Still have erectile dysfunction with implant…

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sonnyjim

Guys I never meant the implant was not fitted correctly, Dr Ralph did mine and I think he did a good job. The initial injury I had was to the corpus spongiosum so the feeling you get when you get an erection (feeling blood rush) is gone. In fact, I don't feel very much at all even when the implant is pumped up. The glans don't engorge much at all either.

All I wondered was if I could somehow improve this by shrinking the scar tissue or something, it's probably just wishful thinking but I don't know how I can enjoy a sex life without some sensation returning at all.

If I pump up the implant it's just literally two tubes next to each other. Without glans engorgement it's literally a flat penis with not much girth at all. I just want suggestions on how I might improve this, if I can at all. I can't feel much at all.

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Pfract

Dr Eid recommends Muse intra urethral drops to help with your soft glans. Have you tried it?
Penile fracture during sex, Portugal 2014 - [url=http://www.peyroniesforum.net/index.php/topic,11131.0.html]Penile Implant Forum -Tech info compilation and Index - Peyronies Society Forums[/url]

sonnyjim

I've tried muse and Vitaros, muse does nothing at all and Vitaros does very little but I get a little bit more 'engorgement' of the glans but only if I constantly manually stimulate myself. The moment I stop, it deflated again. So neither of these are of much use to me.

The only way I could potentially improve this I think is if I could affect the scar tissue somehow. The scar tissue blocks blood flow to the glans. I can feel it squeezing my penis literally all day long, it's kind of disturbing.

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Pfract

Perfect. There's your solution.

Vitaros helps while these is stimulation, right? then.... if you inflate the implant and then have sex..... you will be stimulated, by the vagina.... right?

so.....?
Penile fracture during sex, Portugal 2014 - [url=http://www.peyroniesforum.net/index.php/topic,11131.0.html]Penile Implant Forum -Tech info compilation and Index - Peyronies Society Forums[/url]

sonnyjim

No, I literally don't feel anything during sex since I had this injury 6 years ago.

I have to manually stimulate myself constantly (and fast) otherwise the glans will not engorge. I also cannot ejaculate during sex and it takes me a very long time even when I'm on my own.

There has to be another solution surely.
33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Ballasto


sonnyjim

I wouldn't know mate, I've never really tried it.

If fasting could have any affect on the scar tissue then it could work, in theory. It always just seemed to good to be true so I never tried it.

Was that supposed to be a question or more like a suggestion?

Thanks.
33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Ballasto

Haha. I misread your post

I have to manually stimulate myself constantly (and fast)

Some guys claim fasting helps things...so I was curious if you were experiencing that too but you meant fast, as in speed!

sonnyjim

Things like shockwave therapy, would I even be able to have that now when I have an implant?

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

LWillisjr

Why would you even be thinking about shockwave therapy if you now have an implant?
Is the implant not working correctly?
Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
66y/o  14 years Peyronies free
[URL="[url="http://www.peyroniesforum.net/index.php/topic,895.0.html"]http://www.peyroniesforum.net/index.php/topic,895.0.html[/url]"]My History

sonnyjim

The implant works correctly, the rest of my dick doesn't.

I have scarring to the corpus spongiosum which prevents my penis from expanding, it was like I tore my penis and now there is a line of scar tissue that goes around the shaft.

I was hoping that if I could affect the scar tissue somehow that I would be able to regain some sort of function and maybe cure my soft glans.

Even though I have an implant I still can't have any kind of sex life because I have soft glans, the corpus spongiosum doesn't engorge and I don't have much sensation at all, certainly no sensation in the glans.

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

sonnyjim

Anyone know whether shockwave therapy is safe to have if you have an implant?

I need to improve my situation and the only way for me to do that is to somehow reduce the scar tissue that blocks blood flow to the glans.

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Ballasto


sonnyjim

I get some blood flow I guess, just not enough to make the glans engorge properly. I have white patches on the glans which obviously shows that not enough blood is getting there.

I have literally tried everything to fix this issue, I have a penile implant at the age of 34 and I still cannot have a normal sex life. This crap is not fair.

The original injury was to the corpus spongiosum and now there is a hard line of scar tissue there which stops my penis expanding so I never get fully hard, I have a totally numb penis and I cannot ejaculate or feel anything during sex.

The only way I can ejaculate is by using my hand and even then it takes a really long time. I have tried everything to soften the scar tissue, thinking that maybe things would at least improve from how they are now but so far no luck. The scar is still as hard as it's always been.

I can't imagine dealing with this forever to be honest.

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Sonic

Sonny, When was the last time you visited a doctor and did a proper exam to try figure out what is going on?

It is truly a shame if they can't help you. I hope you find a doctor who can figure out the problem.
28 years. Started to develop a rightwards curve in June 2020.
narrowing on right side and about a 20-25° curve to the right.
Weakened erections and instability due to narrowing.

sonnyjim

I've been so many times but no one seems to be able to actually help me. I've had about 5 ultrasounds, mri's etc but nothing showed 'anything abnormal' even though I can physically feel there is a lump there...

Ive tried every supplement, everything suggested on this forum and elsewhere and nothing has improved in 6 years.

I'm currently trying shockwave therapy and injecting BPC 157 which was suggested to me by another member of these forums but so far, no luck.

I don't know whether it's the location of the scar or something but I just don't feel the rush of blood you get when you take Cialis or viagra anymore and I literally have no sensation at all.

All this and I stupidly thought an implant would allow me to have some kind of a sex life but no, I think I'm too badly damaged to ever have a sex life again.

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Sonic

A lump doesn't equal it having to be a scar. It could be something else. Usually if the lump is big enough to be felt it will show up on an ultrasound and the fact that you have had 5 which showed nothing indicates there's not much plaque left. Also why are you doing shockwaves when your corporal tissues have been replaced with cylinders my friend that's like putting hair styling gel on a completely bald head.

I would also be very careful with injecting stuff into the dick, that's a recipe for scar buildup but someone else needs to chime in here because I am very confused. Why would it even matter if you have scarring or plaque anymore when you have cylinders which do the job?

Isn't the blood rush loss due to the fact that it's cylinders expanding with fluid and not an natural erection?

I thought that happens to everyone with implants.
28 years. Started to develop a rightwards curve in June 2020.
narrowing on right side and about a 20-25° curve to the right.
Weakened erections and instability due to narrowing.

sonnyjim

No, the injury was to the bottom side (ventral) so even though the cylinders inflate, the part of your penis which allows blood to flow to the glans has a scar so, I don't get glans engorgement and the bottom part doesn't engorge either which means I basically have two cylinders with skin around them... and no sensation in my entire penis.

Bearing in mind the corpus spongiosum is also part of your girth, my dick is so narrow without that part engorging that I'd probably struggle to bring pleasure to a hamster.

On rare occasions my entire penis does engorge but that is either after I abstain for a ridiculous amount of time or I masturbate and use a cock ring and everything else which simply doesn't equal a very good sex life.

The numbness is the worst thing though.
33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Indenialguy

Firstly, merry Christmas all.

Secondly, if your penis can fully engorge on some occasions that would imply it still can in general. You speak in a lot of absolutes about your sex life being over and your penis being totally broken, and I can only imagine the stress and hell you've been through over the last few years (well actually I guess us people in this forum don't really have to imagine too hard aha) but it seems like if your penis is capable of working occasionally, the idea that the blood is unable to get through wouldnt make much sense, because if that was the case your penis would never fully engorge. There must be another reason why it doesn't work consistently, whether it be physiological or psychological.

I'm not a doctor, but the fact it can sometimes work means it still can general, that would give me some hope at least if I am ever in your position that some sort of more sustained recovery would be possible.

Keep fighting, keep going, I don't have the answers but you have my support, and I'd say you still have more than a fighting chance of getting this sorted.
32 yo UK
Engaged with two young children
Injured 2017, healed
RE injured Sept 2022
Chronic flaccid pain since 2nd injury
Starting 5mg cialis daily, trying to obtain pentox online

Possible hard flaccid, possible Peyronie's, possible nerve damage

sonnyjim


I already have a penile implant and I still can't have any kind of a sex life because my penis has no sensation. It might as well not even be connected to my body that's how bad it is. During sex, I literally feel no pleasure at all.

I feel depressed because the very thing I most need in my life I cannot have. I have to live like a hermit, hiding away from women when a few years ago I used to love my life.

33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700

Pfract

Sonny! We missed you man.... How you been lately, besides the implant?
Penile fracture during sex, Portugal 2014 - [url=http://www.peyroniesforum.net/index.php/topic,11131.0.html]Penile Implant Forum -Tech info compilation and Index - Peyronies Society Forums[/url]

sonnyjim

Yeah aside from the fact I have had no woman in my life for 6 years, no love, no intimacy... and I'm being treated like an Alien by people at work because I went for a drink with a woman, yeah not too bad.

Nobody tells you that nothing changes this condition. No supplement, injection, cream, machine does anything to change this.
33yo, single
severe Erectile Dysfunction caused by injury to cs, soft glans, lack of sensation
penile implant: ams lgx 700