Everything I tried made my condition worse. I'm done trying

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Bud luck

Everything I've tried made my condition worse: Traction, P-shot/O-zone injection, Shockwave therapy... I do not have a plaque, the Urologists told me that I have microcalcifications, probably because of the Trimix injection that produced an extreme painful erection that lasted for 3'5 hours, causing permanent tissue damage. After spending probably over $5000 for all these "therapies" the result had been worst scar tissue. My relationship with my girlfriend for almost 4 years is over, my depression is hitting me hard but I'm starting to accept what I have and let my penis rest, no more traction, VED.... they are only harmful to my penis. I won't post anymore because is a lost battle, I won't think about it anymore, I'm tired of fighting to make things worse. I will focus on other things than sex, romance..
Good bye everyone  
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Mikel7

So out of morbid curiosity you actually tried gentle traction for at least 1 year?  You now ready to quit? You are in your 40's and life is over?  I've had my setbacks with traction and VED but I would never let it make me stop trying.  I am disabled now because of a freak medication toxicity that damaged my ears and I had to quit my teaching job. This all happened in the beginning of my peyronies .  Yes I cried and thought many times about suicide - and I can say that I have the knowledge and the meds to do it.  I thought though that if I quit life I would be hurting the people who love me.  Do you have such people in your life?  You probably do and you need to get a new perspective and a fresh resolve!!  Take some time off and get a new approach to things.  There are a lot of men in a worse position than you are in.  I have always had compassion on my students who have come from bad situations that I can't mention.  They did not quit and you shouldn't either.  I'll get off of my box now.  Mikel7 :)

Remember that tomorrow is fresh with no mistakes in it.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Bud luck

Thank you so much Mike, I'm just devastated that I losted  my girlfriend because of my dick, I still want to live but is depressing that my dick just got worse after trying "therapies", I have two sons, father, brother, aunt and very good friends that love me, is just that I'm missing the love of a female partner, all because one stupid mistake that caused me permanent damage, while the "clinic" that did it erase me like it never happened, they erase my reviews on Yelp and their site, the owner called a liar, so what happened to me there it could happen to someone else
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

nemo

What happened with your girlfriend? Did she literally leave because of this, or where you having other issues? I would be surprised if it was the Peyronies Disease than caused the break - but I know that we can obsess about it to the point that it stresses a partner out. If you don't mind me asking, what happened?

nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

GaussRifle

Just get a penile implant bud luck, if you have an unusable penis.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Bud luck

Nemo, my penis got worse again after Shocked Waves, so for the last three weeks my penis became weaker on the base making my erection unstable, she got very upset with me for doing the Shocked Waves and told me that she was tired of warning me for trying new things to fix my dick, so she told me that I didn't listen to her and that she was done. Every time I try something always end up getting worse. That is why my relationship is over, and I do not want to have an implant because I don't think is safe having an autoimmune disease that will increase my chances of infection
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

jj21

Look man, did your gf leave cause you kept obsessing over your condition when she really didn't care? If so, it's just a note to remember that a lot of women out there don't care and will happily accept this condition. Just remember that, if you accept it and aren't depressed about it n they don't care, you're pretty much able to live a normal life.

If she left just because you were unable to have sex with her then you deserve better anyway man.

My condition has gotten worse too, along with new issues like varicose veins in the scrotum n penis etc but I am not giving up.... Hang in there, slow steps, I'm sure there's is something which may help.. I know it's hard accepting that your dick may never be the same, but it is the only way.

If you already had a supportive gf with this condition that's a plus as well and shows you can still find a partner.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

chrisaaa7

Agree with the comment above, it's all about perspective and what you make out of the situation. Yes, life is different than before but what matters now is how you react to it. You can either go uphill or down hill.  
M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),ED for 2.5 years

GaussRifle

Jj21, what do you mean by your comment that if his girlfriend left him because he was unable to have sex with her, then he deserves better anyways. I don't necessarily agree...  women deserve and want sex as much as you and me... if she sees that his penis has little hope of recovering and he can't give her sex, she is free to choose another sexual mate for her, that can satisfy her. I know it sounds very harsh, but it's the truth. It's a survival of the fittest. Why will she spend years of her life when she can get another good guy, but with a decent dick. I mean, ideally everyone should be loyal and be supportive like you said, but this is the real world. We all chase happiness and things that give happiness which includes a decent usable dick.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

jj21

Gauss,

Women definitely want sex as much as men do, that doesn't mean it should be the sole necessity of a relationship (especially for someone with peyronies). Sex isnt just penetration either, you can still please your partner other ways and have other forms of intimacy. You will find that many women are willing to compromise and the poster may need to accept that for his own mental health.

Many men here had loyal partners with unusable dicks who stood by them and who eventually got implants and were able to resume a normal sex life.

My main point is, in the posters benefit, he should seek a woman who sees more to him than his penis (if that is the sole reason she left him).

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bud luck

Gaussrifle, I agree with you 100%. If a woman likes sex, what is the point for her to be with a man with a barely working dick?, is hard for me right now not to be obsessed with my deteriorate dick, how do I suppose to move on knowing that my dick is just getting worse, the fact is that before my dick was my biggest asset,I had a big functional dick that women loved, women were attached to my because of my sexual performance, but after the vasectomy my hormones dropped and I started to have Erectile Dysfunction, but at least with Cialis I could get hard and my penis still looked great, but then one day I got an overdose Trimix injection at Summit Male Medical in Tempe Az by "Dr Papadeas" that caused an almost 4 hour extreme painful erection that disfigured my penis for the rest of my life, now is getting even worse after spending almost $5000 in " Therapies" how do I suppose to feel about my life? The people that know about my deformed penis are telling me to move on, how do I suppose to move on after "Doctors" screwed me up with their "safe interventions", these " Doctors" are moving on with their lifes knowing what they did to me like my life doesn't mean anything to them, in fact they keep doing the same interventions knowing that there is a possibility to cause permanent damaged to a man penis, my case is not being reported anywhere like it never happened.
Without a dick a man is not complete, anything else is BS
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

GaussRifle

Bud Luck, like you said you had a time when girls used to be with you for your sexual performance and you had fun. Well atleast you got that opportunity this lifetime. You had decades of enjoyable sex in this life. Be thankful for those years of glory.

I know, its tough to let go but there are people like me who got affected by peyronies even before I could insert my penis in a vagina. I don't even know what penetrative sex feels like, or a woman moaning with pleasure.

 I agree, you lose your gender identity without a workable penis as a man. I feel like a robot honestly, certainly not a human being.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Bud luck

Gaussrifle, I got your point, at least my penis worked for years, now what I have left are my memories.  
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

GaussRifle

Bud Luck, you mentioned you have auto immune disease and that's why you don't want to get an implant ?. Which auto immune disease is this ? And do you know for sure that all auto immune disease increase risk of infection ?
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

ruff

Quote from: Bud luck on June 30, 2022, 08:58:14 AM
Everything I've tried made my condition worse: Traction, P-shot/O-zone injection, Shockwave therapy... I do not have a plaque, the Urologists told me that I have microcalcifications, probably because of the Trimix injection that produced an extreme painful erection that lasted for 3'5 hours, causing permanent tissue damage. After spending probably over $5000 for all these "therapies" the result had been worst scar tissue. My relationship with my girlfriend for almost 4 years is over, my depression is hitting me hard but I'm starting to accept what I have and let my penis rest, no more traction, VED.... they are only harmful to my penis. I won't post anymore because is a lost battle, I won't think about it anymore, I'm tired of fighting to make things worse. I will focus on other things than sex, romance..
Good bye everyone

Was in your position. Tried all of these wacky treatments including stem cell, shockwave, p-shot, and they made me much worse. I was extremely depressed and felt that the doctor who gave me stem cells took advantage of me and gave me permanent damage which made me just want to give up. Finally had surgery 3 weeks ago and happier than ever. I highly recommend going to a top surgeon. It is really the only treatment that can get you 100% straight fast. Don't give up man. You just have to go to the right urologist. Dr. Levine, Dr. Lue, Dr. Christine, Dr. Gelman are the best.  
Age: Late 20's
Date of Onset: 2014
Symptoms: Down and left curve 60+ degrees
Treatment: Plication surgery with Levine in 2022 after failed stem cell, traction, shockwave, and other treatments.
Current Status: Now straight. Here to help.

Bud luck

The problem is that I will need incision and grafting that is a very invasive surgery that can cause erectile disfunction, not like plication, but thank you very much
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

ruff

Quote from: Bud luck on July 01, 2022, 01:10:09 PM
The problem is that I will need incision and grafting that is a very invasive surgery that can cause erectile disfunction, not like plication, but thank you very much

I understand and I'm glad you brought that point up. It shows you have done your research. I agree incision and grafting is more risky and can cause Ed. But it really sounds like that's the best option for you. If you go to Dr Levine or Dr Christine you'll be in good hands and have a high chance of success. Is there a reason why you aren't considering that option?  
Age: Late 20's
Date of Onset: 2014
Symptoms: Down and left curve 60+ degrees
Treatment: Plication surgery with Levine in 2022 after failed stem cell, traction, shockwave, and other treatments.
Current Status: Now straight. Here to help.

Bud luck

I'm going back to Barcelona, Spain in two months, I'm going to Dr Ralhp in London, maybe my only option is the implant
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

ruff

Quote from: Bud luck on July 01, 2022, 02:35:47 PM
I'm going back to Barcelona, Spain in two months, I'm going to Dr Ralhp in London, maybe my only option is the implant

Hope it works out for you. Hang in there. Implants can be very successful.  
Age: Late 20's
Date of Onset: 2014
Symptoms: Down and left curve 60+ degrees
Treatment: Plication surgery with Levine in 2022 after failed stem cell, traction, shockwave, and other treatments.
Current Status: Now straight. Here to help.

Bud luck

I know an implant is not like a natural dick, but right now is my only option, I'm willing to take the risk, I'm scare of an infection because I'm inmune compromised ( Ulcerative Colitis) and that I have fibrosis but is the only way if I want to have a straight functional penis. I wish I never did all the useless "therapies" that made my penis worse
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

GaussRifle

Having ulcerative colitis doesn't make you immune compromised unless you take immune medicines. Please ask a surgeon or specialist if it is really true than there are increased chances of infection if you go this way. Please wish that I get a functional amazing dick too magically .... Hahaaa. I need everyone's prayers for me because mine aren't being heard.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

ruff

Quote from: Bud luck on July 01, 2022, 05:50:14 PM
I know an implant is not like a natural dick, but right now is my only option, I'm willing to take the risk, I'm scare of an infection because I'm inmune compromised ( Ulcerative Colitis) and that I have fibrosis but is the only way if I want to have a straight functional penis. I wish I never did all the useless "therapies" that made my penis worse

You aren't alone man. I see tons and tons of people going to these useless "therapies" to have their penis destroyed. I was one and was going to give up. But if you stick with evidence based medicine (surgery, implant, etc...), you increase your chances of success dramatically.
Age: Late 20's
Date of Onset: 2014
Symptoms: Down and left curve 60+ degrees
Treatment: Plication surgery with Levine in 2022 after failed stem cell, traction, shockwave, and other treatments.
Current Status: Now straight. Here to help.

Bud luck

Ruff, how are your erections? How do you feel?, did you lose size? when was your surgery?
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

jj21

Agree with yous both. You do lose your identity without a workable penis... It is extremely difficult to accept. Every day you wake up feeling worthless. Hoping that implant works out for you BudLuck! Sad VED n traction havent, seems to work for a lot of us.

Hope things work out for you man.
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

ruff

Quote from: Bud luck on July 01, 2022, 09:08:39 PM
Ruff, how are your erections? How do you feel?, did you lose size? when was your surgery?

Great questions thanks for asking. I feel like a new person. Was depressed for 7 years because of this condition and now I've never been happier with a deep sense of gratitude that I'm straight.

My erections are much better. I'm able to get erections very easily and have spontaneous erections all the time. Before the surgery that was not the case, which makes me think this was psychological ED.

I lost 0.5cm. Much less than I expected with a 60+ degree curve.

My surgery was 3 weeks ago.

Please feel free to ask more questions. I know Dr Levine who did my surgery also does Penuma implants so it may be something of interest for you. I feel dr Levine gave me my life back.
Age: Late 20's
Date of Onset: 2014
Symptoms: Down and left curve 60+ degrees
Treatment: Plication surgery with Levine in 2022 after failed stem cell, traction, shockwave, and other treatments.
Current Status: Now straight. Here to help.

Bud luck

I wonder if traction can make fibrosis worse, I really want to do traction again but not sure if is safe. Plus I don't have a plaque based on the Doctor ultrasound, he told me that I have microcalcifications and that I have good blow flow. Is traction only good for plaques?
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

chrisaaa7

I think that is a good question to ask Dr Trost and/Eid on this forum  
M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),ED for 2.5 years