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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: State of mind  (Read 296 times)

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Davvepiso

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State of mind
« on: August 27, 2022, 09:28:39 AM »

How is everyone coping with the psychological aspects of having Peyronies Disease?
I'm finding it difficult with not being able to "perform" sexually with my partner and actively avoid having sex as a result.
Peyronies is one thing but suffering Erectile Dysfunction I find very difficult to deal with. The more I worry about it the worse it gets.
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FrankPD

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Re: State of mind
« Reply #1 on: August 27, 2022, 11:32:59 PM »

Psychological aspect is extremely tough.  I don’t have Erectile Dysfunction but it does seem like my erections are softer than usual.  Could also be I’m trying to find a job, def stress from that.  Maybe once I find something, it will get my mind off Peyronies Disease.

Best wishes to all.
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Age 46
No injury.
Diagnosis January 2022.  
Have plaque and hourglassing. 
Massaging with vitamin E cream twice a day.  Discomfort/aching sometimes.
No curve.
Best to all.

20yo

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Re: State of mind
« Reply #2 on: August 28, 2022, 06:50:52 AM »

for coping with peyronie what i do is try to focus on studying and going to the gym
going to the gym expecially is great, gives me confidence and makes me less stressed.

sometimes i cry and i get overwhelmed by emotions but i tell myself to just go on and keep on living (push away bad thoughts) and eventually crises end.

for Erectile Dysfunction my urologist gave me sulfarol. they're supplements with sulfur and so on. it works a lot for me, also makes me more aroused. you can try that, it's just a supplement so it wont have negative consequences
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20 yo, Peyronies Disease 2020(55 degrees down) + congenital curve
loss of length, stable erection, sensation. hourglassing
antioxidants, hyaluronic acid injected & oral, maybe Yachia in future
Recently started VED 2x a week
Still wants sex and a relationship

thegreycat

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Re: State of mind
« Reply #3 on: August 28, 2022, 09:30:50 AM »

I'm not coping well at all.

I have a history spanning 15 years of bad sexual experiences that already had me in a place where I really struggled with that side of things. My girlfriend was the first person who'se ever made me feel 100% relaxed and at ease in my own body when it comes to sex. So this is a cruel latest hit to my confidence and my mental health in general.

It's ruined me. It's made me terrified of becoming aroused (due to the pain). I wake up 5 to 10 times in the night either in pain due to erection, or with an erection starting that I then spend 10-20 minutes a time trying to get rid of before it start to hurt so I'm sleeping really, really badly.

I've found myself in a deep, deep depression where I don't even have the mental capacity to do anything other than work... I used to lift and run but I've completely stopped exercising (even going for walks). I have little desire for recreation any more, and I know my partner is suffering because I'm different. I try not to be, and I try and put on a brave face and smile through it but she knows I'm just "different" now. My spark is gone. I feel like I'm just less. I'm terrified of this ruining her life too.

I felt like this years ago when I was suffering with debilitating back pain, but that was something I could fix (and I did fix). This is not.

Every single TV or Radio or musical reference to sex just feels like the universe taunting me.

I've gotten really good at crying to myself at night once she's sleeping.

Life was beyond wonderful until March. Now I spend a lot of my time not really wanting to be here.

Sorry for the downer of a reply, just saw the question and wanted to get it off my chest.
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34. No injury. Lump found late Feb/early March 22. Originally misdiagnosed, now waiting on Urologist referral. Possible cause Vit D/Propranolol. Large dent, left hand hinge, extreme pain on erection. Supportive partner. Extreme depression/anxiety.

Hawk

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Re: State of mind
« Reply #4 on: August 29, 2022, 09:47:30 PM »

What have the three of you (other than 20yo) tried so far to improve your state of mind?  Are you willing to try solutions and work for improvement?  Are your post to help each other with solutions or to agree on how bad life is?

After you answer that question, go to the first post at the very top of this board and read what the purpose of this board is.  This is a solutions board.
Linl----> https://www.peyroniesforum.net/index.php/topic,17669.msg151643.html#msg151643
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums
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