Peyronies will be a sexual injury for practically all of us, myself included. In my case my wife was in top and moved suddenly to the side as she was half way down the shaft. She is quite petite, but an erect penis is no match for 50 kilos moving in another direction and I felt a very definite pop.
There was no immediate change then a month or two later I remember getting an erection just before sex that suddenly collapsed seconds later around the centre like a deflating balloon and waved around, while the top and bottom remained temporarily erect. It was totally surreal and obvious something was very wrong. A few days later I saw GP (when that was still possible) and I was pretty disgusted by his reaction. He basically treated me like a freak when I described the symptoms and couldn't wait to push me out the room.
If you think about it porn actors they must endure all kinds or micro injuries from rough sex, yet they don't get Peyronies, or at least not the ones you see in videos. The key difference must be down to the way our bodies react to those traumas and that is why I say this needs to be viewed in a more global context. Sure we got Peyronies, however the underlying
inflammation and associated issues were already there.
This might just as easily have manifested in some other condition, so in my opinion we need to switch off that
inflammation and have our bodies respond normally to traumas and infections etc before we have a hope of fixing this. It's also important to curtail the risks of other potential conditions.
To put this in perspective, I went 8 years without getting even a mild cold, no matter how many sick people I was around and that's not because my immune system was strong; it was running on overdrive in full-time killer maniac mode, attacking everything in sight, including my best buddy penis. Just two weeks after eliminating all fish, meat and dairy I had my first cold and I took that as a very positive sign that my body was finally open to dialing down the the immune response to more suitable levels.
I know what you mean about not being able to talk with anybody about this and it's one of the harder aspects of this. The only people who know about mine are my wife and father. My daughter is 26, still living at home and hardly leaves the house, which severely restricts what I can do.
She must have seen all those supplements over the years and continually criticises my diet since changing, though it's very easy to be clever when you are 26 and never had any serious health conditions. My mother is visiting at the moment for several weeks and that is frustrating to deal with as well.
I never quite know what to make of my wife's reaction, because she seems to offer no real input if I talk about the Peyronies, so it tends to get bottled up inside. The only point I can really deduce is that she doesn't want to hear about it and honestly I would have liked to feel she was more involved over the years.
About six months ago my father was hassling me about various things, saying I had to do better and how they just got on with things in his day. That was when I decided to tell him just how stressed I had been about Peyronies and the way it had affected my life. He simply said he had never asked in years because I never mentioned it.
Ironically he's been better since then and shows a bit more empathy. The affects of Peyronies can be psychologically hard to deal with. Some men become very depressed. In my case I've been depressed at times, but more frequently it has been frustration and serious anger. That's why you need to develop some techniques that will allow you to be kind to yourself and find some peace if you find it taking over.
I agree that it would be tricky sharing this with a friend, not least because you can never really tell how they might react or behave afterwards. This will sound daft to some, but I have sometimes thought Peyronies is worse than cancer in the respect that you just cannot talk about it in the same way. Perhaps I've shared too much information, but I think it helps sometimes if we can identify with the same frustrations, as long as you use it in a constructive way.
Regarding your questions, I would certainly put them to the forum. It might be better putting them in different categories, because I figure users will likely only read a post or two for a new user.
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