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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: My Peyronies Cure Diary!  (Read 3039 times)

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jj21

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My Peyronies Cure Diary!
« on: April 08, 2022, 06:49:39 AM »

I'm creating this diary as I refuse to give up! I believe I will be cured so I'm writing each and very thing I do and will be updating regularly... I'm currently using restoreX and have already seen some minor improvements!

Background info:

Peyronies for about 4 years (started early 2018) left and upwards twist with narrowing bout half inch loss of length and significant loss of girth. It got much worse over time.

There was a period where I was using VED on n off. The period where I used VED for 3 months I found significant improvement in Erectile Dysfunction, girth and curvature (wood and NTE were great at this point) - there is a post in the improvement forum here which showed some of my successs: https://www.peyroniesforum.net/index.php/topic,11759.0.html - you can seee VED helped me regain girth and straightened out a bit. At this time I had a gf and was still having amazing sex although cialis daily and Viagra as needed was required. Unfortunately I got cocky (pun intended) and overpumped leading to a new injury which set me back years.

After that set back I had very bad Erectile Dysfunction, more narrowing, no morning wood and a lot of pain - I couldn't sleep in certain positions at all. I got trauma induced Epididymitis (from the pump). I attempted to use the pump again but it caused me too much discomfort and pain around my scrotum area.

At this point I had pain, painful erection, very unstable erection, significant dents on right side base and underside where there is a lot of pain, I can't sleep on certain sides due to pain (even in flaccid state). Pain when masturbating and pain after orgasm (now I abstained from sex and masturbating at this point).

My state of mind has been down the drain, I've been depressed, suicidal etc. Prior to starting restoreX I could not continue VED usage and seeing my penis go from injured (peyronies) to starting to be healed then to even worse than ever really took a toll on me. I was depressed every day, I found myself constantly angry asking why don't they give this disease to rapists and not some of us good men!

I was on Pentox but stopped recently as I just did not find it effective.

I also started Keto about 6 weeks ago (I can't say it made much difference tbh). I also recently started self-administered TRT (can't say whether it's made much difference either). Also started Citrulline Malate and Alcar - not sure if it's making much difference.

It's my 19th day of Restorex today - I have been doing 2-3 30m sessions of straight traction however, today I did one 30m downwards bend session. I have maxed out the standard rods when doing straight traction.

Minor Improvements thus far:

 - Penis feels fuller

 - easier to maintain erection

 - flaccid penis hangs longer

Major improvements:

 - less dribble! incontinence is manageable!

 - when I pull my foreskin back to pee I use to get either pain or my flaccid penis would move back on a curve. I usually would have to hold it at the base out of fear of further damage.... NOW I get no pain when pulling foreskin back to pee, I can pull the foreskin back comfortably!

- I use to get pain during night time when I sleep. I'm waking up with either zero to minimal pain at the moment!

- Today when I did the 30m Downwards bend traction - my penis came out completely straight and slowly engorged to how it was pre-peyronies!!!! Obviously it went back to normal but it feels fuller n hangs better!

It really seems like restoreX is working - I will now be counterbending and doing straight traction. In a few weeks I will add VED again and after that manual traction and finally either PMP or Phallosan forte. I may also be experimenting with peptides in the future and possibly growth hormone (I do not recommend this to anyone but I will be doing whatever it takes).

If anyone has any tips or would like to share their success it would be greatly appreciated! I'm very interested in any progress stories so please share below to keep us all inspired and positive!

Another thing I have been doing is listening to healing music and visualizing my penis healing and growing (power of the subconscious mind).

Stay positive!
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Muttley

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Re: My Peyronies Cure Diary!
« Reply #1 on: April 08, 2022, 08:54:37 AM »

Hi JJ,

Great idea to keep a journal. I shall be following your progress with much interest.

Did you say that you did thirty minutes of counter-bending (CB)?  The manuals specify fifteen straight followed by fifteen on CB.  What do you mean your penis came out afterwards fully engorged?  My experience to-date is that it comes out looking somewhat mangled and squashed. I would say that after VED His Majesty has an appearance more in keeping with his regal status but certainly not after thirty minutes in the crusher.

Wishing you every success on your path to full recovery :)
Logged
Late 50s
Official diagnosis 12/2021
Bend at the end @70 degrees upwards/@20 left
RestoreX twice daily
Daily Supps: L-Citrulline, Pycnogenol, Cialis 5mg daily, Mg and Cu

jj21

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Re: My Peyronies Cure Diary!
« Reply #2 on: April 08, 2022, 07:33:35 PM »

Hey muttley- for convenience I did 15m downwards bend, 2m break then another 15m downwards bend so 30m in total…. The manual does recommend 15 straight as it gets your penis ready for the counter-bend (I am doing this today)… What I meant was that after traction my penis usually comes out squashed n thin (first few seconds) but then engorges slowly (fills up with blood) so my flaccid penis looks a bit  thicker n full. This particular time it hung down completely straight as well!

Are you using enough traction? Even during straight traction I have the black rods almost completely buried (took me 2 weeks to be able to do this comfortably).

Hoping this is a good sign and wishing you the best too…. I keep having to remind myself to take it easy to prevent further injury! 
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Jamesblue

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Re: My Peyronies Cure Diary!
« Reply #3 on: April 09, 2022, 10:15:30 PM »

I reckon every meatus comes out of the clamp squashed,it's not a great look for sure. I bought a cheap vacume pump at an adult shop and give my penis 10 minutes of mild vacume immediately after using RestoreX device.
I personally like the feeling of being filled with blood again after stretching and bending.
Logged
June 2021- observed curve
September - increased curve
October - confirmed Peyronies, refered onwards to Peyronies specialist Urologist - November
Meanwhile immediately commenced traction with RestoreX after initial  visit and confirmation

jj21

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Re: My Peyronies Cure Diary!
« Reply #4 on: May 07, 2022, 07:58:43 AM »

Update:

It's been 40 days of using RestoreX. I had ups and downs. I attempted downwards counter-bending at 90 degrees, then read that click 1 or 2 is better for a banana curve so switched to that. Unfortunately, downwards counter-bending at either click/angle seemed to aggravate my top right side base dent so I have stopped that. I now only do straight traction with the extension rods and will be trying counter-bending to the right soon.

Positives:

- I have maxed out the rods and now use the extension rods.
- My flaccid penis is definitely longer and girthier
- Erect penis is definitely girthier (nothing extra-ordinary, i'd say maybe 20 percent girthier than before, if even that but it is definitely noticable)
- A lot of the pain has subsided - this is amazing!
- I'm able to do traction for longer periods now. I'm doing straight traction on the extension rods for 3 x 30m sessions. I do feel like this is helping.
- I can't say there's been any improvement to curvature or length however, I have not checked this either. Will check after 3 months.

I am going to start counter-bending to the right soon. Hoping that does not cause any aggravation. I do have a left upwards curve.

I am still keto, and am starting intermittent fasting soon, can't say whether it's made much difference.

I was hoping to be able to add VED in again but unfortunately my penis inflates up at the base in the cylinder so hits the cylinder and this causes high risk of more injury. If anyone has any advice on what to do about this (a cylinder which may be able to accommodate this perhaps?), i'd really appreciate it.

I am being patient and trying to hang in there, I know I saw the best improvements from VED when I was able to use it.

Other than that, I have been seriously considering an implant, have researched the best implant surgeon in Australia and am going to book in a consult with him for end of july. Very concerned about the risks involved and the fact that I may never get my pre-peyronies length back but also the fact that I may regain my girth, possibly extra girth and be able to have an erection whenever I want is appealing.

Another member on here told me that some surgeons in Australia won't consider you for an implant if you're around my age. If anyone has any experience with Dr Love or Dr Kratz in Australia please message me or post here.

Will update again in a few weeks.

Feel free to ask any questions or advice here I think I've really got the hang of the device.

J
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Pfract

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Re: My Peyronies Cure Diary!
« Reply #5 on: May 09, 2022, 01:06:39 PM »

My reply to you may not be long but I am genuinely happy to know you had progress so far. I also saw your post where you are applying traction sideways. It looked alright to me and the first time I see a picture from it.

Hoping you continue to stay focused and motivated so you get even more gains!

jj21

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Re: My Peyronies Cure Diary!
« Reply #6 on: May 10, 2022, 03:56:19 AM »

Thanks Pfract,

Unfortunately the right side counterbend aggravated dents on my right side. I had to stop but I am still seeing progress (albeit very very slow) from straight traction.

Hope you’re seeing some results now too! Looking forward to seeing your diary updated!
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

jj21

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Re: My Peyronies Cure Diary!
« Reply #7 on: June 29, 2022, 05:38:45 AM »

Update:

It's been about 70 days using Restorex, nowadays I have been doing 2-3 x 30m sessions a day. Recently I seem to have done something which aggravated scar tissue on the left side and have taken a break... I am now doing 2 x 20m VED sessions which has been helping with pain and girth.

While using the Restorex I did find it beneficial, I do think it helped to regain some girth and possibly length but the amount gained I would consider almost insignificant so far. It is definitely visually noticeable to me but nothing major.
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

jj21

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Re: My Peyronies Cure Diary!
« Reply #8 on: June 30, 2022, 12:24:52 AM »

Just to add, I've had some varicose vein issues which has made things worse recently - they make it difficult to pump n use restorex and cause a lot of pain and discomfort. The doctors pretty much told me there's nothing I can do about it. If anyone has any information or advice regarding these please help! You can find my post regarding them here:

https://www.peyroniesforum.net/index.php/topic,18028.0.html

Note: I recently started Trental again which may have contributed to some of the small improvement.

Other than that, I do think there has been some very minor progress and slow progress is still progress. It's a marathon not a sprint.

I will check back in about a month or so maybe with a progress pic.
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

zrx1200mn

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Re: My Peyronies Cure Diary!
« Reply #9 on: July 10, 2022, 07:11:27 PM »

I've been using Restore X for 10 months. I've gained about an 1.5 inches back in length. I think its back to pre Peyronies Disease.
I started off with 30 degree curve to the right with indentation on the right side. where the bend was, I had slight swelling at the base.
i had the 30 degree curve until very recently. at my last checkup my Dr was encouraged with my progress and predicted that I would see my curvature returning to normal within 3 to 6 months.

The swelling at the base if gone. the indication is gone, and my length is length has returned to normal.

have patience with RestoreX. This is a marathon, not a sprint.
Logged
Age 60

I've had Peyronies Disease for about 12 months.
I started using RestoreX in late September, 2021.
30 degree curvature to the right. as of July, 2022 the curvature is 20 degrees. As of September 1st, the curvature is 18 degrees.

jj21

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Re: My Peyronies Cure Diary!
« Reply #10 on: July 10, 2022, 11:13:24 PM »

Thanks a lot Z, that is very encouraging.

I’m looking into an implant but might wait a while.

Cold you please share your restorex protocol? 60m a day? And did you do straight as well as counter bending traction?

Thanks again,
J
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

zrx1200mn

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Re: My Peyronies Cure Diary!
« Reply #11 on: July 12, 2022, 10:43:50 PM »

Thanks a lot Z, that is very encouraging.

I’m looking into an implant but might wait a while.

Cold you please share your restorex protocol? 60m a day? And did you do straight as well as counter bending traction?

Thanks again,
Thanks a lot Z, that is very encouraging.

I’m looking into an implant but might wait a while.

Cold you please share your restorex protocol? 60m a day? And did you do straight as well as counter bending traction?

Thanks again,
J
Thanks a lot Z, that is very encouraging.

I’m looking into an implant but might wait a while.

Cold you please share your restorex protocol? 60m a day? And did you do straight as well as counter bending traction?

Thanks again,
J
60 minutes a day    15 straight and 15 stretching against the curve. it took me months before i could fully stretch 4 clicks against the curve. patience is required when using RestoreX
J
Logged
Age 60

I've had Peyronies Disease for about 12 months.
I started using RestoreX in late September, 2021.
30 degree curvature to the right. as of July, 2022 the curvature is 20 degrees. As of September 1st, the curvature is 18 degrees.

jj21

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Re: My Peyronies Cure Diary!
« Reply #12 on: July 17, 2022, 05:56:19 AM »

Update:

It's been about 10 days i've been using the XL Cylinder and Monty's method of five consecutive pumps, 5s hold , five consecutive pump then hold (im holding for 20s) then release... Wait 10s then repeat.

I've noticed my flaccid is definitely girthier, less pain when sleeping, erection is girthier (not sure if that's because of checking post VED?)... Penis definitely comes out girthy n dents look less pronounced.

This does seem to be some slight improvement. I might take pics n upload them soon.

I'm still in the process of seeing Australia's best implant surgeon in 6 weeks.

Will update again soon.
J
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Muttley

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Re: My Peyronies Cure Diary!
« Reply #13 on: July 17, 2022, 09:06:20 AM »

Thanks for the update JJ - Keep us posted. I am inclined to resume sessions with the VED now so please do keep the updates coming. I let it slide once I embraced the Rx, thinking it was more beneficial than VED. I have been doing Rx for 1 to 1,5 hours   a day on bend 4 without any real improvement; in fact I think a dent has become a little bit worse.
Plication in January or thereabouts if I wait for the NHS operation so time enough to keep plugging away...
 
Logged
Late 50s
Official diagnosis 12/2021
Bend at the end @70 degrees upwards/@20 left
RestoreX twice daily
Daily Supps: L-Citrulline, Pycnogenol, Cialis 5mg daily, Mg and Cu

orriw

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Re: My Peyronies Cure Diary!
« Reply #14 on: July 17, 2022, 10:34:31 AM »

Helllo do you have diagnosed Peyronies Disease or not?
Also, do you suffer from flaccid penis pain?
Logged
25y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

jj21

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Re: My Peyronies Cure Diary!
« Reply #15 on: July 18, 2022, 12:19:41 AM »

Muttley - I found RX to aggravate my dents, I used it for 3 months and I did see some improvement in some areas but also felt that it made other areas worse. VED does work better for some. I also recently recommenced Pentox, not sure if this has made much difference but there has definitely been some improvement lately. I will keep at it and upload some pics in about a week or two. Best of luck to you!

O - I have been diagnosed with fibrotic tissue/scar tissue, dents/indentations and Erectile Dysfunction, not officially peyronies as there is no calcified plaque prevalent in the ultrasound, however,  I display all other symptoms of peyronies. I do have flaccid pain, mostly where the the most prevalent dent is and if my penis twists a certain way while asleep.
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

orriw

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Re: My Peyronies Cure Diary!
« Reply #16 on: July 20, 2022, 01:14:34 PM »

Thanks for your reply.

Did your doctor tell you if there's anything that can be done to better your condition?
Logged
25y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

Pfract

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Re: My Peyronies Cure Diary!
« Reply #17 on: July 20, 2022, 08:00:35 PM »

Quote
Update:

It's been about 10 days i've been using the XL Cylinder and Monty's method of five consecutive pumps, 5s hold , five consecutive pump then hold (im holding for 20s) then release... Wait 10s then repeat.

I've noticed my flaccid is definitely girthier, less pain when sleeping, erection is girthier (not sure if that's because of checking post VED?)... Penis definitely comes out girthy n dents look less pronounced.

This does seem to be some slight improvement. I might take pics n upload them soon.

I'm still in the process of seeing Australia's best implant surgeon in 6 weeks.

Will update again soon.
J


@jj: i guess these are good signs. Nice to know. I am surprised you are reaching out to an implant surgeon? Are you really dead set on that option?


jj21

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Re: My Peyronies Cure Diary!
« Reply #18 on: July 24, 2022, 06:09:26 AM »

O - the usual - try traction/ved, it works for some, surgery, otherwise accept the condition.

P - I'm thinking as time goes on, things are only going to gt worse, already difficult to have sex due to the hinging/unstable erection so why not look into an implant and have this over with. Whats your opinion ?
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

jontythegnome

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Re: My Peyronies Cure Diary!
« Reply #19 on: July 24, 2022, 02:19:54 PM »

O - the usual - try traction/ved, it works for some, surgery, otherwise accept the condition.

P - I'm thinking as time goes on, things are only going to gt worse, already difficult to have sex due to the hinging/unstable erection so why not look into an implant and have this over with. Whats your opinion ?

What is making your erection hinge? Curvature? And what is causing the instability? Erectile Dysfunction/softer than normal erection? Sorry not aware of your entire history.
Logged
25
Symptoms for 1.5 years
Several indentations in top third of shaft
Top third of shaft always hard, even when flaccid
Mild intermittent flaccid pain

jontythegnome

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Re: My Peyronies Cure Diary!
« Reply #20 on: July 24, 2022, 02:24:15 PM »

Update:

It's been about 10 days i've been using the XL Cylinder and Monty's method of five consecutive pumps, 5s hold , five consecutive pump then hold (im holding for 20s) then release... Wait 10s then repeat.

I've noticed my flaccid is definitely girthier, less pain when sleeping, erection is girthier (not sure if that's because of checking post VED?)... Penis definitely comes out girthy n dents look less pronounced.

This does seem to be some slight improvement. I might take pics n upload them soon.

I'm still in the process of seeing Australia's best implant surgeon in 6 weeks.

Will update again soon.
J

Please do post pictures if you can. Specifically I would like to see what your dent looks like.
Logged
25
Symptoms for 1.5 years
Several indentations in top third of shaft
Top third of shaft always hard, even when flaccid
Mild intermittent flaccid pain

Pfract

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Re: My Peyronies Cure Diary!
« Reply #21 on: July 24, 2022, 09:58:26 PM »

Quote
P - I'm thinking as time goes on, things are only going to gt worse, already difficult to have sex due to the hinging/unstable erection so why not look into an implant and have this over with. Whats your opinion ?

I fully agree with it. May i ask if it is Dr. Brian Christine?

jj21

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Re: My Peyronies Cure Diary!
« Reply #22 on: July 25, 2022, 04:27:16 AM »

Jon - I will get too it soon. I have an old VED progress photo in the improvements section. After that I ha varivose veins and other issues which set me back years. Just recommenced VED recently. The dents, picture a teaspoon like groove at parts of the shaft, most prominent on the underside base. Some more prominent than others. This is what's causing the hinge and instability.

P - It's Dr Chris Love, id say he's the best in Australia and a high volume implant surgeon (for Australia). If you have any advice I'd love to hear it, im a bit worried about dents not filling but apparently even if they dont, the titan will expand the shaft to the point where the dents will not really cause instability or lack of girth. I am really curious to know why SonnyJim's dent never filled but I cannot get an answer out of him. Also, am worried bout losing length but seems to be mostly dependent on the surgeon you choose and cycling post surgery.
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Pfract

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Re: My Peyronies Cure Diary!
« Reply #23 on: July 25, 2022, 05:13:21 PM »

Quote
It's Dr Chris Love, id say he's the best in Australia and a high volume implant surgeon (for Australia). If you have any advice I'd love to hear it, im a bit worried about dents not filling but apparently even if they dont, the titan will expand the shaft to the point where the dents will not really cause instability or lack of girth. I am really curious to know why SonnyJim's dent never filled but I cannot get an answer out of him. Also, am worried bout losing length but seems to be mostly dependent on the surgeon you choose and cycling post surgery.

I don't have advice per se, as you seem to be doing the right steps here. Choosing the right surgeon... researching what you are getting into.... You are pretty much on track.

Even if the Dents are not filled, they won't get worse and you will gain on all aspects of erection quality. Namely stability and rigidity. No more worrying about wobbling and similar.... As for sonnyJim, nobody can get an answer, it's not just you. Unfortunately tho...

jj21

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Re: My Peyronies Cure Diary!
« Reply #24 on: July 26, 2022, 01:25:39 AM »

P - Everything i've researched indicates that with the Titan, you gain girth regardless of the dents so even if the dents aren't filled, they will not have any effect on the erection stability/girth/narrowing/hourglassing (other than aesthetically obviously). Knowing that seems promising.
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

jj21

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Re: My Peyronies Cure Diary!
« Reply #25 on: July 26, 2022, 01:49:30 AM »

Jon - Pics are as follows:

1. Oldest pic when I first got peyronies 4 years ago - as you can see, curvature wasn't too bad, instability and narrowing wasn't as bad, mostly only prominent at the base.

2. Old improvement pic - that's after using VED for probably 3 months, it was  a sex shop VED. As you can see there is some improvement in curvature and girth as well as stability... I had better results later on from the 3 cylinder VED but never took pictures. This is why I always urge the new guys to take action immediately, as you can see had I stuck to this routine and limited sex, there is a good chance I may have been able to cure myself at this point. Unfortunately, I took long breaks from VED and things continued to get worse.

3. This a recent pic of the top right side Dent , it is difficult to take pictures of dents but you can see its like an indentation... My Dents/indentations are worse on the underside but difficult to take pics of. This indentation on the right was very insignificant at first but continued to get worse. In the early days I could put a finger under my penis at the base and lift up, now this will just aggravate this dent. This dent is one of the only areas where I still have pain and this could either be related to this dent or the varicose veins which are in close proximality to it (GP and vascular surgeon both have advised me the varicose vein should not be causing pain and there is nothing I can do about it).

4. This is the most recent pic, if you compare it to my oldest pic you can see how my peyronies has really progressed. The underside of my penis just looks crinkled and the erection is extremely unstable (as you can see it's falling to the side and curvature is much more pronounced). I think shortening of the penis is also very obvious here; I think scar tissue on both sides has caused the shortening. There are dents/indentations but you may find it difficult to see in the picture. Narrowing is very prominent and obvious as well.

Surprisingly enough, that last pic is actually some minor improvement, few months ago the girth was a lot worse. I've noticed that when standing, my girth has improved albeit slightly, but when seated/laying, my girth has not improved much. I think this is because I have narrowing at the base which makes it difficult for the penis to be erect/stable upwards in a seated/laying position.

I've done Restorex for almost 3 months:
- could only do straight traction, any curved traction (even on a minor angle) would aggravate dents
- straight traction would improve my penis in some areas but make it worse in others, I believe this is due to having multiple dents/indentations and some being aggravated from straight traction
Stopped Restorex completely for now.

VED recently for about 2 months:
- using only the XL cylinder as my penis inflates upwards now (I assume from too much scar tissue on the underside base) so I am  no longer able to use the A,B or C cylinder. I've been using Monty's 5 pumps then 5s hold then 5 pumps then hold then repeat method. I have seem some minor improvement in girth and EQ, this is mostly only on the top side of the penis. This is also another clear example of why taking action as early as possible is very important. When I first had my injury, I could use A,B and C Cylinders with no problem, my penis would be straight in there and I was seeing improvement. Now I can only use the XL cylinder, it accommodates for my curvature but my penis will not pump straight in there.

Still unable to have sex, any bending etc causes pain, erection is extremely unstable. Erectile Dysfunction has also progressively gotten worse. Can get an erection but struggle to maintain and always require viagra (on top of 5mg daily cialis which I take every night).

As you can see, things are not really getting much better. An implant seems to be the only option, i'm assuming it will straighten out the penis, improve curvature, provide rigid, stable erection and either fill out dents or increase girth to the point where indentations do not cause any instability.

I would appreciate any feedback or advice. I am very scared about getting the implant, losing more size, surgery etc Even if you have any other ideas or suggestions, I would appreciate it. And always here for any of you guys if you need advice.

I am very desperate to know member experiences who had the infrapubic incision for their implant. This is the only option available to me in Australia, all top surgeons here use this approach. Also if anyone can give advice on the likelihood of  the titan implant straightening me out without needing any reconstructive surgery. I know these questions may be unable to be answered by anyone other than a doctor, but if anyone has any experiences I would really appreciate it.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

BMarc

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Re: My Peyronies Cure Diary!
« Reply #26 on: July 29, 2022, 09:36:47 PM »

Hey man...  I'm no doctor... And maybe the curve is worse than the photo is making it out to be.  But I'm pretty sure mine is way worse and I can still have sex.  What angle is your curve?  I get the pain part, but has it hurt for 4 years since you got it?  If not, I'm wondering if you got it again?  Usually the pain subsides after the acute phase of a year to 18 months from what I've read.  Did you have pain at the 2 year mark?  Has it been painful for 4 years now?  Implant seems like a drastic move for how that curve looks.  Just my novice opinion of course.  If you're getting it for the Erectile Dysfunction reasoning, that's different.  I wouldn't say anything at all, but I just don't want you to do unnecessary surgery to straighten it out when it doesn't look like a major curve in the pics.  It seems like from what I read on this post, the curve was one of the major reasons for your wanting to get the surgery.  Either way, good luck!
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jj21

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Re: My Peyronies Cure Diary!
« Reply #27 on: July 31, 2022, 02:51:33 AM »

Bmarc - Thanks for your message and concerns I appreciate it. You are right, the curvature is not that bad, it's the instability, hourglassing and dents that make sex difficult and painful. I just dont have  a rigid strong enough erection for sex and if my penis bends slightly at any angle, further damage is done. After 4 years of VED and Traction, seeing it get worse, an implant just seems like the only solution. I appreciate your advice though, initially I was completely against an implant as well but I just cant see any other way out of this.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Sonic

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Re: My Peyronies Cure Diary!
« Reply #28 on: August 01, 2022, 06:13:12 PM »

Telling from the pics we are in the same boat. The base of your penis has narrowed, it's most evident on the last pic. That's what causes our dreadful instability while erect. The base is not filling out with blood thus preventing expansion in the area leaving the middle and top part of the penis fully engorged but the base half empty. Incredibly bothersome. I will say however if you think in your heart that an implant would be your best solution then go for it. You seemed to have tried everything already without sucess in the long run.
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28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

jj21

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Re: My Peyronies Cure Diary!
« Reply #29 on: August 16, 2022, 12:15:21 AM »

Update:

I've seen some progress, pic 1 is about a month ago (I posted it here in an earlier post), pic 2 is current. If you look at the base, it is a lot more stable now, also some of the dents seem to be filling. The progress is a lot more noticeable when standing. Pain is about 90% gone as well.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Sonic

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Re: My Peyronies Cure Diary!
« Reply #30 on: August 16, 2022, 01:04:24 PM »

Hey JJ. Are you still using traction and VED? Your newest pic seems like you have a bit better EQ but still narrowed out at the base although it does look more stable like you say.

From that second pic, I think that if a doc peformed an extra tunical graft on you right at the part where you are narrowed out, he could wrap a tachosil graft all around that area to restore your girth there. Perhaps you should consult someone about that. I know you are thinking about an implant.

Keep updating this thread and best of luck!
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28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

Pfract

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Re: My Peyronies Cure Diary!
« Reply #31 on: August 17, 2022, 12:16:07 AM »

thank you for sharing these pictures with us JJ. They definitely give a very clear idea of your condition and the changes you've been having. Like Sonic said.... an implant would be a very reasonable solution for you given all your current symptoms. It would solve the instability, hardness issues and over time would straighten it out unsure about the dents but just on these things alone it would be awesome for you.

jj21

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Re: My Peyronies Cure Diary!
« Reply #32 on: August 17, 2022, 11:19:13 AM »

Thanks guys. Surgeon did say he may do a graft in addition to the implamt, this was if the implant was curved to one side.

sonic - been doing bed twice a day, have taken a break from traction.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

jj21

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Re: My Peyronies Cure Diary!
« Reply #33 on: August 20, 2022, 01:26:54 AM »

Some more progress:

Pic 1 is from early April when I started RestoreX, I took a Bone pressed measurement to measure length gains.

Pic 2 is about 2 weeks ago

Pic 3 is from today.

It's difficult to see, but I feel the girth has improved, particularly at the base. Also feel that left curvature is less prominent. I've also had a lot of improvements in Erectile Dysfunction, morning wood has also returned. Dents seem to be filling also.

I have attached my Excel diary which I have been using for the past few months, has my ups n downs etc.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Sonic

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Re: My Peyronies Cure Diary!
« Reply #34 on: August 20, 2022, 02:14:24 PM »

How does it feel during sex? On the pics the girth loss is noticeable but it seems it's heading the right path. Judging from the pics it looks like a totally functional penis but when it comes to dents and all that we are in the same boat. If I uploaded a pic of mine 9/10 people would say it looks like a completely functional one however the pics do not show the significant instability..
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28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

jj21

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Re: My Peyronies Cure Diary!
« Reply #35 on: August 21, 2022, 02:33:49 AM »

Sonic, you are right, the dents are very bothersome. A lot of the narrowing on the underside does not show in pics. This makes it very difficult to have sex, the wrong slight move on one side will aggravate a dent on the other side, resulting in pain and possible progression of the disease. I currently do not have sex. Thus, implant is my end goal.

I must say, when I first got this disease, the dents were less pronounced and less painful. I'm almost certain with the right regime and if I took action quickly, I most likely would have been able to reverse the symptoms. Putting all this here so new members can learn.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Sonic

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Re: My Peyronies Cure Diary!
« Reply #36 on: August 21, 2022, 03:32:44 PM »

Agree JJ, early treatment is key. Problem for me was I didn't know what the hell to do at first because for most guys when you pick up this thing I'd say 9/10 didn't even know peyronies existed so you then start to panic and google and you see 100 different medicines and a heap of "treatments"

I was always reluctant to go spend big amounts on traction devices because I know I would neither be motivated enough to spend hours a day on that stuff nor would I have the time so I then started to read about VED but then keep reading about how people got reinjured and got even worse off so I kinda just have gotten over 2 years now doing nothing but trying supplements + pdei5...

I still to this day however am very curious on the somacorrect VED. I kinda wanna get one but at the same time not... ::)
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28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

jj21

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Re: My Peyronies Cure Diary!
« Reply #37 on: August 22, 2022, 02:49:27 AM »

Completely understand Sonic, and it doesn't help that the doctors do not know much about the disease and some don't even want to deal with you. The first urologist I saw told me it was all in my head and that I didn't have peyronies or any other deformity. Wasted 3 months believing him. Second doc actually did the ultrasound but said there was nothing I could do other than to operate. Third doc and GP I found were actually quite helpful.

With VED - I know there's a few horror stories but most of them are from guys over-pumping or not following the protocol here. If you go slow and be cautious there is very minimal risk of injury. I find after each VED session my penis is thicker n fuller, over a six week period a lot of pain was gone and girth n Erectile Dysfunction improved. Definitely recommend it.

When doing nothing, I found my mental health was just deteriorating very badly. Now I have a lot of hope and the goal of getting an implant, my mind knows there's a solution, it's motivated me in very other aspect of life. I feel good, wake up content each day.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Sonic

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Re: My Peyronies Cure Diary!
« Reply #38 on: August 22, 2022, 11:52:25 AM »

JJ, your first paragraph is so so true. Here in Sweden it's really hard to find anyone with real knowledge or expertise about this condition literally same exact thing that happened to you happened to me during my first ever visit to a uro. It took me a year to finally go get examined and I find this doc online who performs surgeries for the disease on a regular basis and he just palpated and said he could feel nothing. Even though I clearly told him it was previously straight and now curved over 20 degrees to the right accompanied by erectile instability he just brushed it off and said it's normal then told me to stop watching porn and abstaining from masturbation lmao...

Took me almost another year to go get a different opinion and I found another doc who is specialized in peyronies and he has been a little more helpful but still my options are limited.

I'm glad you have set your sights on getting an implant, I can definitely imagine it gets a lot easier mentally when you find a solution.

Best of luck to you sir!
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28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

jj21

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Re: My Peyronies Cure Diary!
« Reply #39 on: August 23, 2022, 04:55:14 AM »

Thanks a lot Sonic, give VED a try when you're up for it, it definitely has been working for me.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

jontythegnome

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Re: My Peyronies Cure Diary!
« Reply #40 on: August 26, 2022, 07:25:29 PM »

Thanks a lot Sonic, give VED a try when you're up for it, it definitely has been working for me.

JJ,

Looks like some nice progress!

Thanks for keeping this journal for us, it is very insightful.

Out of curiosity, are you also south asian like me? Haha :P
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25
Symptoms for 1.5 years
Several indentations in top third of shaft
Top third of shaft always hard, even when flaccid
Mild intermittent flaccid pain

Sonic

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Re: My Peyronies Cure Diary!
« Reply #41 on: August 27, 2022, 10:41:55 AM »

Thanks a lot Sonic, give VED a try when you're up for it, it definitely has been working for me.

I have thought about it many times JJ, to purchase a SomaCorrect pump. Although I have to say, if I was to invest for that price I would rather try out traction because of the increased length benefit. The reason I've tried neither is because of fear of making my condition worse that is legit the last thing I want and I have heard of so many who have gone through phases of reinjury with these devices.

Sometimes I just feel like I should have tried it out sooner. Over 2 years have passed now without me trying it out so I have no idea if it would even help at this point.
Logged
28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

jj21

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Re: My Peyronies Cure Diary!
« Reply #42 on: August 28, 2022, 11:41:06 PM »

Jonty - yes, I am south Asian.

Sonic - Many people had peyronies for years, they still found benefit from both traction and VED. There was a user here who had Peyronies for 9 years I believe, he cured himself with RestoreX. OldMan had peyronies for years as well and he cured himself with the one cylinder VED. So, the fact that it has been 2 years doesn't mean you will not see results. I definitely recommend doing something, just being cautious.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Sonic

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Re: My Peyronies Cure Diary!
« Reply #43 on: August 29, 2022, 09:18:51 AM »

Jonty - yes, I am south Asian.

Sonic - Many people had peyronies for years, they still found benefit from both traction and VED. There was a user here who had Peyronies for 9 years I believe, he cured himself with RestoreX. OldMan had peyronies for years as well and he cured himself with the one cylinder VED. So, the fact that it has been 2 years doesn't mean you will not see results. I definitely recommend doing something, just being cautious.

I've taken your advice into consideration. Might be a chance I'll invest in the SomaCorrect in the near future.
Logged
28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

jj21

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Re: My Peyronies Cure Diary!
« Reply #44 on: August 30, 2022, 01:41:22 AM »

Good luck! Be cautious, follow the protocols here, and never over-pump.
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33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

Sonic

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Re: My Peyronies Cure Diary!
« Reply #45 on: September 09, 2022, 06:46:02 AM »

I still can't get over how bizzare the pictures look. On the first pic you posted on July 26 you can very clearly see you have lost volume all over the penis however in your most recent pics on the 16th of August you can on the other hand see that you have regained significant girth but for some reason it seems the VED just doesn't bite on the base which is still clearly suffering from narrowing.

Makes me think there could actually be something behind what Dr. Trost says when it comes to VED that it stretches out healthy tissue but really doesn't do anything to combat narrowed/dented areas.

How do you feel JJ? Do you feel VED helped fill out the dented areas?
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28 years. Started to develop a rightwards curve in June 2020.
Indentation on right side and about a 20-25° curve to the right.
Weakened erections and instability due to indentation.

jj21

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Re: My Peyronies Cure Diary!
« Reply #46 on: September 09, 2022, 07:32:22 AM »

Sonic,

Definitely agree with you. VED is helping a little bit, it's quite clear from the pics, but I think an implant is the only way to become fully functional again.

J
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

jj21

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Re: My Peyronies Cure Diary!
« Reply #47 on: September 13, 2022, 04:33:18 AM »

Update:

Started using restoreX again. I realised, getting a good stretch can be dependent upon placing the glans correctly within the device. I have a flaccid twist and its important to place the glans correctly positioned. I can clamp to 4 clicks, with no pain, when placed correctly. This allows for a very satisfying stretch, there is not much slippage at all. My penis feels good after each session.

I have reached a good level of traction and attached a pic below.

Have been doing restoreX for 2-3 x 30m sessions per day and increased VED to 2 x 30m sessions per day.

Haven't checked erection but will take progress pics in about 2 weeks.

J
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex

bentoboy

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Re: My Peyronies Cure Diary!
« Reply #48 on: September 13, 2022, 08:03:10 AM »

That's a very interesting routine. Mine is quite simialr: I've been using Restorex 30 minutes twice a day + VED 15 minutes twice a day right after Restorex - not much result so far but it seems I've regained some width. Can you see any progress so far?
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26 y. o. Peyronie since 2020: upward congenital curvature from the bottom - 20*; twist and curve to the left - 25*; two visible dents on the left side; multiple plaques everywhere; no pain

Vitamins; Tadafil; traction/bending; VED - nothing worked

jj21

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Re: My Peyronies Cure Diary!
« Reply #49 on: September 13, 2022, 08:09:53 AM »

Bentoboy - I have noticed some girth/width improvement as well, and some improvement in Erectile Dysfunction.
Logged
33 yrs old
Peyronies for 4 years now
Got better but then got worse
Mild erect curvature but major Loss of girth, dents and significant semi-erect curve
Moderate Erectile Dysfunction
Re-started VED, also using Restorex
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