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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: Bob’s implant journal  (Read 206 times)

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Bobinlondon

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Bob’s implant journal
« on: May 12, 2022, 12:38:52 PM »

First a big thank you to Hawk and Stepone who have been kind enough to talk to me on the phone about implant issues.  Thanks guys, it has really made a difference to talk to a human who has gone through it.
 
Secondly, I want to apologise for not contributing more to the forum over the years.  The situation was that I was pretty determined to beat Peyronie’s without surgery but after trying so many things and discovering that none seemed to make any difference I got a bit dejected and disappointed and lost my energy for contributing or even reading the forum.

I hope to make up for it in some way by journaling my way through this implant. If anybody has any questions or ideas on how to make it more useful, please let me know.

A bit about me 68 years old, steady relationship, desk-bound job.  Pretty fit I think.  No other major issues apart from this.  I have been struggling with Peyronie’s disease for about 7 years now

It started off about 6 years ago with a lump on my penis and a bit of a bend.  The doctor did not really diagnose it so I had to keep pushing to eventually see a urologist who diagnosed Peyronie’s.  I think I have tried most of the common remedies, VED, Restorex, diets, coaching, vitamins, Pentox, Thackers mixture, Chinese medicine, and probably a few other things. 

All have been very disappointing and some expensive.

At various times I considered a Nesbit operation but got put off by the idea of losing length when I was already suffering with Erectile Dysfunction.  While I used drugs to help after a while it seemed medicines like Viagra and Cialis were giving me side effects and the Peyronie’s and Erectile Dysfunction were getting worse so that did not seem to be an option.  Over the last couple of years I started thinking about an implant.
 
Fortunately, I have a very accommodating girlfriend who has been a great support.

I live in London so am covered by the National Health service.  I feel lucky that I am under Dr Nim Christopher who is well-respected andrology surgeon and he will be doing the operation.  I didn’t choose him it was more luck of the draw.

I saw him today and this is his report:
‘I reviewed this patient in my outpatient clinic today.
 
He is due for surgery next week. He should get a minimum of 5 inches length (more likely 6 inches) with his penile prosthesis and straightening manoeuvres. This will be the Wilson moulding +/- multiple small tunical relaxing incisions. Most of the surgery can be performed via the scrotal incision but if we need access to the distal penis, we may need to open his old circumcision incision as well. If tunical relaxing incisions are performed, then it will be left semi erect for 3 weeks, if not the prothesis can be deflated the next day. We would aim to get it functionally straight ie within 20 degrees (straight enough for sex). The reservoir will be inserted in the retropubic position near the bladder via the same incision’

My translation of this is that he will see what needs to be done while I am in theatre and act accordingly.  He seemed approachable and competent so I feel I am in good hands.

To prepare I am doing as much stretching as I can with the Restorex and VED and eating a lot of pineapple in response to a hint from another member. 

I have asked about pain relief and they have promised a codeine-based painkiller as well as getting something from over the counter.   I am wondering if I should have something in reserve like tramadol just in case.  I will be getting ready for possible constipation by having an enema and taking a lot of stool softeners.

I feel like I am on the upward part of a roller coaster (surgery scheduled for the 20th) and not quite sure what it will be like on the other side.  I am really hoping that I am able to restart work after 2 weeks as I have a lot of clients to see (virtually).

Very happy to answer any questions or give any help I can. 

Cheers,

Bob
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68 years old.  Had Peyronies Disease + Erectile Dysfunction for 6 years. 90 degree sideways bend.  Tried VED without success. Used Restorex plus electrical stimulation, DMSO, and Keto diet - no change. In a long-term relationship.  Using Cialis. Thinking about an implant.

Hawk

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Re: Bob’s implant journal
« Reply #1 on: May 12, 2022, 01:52:07 PM »

Bob,  A great first post.  Best wishes on your operation and recovery. 

I always load up on vitamin K for good blood clotting before surgery.  Unfortunately, you can not get much K in pill form in the U.S.  You get far more from a few servings of kale (by far the richest source of any food).  Scallions are 2nd but have less than half of what Kale supplies.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Roddy

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Re: Bob’s implant journal
« Reply #2 on: May 12, 2022, 06:07:40 PM »

Hi, Bob. Welcome to the forum and welcome (nearly) to the club. To directly answer your question, I used co-codamol post surgery and that was nowhere near enough painkiller for me. Once my surgeon friend insisted I take 2 Tramadol every 4 hours to stay ahead of the pain, there was no going back! The pain was clearly still there but I just couldn’t feel it. I took 3 weeks of proper serious healing before I could go about my business again.

Any questions at all please ask.

Good luck!

Roddy
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Aged 50 congenital curvature and then Peyronies onset, excision and grafting not successful,
Coloplast Titan implant on June 3rd, 2019 (aged 47) to correct a 90 degree bend
Dr. Mike Fraser - Glasgow, Scotland.

Stepone

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Re: Bob’s implant journal
« Reply #3 on: May 13, 2022, 09:13:44 AM »

Bob,
Great post.
Pain affects us all differently.
Just be sure to take all your medications at regular times.
I was stupid and took pills, only when I was in pain. WRONG!
Once you are in pain, the drugs take a while to work and people sometimes take more because they feel the medication isn’t working.
If after a period of time and you are not experiencing pain, you can always cut back to a dosage that works for you.
I will be praying for you Bob.
Stay safe and stay strong.
StepOne
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Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Bobinlondon

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Re: Bob’s implant journal
« Reply #4 on: May 13, 2022, 12:57:44 PM »

Hi Roddy, Hawk and Stepone,

Thanks for your replies.  I am going to get stocked up on kale and have ordered some tramadol over the internet (fingers crossed I get it) as a backup to the codeine.  Am planning to stay so far in front of the pain I don't see it if at all possible. 

Fortunately, I found out today that I don't have to isolate for 7 days before the operation.  So I will just be avoiding crowded spaces.  I have to do a lateral flow test 3 days before and then they test on the day.

Thanks again for your support.

Bob

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68 years old.  Had Peyronies Disease + Erectile Dysfunction for 6 years. 90 degree sideways bend.  Tried VED without success. Used Restorex plus electrical stimulation, DMSO, and Keto diet - no change. In a long-term relationship.  Using Cialis. Thinking about an implant.

anon1986

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Re: Bob’s implant journal
« Reply #5 on: May 13, 2022, 08:06:34 PM »

If you like pineapple, try and eat a bunch of it from now until surgery. My surgeon suggested it to me as it helps keep bruising away and since I love pineapple I ate it everyday before surgery (and a few days after) and had ZERO bruises. Good luck!
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Developed 50° curve to the right at 33 years old, narrowing, mild Erectile Dysfunction
implanted at age 34, 3/2/2021, Titan 20 cm + 1 RTE
Dr. Hakky, ATL

Bobinlondon

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Re: Bob’s implant journal
« Reply #6 on: May 14, 2022, 07:31:28 AM »

Thanks Anon,

It was your hint that got me into it.  I think I have pretty much emptied the local market of pineapples!  Will be taking them before and after. 

Did you also recommend a couple of supplements for healing?  Gabapentin and meloxicam?  Would you still recommend them?  Thanks for your contribution.

Kr

Bob
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68 years old.  Had Peyronies Disease + Erectile Dysfunction for 6 years. 90 degree sideways bend.  Tried VED without success. Used Restorex plus electrical stimulation, DMSO, and Keto diet - no change. In a long-term relationship.  Using Cialis. Thinking about an implant.

Pfract

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Re: Bob’s implant journal
« Reply #7 on: May 14, 2022, 09:27:09 PM »

Hey bob!

I think most have  been there at some point. Feeling discouraging and wanting to distance from the board, i guess to kind of forgetting about Peyronies.... Glad you stuck around.

I read your post attentively and learned about something i didn't knew. "This will be the Wilson moulding +/- multiple small tunical relaxing incisions" No idea what that moulding is, but i will definitely google it.

I am wishing you best of luck on the recovery and during the surgery process. You deserve to get your sexuality back in full force.  8)

anon1986

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Re: Bob’s implant journal
« Reply #8 on: May 15, 2022, 11:13:26 PM »

Apologies Bob, I just noticed in your original post you’ve been having pineapple. Enjoy it!

As far as gabapentin and meloxicam, they were prescribed by my surgeon. Apparently the gabapentin helps repair nerve damage and meloxicam is a more powerful anti-inflammatory. Because we all are peyronies sufferers, gabapentin seems like a good idea because to mitigate the scarring there’s going to be some disruption to the nerves. For a few months after surgery I had reduced feeling on my shaft where my plaque was located. All seems to be well now. I still have some meloxicam kicking around and I take it on occasion when I think I need more than Motrin.
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Developed 50° curve to the right at 33 years old, narrowing, mild Erectile Dysfunction
implanted at age 34, 3/2/2021, Titan 20 cm + 1 RTE
Dr. Hakky, ATL

Bobinlondon

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Re: Bob’s implant journal
« Reply #9 on: Yesterday at 10:14:51 AM »

Thanks to Pfact for your comment about Wilson moulding.   I had a look at the research and this article seems to describe it https://pubmed.ncbi.nlm.nih.gov/8072079/  It does not look particularly new but the results look good. 

I just had some disappointing news.  My surgery has been postponed for month so my next date for the operation is the 17th June. 

Unfortunately, these things happen with the NHS. 

So I have to wait patiently for a bit and see try and keep to my stretching and eating routine.

Thanks again to everyone for your support.

Best wishes,


Bob
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68 years old.  Had Peyronies Disease + Erectile Dysfunction for 6 years. 90 degree sideways bend.  Tried VED without success. Used Restorex plus electrical stimulation, DMSO, and Keto diet - no change. In a long-term relationship.  Using Cialis. Thinking about an implant.

Hawk

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Re: Bob’s implant journal
« Reply #10 on: Yesterday at 10:17:39 AM »

Focus on the fact that it gives you more time to stretch that much more. 
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
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Hawk - Updated 10/27/18 - Peyronies Society Forums
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