One of the Chosen

[Diriangen]

So grateful to find this community of fellow chosen men to be blessed with Peyronie's.  Sarcasm aside, I'm grateful there is at least some sort of support network out there.  This disease is probably the most depressing thing I've dealt with, so I'm hoping there is something to look forward to that can lead to some sort of normalcy in the future.

Age? 40

What did your medical doctor conclude? Peyronie's.  I met with him for maybe 3 minutes.  Started to tell him my story, he cut me off mid-story and told me to drop my pants so he could take a look.  He threw on a glove, felt my shaft for about 2 seconds and said he could feel the plaque and said it was Peyronie's.  No artificial erection or ultrasound performed.  He told me that there is no cure, Xiafil or whatever its called doesn't really work well and only improves curvature by 15%.  Surgery is
a bad idea because it can kill blood flow.  Basically it sucks to be me.  He said the only silver lining is it sometimes self-corrects.  Told me to take L-Arginine and CoQ10 and come back in 3 months.  Honestly, I felt disappointed and was hoping for more options or answers from the Uro, but we'll see where I'm at in 3 months from now.

How long have you had symptoms? Since July 2021, so maybe 8 or 9 months at the time of this post

What are your symptoms? Painful erections that have turned into very uncomfortable erections.  Dent on the right side, about an inch and a half below the head while erect that causes a slight right-curve.  Loss of some girth and length when erect.  Penetration still possible, but noticeably more difficult.

What treatments have you tried and what were the results? Nothing to this point, but just started daily CoQ10 and L-Arginine supplements.  Doc said they could help, but I get contradictory information online.  Some articles say they showed
improvement in a percentage of cases, others say they do nothing for Peyronie's.  Jury is out.

Where are you in dealing with the psychological aspects of Peyronies Disease? Not in a good place.  A lot of fear that the condition will worsen, or other plaques develop making my sex life disappear.  Self-conscious about the cosmetics of it all.  I'm still intimate, but I'm always fighting a psychological battle.  If during sex I look down and see the little dude down there and how he's changed, it can actually kill the mood for me.  Sounds really stupid, but I seem to care a lot more than my wife does.

Are you in a relationship? Yes.  Very happily married to an awesome woman.

[Mikel7]

Welcome Diriangen to the forum. Your sarcasm is appreciated.  We have all trodden down the road you are now on and have shared the same feelings. Thank you for filling out your signature line. Also if you haven't done so you can download and read our survival guide -->https://www.peyroniesforum.net/index.php/topic,3180.msg44057.html#msg44057 . This can give you a better insight as to the disease and its different treatments.
It sounds like your wife is a great support! The one thing about this disease is that it can open up doors of communication about being more creative regarding sex. I'm sure you have explored the ideas.

It sounds like your Dr is not very compassionate? Are you happy with him? He didn't even discuss traction or VED therapy? He could have also suggested an ultrasound to get a better look internally at things.  There is also heat therapy and taking ED drugs to improve erections and assist in healing. I would look into getting another Dr's opinion. Peyronies Dr's are not easy to find. Educate yourself first with the survival guide before you go into your appointment. I always write down my questions first before any Dr's appointment. It is our hard earned money we are spending.

Yes the emotional side of this can be very devastating. Our prized possession has been affected
and this can play havoc on our psyche. Don't let worry destroy you. Discussing things with your wife and reading the forum can be a great tension reducer. Having a plan of action also helps. This is not going to be forever and you will pull through this! You must adopt the idea that this is a marathon an not a sprint. My Best  Mikel7

[Diriangen]

Thanks, Mikel.  I've actually thought about getting a second opinion.  I live in the states and have an HMO, so I have to get a referral to a Uro from my general practitioner.  So I assume I have to go back to my regular doctor again and ask for another referral.  It's so frustrating.  I'm really willing to try anything, but yeah, he gave me nothing.  Never mentioned traction therapy at all.  Just said there's nothing that can be done and injections don't really work.  Everything I'm reading online makes me think he isn't specialized in peyronies and probably just doesn't want to deal with it.

[Pfract]

Diriangen:

Welcome aboard! No other way to put it but this disease sucks. I am glad you made it here. Plenty of resources around and your introductory post helps in directing you.
Just by what you said you need to get access to a proper doctor. Cutting you off mid sentence is not a good thing, but worse when he proceeds to tell you stuff which clearly isn't true. Some doctors really don't care nor are knowledgeable.

https://malefertilityandpeyroniesclinic.com/peyronies/treatments/

https://malefertilityandpeyroniesclinic.com/peyronies/research-main/research-summaries/

https://malefertilityandpeyroniesclinic.com/peyronies/multimedia/

Have a look at these links to find what the recommended treatment path is according to the most up to date evidence and data. Plenty of good stuff. Also, have a look at the survival guide here on the board.

Xiaflex is a very good option and lot's of members are moderate to good success with it. Not a cure, but a great tool in the right hands. Also... surgery can definitely be an option. Again.... done by the right doctor. Both implants or curvature correction.

Forget that crap about self improvement. Been in the board for years, rarely happens. Have a look at restorex https://www.restorex.com/ as well. Plenty of good data on the device. You should definitely attack this asap to prevent disease progression.

Please stay with us.

[LWillisjr]

It may help if you want to share some details about your symptoms. Therapies and recommendations vary depending on symptoms, angle and degree of curvature, etc. You also got a pretty "textbook" answer. As already said you will want to find a Peyronies specialist. Take a minute ready my story "link below". My first urology visit I also got the "Nothing can be done, you will need to learn to live with". I didn't accept that.