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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
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Author Topic: Please help me identifying if this is Peyronies Disease  (Read 376 times)

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tazje

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Please help me identifying if this is Peyronies Disease
« on: August 05, 2022, 03:04:38 PM »

Hey people

A few months ago I noticed lumps on the right side of my shaft, didn't think it's anything as I never found anything on the Internet about it. For now 4-5 weeks I've the fear it may be Peyronies, which is also the time I started having pain/discomfort in the same area. The pain isn't constant, sometimes it vanishes, sometimes it's stronger. The right side of my shaft has been less sensitive than the left for some time now and I'm really clueless about what this is supposed to be. The lumps can be seen mostly when I'm flaccid/semi-flaccid and the least when I'm erect.
At times they also just vanish. At times I can see up to four lumps on the right side of my shaft and also 1-2 on the left. The ones on the left look like they could form a ring with the ones on the opposite side. They also don't move with the skin and are most clearly visible when I move the skin around. Also, I had issues with Erectile Dysfunction before this which I always assumed to be psychological

I've now seen two Urologists and both didn't really bother. I told them my suspicions and they told it's nothing because they can't feel anything under my skin. I feel I've hit two really unlucky days as when I tried to show them what I mean I couldn't really see the lumps either. Anyway, I showed them pictures clearly depicting what I mean to them, which they looked at, not really saying anything about them though. They didn't really do anything to take my concerns away as they didn't tell me what else it could be either, which my own research on the topic supports, as IMO it could only be Peyronies Disease or Lymphoceles, but the latter are supposed to vanish after days/weeks. When I told them about my pain they told me its probably psychosomatic and let me leave.

I'll attach photos of what I mean, I just can't get over the fact the right side of my shaft looks like a pistol grip at times, also afraid they'll narrow down and I'll get major hourglassing, as I'm not noticing any curve yet, other than my flaccid penis by default bends to the right side, not in a very strong manner at that. It does look worse in reality than it does on photos I feel like

I'd be very grateful for any suggestions on what this might be as I feel like I'm going crazy over the past few weeks, as no one is able to tell me anything constructive or give me a diagnosis
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nemo

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Re: Please help me identifying if this is Peyronies Disease
« Reply #1 on: August 05, 2022, 03:36:26 PM »

What you are looking at are circumflex veins of the penis. Google it. One doesn't "see" Peyronie's scars like that.

Regards,
nemo

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51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

tazje

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Re: Please help me identifying if this is Peyronies Disease
« Reply #2 on: August 05, 2022, 06:13:58 PM »

So that probably means I have Mondors Disease on my circumflex veins? Its been there for more than 6 months now and hurts alot

Thanks for the clue anyway, maybe if I can get another Uro to look at it from that perspective he can do something about the pain
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nemo

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Re: Please help me identifying if this is Peyronies Disease
« Reply #3 on: August 06, 2022, 01:36:21 AM »

Could it be that the 'pain' you're feeling is because you are constantly pressing and checking for Peyronies Disease, combined with constant worry over this? That is not uncommon on these boards.

nemo
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51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

tazje

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Re: Please help me identifying if this is Peyronies Disease
« Reply #4 on: August 06, 2022, 04:05:09 AM »

I'm definitely not constantly pressing on it, but the times I got checked by Uros pressing on it the pain after was quite intense. Yes, I'm also constantly worried about this but with how long the lumps have been there and how intense the pain can get it's really hard to believe this is just nothing. Also as I've already said, it doesn't look as bad on the photos as it does in reality AT TIMES. Which really means: I'm not sure, the pain really started around the time I started caring about this, but the lumps have been there for a longer than few days/weeks and aren't really getting smaller/vanishing either. Which if I'm not mistaken is supposed to happen after some time
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James884

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Re: Please help me identifying if this is Peyronies Disease
« Reply #5 on: September 19, 2022, 01:15:12 PM »

Honesty I have the exact same. Check my posts and pics. The ring shaped circumference bumps are scars from previous mild fractures. I had this confirmed by an mri scan. The urologist said the scars are not peyronies they're soft and have not calcified. You'd know if it was peyronies they'd be hard. I also have two on my right side and unfortunately also suffer with that achey pain. Whatever you do don't try traction. I feel this made me worse. Let me know if you manage to stop the pain.
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37 year old
Penile fracture 2018 - Not a lot of problems
A year later priapism due to prescription drugs. The priapism exacerbated the original fracture site/scar. Now I've got a constant dull pain when flaccid

FrankPD

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Re: Please help me identifying if this is Peyronies Disease
« Reply #6 on: September 19, 2022, 11:13:11 PM »

Honesty I have the exact same. Check my posts and pics. The ring shaped circumference bumps are scars from previous mild fractures. I had this confirmed by an mri scan. The urologist said the scars are not peyronies they're soft and have not calcified. You'd know if it was peyronies they'd be hard. I also have two on my right side and unfortunately also suffer with that achey pain. Whatever you do don't try traction. I feel this made me worse. Let me know if you manage to stop the pain.

Hello James884,

Do you have hourglassing with the soft scars?  My plaque for the most part has never been hard, a little tough in the beginning.  I’m just wondering soft plaque is not Peyronies Disease?  Two uros told me it was.  Just asking because this is the first time I’m hearing of this.  I’ve read through so many threads here.

Be well.
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Age 46
No injury.
Diagnosis January 2022.  
Have plaque and hourglassing. 
Still have my congenital curve, no severe curving.
Massaging with vitamin E cream twice a day. 
Low carb diet.
Discomfort/aching sometimes.
Best to all.

James884

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Re: Please help me identifying if this is Peyronies Disease
« Reply #7 on: September 20, 2022, 02:57:11 PM »

Hi Frank. Yes I do have hourglassing (when flaccid. Especially when cold) with yes soft scars. They're not hard at all. I have no doubt if the scars was hard my penis would bend a lot when erect but it doesn't.

They're scars from mild fractures that have healed, however I have a constant dull ache after a priapism episode at one of the scar sites. It's this discomfort is what bothers me.

You too may just have old traumas that have healed. Depends if these scars cause bending when erect.

All the best to you fella.
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37 year old
Penile fracture 2018 - Not a lot of problems
A year later priapism due to prescription drugs. The priapism exacerbated the original fracture site/scar. Now I've got a constant dull pain when flaccid

FrankPD

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Re: Please help me identifying if this is Peyronies Disease
« Reply #8 on: September 20, 2022, 10:59:16 PM »

Hey James884,

I also don’t have any curving.  The plaque does ache though from time to time and when it does, it’s only for like 5 seconds.  I don’t recall any trauma. 

Right now I’m about two weeks in on a semi keto diet.  I say semi keto because I do eat but I cut out bread, pasta and rice and snacking at 7:30 in the evening.  Some men have had success in lessening the hourglassing and shrinking plaque.  My goal isn’t to lose weight. 

Thanks and be well.
Logged
Age 46
No injury.
Diagnosis January 2022.  
Have plaque and hourglassing. 
Still have my congenital curve, no severe curving.
Massaging with vitamin E cream twice a day. 
Low carb diet.
Discomfort/aching sometimes.
Best to all.
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