52 and you could hang your hat on the hook I got between my legs

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Sum52

3 years ago my girl and I were in it and I landed sideways, but didn't think much of it at the time.  a few months later the soreness set in. We were still bumping uglies but I really didn't pay much attention. Then it subsided and one day I woke up with Willie possessed, contorted and staring right at me. That was a reality I had never had the displeasure to be in before.  I have a friend who had to get a double mastectomy cause cancer, but I was completely unaware of how much of my personality, happiness and motivation, and sense of self was tied up in 'lil Bill, and now lil Bill was all tied up too!  Well, so far I had the soundwave therapy.  It took the pain away but no curve or hourglass.  I bought one off Amazon recently and after using it twice my little man's stump definitely has fattened up. It was confirmed by a urologist but the only thing he offered was xiaflex, the most expensive, obsolete, and dying on the shelf medicine there is and I'm nothing of not diy, so here I am. And you guys are cool. This is a good place for those on the edge. My woman loves me and we're knockin boots all the time (just now I have to stand on my head) and this new roommate has made me much more introspective and given me a deeper understanding of other peoples losses. But if I was 22 today and not 52 I would be in a bad place. You even gave a forum to the women! You guys are all right. So, I'm going to get the VED, follow the protocol, eat the E, shove hot rice down my pants, slather 'lil Bill in castor oil, and keto it up and drop some pounds.  That's what helps me the most, doing, trying, helping. And if it doesn't work, I'll start the Twisted Dick Society and we will make Peyronie's only porn that people won't be able to take their eyes off of, lol. Thank you for having me thank you for sharing your knowledge. And Old Man, you had no idea but you were helping me when I walked through the front door. I'm sorry about your wife. It sounds like you two had a hell of a thing,
52. 2 yr in. Full chronic @ 45dgre.  Amazon sonic machine ($300) stopped pain/increased girth. 3/7/8 breathing daily! Been on TRT 10ml 200-once a week for years. Rection's normal and appreciated. VED/heat/lifestyle change starts next week.

Dan1

37, Single, Started in 2003.
Bend was 60 degrees down/left in 2021. Now 50 w/new scar formation.
Chronic flaccid pain varies from 2-6. Fasting, pills, traction, topical therapies, red light, sunlight, daily Viagra, simply not obsessing over it.

Hricco


This post just cracked me up.  

The porn part.  ya know.....I don't watch port too often but when I do,  but i swear most of the guys on there have peyronies... definitely WAY more curved that me, i mean some of these guys are really bad.  Makes me feel better

I think i escaped with a mild form of it.  Did all the things, traction, pentox, Cialis daily, heat lamps, rice socks, castor oil.   even did the PRP shot...which I think helped honestly.  

So when i look at porn and see these guys pointing to the sky i don't feel so bad.   I was straight as an arrow before, now I'm about 12 degrees up.  No changes in two years

Great Post!!    
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Pfract

Hey sum52! I was trying to understand the post. English is not my native language and there were parts that i had to read twice to understand the joke. It's not you, it's me! lol

Welcome aboard. It is terrible indeed, the way it affects your mental health and outlook in life. I disagree when it comes to Xiaflex being obsolete, especially if it is administered by a reputable doctor with a lot of experience. Please have a look at this link to see what is recommended in terms of a treatment plan: https://malefertilityandpeyroniesclinic.com/peyronies/treatments/

There are a lof of factors to consider when it comes to deciding which therapy you want to have next. Xiaflex and/or traction, surgery, penile implant..... That link helps a lot and it is very recent. You also mention that you are going to try a couple of things so getting your hands on a restorex could be extremely helpful for you. (www.restorex.com)

I haven't been consistent with mine and i was able to notice a few minor changes already in a few weeks!

Sum52

Hello Pfract, I hope all is well.  Every day I am in awe of the gifts I'm undeservedly given, this site being one of them.  So when this situation settled in and my fears surfaced, I was given even more love and support (I didn't think that was possible) and to honor it I have to grow. So, why have I sufficiently broken my arm patting my self on the back, what does that teary-eyed Oprah-moment have to do with Xiaflex? Well, it's more my doctor. The only thing he said would work, and the only solution offered, was the X.  And I listen to what people don't say as much as what they do. He didn't say: traction, circulation, diet, exercise, vacuum, E, L-arg, heat-treat, and so on, and I had just started to read the mountain of research on alternates. I didn't know Pentox existed until I found this City on a Hill. I also got no answer as to why the cost is just shy of $40,000. It's on the right-side of possibly working, I know that. But when I'm told the only option is the most expensive steak on the menu, my distrust-o-meter starts to ping.  Call me paranoid or call me a child of the 70's that remembers how healthcare worked when it wasn't owned by shareholders - who's concern leans more to their  
condo in Boca, rather than my health and it's effect on those around me, financially and otherwise. So here I am:) Have a great day my man!  
52. 2 yr in. Full chronic @ 45dgre.  Amazon sonic machine ($300) stopped pain/increased girth. 3/7/8 breathing daily! Been on TRT 10ml 200-once a week for years. Rection's normal and appreciated. VED/heat/lifestyle change starts next week.

FrankPD

This is an awesome place to be!

I'm glad I stumbled on it by accident.

Hope everyone is doing well.
I have a girlfriend
Age 48, No injury
Diagnosis January 2022  
Six plaques
Hourglassing when flaccid and semi-erect
Only have my congenital curve
Massaging with vitamin E cream twice a day 
5mg Tadalafil, Healthy diet
Discomfort/aching sometimes