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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: Finally writing about this...  (Read 206 times)

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m91t18chi

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Finally writing about this...
« on: August 31, 2022, 01:37:09 AM »

I'm 31 years old, and I've had Peyronies Disease basically since about 7-8 years old.

I experienced a trauma to the penis around 7/8ish, I was playing around a sprinkler in the yard with a couple friends and my brother (similar age) and my brother opened my swim trunks and stuck the hose down there full blast on my penis.  Next thing I remember I was in the bathroom and my mother was consoling me, however no one really understood the lasting effect it would have on my life.  I've been looking at it ever since, every day, every time I piss, etc.  Of course it really didn't come into clearer focus until puberty when I started getting erections (there is an obvious scar tissue on the top right side).  This made me very timid sexually, and for many years flat out avoidant.  I didn't really understand or know what Peyronies Disease was probably until my early 20's, and ever since I have definitely researched it quite a bit. 

I have had roughly ten sexual partners in my life, and none of them have mentioned the curvature.  It's probably about 20 degrees or so.  I can't say I have the hourglass for sure, but occasionally I will notice when an erection fades away I will have some blood get trapped on the top side for a few minutes.  I definitely have had some issues with Erectile Dysfunction related to the Peyronies Disease, mostly keeping the erection, sometimes the head will go soft randomly.  It also makes using a condom practically impossible.

I guess my biggest problem is the mental side of the disease, and knowing that I wasn't destined to have this but instead it was a result of just a horrible 5 seconds of my life and god knows what it would've been like if that didn't happen. 

Up to this point I've used a bit of traction - but could never stick with it long enough to expect results.  I haven't even met with a Urologist, but I think I may finally do that.  Given that I have no pain with erection and I am able to have intercourse, I'm assuming no Urologist will recommend aggressive treatment, but I'm so tempted to do anything to just see my penis relatively straight for once in my life.

Anyways, I'm sure this isn't a story you hear everyday so I thought I'd share.

Feel free to provide any guidance or advice, particularly for dealing with a Urologist.

Thanks for everyone on the forum!
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nemo

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Re: Finally writing about this...
« Reply #1 on: August 31, 2022, 03:34:25 AM »

I seriously doubt you have Peyronies Disease. Twenty-degree curvature is well within the range of normal "congenital curvature" and the odds of a water hose causing Peyronies Disease in a small child just sounds unlikely.

I would really try to come to grips with natural curvature that, as you say, hasn't caused any trouble with partners. Erectile Dysfunction is another matter, and very well could be psychological, as you clearly have issues you're concerned about. But that doesn't mean you have Peyronies Disease.

In summary, a curve doesn't equal Peyronies Disease. Peyronies Disease is caused by scarring in penis, while many, many men have natural "congenital" curvature. My guess is you're one of those. You can always take pics of your erection, show them to a Urologist and ask for an examination if it will put your mind at ease.

Regards,
nemo
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51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Legacy

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Re: Finally writing about this...
« Reply #2 on: August 31, 2022, 09:51:37 AM »

Failing to keep a good erection could just mean that you’re not that way inclined in your biological makeup?

I for instance never experienced an erection sat at the back of a bus, etc. and it’s been a very very long time since I was more than ‘once a night’.
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Sexual injury July 21. Painful erections, diagnosed Peyronies. Only just noticed the deformation, no proper growth in the 3rd of erection, no bend, proper erection though,
60, single, minimal sexual activity. Can live without sex, but…

FrankPD

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Re: Finally writing about this...
« Reply #3 on: August 31, 2022, 11:00:23 PM »

Hello and welcome,

After the hours of homework googling and on this forum I’ve never heard of a child having Peyronies Disease.

I would suggest getting two opinions from two different urologists so you don’t get misdiagnosed.

I’ve always had a curve and no injury and developed plaque out of nowhere so it seems.  Two uros can’t explain it.

You’re in the right place though.  Search through the threads and learn a lot from personal experiences.  As for the mental part, gotta keep yourself busy.

Hope this helps.  Good luck to all.

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Age 46
No injury
Diagnosis January 2022  
Have plaque
Hourglassing when flaccid and semi-erect
Still have my congenital curve, no severe curving
Massaging with vitamin E cream twice a day 
Low carb diet
Discomfort/aching sometimes
Best to all!

Pfract

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Re: Finally writing about this...
« Reply #4 on: August 31, 2022, 11:23:03 PM »

m91t18chi:

I am not sure about the symptoms you describe are related to peyronies. There are plenty of exams that you can do, but the ultrasound if done by a proper technician is the most used one to diagnose what you may have.

To me, if i was you i would start by addressing your Erectile Dysfunction issues. The curvature is not significant to warrant surgery and if you actually are consistent with Restorex, could see improvements on that curvature?

I also don't think that hourglass and the way you describe it, is actually that.

Have you tried Erectile Dysfunction medications?
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