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We offer our most sincere condolences to Old Man who lost his wife of 59 years on Monday night to Pancreatic Cancer.   
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Author Topic: Waves  (Read 121 times)

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Curvekiller94

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Waves
« on: June 21, 2022, 10:11:02 AM »

Some days are good some days are bad. How do you cope with the fluctuating emotions? Many times I’m good for a period of time but that good is usually followed by a while of bad. My thoughts can make me feel like I’m trapped. How to not be on a rollercoaster of emotion during all of this?
I just want some confidence and consistency in my emotions, but that has been hard to grapple with

I don’t think therapy is the answer. To me that is trying to fix a symptom of the problem. The main problem is peyornies and the pain associated. But how do you help the symptoms that are due to the disease? I’m not anxious or depressed for any other reason I’m my life right now. Often Times a trigger is pop culture or movies or tv. It’s very hard to take your mind off of your condition in a world where sex is everywhere and I don’t feel a part of it
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

Mikel7

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Re: Waves
« Reply #1 on: June 21, 2022, 01:00:48 PM »

My suggestion is to try different hobbies and then you will not be hyper focusing on your peyronies. I'm sure you have been told that before. The fact is that the thing we try not to focus on is the very thing that we do. You must replace the thing or thought with something else and remember nothing is impossible.  How many times did it take Edison to invent the light bulb? It was around 1000 times.  What if he were to give up at 999 tries ?  We would all be in the dark.  Why don't you just try something and stick with it.
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Lump April 2020, age 61 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Curvekiller94

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Re: Waves
« Reply #2 on: June 21, 2022, 05:41:23 PM »

Well I do have many hobbies, but some of them have even been hit by peyornies. Since the onset working out can be uncomfortable and I don’t like wearing boxer briefs due to pain and I need the extra support for my testicles.

I work most of the time 40+ hours and I went from intern to engineer quickly <1 year. For a while my hobbies kept me from thinking negatively. But often I dip and I found myself stuck in the same type of depression/rut. I get out of it, it’s just hard because what many of my friends want to do for fun I don’t find fun anymore. I don’t know how to describe it it just feels like something is always missing and it’s hard to rise above that.
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

Curvekiller94

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Re: Waves
« Reply #3 on: June 21, 2022, 05:47:56 PM »

It’s also hard being in a relationship I feel like I let my girlfriend down often and It’s hard to not get upset easily. You see this isn’t the only health problem I’m dealing with so I often feel drained and agitated and sometimes i have anger outbursts. I miss sex while we still have an intimate relationship, but things are tough and she admits it’s hard for both of us especially because we are both in our 20’s. Idk I’m just blabbering. I’m not saying life isn’t worth it or anything it’s just really hard. Keeping busy is really useful for this condition and it’s mainly what I do. When I relax I get sad.
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

chrisaaa7

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Re: Waves
« Reply #4 on: June 21, 2022, 06:13:42 PM »

Agreed Curve Killer, it’s obviously a disease that makes things difficult mentally. To alot people sex is the most important thing in there life and that’s totally fine. When you have peyronies, you have to find other things in life that make you happy and that’s how you beat this mentally. It could be sports, hiking, movies, etc. winning the mental game is so crucial with this disease
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M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),Erectile Dysfunction for 2.5 years

Curvekiller94

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Re: Waves
« Reply #5 on: June 22, 2022, 08:06:58 AM »

Yeah man it’s a constant battle for sure. For me it’s video games that make me feel the best and take my mind off of the most
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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

chrisaaa7

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Re: Waves
« Reply #6 on: June 22, 2022, 11:14:27 AM »

Then continue to do whatever makes you happy! Just stay active , stay healthy, you got this
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M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),Erectile Dysfunction for 2.5 years

Bud luck

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Re: Waves
« Reply #7 on: June 22, 2022, 05:46:38 PM »

Curvekiller94, do you still have sex with your girlfriend? Are you planning to have an implant? If you do, who do you want to be your surgeon?
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Curvekiller94

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Re: Waves
« Reply #8 on: June 22, 2022, 08:21:49 PM »

Usually we just stick to oral sex due to pain, I’m not gonna lie I’m very scared my penis isn’t up to full sex. We’ve tired a few times and it didn’t work well since then I’ve lost the courage to. It’s scary not knowing if your penis is going to break and you’ll be in even more pain. That thought has taken a lot of the fun out. I know a lot of times nothing bad will happen. It’s just that after sexual activity of any sort it hurts and more so the tighter or less gentle.

As for implant I’m still on board for the implant although I don’t know what to do now. On more than one hand I hear implant doesn’t help with pain. And then the top surgeon in the world says it seems to help with pain and he’s not sure why. I would choose dr. Eid hands down if I go through with it.

The whole thing is very confusing to me. I just wish someone could garuntee me where my pain was coming from. I have a feeling if I wasn’t in dick pain 24/7 I would have better erection and not care about my curve. I’m still hoping my pain willl fizzle out although it’s been 20 months and little if any improvement in regards to pain. As to curve I probably added a Few degrees left. Probably lost a small amount of length.

This whole thing is exhausting I’ve just been feeling very drained by it all. But I do still lean towards an implant.

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26 y/o
sex injury that gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed peyronies w/pain
Pentox, restorex, l-arginine, cq10, NSAID, tramadol(as needed)
Gf is supportive

GaussRifle

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Re: Waves
« Reply #9 on: June 22, 2022, 09:34:23 PM »

I understand.
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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.
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