Re: Women’s support group.

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

Jen

I have no idea if I'm putting this comment in the correct area, but I desperately need to speak with other women. My marriage of almost 30 years is changing dramatically, and I would love to hear how others are coping.
Thank you!
If you want answers, Please help us by filling in your signature block

Click here for Directions

Stabler

Hello Jen, I am glad you found our forum. It is full of information and I have sent you a PM with some very helpful links. Can you give us some background on your husband's symptoms so we can have a starting place to help you? Filling out your signature will help keep you from having to repeat information there is a note on that in the msg I sent to you

Welcome to the forum!

Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

Mikel7

Welcome to the forum Jen!  If possible you should try to get your husband involved here as it will bring him some sense of he is not alone with this. There is a lot of excellent info here that he can absorb from everyday guys like himself - we have all been down this road.  Having your wife involved is a great mental boost also. My wife has completely supported me through this journey.   :)  Mikel7
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Jen

Thank you both for your reply's, I have tried to encourage my husband to join, and to find support through counseling. He is not willing to share his experience with others. I find myself holding the bag, so to speak, and being his everything. The insecurity that he has developed feels crushing and has intensified an already jealous personality, and I'm being suffocated. I am fully committed, super attracted, and extremely sympathetic of the way he is feeling, but I HAVE FEELINGS TOO. I'm able to fulfill all of his pleasure needs, but I'm left feeling frustrated. We have always had a exceptionally sexual relationship, and he is now considering suicide often. We have an amazing life and family, but I don't know how to navigate his emotions. He is able to become slightly erect, with a significant curvature, and an appreciable size reduction. For me there is little sensation, and he hasn't been particularly proactive with alternatives. We've tried artificial sleeves😩and they're not physically comfortable for me. I'm left wondering if this is the end of my sex life...and I'm not at a place in life where I want to accept that. We're very active, fit, and youthful 54's. Any helpful advice would be gratefully received.  
If you want answers, Please help us by filling in your signature block

Click here for Directions

chrisaaa7

I just want to say, all men are very appreciative of women like you. Thank you for being so supportive and caring for your husband and sticking by his side while he is going through this. I do not believe this is the end of your sex life. They're many other ways to enjoy sex such as oral, with hands, toys, etc. I would continue to encourage your husband to seek treatment and try to improve. There is always hope.
M 21 Los Angeles

Saw Urologist at USC who handles Peyronies alot and he does not believe I have it. Symptoms: soreness in flaccid state, glands do not engorge, 2 very small. indents, slight girth loss( last 2 might be mental),ED for 2.5 years

Mikel7

I concur on what Chrisaaa7 said.  Try to get him into  a peyronies Dr if you are close to one.I would also try to get him to read our survival guide -->https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057 . He could investigate traction therapy to prevent any further size/length loss.  There is also VED therapy to consider. It sounds like he is in the early stage of this called the acute stage.  You must understand a lot of us guys here have also had the S thoughts and you need to to encourage him that you will both make it through this and yes you will both have a sex life again.  The main idea about peyronies treatments are that you can compare it to running a marathon and not a race.

My wife and I went through this and she was very supportive and went with me to my Dr appointment. If you are close to Chicago I can recommend Dr Laurence Levine -->https://www.drlevinemenshealth.com/ . I can say he has a great personality and is very good at diagnosing peyronies.

 My wife was also very patient with me and encouraged me a lot. When I started traction I was so embarrassed at putting on the device but soon learned she was just as interested as to how it works etc...We learned to be creative in our love making also and now 2 years after my onset of peyronies I can say that the worst is behind me and things are almost back to normal.  This disease gnaws away at a mans psyche.  His ego is attached to his penis so to speak and now he feels like he is less than a man. I may compare it to a woman who has gone through a mastectomy.  You just keep trying to get him to read some of the stories here and maybe it will be an ice breaker for him.  Good Luck !  Mikel7 :)
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)