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[Sebtp1973]

I was interested in Dr Trost’s post yesterday, where he said he has new techniques or protocols for getting the most out of Xiaflex. He didn’t give a lot of detail, but said a paper on these protocols was just submitted.

I’m going to start Xiaflex treatment soon from Dr Lue. Lue is excellent, but it sounds like Dr. Trost is pioneering new ground and taking Xiaflex and molding to a whole new level.

For those who don’t know, Xiaflex on its own does not fix your curve. Xiaflex is basically a flesh eating enzyme which they inject into your plaque, which breaks it down. What causes the curve is one side of your penis is shorter than the other. The short side doesn’t magically lengthen when the plaque is busted up. By the way, the plaque is not completely eliminated, you need smaller and more manageable plaque to work with.

So the stretching and molding that goes along with Xiaflex is key to getting your shape back. Traction can help make the short side longer (if your erection points up, the top side is shorter than the bottom and that’s why it is pulling up). The busted up plaque is more pliable so you can stretch it. New healthier tissue will grow (I think). It’s like a pregnant woman’s belly tissues grows from the traction of the fetus taking space up inside.

I think the molding is to get the shape of the remaining plaque to be more amenable to a straight dick.

Anyway, it’s sounds like Dr. Trost has some “aggressive” ways to do all that stretching and molding to get much better straightening results. He mentioned “controlled fractures”. He gives cialis so his patients get nocturnal erections which tear apart scar tissue, but that can cause bruising and pain to the point where they can’t use Restorex, but he wraps the penis to prevent that. Anyway, I’d like to know more.

[P11050]

The key really is the controlled fractures.  That’s your objective.  Immediately after Xiaflex, aggressive modeling by the doc, stretching 30 seconds after urination, Cialis at night, restorex /counter bending 60 -90 min/day.  I will tell you, I was like clockwork.  I used a timer, even for the 30 second stretches.  I stretched as firm as I could tolerate it.  I believe he says 10lbs of weight.  Same as a full milk jug.

You can read through my other thread.

Can’t speak highly enough of this method.  I went from a 110 degree ventral curvature to no curvature.  Only one cycle of injections (two injections 24 hours apart).

Happy to hear Dr Trost submitted his new paper.  Can’t wait to read it.

[Sebtp1973]

The key really is the controlled fractures.  That’s your objective.  Immediately after Xiaflex, aggressive modeling by the doc, stretching 30 seconds after urination, Cialis at night, restorex /counter bending 60 -90 min/day.  I will tell you, I was like clockwork.  I used a timer, even for the 30 second stretches.  I stretched as firm as I could tolerate it.  I believe he says 10lbs of weight.  Same as a full milk jug.

You can read through my other thread.

Can’t speak highly enough of this method.  I went from a 110 degree ventral curvature to no curvature.  Only one cycle of injections (two injections 24 hours apart).

Happy to hear Dr Trost submitted his new paper.  Can’t wait to read it.

Thank you. Sounds promising.

How do you do “controlled fractures”? What is a “controlled fracture” compared to a regular fracture?

[P11050]

That really is the 100$ question.  I don’t know.  That’s really a question for Dr. Trost.

My working theory is:
1. Most actual fractures whether “controlled” in a Xiaflex setting, or secondary to intercourse, is best managed conservatively.  I.E. wrapping, stretching etc.  Essentially the protocols Dr Trost is suggesting.  They are usually treated with surgery, with terrible outcomes.  The first thing he tells you is you want the pop, and under no circumstances, go to the ER.  He gives you his personal cell phone.

There is a 2018/2019? study that shows that fractures are best managed conservatively.  His group did the study I believe.  Small cohort.  Really a pilot study.

This really is a paradigm shift in urology I believe.

Here’s the thing.  Anyone dealing with this disease, knows traditional management, unless your talking about an implant, is bleak.

2. My other working theory is it’s a bit of a crap shoot.  How does it fracture?  How much is too much?  No idea.

 You can end up with a small herniation, which I did.  It’s practically meaningless though.  It’s not painful, my wife can’t tell, and neither can I.  There are current case reports of herniation secondary to Xiafelx.  All treatment really is an endeavor in probabilities.  We’ll never escape that.
I think that’s where Dr. Trosts post Xiaflex protocols comes in, and why he’s so eager to publish them.

They are different.  They work.  And that literally changes peoples lives.

[Pfract]

 P11050:

Hey man... do you happen to have any pictures from before and after by any chance? It would be amazing to share that with us and show others the results

[P11050]

Yes.  I will.  If that will help.

I don’t have any pre-op pics.  I do have clinical notes from initial visits from two urologists that obvious describe my condition in detail.

Dr. Trost’s office has asked for post pics.  I’ll figure how to do those with their office, (I don’t live in Utah). 

I’ll probably need to verify with Hawk who administers this site, so they are verified.  I wore out of all the “I don’t believe you” BS from the previous thread.

It’ll be a few weeks.  We are headed out for the Independence Day Holiday.

[P11050]

https://pubmed.ncbi.nlm.nih.gov/34176473/


Above is an article about herniation post-Xiaflex.

My herniation is smaller than the one pictured in the article.

I had a phone consult with Dr. Trost.  He said there are several options:
1. Surgery - sutures - likely will produce further curvature.  He doesn’t recommend it. 
2. Freshen up the edges of the tear in the tunica to encourage healing.
3. Extratunical grafting.  No long term results on it.  Maybor may not work.  Low risk procedure.
4. See how it goes.

He did say he’s seen it 3 or 4 times.  When the options were given, folks opted to wait and see, which is what I chose.

Going to run with where I am at.  Grateful every day.