My deformity keeps getting worse, even after more than 28 months, I'm becoming s

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Bud luck

Since my trauma more than 28 months ago my condition is getting worse, I have more deviation, narrowing and now torsion too. O-zone injection made it worse, and now Shockwave therapy made it worse again!!!!!!. My penis is getting worse constantly, is making me useless, angry, depressed, I'm losing my mind. I try not to focus on my dick, but I have a girlfriend who wants sex and seeing my dick the way it looks and feelsCan't tak is making me want it to end my life. e it anymore, the more things I do to correct it the worst I'm getting, why??????. This is the worst thing that  happen to me in my life. And what is screwed up, is that the "clinic" that did this to me "Summit Male Medical" in Tempe Arizona keep deleting my review on Yelp and on their website, they don't want anyone to know how dangerous their invasive medications are, they only think about making money regardless the damage they are causing, I'm completely devastated while the owner of that "clinic" is a millionaire who doesn't know anything about the dangers of Trimix, just injecting large doses on a first visit without warning about the dangers of it

Note from Administrator:  Where is your request for ideas to try or your report of what you have done to improve your psychological condition?
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Tobyg

After 6 years my penis is also slowly getting worse, i was doing little manual tractions and i think that was the cause. I can't do life projects with this, I hope someone saves us.

Note from Administrator:  Where is your request for ideas to try or your report of what you have done to improve your psychological condition?
32 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.
Frequent urination.

Bud luck

My penis right now is worse than ever been, my depression is hitting me hard. Now I don't have a girlfriend anymore and I won't able to have sex again and I'm only 46 years old. I have microcalcifications due to Piraprism so I'm not sure if I will be able to get an implant, my live is a nightmare due to ONE Trimix injection, one day that destroyed my life permanently.

Note from Administrator:  Where is your request for ideas to try or your report of what you have done to improve your psychological condition?
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

ruff

Quote from: Bud luck on July 06, 2022, 12:54:52 PM
My penis right now is worse than ever been, my depression is hitting me hard. Now I don't have a girlfriend anymore and I won't able to have sex again and I'm only 46 years old. I have microcalcifications due to Piraprism so I'm not sure if I will be able to get an implant, my live is a nightmare due to ONE Trimix injection, one day that destroyed my life permanently.

Take a breath man. Its good that you are expressing your feelings here rather than holding it in. I know we talked about this before but lets revisit and work through this.

I was in your exact position. I remember the day after getting stem cell I knew something was wrong. In the weeks after, I had more curvature, a new torsion issue, and chronic pain. I was severely depressed and thought that this procedure permanently damaged me forever to the point I wouldn't be able to even have surgery and recover. Like you, I was so upset at the doctor. He is a millionaire and couldnt care less. Just injects a ton of stem cell without thinking. I wanted to sue him. I hated him so much just like you hate Summit Male Medical Scammers. Im saying this because I understand you man and you are not alone.

So let's talk about the most important thing for you.

1. How can you get better?
2. How to handle this while keeping your girlfriend.

1. The only viable option sounds like surgery. And by a good surgeon, surgery and implants can be very very successful. You are saying that you are worried that the microcalcifications and damage from these procedures may rule you out for surgery. But, how sure are you of this? See, I had this exact same thought process. I thought that with my stem cell procedure causing extra damage and torsion, that I may also be ruled out for surgery. But many of these surgeries are designed to help you regardless of how the damage occurred. You just need to be in the stable phase. And that might mean waiting longer to make sure your penis doesnt change more before surgery. Honestly, it would be best for you to talk to the top urologists about this. I highly highly recommend scheduling a telehealth consult with Dr. Lue in SF as he is a pioneer and can talk to you about your medical history, provide a bit of clarity, and figure out a game plan for you. You can also see Dr. Levine Dr. Christine Dr. Gelman. But Dr. Lue is generally pretty available by Telehealth which is why I recommended him and can be a quick way to alleviate some of your anxiety and depression in the short term.

2. Regarding the girlfriend. I was also in this position. Its embarrassing. We dont want to tell our girlfriend as we are scared of how they will view us. What helped me was just being vague about it and saying I "damaged" my penis. You dont have to go into details and say you got all these procedures if you dont want. Maybe later down the road. But for now so she understands, it might help to just sit her down, and say that you damaged your penis and you might need surgery and can't have sex in the meantime but can try to find other ways to please her before you have surgery. You could say it was from masturbating, playing sports, or weightlifting or something to make it less weird. These things happen. And she may understand depending on how this conversation goes. If she leaves you, you'll find someone down the road after you have this surgery or implant.

How you are feeling right now is the worst feeling in the world. But as long as you take small steps towards finding a solution for yourself, it will get better. First step is just consulting with some of the top urologists. No more shady clinics promising the world. Only board certified urology experts and preferably the top ones.


Age: Late 20's
Date of Onset: 2014
Symptoms: Down and left curve 60+ degrees
Treatment: Plication surgery with Levine in 2022 after failed stem cell, traction, shockwave, and other treatments.
Current Status: Now straight. Here to help.

chrisaaa7

Through all the posts I've seen on here and FT, ive never seen someone not get a surgery for any reason. The top notch surgeons have seen some crazy stuff and gained a lot of experience over the years. Gelman, Clavell, Eid, are all too surgeons I am sure have seen every possible thing that can happen to a penis. eid fixed a penis that was curved so much that it was poking himself in the stomach. That means it was 180 degree curvature. There is pics on his website if you need proof. If a 180 degree curve can get fixed I'm sure your problem can be too.
M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),ED for 2.5 years

Bud luck

Thank you for your support and a very good advice.I have to go back to Europe in two months, I will have to visit an European top surgeon. I was thinking to go to Dr Ralph in London, he mentioned on his website that an implant won't recover the lenght lost due to fibrosis, what he didn't mention was the girth lost. I need to be mentally prepared for the implant and understand that if it goes wrong the consequences would be devastating : erosion, infection, floppy glans, really small size, mechanical malfunction, pain, urethra damage, low penis angle, lose of feeling. ...
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

chrisaaa7

You can't control any of that so worrying about it will not change the outcome. Also think about that many people have had revisions due to infections, or being undersized and turned out fine. Just because there is an infection does not mean it's all over. They take out the implant, and once the infection clears then they put it back in. I understand that no one wants the extra hassle and stress and I wouldn't wish that on anyone, I just mean to say that even if something like that happens, there is hope!

Note from Administrator:  This is not a board for discussing surgery
M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),ED for 2.5 years

Bud luck

Hope is what I had for the most of my life until I got the penis fibrosis, a condition that nobody knows how to fix it, ans then you have scamers everywhere promising results and ending up making the fibrosis worse, I'm not sure if traction can also increase fibrosis

Note from Administrator:  Where is your request for ideas to try or your report of what you have done to improve your psychological condition?

This is NOT a board to discuss physical treatments.  We have dozens of boards for that
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

gobbler

I can totally feel you Bud Luck, I feel the same and my situation is the same, only that I am about half the age but its ridiculous at any age tbh. I wouldn't want this at 40 or 50 either when most men still have totally normal sex lives. doctors like to make us think this is all completely normal and like to point at various statistic ignoring the fact that many men there are 60-80 years old. I would be extremely surprised if I would ever have sex again. I would be even more surprised if it was without a penile implant. and since I would reject a penile implant the two are really the same

Note from Administrator:  Where is your request for ideas to try or your report of what you have done to improve your psychological condition?

Where are your suggestions on things that might help improve his depression and psychological concerns?

This is NOT a board for discussion of physical treatments

It is NOT a board to tell us how much worse you are than the original poster
diagnosed with peyronies disease in Feb. 2020
mid 20
tried VED without much success, Cialis and potaba
single

Bud luck

If they could make a penis implant 100% risk free and that could last for at least 20 years, and recover the lost size, then the implant would be the solution. In the meantime we can get an implant and pray to not get major issues: infection, erosion, floppy glans, pain, lost of lenght/girth, lack of sensation, mechanical malfunction....  

Note from Administrator:  Not a board to discuss implants or other physical treatments
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

chrisaaa7

If you have it done from a top surgeon you are at a very low risk of any of that happening. Any surgery In the world has its risks and they all have risk of infection as well.

Note from Administrator:  Where are your suggestions for psychological issues?  This is NOT a board to discuss physical treatments
M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),ED for 2.5 years

Bud luck

I had extremely bad experiences in the past with "Doctors", I'm always one of the 0.3% that gets the side effects, that is why I'm so scare of having an implant base of my previous experiences. Got side effects from: vasectomy, Trimix, Shockwave, P-shot....everything I do makes my penis worse.

Note from Administrator:  Where is your request for ideas to try or your report of what you have done to improve your psychological condition?
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Hawk

Budl Lck, I think you were warned about shockwave therapy.  I think you were repeatedly warned what about what is and is not appropriate for this board.  It is clearly explained for all to read. yet, you and others continue to violate forum rules.

You Bud Luck have repeatedly refused to try anything suggested and have repeatedly refused to explain why you won't try anything suggested.

This board is NOT to discuss treatments.

It is NOT to discuss suicide

It is NOT for others to compete to explain they are in worse shape than the originator of the topic.

This board is for ONLY TWO PURPOSES.  
To seek help doing something to help your psychological condition
AND
To offer help to those willing to try solutions

All those who violated these rules will be officially warned.   Future violations by these members will result in a likely permanent ban with all of your posts deleted from the forum.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums