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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: NTE Pain - Sometimes Hourly - Acute phase Part II?  (Read 337 times)

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mrmarkdog666

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NTE Pain - Sometimes Hourly - Acute phase Part II?
« on: September 27, 2022, 06:38:58 PM »

Hi All,

New poster but I really need a community to speak with. I developed this disease out of the blue just over a year ago. At first, some very slight pain during an almost hook-up alerted me to the situation. At first, I chalked it up to just feeling a more intense throbbing with an erection. My heart sank later in the first month when I noticed a change in the shape of my penis and a slight upward curve developing.

Flash forward, I've been frozen by answers of what to and not to do. As everyone experiences, urologists are a hi and goodbye visit where they essentially say it could get better, get worse, or not at all. Come back when you want me to bill your insurance.

My newest symptom is nightly painful erections. On a good night I will wake up 2-3 times with a painful erection and the only relief is to try and use the bathroom. On bad nights as soon as I drift into sleep again I will wake up 30min later with pain and this cycle will repeat.

Has anyone dealt with this type of pain, or found a way to manage for peaceful nights?

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LWillisjr

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Re: NTE Pain - Sometimes Hourly - Acute phase Part II?
« Reply #1 on: September 27, 2022, 07:52:50 PM »

Welcome to the forum, and sorry for the symptoms you are experiencing. You will find much help and advice here. We encourage all new members to update their signature block with some basic information about yourself (look at the bottom of my post).

In the acute phase I also had some pain when I achieved an erection (voluntarily or not). But it wasn't that severe for me and after a few months it subsided, leaving a 75 degree upward bend behind.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
66y/o  14 years Peyronies free
My History

thegreycat

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Re: NTE Pain - Sometimes Hourly - Acute phase Part II?
« Reply #2 on: September 28, 2022, 08:45:55 AM »

Painful NTE are horrific for me too at the moment. I'll have a couple of weeks here and there where they're not as bad, but last night for example they were absolutely awful.

7 months in so far with a new nodule a couple of weeks ago and no reduction in pain, beginning to wonder if I'll ever leave the chronic phase.

Keep your head up friend.
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35. No injury. Lump found Feb/early Mar 22.
Misdiagnosed, now waiting on Urologist referral.
Possible cause Vit D/Propranolol.
Large dent, left hand hinge, pain on erection.
Supportive partner, depression/anxiety.
Started VED Oct 22.

Indenialguy

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Re: NTE Pain - Sometimes Hourly - Acute phase Part II?
« Reply #3 on: November 20, 2022, 06:30:17 AM »

Is the pain local to a specific area or pain throughout the penis?

I get nocturnal erection pain also, although sometimes I wonder how much of it is in my head. if I'm lucky enough to get an erection in the day time and I'm more with it, I notice it doesn't seem to hurt.

Its all so crazy and hard to know what is what.
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32 yo UK
Engaged with two young children
Injured 2017, healed
RE injured Sept 2022
Chronic flaccid pain since 2nd injury
Starting 5mg cialis daily, trying to obtain pentox online

Possible hard flaccid, possible Peyronie's, possible nerve damage

mrmarkdog666

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Re: NTE Pain - Sometimes Hourly - Acute phase Part II?
« Reply #4 on: November 26, 2022, 11:36:46 AM »

Is the pain local to a specific area or pain throughout the penis?

I get nocturnal erection pain also, although sometimes I wonder how much of it is in my head. if I'm lucky enough to get an erection in the day time and I'm more with it, I notice it doesn't seem to hurt.

Its all so crazy and hard to know what is what.

----

I have been debating that point as well. Since my post, this issue has been constant. I've tracked it to basically two-hour intervals, where I fall asleep and then wake up with an uncomfortable erection. I will have to pay closer attention to a specific point for pain.

I do have an upcoming Uro appointment. I don't expect it to be overly helpful but I am going to look into treating this more seriously as a sleep/anxiety issue and hopefully have some success with meds on that front.

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