirai

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Re: I swear nothing is changing it
« Reply #1 on: October 09, 2022, 04:37:19 AM »

Hello ohnoohno,
Well, you're doing the right thing, although do be careful with both the traction and the pump.  Definitely do not overdo those physical actions.  A little bit will help, too much will make it worse by causing other injury.  I would add Vitamin E every day too as it sometimes can help:  a 200 unit capsule every morning and every night, or a single 400 unit capsule -- again, taking more won't be better so don't overdo the Vitamin E either.  Surprised your urologist gave you cialis without even mentioning Vitamin E which is cheap, safe, and can help.

The mental part of Peyronie's is the most difficult.  You ARE the same person you used to be.  That hasn't changed.  You can still love girls and sex but you may need to adjust your style.  Peyronie's CAN get better, and it CAN go away so don't lose hope.  However, it can also stay with you for life, either stabilizing, or worsening.  But you are still you.

Not every girl needs her man to be a porn-star-hung stud in bed, and there are many ways to satisfy a girl without even using your cock.  Of course I'm not suggesting you abandon intercourse.  There are ways to deal with Peyronie's if if gets very bad.   For now, the main thing is to overcome your fears and anxieties first, and accept that you will be different for a little while, and possibly a long while.  Don't think so darkly about the future, but try to keep your cool and continue to seek help.
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Age 63, Peyronie's history 3 years, left side hourglass, 20-degree bend to left, no Erectile Dysfunction

ohnoohno

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Re: I swear nothing is changing it
« Reply #2 on: October 09, 2022, 05:04:20 AM »

Hello ohnoohno,
Well, you're doing the right thing, although do be careful with both the traction and the pump.  Definitely do not overdo those physical actions.  A little bit will help, too much will make it worse by causing other injury.  I would add Vitamin E every day too as it sometimes can help:  a 200 unit capsule every morning and every night, or a single 400 unit capsule -- again, taking more won't be better so don't overdo the Vitamin E either.  Surprised your urologist gave you cialis without even mentioning Vitamin E which is cheap, safe, and can help.

The mental part of Peyronie's is the most difficult.  You ARE the same person you used to be.  That hasn't changed.  You can still love girls and sex but you may need to adjust your style.  Peyronie's CAN get better, and it CAN go away so don't lose hope.  However, it can also stay with you for life, either stabilizing, or worsening.  But you are still you.

Not every girl needs her man to be a porn-star-hung stud in bed, and there are many ways to satisfy a girl without even using your cock.  Of course I'm not suggesting you abandon intercourse.  There are ways to deal with Peyronie's if if gets very bad.   For now, the main thing is to overcome your fears and anxieties first, and accept that you will be different for a little while, and possibly a long while.  Don't think so darkly about the future, but try to keep your cool and continue to seek help.

I appreciate your words. I feel so alone right now. I've been thinking of it all day I just wish I could be myself again. Huge fog clouds my mind right now.

How do you know if you've over done it or injured yourself more? As I'm in the acute phase apparently things can keep changing, and they have, it's gotten worse, more to the right and hanging down, looks very weird. I'm not sure if this is just naturally changing or it's cause I'm doing traction/VED.

I just want to be doing the correct things to make it better
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28yo, diagnosed Peyronies Disease 13/6/22, 30dg curve to right/slightly down, Erectile Dysfunction, indentation, shortening 1inch+

urologist gave me cialis 5mg to take daily and SOMAcorrect

praying i can get this under control asap, restore length/avoid Erectile Dysfunction

Bud luck

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Re: I swear nothing is changing it
« Reply #3 on: October 09, 2022, 06:06:49 AM »

The more I try to fix the fibrosis the worse it gets, maybe for some cases is better to leave it alone
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

ohnoohno

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Re: I swear nothing is changing it
« Reply #4 on: October 09, 2022, 10:30:27 AM »

The more I try to fix the fibrosis the worse it gets, maybe for some cases is better to leave it alone

what have u tried?

i was considering it might be cause i masturbated a few times (mainly to just make sure it works lol) and i feel it got worse since then
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28yo, diagnosed Peyronies Disease 13/6/22, 30dg curve to right/slightly down, Erectile Dysfunction, indentation, shortening 1inch+

urologist gave me cialis 5mg to take daily and SOMAcorrect

praying i can get this under control asap, restore length/avoid Erectile Dysfunction

Bud luck

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Re: I swear nothing is changing it
« Reply #5 on: October 09, 2022, 11:04:57 AM »

I tried : Traction, Pentofixiline, Q10, P-shot, Shockwave, Castor oil....
Everything depends of the severity of the condition, the location of the fibrosis.. I had a Piraprism episode from a Trimix injection, I probably have fibrosis on my corporal bodies instead of my tunica, but I don't know, I'm taking advantage that I'm in Barcelona Spain now so I will get an MRI, here it only cost me 150 Euros, in the USA is probably thousands
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

FrankPD

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Re: I swear nothing is changing it
« Reply #6 on: October 09, 2022, 11:14:06 PM »

Ohnoohno,

We know how difficult it is.  We gotta be as positive as can be, keeping ourselves busy helps. 

I know we all went through not thinking of anything else but this.  It’s tough not to talk to anyone about it.  Talk to one of your guy friends.  I didn’t discover this forum until four months after my diagnosis.  The first two months I talked to no one, I had to get it out.  I talk to my friend I have since second grade.  He’s been awesome, asks a lot of questions.

Hope this helps.

Best to all.
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Age 46
No injury
Diagnosis January 2022  
Have plaque
Hourglassing when flaccid and semi-erect
Still have my congenital curve, no severe curving
Massaging with vitamin E cream twice a day 
Low carb diet
Discomfort/aching sometimes
Best to all!

PeyroniKirai

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Re: I swear nothing is changing it
« Reply #7 on: October 14, 2022, 12:13:18 AM »

Totally agree with FrankPD.  The mental health aspect of this can be really crushing but it feels better to talk with someone.  No guy will listen to your situation and not be sympathetic.

Also, if your condition seems to be getting worse my bet is that you're overdoing the physical treatments.  Peyronie's can have a sudden onset and can get better or worse with time, but getting worse day by day isn't the usual pattern.  Like other posters here, try cutting out the pulling and the pumping.

Remember:  the point of the pulling is that you may manage to dislodge some loose plaque.  But pulling won't dislodge plaque that is really solidified.  And the point of pumping is to cause more blood flow that also might dislodge loose plaque.  But again, if the plaque is hard, pumping won't make it move.  Other sufferers please correct me if I'm wrong, but this is why it's always recommended to use these techniques sparingly, a little at a time.

Good luck.
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Age 63, Peyronie's history 3 years, left side hourglass, 20-degree bend to left, no Erectile Dysfunction

ohnoohno

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Re: I swear nothing is changing it
« Reply #8 on: October 16, 2022, 11:54:04 PM »

Totally agree with FrankPD.  The mental health aspect of this can be really crushing but it feels better to talk with someone.  No guy will listen to your situation and not be sympathetic.

Also, if your condition seems to be getting worse my bet is that you're overdoing the physical treatments.  Peyronie's can have a sudden onset and can get better or worse with time, but getting worse day by day isn't the usual pattern.  Like other posters here, try cutting out the pulling and the pumping.

Remember:  the point of the pulling is that you may manage to dislodge some loose plaque.  But pulling won't dislodge plaque that is really solidified.  And the point of pumping is to cause more blood flow that also might dislodge loose plaque.  But again, if the plaque is hard, pumping won't make it move.  Other sufferers please correct me if I'm wrong, but this is why it's always recommended to use these techniques sparingly, a little at a time.

Good luck.


Thanks I'm going to guess I've overdid it and made things slightly worse, fantastic. Ah well.

I noticed the other day I stopped doing anything for maybe 1-2 nights as I was busy travelling and I got an erection and realised I had gained 1-2cm length (looked more normal). I then did some traction and VED and it seemed to be shorter the day after... Maybe I'll leave a bit and see, I feel the plaque has hardered a bit too, and I've got a indentation on the top of my shaft now which wasn't there before, I believe this could be due to manual traction..
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28yo, diagnosed Peyronies Disease 13/6/22, 30dg curve to right/slightly down, Erectile Dysfunction, indentation, shortening 1inch+

urologist gave me cialis 5mg to take daily and SOMAcorrect

praying i can get this under control asap, restore length/avoid Erectile Dysfunction

ohnoohno

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Re: I swear nothing is changing it
« Reply #9 on: October 30, 2022, 11:09:46 AM »

Totally agree with FrankPD.  The mental health aspect of this can be really crushing but it feels better to talk with someone.  No guy will listen to your situation and not be sympathetic.

Also, if your condition seems to be getting worse my bet is that you're overdoing the physical treatments.  Peyronie's can have a sudden onset and can get better or worse with time, but getting worse day by day isn't the usual pattern.  Like other posters here, try cutting out the pulling and the pumping.

Remember:  the point of the pulling is that you may manage to dislodge some loose plaque.  But pulling won't dislodge plaque that is really solidified.  And the point of pumping is to cause more blood flow that also might dislodge loose plaque.  But again, if the plaque is hard, pumping won't make it move.  Other sufferers please correct me if I'm wrong, but this is why it's always recommended to use these techniques sparingly, a little at a time.

Good luck.


when u mention my condition worsening cause of trying ved/traction, is there anyway I can revert the damage ive likely caused myself from following instructions from doctor and advice online to try heal myself? all i want to do is follow guidelines to make myself better but looks like ive made things worse and have at least extra 10 degree curve... i feel F^@$!ng sick
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28yo, diagnosed Peyronies Disease 13/6/22, 30dg curve to right/slightly down, Erectile Dysfunction, indentation, shortening 1inch+

urologist gave me cialis 5mg to take daily and SOMAcorrect

praying i can get this under control asap, restore length/avoid Erectile Dysfunction
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