26, had Peyronie's since I was 20. Here's my advice :)

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Kintsugi Kintama

Hello all!

Introduction:

To anyone that's interested here's my story. I'll also explain what my personal routine is on a physical level. And lastly I'll mention some of my insights about the psychological struggles of Peyronie's and how to deal with that.

This is gonna sound sooo silly, but in my case, Peyronies was self inflicted, accidentally of course. I was initially having issues with PE (premature ejaculation), and so I was training a lot. Then I got a tick bite on my dick, but I just kept on training. Frantically beating myself into a pulp.

As a result there is a scar running vertically up my penis, and there are the typical calcified growths on the left side of my penis.

It's been a long journey but here is what has worked for me:




Physical:

1. traction device -> keep it stretched out! Helps with blood flow.

2. castor oil! -> helps with blood flow. Apply liberally all the time. AMAZING.

3. red light therapy -> plenty of affordable lights on Amazon

4. do your research on sildenafil (viagra). If you don't have heart problems, there is evidence that taking it as a nightly supplement could be helpful. (I can attest).

5. stay very hydrated! -> blood flow and night boners

6. when you masturbate, stop before you ejaculate -> helps encourage night boners

7. Fasting. Thanks to a variety of mechanisms including ketogenesis, evidence suggests that fasting improves tissue repair, circulation, and reduces inflammation. Be careful about fasting with viagra in the system though, you might get light-headed 😅

8. Maaaaaayybbeee veganism. There's plenty of evidence that suggests that plant-based whole food diets improve circulation and reduce inflammation.


As you can probably guess, in my opinion it's all about blood flow. Anything you can think of to improve circulation is worth integrating into your daily routine. It's common knowledge that areas of the body with poor circulation heal the slowest.




Psychological:

All I can say is to do your best to shift away from looking at the world in a self-interested way.

What can you do for other people? What can you do for the world?

This transition is essential if you don't wanna fall into a depression.

Linguistic analysis shows us that depressed people use the words "I" and "me" more than healthy folks. And people with chronic diseases are very vulnerable to falling into this vicious spiral.

And this applies to your sex life too of course.

Your dick is NOT the main source of pleasure for your partner. It's all about using your hands and mouth, full body experience, you know what I mean.

It's not about you, it's about them. It's about compassion. That's life. It's just that Peyronie's makes us mature a little faster than we might've wanted 😅.




I really really hope that this post helps offer insight to someone! It's been quite a struggle, but the human body has an incredible potential for healing. Don't lose faith in your body or the world!

Replace this text with critical info about your case
such as age
first symptoms (deformity, Erectile Dysfunction)
official diagnosis, date, doctor's name
treatments tried
relationship status
Etc

TheCurveBall

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Bud luck

My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

FrankPD

I have a girlfriend
Age 47, No injury
Diagnosis January 2022  
Six plaques
Hourglassing when flaccid and semi-erect
Only have my congenital curve
Massaging with vitamin E cream twice a day 
5mg Tadalafil, Healthy diet
Discomfort/aching sometimes

benneb

What do you mean "worked for me"?
What's your situation now?
Peyronie since 2020. Inflammation started probably after microtrauma. Almost no curvature. Still a weak spot with  scarring. At this point biggest issue is ED and once in a while recurring inflammation.

Deek

yes, i would like to know that too.

what happened in the meantime?

What's the status today?

 
age: 43
relationship: married
symptoms: ~45 degree bend / curve up
Started October 2019 with bent erection (dent/notch)
Daily Tadalafil
Traction with PMP
VED with one cylinder

ohnoohno

29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

d.diemidio

thanks for the initial post. Am very new to this Peyronies Disease, just started to feel pain and been seeing the bent increase to about 30/40* in the past month. Originally, had a little accident (mis-thrusting) back in sept/oct during intercourse, when I heard a pop and felt the bent but no hematoma and no pain. did not bother with the doc as I had no signs, no pain.

So, was ok for a month, but then felt nodules on the top of my penis, bit more on the left, halfway, and the bending started around beginning of January.  Am seeing a urologist, private, next week. He suggests i'm in the acute phase and should go on with medicine and pump treatment for 6 months. I guess there will be never full healing but will be about managing it? Any thoughts welcome. Thanks again, D
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Christopher1

Snake Diet + 5-day fasts + pentox + NeoV's stretching routine + Mito Red Light. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.