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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: Introduction!  (Read 177 times)

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Oliver12

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  • 23 yr old, Peyronies Disease since 16, ventral curve, 2b scopes
Introduction!
« on: September 28, 2022, 12:04:08 AM »

My name is Oliver. I am 23 and I've had urological issues starting when I was 16. I never had one acute accident that caused it but instead I was a troubled kid going through puberty. When I would wake up with morning wood I would lay on my stomach, painfully pushing my erection downwards between my legs in order to make it go away. I guess this left lasting impressions because I suffer from it every day. I have seen a urologist for the past couple years and underwent two bladder scopes. My main complaints were urinary urgency and a burning sensation after urination. Yes, I have a decent ventral curve but it does not cause issues during sex. I have lost a lot of flaccid size but my erect size remains relatively the same but with some slight girth bottlenecking. The doctor did not do much for me, he recommended that I use heat and ibuprofen.... I asked when to use ibuprofen and he did not give me an answer. Anyways I am tired of suffering from this affliction and am trying to find any answers as to how I can possibly fix this. I have deduced that the urinary burning is from the bottleneck, if I sit and pee it gets bad but if my penis is under less pressure, I.E. standing, then it tends not to flare up. I really don't want to spend any more money at this useless doctor but I need to fix these issues somehow!
Any insight or tips would be greatly appreciated!
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Age:23
Had Peyronies Disease since 16
Mostly experience pain with urination or urgency to urinate, Sometimes painful ejaculation. I drink ~160oz of water a day as to avoid the flare ups. Uro told me I had Peyronies Disease and recommended heat and ibuprofen :/ Need answers now!

LWillisjr

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Re: Introduction!
« Reply #1 on: September 28, 2022, 08:36:56 AM »

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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
66y/o  14 years Peyronies free
My History

TallyHacker

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Re: Introduction!
« Reply #2 on: September 28, 2022, 08:52:49 AM »

Yes - what the other guy said - read that survival guide - then, get the best medical help you can.

My surgeon (I'm nearly 2 weeks, post-op) sucks at getting back to me, but, when he's in-person, he's clear, and, when it came to doing the surgery, he was seemingly proficient.

Don't suffer at the hands of anyone whom is less than qualified and/or less than experienced and knowledgeable enough to help.

The first doc I saw, before my plaque matured, said he could do the surgery. No F^@$!ng way I was going to go to somebody who would like experience in doing a novel surgery. I found the renown specialist. I had to travel for appointments and surgery, but I count that as just part of process, for my healing.

I hope you'll do what you can discern as the best thing for yourself.

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12/19-tiny hardness,~dorsal/middle shaft, 1/2 down length). 1/20-erection pain. 3/20-diagnosis by urologist, confirmed Peyronies Disease. 4/20-fracture during intercourse; much worse-plaque along length,>curve. 8/20-stable, 90degrees. Age 60, 22 yrs. married.No Erectile Dysfunction

Oliver12

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  • 23 yr old, Peyronies Disease since 16, ventral curve, 2b scopes
Re: Introduction!
« Reply #3 on: September 28, 2022, 09:42:58 PM »

I read the survival guide and it made me feel so much worse about my urologist! He didn't offer any tests or treatments.... How do I go about finding a better doctor who cares about Peyronies Disease? I also am uninsured :/
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Age:23
Had Peyronies Disease since 16
Mostly experience pain with urination or urgency to urinate, Sometimes painful ejaculation. I drink ~160oz of water a day as to avoid the flare ups. Uro told me I had Peyronies Disease and recommended heat and ibuprofen :/ Need answers now!

Pfract

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Re: Introduction!
« Reply #4 on: September 29, 2022, 09:14:17 AM »

Hello Oliver, and welcome!

I presume there was no diagnosis of anything when you undergone those urinary tests? Pushing down on your erection unless you are not bending your penis wouldn't case peyronies itself. Unless you at the time felt major pain or had a pop of sorts and lost your erection. You need to look at the greater picture here: can you have sex? how is it? Do you have Erectile Dysfunction or your erections are firm and present no issues during sex? Also.... has your penile shape remained steady throughout the years?

The good thing is that you don't need your doctor to give you an approval for you to try first line treatments if you so want. Vacuum has been shown to help with bottlenecking and there are members here that posted photos of their progress. Search the board for "monty" and see his progress with the VED. Traction can also help with curvature. Look into Penimaster pro or Restorex.

As for reaching out to a good reputable doctor that cares about peyronies patients, look here:
https://malefertilityandpeyroniesclinic.com/peyronies/treatments/

This is what the most up to date treatments and recommendations are according to the latest evidence. You can also schedule a courtesy call with him, and if you are in a state that he is licensed for, book a video consultation.

TallyHacker

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Re: Introduction!
« Reply #5 on: September 29, 2022, 09:44:15 AM »

I also am uninsured :/

The first thing you have to do is get a job that provides insurance - good insurance.

I just reviewed your initial introduction to see if you referenced still being in college, grad school, had a family, current employment or work experience was.

Not finding any of that detail, from a practical standpoint, you're f'~c<+d (I know the algorithm going to change that, but you know what I wrote), in America, if you don't have high quality healthcare coverage, especially when seeking expert, specialized care.

I'd suggest finding the very best - highest paying, if possible, but take less (like I did), if the benefits are stellar - job you can that provides not only the best healthcare coverage possible, but also, the most-immediately-vested time off for when you're sick (not the stupid FMLA or short or long-term disability, because all of those reduce income while receiving), because you might need it, especially if you have to travel, and most "sick" time includes regular medical appointments and usually even the travel time (in case you have to go out of town, to get a specialist or surgery or whatever).

Do not pass "Go." Do not collect $200. (Monopoly game references.) Get that job. Get that coverage (insurance - sometimes there's a waiting period). Get those benefits (sick time - sometimes there's a waiting period). THEN, seek the best help you can find.

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12/19-tiny hardness,~dorsal/middle shaft, 1/2 down length). 1/20-erection pain. 3/20-diagnosis by urologist, confirmed Peyronies Disease. 4/20-fracture during intercourse; much worse-plaque along length,>curve. 8/20-stable, 90degrees. Age 60, 22 yrs. married.No Erectile Dysfunction
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