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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
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Author Topic: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!  (Read 4040 times)

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Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #50 on: February 25, 2022, 03:51:09 PM »

Hi Roddy,

I don’t unfortunately , only that it’s an 18cm Titan.

I emailed Mike yesterday with a few questions but haven’t had a response back yet, when I speak to him I’ll ask.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #51 on: February 26, 2022, 06:16:16 AM »

Day 12 post op

I think this might be my last update for a week or so, until i start cycling, as time goes on there is obviously less to report each day.

i got into bed last night and my curiosity and hornyness got the better of me so i watched a bit of porn. Aside from feeling horny with a 12 day erection, i wanted to test blood flow and sensation.

Glands engorged and my shaft went from an oval shape to much more round. i got to the point of orgasm pretty quickly but i was scared to orgasm as i didn't want to set myself back and hurt myself so i turned off and went to sleep. I was extremely gentle and was barely touching myself so i can't imagine oi did myself any harm.

My biggest issue right now is being pumped up constantly. it is just a pain in the ass and is now where most of the pain/uncomfortableness comes from. i can't wait to deflate and start Cycling.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Pfract

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #52 on: February 26, 2022, 11:58:52 AM »

Hey Jimmi.

The difference is astounding... I do think why the Dr. would not have you deflate earlier? Dr. Eid tells his patients to start inflating/deflating for the most part as earlier as possible to prevent scar tissue from forming around an empty-ish reservoir so the implant doesn't auto-inflate.  I hope that it is not the case for you.

I don't know if you posted it somewhere upper on the thread but did he tell you when you could start cycling?

Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #53 on: February 26, 2022, 12:09:51 PM »

Hi pfract,

I don’t know why I have to be inflated for three weeks, I really hope I’m
Not going to suffer long term being inflated for so long and as tempted as I am to deflate and start cycling a few days later I have got to trust the doctor.

Optimistically I am hoping I can start cycling next week but it might be the week after which will be three weeks post op.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #54 on: March 01, 2022, 06:26:01 PM »

Day 15 post op

Another milestone today - ish

My erect penis was really beginning to bother me, most of my pain was eminating from the shaft and I was getting jealous of seeing everyone be deflated much sooner than me.

I emailed Mike asking when we could have our zoom call to start cycling and he told me he was very busy and it would t be until next week but he was happy for me to start gentle cycling.

So I immediately ran a hot bath and jumped in.

I deflated as best I could; but I as still semi erect, maybe 20% and unable to move my penis is any direction other than up. I keep trying to deflate a little more but it’s not having any of it. I will try again tomorrow.

However, the constant ache/ pain has almost gone and I hope wearing my trackies tomorrow will be that much easier. I didn’t want to overdo it tonight so I didn’t cycle at all. I attempted very hastily to get one pump in but to be honest I didn’t really try very hard. Am I right in thinking that one quick press of the bulb and then pressing the deflate button might help me deflate more?

Weirdly my knob looks much nicer at 20% than it did at 50%. Not too sure why though
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #55 on: March 04, 2022, 04:42:26 PM »

Day 18 post op

I still can’t work out how to deflate properly, I have followed the instructions both by other forum members, online videos and have also had a teams meeting with me Fraser. I am no longer in pain, yesterday was excruciating but I finally managed to deflate a little without it re-inflating. I have no idea how inflated I am, as I have never intentionally fully inflated nor have I ever been fully deflated. I am hard, easily hard enough for sex, and pointing at 2-2:30. This makes it incredibly uncomfortable when moving about although my glands seem far less sensitive today. I have an appointment with a surgeon connected with me Fraser who is much more local and he will check my healing and teach me how to inflate and deflate properly.

In optimistically hoping the fact that I have been fairly pumped up on and off over the last 48 hours counts as me beginning to cycle?!

I have also noticed that the cylinders do not go anywhere near the glands. Inwas worries this might be the case as I thought 18cm was too short given my size pre op. Howeve, I had good glands engorgement pre surgery and I have ‘tested it ‘ by gently masturbating to some porn this week, without finishing as I haven’t been given the all clear yet but my entire shaft seems to get much more round and fuller which I am pleased about.

I am really hoping I can be properly deflated on Monday, if I am then I would say I would be roughly 80% pain free and I can look forward to some aggressive cycling next week.

Things I am looking forward to doing next week;

“ finally being able to sleep on my side. I am nearly there and can go for 10 minutes before it gets uncomfortable

*!wearing a suit / loose fitting jeans. I have lived in XXL trackie bottoms now for nearly three weeks and I am getting pretty fed up of them

* going for a wee without having to piss in a cup/bucket. My current angle makes it impossible to piss normally

* FINALLY FINISH MYSELF OFF! going from twice a day to nothing in 3 weeks is taking its toll!
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #56 on: March 07, 2022, 12:26:59 PM »

Day 21 post op!

another disaster last night!

I had my second go at cycling, after my disastrous first attempt. I felt confident I could nail it especially with all pain in my scrotum now gone.

I hopped into a hot bath and managed 9 pumps. I don’t think they were all full pumps but I got a rock hard erection. A good 2.5-3 inches shorter than my prime but if this is what I end up with then I’ll be not pleased but satisfied and content.

I left it for 30 minutes, my glands were achy but my shaft was actually ok. I went to deflate and I couldn’t find the damn button. I didn’t panic and spent the next 12 hours frantically trying to find it but to no avail. Sleeping was out of the question, every time I began to drift off I would spasm and wake up.

As today dragged on I hurt more especially my glands which were hyper sensitive. As it happens, when this first happened last week I made an appointment to see someone more local to me to teach me how to inflate and deflate so I hung on until 2pm and then jumped into my newly purchased 20 year old MR2 and drove 35 miles to see him With my pants and trousers round my ankles and only cushions hiding my modesty along with a baby sock protecting my glands which said ‘ I’m too cute ‘

Anyway, I saw the uro, he recognised me from Last feb when I saw him and his whole demeanour was very different. If he was like he was with me today 13 months ago I might have actually taken things further with him. He was a great help, he deflated me , showed me how to do it and let me try. He said the pump was very low and the release valve was at a weird angle so no wonder I couldn’t do it. He said it might move in time or I can have a little operation to make it easier to use.

I am not going to cycle for another week, he actually thought three weeks was very early and said the usual practice is to start at 6 weeks. I will feel about for the RV and wait for my war wounds to fully heal. I have now cycled 4 times including the two times today so he said the capsule shouldn’t be escapulated.

I need a bath ASAP as he was quite forceful deflating me but I am still pretty firm and can’t really point myself down. I hope to wear a suit to work by the end of this week and I hope to sleep well tonight. I also had to cancel a date tonight which I was very upset about but I hurt too
Much
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Roddy

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #57 on: March 07, 2022, 05:29:07 PM »

Hi Jimmi

There’s no denying that locating the release button at the start is very tricky. I remember Hawk suggesting I stand and feel for it, then let go, then feel for it again, then let go, then feel for it again. I was to do this on repeat until my muscle memory set in and I just instinctively knew where the button was located within my sack. This was great advice. When you start cycling, you should do the same.

I must say I am confused as to why you are not cycling at 3 weeks in? I’m no urologist, and that’s now not only Mike Fraser but also this guy you saw today, who have told you to hang off from cycling now. I wonder why? There must be a specific reason in your case? Mike had me cycling on day 10. So why the difference?
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Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #58 on: March 08, 2022, 04:18:24 AM »

Hi Roddy,

i don't actually know.

Mike always said i would begin cycling at 3 weeks, even pre-op, so it was pre determined. Maybe it has something to do with my Diabetes, i don't know. I am terrified of the same thing happening again so i will do as you suggested and practice, practice and practice. I am concerned about the position of the pump and RV but maybe after a bit of cycling it will find a more natural position. i was very surprised to hear the uro yesterday saying 6 weeks is normal, when i asked him about losing size gains he shrugged his shoulders and said possibly but it is what it is!

I finally caved in last night and finished myself off. I was a bit nervous but i was very gentle. I am very pleased that although i was fully deflated, albeit still fairly stiff, i managed to get rock hard with great glands engorgement. I could easily of had sex and actually my size, with the extra blood flow was ok. And this is without any PDE5's. So i currently have a semi-malleable, adequate blood flow and a 3 piece implant! 
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Stepone

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #59 on: March 08, 2022, 12:38:50 PM »

Jimmi,
Sorry I couldn’t find your post.
It looks like you had your implant on February 14.
If that’s the case, I am surprised they told you, you could finish yourself off before 30 days. It’s close, lol
At not even a month, it may seem like you are expecting the 100 yard dash unread of a marathon.
From what you have written, it appears you are healing faster and the position of your pump changes a lot over time.
When I first received my implant, it appeared to be so tight to my penis, it was difficult to pump, etc. But at about 6 months or even later, hard to remember, but I think that’s when my pump dropped some.
Hope this helps and glad you are progressing so quickly.
StepOne
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Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #60 on: March 09, 2022, 10:06:26 AM »

Day 23 post op

Stepone - I must be honest I was not given any instructions from my surgeon what I could or could not do. He has not told me when I could have sex or masturbate. I know I have healed well: following on from an assessment from another well known IPP surgeon more local to me on Monday. I wasn’t planning on ‘finishing ‘ , it was more an experiment to check blood flow but one thing led to another. I was very very careful and there was barely any movement of my hand on my shaft. It is also worth noting that I have retrograde ejaculation so I don’t actually produce any semen.  I did do some research and it appears most surgeons suggest anywhere from 2 weeks to 4 weeks is a normal timescale and 3 weeks ( Dr Eid ) for sex. 

It is not something I will be participating in everyday until I am fully healed and officially given the all clear for ‘extra curricular activity ‘

Anyhow, I have now officially begun cycling. I do not want to waste another week, so put in a few pumps last night to test I could deflate and I could. I will work up to max over the next few days/week. The bulb seems fairly easy to squeeze although after 4 or 5 pumps my scrotum does begin to get a little sore.

I wore a suit today for the first time, only for an hour as I had a meeting i needed to be smart for, it was not pleasant but hopefully it might become a more regular occurrence over the next couple of weeks.

My flaccid penis still very much looks like an erect penis, standing to attention at around 2:30-3 o clock. I am hoping, and assuming, as the cylinders become softer it will settle into a more natural position and soften up.

I have always been excited about the implant, ever since I found it was an option and although I have had bad days , like everyone, I can honestly now say every day I am feeling better and better. My 80 degree curve has all but disappeared and i am satisfied with the current size . The last bit of the jigsaw is for it to settle in a more natural position so I can wear normal clothes again!

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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Stepone

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #61 on: March 10, 2022, 04:45:04 PM »

Ok, stick to a plan.
Are you pumping every day?
My doctor told me to try to pump as much as possible to start the stretching. Haha, the feel of stretching gets to be a good thing, as you know you are increasing in size.
No pain, no gain, lol,
My stretch pains continued for almost a year.
Good luck
StepOne
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Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #62 on: March 10, 2022, 06:13:10 PM »

Hey Stepone,

I have temporarily stopped pumping as I had another episode of not being able to deflate on Tuesday. I have decided to wait another week / 10 days until all swelling has gone in the hope that it will then be easier for me to navigate around the deflate valve - I can not have another night where I am pumped and can not deflate.

In terms of size and cycling, i am content with my penis right now. Sure it’s much smaller than my pre Peyronie days but at 5,5’ I am very much average: straight, and hard as a rock. If I can get over 6’ than fantastic but my end goal has never been to have a massive dick like I used to have but to have a very usable penis no matter the size.

Now, I am sure I am saying all this to conform to Myself that it doesn’t matter if i don’t start cycling proper for another 10 days and it won’t make a difference but the reality is I am actually scared of not being able to deflate so I need to be absolutely certain I can before I even think about starting to cycle properly.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Pfract

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #63 on: March 10, 2022, 09:46:56 PM »

Hey Jimmy....

Sorry you are having difficulties deflating. How about having a hot bath to try and see if it helps? that's very well recommended for people that go through with the surgery in the first times you are cycling? Were you given a keychain to help you practice?

Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #64 on: March 11, 2022, 06:45:45 AM »

Hey Pract,

Yes, i have been having hot baths and you are right, it does 'loosen' things up. However, i am yet to distinguish the deflate button. When i feel around the brick, i feels like i have lots of what i can only describe as small grisly bits which when i press against the brick they move about and get in the way of what i think is the release button. Hopefully it will become easier of the next few days/week.

I do have the keychain but i can't say it makes anything easier for me. If feels very different to what is in my sack but i would assume this may be because i still have some swelling.

I have noticed that although i don't have any constant pain in my scrotum, I do maybe a couple times a day get a very sudden, sharp pain, which only lasts for about 5 seconds but is enough to make me gasp. It seems to be originating from where the pump is. I am not overly concerned about this, but just an observation i have.

Most of my soreness is emanating from my glands. I think this is a combination of it rubbing against me whilst moving about and getting into a routine this week of 'playing with myself ' so i will knock this on the head for a week or two and take the sensible option.

Finally, although I am fully deflated right now, i am still standing to attention at roughly 2 o clock and still feel pretty rigid, but i can easily depress the cylinders so i am confident i am properly deflated. I am assuming this is pretty normal after 3.5 weeks and once I begin to regularly cycle the cylinders will soften and I will adopt a more natural position over the next couple of months?
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Stepone

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #65 on: March 12, 2022, 11:18:11 AM »

Jimmy
I did the hot bath, it allows you to feel around. Look at a medical diagram of what’s in a ball sac and it will help you distinguish what the internal parts are. You can carefully move stuff around to give you a good solid feel of the pump. The pump is something you really need to figure out. Once you find the little button, you have to firmly grab the other side. I sometimes use two hands to prevent it from moving and then with a free thumb, press with a solid force to push the button and release the valve. You should try this several times until you get it down. Look at my journal and look at what Hawk told me. He helped me a lot. He gives excellent descriptions.
Don’t give up, it’s important to keep pumping for all the various parts in you, including the reservoir.
StepOne
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #66 on: March 14, 2022, 07:09:44 AM »

4 weeks post op

Although my pain is getting less each day i am beginning to get frustrated. I am desperate to start proper cycling but am still concerned that a) i won't be able to deflate again and b) I want my scrotum where I drew blood last week to fully heal so I don't set myself back another week. I have read countless journals and it appears in the US most Docs suggest cycling at between 1-2 weeks, mine said 3-4 weeks and the other doctor who i saw last Monday to carry out an emergency deflation, who is well known to my doctor said 6 weeks is the normal time for cycling. Very confusing. I am hoping the fact that i was 50% inflated for the first two weeks and twice at 80% for 24 hours ( when i Couldn't deflate ) will help somewhat to any delay.

I can feel the bulb, easily, and when i have attempted to pump i have had no issues. I can feel the tubing going up to the 'brick' but can still not find or feel any kind of button. I think i will try just a couple of pumps on Wednesday to test and if i can't deflate i won't be in a great deal of pain. I do not regret choosing Mike at all, i just wished he was closer to me!

I am also worried that even though I am fully deflated, my Penis is still pointing to attention at 2 o clock. I am hoping this is only because the cylinders are not soft yet and they will soften up as I begin to cycle aggressively? I think once I am in a more natural position, and I am comfortable deflating then i can stop worrying.

Thank you for everyone's sound advice so far, i am looking forward to getting back into a hot bath on Wednesday and will have a good feel around.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Roddy

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #67 on: March 14, 2022, 03:38:17 PM »

Hi Jimmi

Can you email Mike Fraser and ask him what the reason is in your case as to why you’re not yet cycling when other members of this forum were cycling at 21 days or less? He was my surgeon and had me cycling at 10 days. Specifically ask him why there is a difference in your case?

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Aged 50 congenital curvature and then Peyronies onset, excision and grafting not successful,
Coloplast Titan implant on June 3rd, 2019 (aged 47) to correct a 90 degree bend
Dr. Mike Fraser - Glasgow, Scotland.

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #68 on: March 14, 2022, 03:49:24 PM »

Hi Roddy,

I actually messaged him last week and emailed him today but haven’t heard back yet.

He gave me the all clear after two weeks, but that was only if I felt comfortable enough - don’t forget I can’t just pop into his office like you could.

As you know I have had real issues with deflating, which has scuppered my confidence. When I went to my local hospital last week to be emergency deflated they drew blood so haven’t been able to have a bath or cycle since. I have been very gently feeling around for the deflate button whilst I’m not inflated but I still can’t find it - I am perhaps still a little swollen maybe and my incision wounds although not painful , they are uncomfortable still when I press against them trying to find the deflate button.

I have set aside Thursday evening to have another go, and if I still can’t do it I might have to flag Glasgow to see Mike.

Being a diabetic, I always knew my war wounds would take longer to heal, so the fact that I am 2 or 3 weeks behind where I should be doesn’t overly concern me but the next week is vitally important.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Curvekiller94

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #69 on: March 14, 2022, 06:05:01 PM »

Good work jimmi thanks for keeping us all updated that makes sense that wound healing is a bit slower. You got this dude, I would just call his front desk better be safe than sorry but chances are no fever, no real swelliing, and or puss you should be okay.


Another reason I would call is some doctors don’t use email or my chart or whatever and they may not have seen your message. Or they saw it thought it was normal and ignored it until they can get around to it
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28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #70 on: March 14, 2022, 09:12:26 PM »

Ugh
I am so sorry you are having problems.
It’s very important for you to find the button. I don’t mean to be rude, but you really need to put some energy into finding that button. In all the posts I have read, I don’t recall one person saying they couldn’t find the button.
If you can’t get the doctor, which sounds unacceptable, perhaps
I would try calling colorplast.
They used to have reps that could walk you through the process.
Maybe there is someone local that can help you.
I wish you the best.
Remember you may not have a doctor’s degree, you have a doctorate on your body. If something is not right, get some help.
Wait, you went to the hospital to get it deflated? How could they find the button, but you can’t?
StepOne
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Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #71 on: March 15, 2022, 12:54:46 PM »

Hey Stephone,

I have made an appointment to speak with my local ( ish ) Coloplast rep this evening - she is hopeful she should be able to talk me through it. Thank you for the heads up.

I feel so stupid at not being able to deflate after 4 weeks, I know it works as I have been deflated by two different doctors, But when i try and find the button all I can feel are what i can only describe as small grisly bits of flesh getting in the way of things.

She is based in London, about 100 miles away from me so if we can't figure things out tonight i will go up and see her in person ASAP.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Jimmi85

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #72 on: March 16, 2022, 06:22:39 AM »

so, quick update.

I spoke to the rep last night, and it turns out the release button is sitting in an antero-posteriorly position, rather than at the side so i have been trying to deflate 90 degrees out. Problem is, with my slower healing time due to my Diabetes my Scrotal incision is still tender and the button is directly under the most painful part of the incision. I need to somehow get my hand behind the 'brick' rather than the side which i have been wrongly doing. I still feel a bit stupid but also relieved that I at least have an understanding of where the button is now. I need to let the incision heal first for fear of drawing blood again and risking infection and delaying healing.

She told me to spend the next week trying to locate it in hot baths and then mid-next week to put in a few pumps and work myself up. I asked her about the consequence of a delay in cycling and she said in her opinion it would make little difference to my end size, only that it might take a month or two longer to get there. She said it was quite normal to start cycling at weeks 6-8.

I also asked her about my current rigidness and always being in an erect state and she said i still had swelling and it will get better over the coming weeks.

Thank you Stephone for the advice in contacting my local ( ish ) rep, it has really put my mind at ease. 
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #73 on: March 17, 2022, 08:34:19 PM »

Thanks for your reply and I am so glad you are getting help. Definitely follow colorplast’s suggestions. Be sure to do the warm baths, that is what helped me a lot!!!!!!!!!!!!!
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #74 on: March 23, 2022, 09:30:56 AM »

Day 37 post op

Wow, I can’t believe it’s just over 5 weeks now since my operation!

I am currently on route to London to meet my local Coloplast rep. She will check all in going well and help me understand where this damn release button is. I think the plan is for her to spend a couple of hours with me and for me to demonstrate I can do it in my own. I am really exciting although I am guessing the ride home will be less comfortable than the ride there!

She seems lovely over the phone and has assured me I will be leaving today able to confidently cycle on my own.

My healing has excelerated over the last week, and the swelling, IMO, is nearly non existent - I just wish I had a bigger sack so I can manoeuvre the pump a little more.

In terms of pain, it has almost gone. The only residing pain I have is the actual pump, it is sitting so low, every time I sit down I sit on the pump. I am actually concerned it was fall out of my arse it is that low but I don’t even know if that’s possible…I am side the rep will either put my mind at rest and tell me it’s fine or suggest a further operation to better it’s position. I hope it’s the former.

I am now sleeping on my side finally; which is AMAZING, next up is to make the cylinders softer with cycling so my dick isn’t in a permanent erect position. I long for the day it hangs in a more natural flaccid state.

I will report back after my appointment to confirm all is good!
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #75 on: March 23, 2022, 01:38:33 PM »

So, appointment done. I am so glad I reached out to the rep and thank you to those who suggested it.

Between us we inflated and deflated about a dozen times to ensure I could deflate. Which I now can. I clearly understand where the release button is and am able to locate and deflate.

Turns out I have never been fully deflated, and this is why I have been so uncomfortable , effectively walking and peeing with a 30% erection. I am looking forward to peeing normally later, and not having to piss into something rather than the toilet bowel.

I have never been fully inflated, until today. Wow! I can not believe how hard I was, and probably an inch more than I was at 30%.  I’m not huge but she kindly said I was a decent size and that combined with the hardness wouldn’t put any girl off. I really do think now I can cycle I can reach my goal of 6’ by the end of the year, hopefully sooner. She said I was recovering better than expected given I am diabetic and thought I had healed well.

My plan was to go again this evening in the bath when I get home but my god my dick hurts. I’m not going to touch it tonight.

Finally, I can see light at the end of the tunnel.

Over and out.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #76 on: March 23, 2022, 03:01:26 PM »

Must have been a really weird experience. But having Peyronie's we cannot be ashamed of anything I think. Was she pretty?   8)
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #77 on: March 23, 2022, 05:14:48 PM »

Jimmi,

I have read your entire journal.  Congratulations and thanks for the great contribution to the forum.  In reading, I was sure you were never fully deflated or inflated.  Force both since they stretch vital areas.  Full deflation will stretch the reservoir capsule before it permanently scars in too small, resulting in auto-inflation.  Obviously, inflating increases penile volume.  The penis will not scar in as quickly, and inflating will stretch the penis for many months.
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #78 on: March 23, 2022, 06:49:19 PM »

Thanks Hawk, and welcome back!

I am now going at this full throttle, I changed my mind about not starting to cycle tonight and have had a good play, firstly starting with just a few pumps and deflating, then a Few more and deflating and finally as many as I could before deflating. I got the release button every time and the last go I got in 11 pumps. I didn’t want to push myself too much so I only left myself inflated for 5 or 6 minutes,  but enough time to measure myself… just a smidgen (Bone pressed ) under 6’ without any glands engorgement. = super happy Jimmi. I am straighter than I have been for over 2 years and am in a great place right now, both physically and mentally.

Hawk , a question for you ( or others if I may )

I have deflated as much as I can. I am Much more flexible and am able to bend myself in ways I couldn’t previously. I can feel dog ears and the cylinders feel ‘relatively ‘ flat. However, when I squeeze my penis , I can squeeze the cylinders flat but it still feels there is a little bit of saline gurgling about. If it is imperative it is completely gone, how do I do this? I have read you wrapped something around you to squeeze every last drop out, but I don’t know what it is ( Conan wrap) here in the UK.

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #79 on: March 23, 2022, 09:26:38 PM »

Jimmi,

The "Coban" wrap is this bandage that sticks to itself but not skin or hair. --> https://www.exmed.net/3m-coban-4-self-adherent-wrap?p=17381&msclkid=71a23ef7134b1bc3e0d65cccd570ae1f
It was first called vet wrap because veterinarians used it.

The Coban is not for getting deflated as much as it was for staying deflated and preventing auto-inflation and stretching the reservoir capsule.  I totally deflated by laying flat (probably not critical) and squeezing my glans or just below between the balls of my thumbs.  I then rolled the heels of my hands progressively squeezing fluid out of the length of the shaft.  I would pinch off the drained section and get another roll to the base, pinch that off and even squeeze behind the scrotum with my thumb and index fingers.  Then I would wrap snug for the night.   I only had to do this a couple of nights but I think I did it by week 3 post-op
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #80 on: March 24, 2022, 07:06:04 AM »

The problem that Jimmi went through and some others, including myself, is that Patients are not receiving enough, if any, trying on operating their implants.
It’s sad. It’s bad healthcare.
It seems to me that if it wasn’t for this website, there would be so much more needless suffering.
I don’t know how to fix this. But I can’t imagine all the people that don’t use this site and get an implant and are “lost”.
StepOne
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #81 on: March 24, 2022, 07:35:33 AM »

That's a really interesting Point Stepone.

Although i am pleased with my current outcome ( albeit possibly undersized ) of all the healthcare professional i have seen so far, excluding the amazing rep, they all seem too busy to properly educate me, or give me the reassurance I needed. If it wasn't for forums like these, a) i would have had no idea how to tackle Peyronies and b) I would never have known about the implant as it just isn't talked about by medical professionals that much in the UK. 

Interestingly, the rep asked me what forums I regularly use, so I told her and she noted them down in front of me. She said she would recommend both to her clients and she often gets asked.

I cant actually stress how different how I feel between yesterday and today. Its like I have a new toy - Even when I go for a wee I pump up a bit and deflate just to get used to it!

I would also like to stress, and this is from my own experience, there is a difference between bad healthcare and bad patient education. I think in my case, my surgeon was taken aback by how well informed I was going into the implant route, having extensively researches for over a year for multiple hours a day. I was asking him questions which he said he had never been asked before so i assume he assumed i was ok to be left to my own devices more so than the average implantee.

I would also like to stress there is, in my opinion, a difference between bad healthcare and bad education post surgery. I for one, felt my care whilst in hospital for two nights was exceptional and was faultless. I also am glad i chose Mr Fraser although I would have liked to have had more interaction with him or other local connected specialists post surgery and i think if this were the case i would have been better equipped to begin cycling a few weeks earlier.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #82 on: March 24, 2022, 03:00:43 PM »

I’ve just logged in for the first time in 3 days and love reading about your positive progress over these past 2 days, Jimmi. Terrific that you’ve healed so well and are now properly cycling. Only good times ahead now.

Couldn’t agree more with your observations about nonexistent peyronies education and healthcare and that this forum has been a life saver to us.
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #83 on: March 24, 2022, 04:20:47 PM »

Thanks Roddy,

So, second day cycling and finding the release button is a piece of cake!

However…. It does hurt at max inflation. Quite a bit…which I expected and I know that is. Sign of me stretching.

If an hour a day is the recommended time, does it matter if you do one 1 hour session or say 6 10 minute sessions? Does it accomplish the same thing or is it like doing one set of 100kg squats at the gym compared to 5 sets of 20kg ….
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #84 on: March 24, 2022, 04:43:42 PM »

Given that the life expectancy of your implant can be aligned to the number of times the pump mechanism is deployed over its lifetime, and that the more you pump up the more you eat into that  finite number of pump ups (no clue what the actual mean average pumps before failure would be) then I always believed 30 mins in the morning and 30 mins at night were enough for me. The length of time inflated would not matter to the longevity of the engineering, I believe, but the total number of uses would. So, in effect, I stopped using daily when I reached a size gain I was happy with. In your case, 6 x 10 mins is a waste of ‘finite pumps’ I guess. Know what I mean?

Btw, the pain you feel on full inflation is the device stretching your tissue straight out. In a strange kind of way, it became a pleasurable pain because I knew it was doing what it was supposed to do. In time, that pain completely stopped.
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Aged 50 congenital curvature and then Peyronies onset, excision and grafting not successful,
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Hawk

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #85 on: March 24, 2022, 04:47:46 PM »

I asked dr eid if I could do a 1-hour session rather than two 30 minute sessions.  He said that was fine.  My logic was that it saved me some time running a tub of water and drying off from another soak.  It also saved my pump from one pump cycle, theoretically extending implant life.

I think I would shoot for two torturous sessions for as long as you can possibly endure it.  Be prepared to soak in HOT water, keeping most of your body lower than your implant components to reduce swelling.  Take ice water during, ice-cold compress to put on your head, and your favorite music to listen to.  Think of how awesome this will be in just a few more weeks.  The sooner you can endure 30 - 60 minutes, the sooner you can engage in intercourse.
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #86 on: March 26, 2022, 06:40:27 AM »

Quick update:

I have now been cycling for 2 and a half days  :)

Pumping up is a piece of cake, I was worried reading journals that the bulb was very tough to press but I haven't had any issues. Deflating is just as easy, I just wish I had been given the guidance on this 2 or 3 weeks ago. That said, I wasn't fully healed so I am just running with the fact that it was meant to be...

My first ( failed attempt ) at cycling about three weeks ago, produced about 9 pumps, this morning i managed 15 + 4 half pumps. I can definitely feel a good stretch, and most of my pain/uncomfortableness is coming from my glans which i don't really understand as the tips do not go anywhere near them. Even when I am pumped to the max, I can feel the end of the cylinders and beyond them my glans kinda droop down at an angle. This isn't an issue as with stimulation they engorge and I am pretty much straight.

As i continue to cycle, is there a possibility the cylinders might stretch into the glans? They have a long way to go, maybe a good inch so even if it was possible in some cases i don't know if it would be in mine.

i am currently doing 2 x 20 minute sessions and will build up to longer sessions over the next week or so. I have been cleared for sex from Monday, although i think I will wait another couple of weeks - I can't imagine having sex at 100% inflation right now, but 80% is very comfortable and more than hard enough.

Any momentary WTF have i done thoughts have now completely disappeared, and i am already beginning to feel like the old me. It's amazing what a useable and functioning dick does to ones confidence!

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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #87 on: March 26, 2022, 08:45:17 AM »

Jimmie,
It’s amazing what knowledge does. Glad things are better.
Although this is a new implant to you, there is no reason your implant will do what it’s not supposed to do. In other words, I have not read about any problems with the cylinders stretching into the glans.
Pain may continue for months, it’s part of the process. I still have a stabbing pain sometimes, but it becomes less and less as time goes on.
I know you said you have read journals on this site, but if you read them start to finish, you will see, that what you are experiencing is quite normal. I know it’s a lot of reading, but it is beneficial.
Hope you continue to progress and it will get better and better every week.
StepOne
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #88 on: March 26, 2022, 11:34:52 AM »

Jimmi,

Great news about your success cycling.

If you can definitely feel the tips of the cylinder in the shaft and not at least 1/3 of the way into the glans, you were clearly undersized.  The good news is that as I understand it, your primary reason for an implant was to correct a shaft deformity and you get good erection results.  This means that you will not experience the typical droopy glans - (Concord syndrome named after the supersonic passenger jet).

You should have a functional straight penis as long as you maintain erections.  If you ever get a revision, then be sure to get an aggressively sized implant.

Did the subject of implant size come up while talking to the Coloplast Rep?
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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #89 on: March 26, 2022, 12:42:46 PM »

Hi Hawk,

Yes I can clearly feel the tips of the cylinders and they are well below by glands. You are correct in that my primary reason for an implant was to correct a severe dorsal curvature and not importance and I can get decent glans and even shaft engorgement currently so I am not overly concerned, if anything it is more the embarrassment of having an ‘ only 18cm ‘ Titan but I am perfectly content with my current size and in my head I really have a 21 or 22 haha 
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young ( ish ) Diabetics journey - WARNING EXPLICIT PICS!
« Reply #90 on: March 26, 2022, 06:57:30 PM »

Fortunately, they do not tattoo the implant size on your penis so no one knows and we do care.  ;)

We are just happy you are back in the game or soon will be.  Keep us posted.
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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #91 on: April 01, 2022, 04:14:51 AM »

Hawk,

Briefly going back to your oversized/undersize statement:

I have the 'Concorde' effect when not aroused, which I understand is typical of cylinders being undersized. I do however get very good glans and shaft engorgement when I am aroused. With this in mind, do I have any other reasons to be concerned about being undersized?

If I wanted to correct this, i understand it is possible to mobilize the glans with a subcoronal incision. When the cylinder tip becomes visible, nonabsorbable sutures can be used to hitch the glans and anchor it to the tunica albuginea, in order to completely cover the head of the tips. Am I right in assuming this is only really necessary for those who don't get glans engorgement and it won't make me any bigger as the cylinders are not replaced and are still the same size?
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #92 on: April 01, 2022, 08:18:42 AM »

Jimmi, since you get good erections and the implant straightened your penis, you are in great shape for intercourse which is the primary goal.  If you did not get good erections your surgery would be considered a failure due to the surgeon's error.

The only concern is that the implant cannot exert a lengthening stretch on the penis so you will sacrifice some gains in length.  Even if you are content with finally having a fully functional penis,  I would make it clear to the doctor that he undersized you and that the surgery would be a total failure with any Erectile Dysfunction issues.  If satisfied I would use it and make sure that you don't experience the same outcome with a revision when the implant fails

I would personally never consider trying the patch-fix of stitching the head.  Either you are content with your fully functional penis or you are not.  If you are then use it inflated and erect.  If you are not, then insist on revision surgery with aggressively sized cylinders at the surgeon's expense. 
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A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #93 on: April 01, 2022, 09:11:36 AM »

Philtered, firstly, i apologise for hi-jacking your thread..

Hawk, ( and others )

I have attached a couple of photos taken this morning whilst cycling. it is clear to see that a) the tip of the penis narrows significantly where the cylinders end and b) the flexibility obtained after the cylinders end ( without arousal )

Am I correct in thinking that for a man who was sized correctly, cycling stretches the tissues and thus you gain length. However, in my case, as the cylinders do not reach the end of the tissues then i will have much less length gains when cycling but the same girth gains? Does this mean that I will reach my maximum length more quickly, ie 4 weeks as opposed to 4 months say, or is it more of a case that i will get little to no benefit in cycling and it is more so to stop encapsulation?

I must point out that overall I am very happy with my surgery so far. Although I don't have anyone to have sex with at the moment, I have no doubts at all that it is perfectly functional and will be far far far better than it was pre surgery.  I guess I am just wanting to manage my expectations. I have already lost an inch in length post surgery as I mis-read the ruler measurement so I don't want any more surprises!
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #94 on: April 01, 2022, 11:00:47 AM »

Jimmi,

We do not have a lot of data to conclude what you can expect in length gains cycling with undersized cylinders.  While some members might not have been aggressively sized, only one other person on the forum was clearly undersized, and he went to another surgeon to correct it within months of his first surgery.

Logic, however, suggests that all the force is being exerted on girth and little to none on length.  Therefore, I would at least consider using a VED while moderately inflated or even traction, especially since there would be no clamping on the cylinders.  The caution is not to put force on the tubing near the base of the implant.  A tubing failure means a non-functional implant and a revision.

Has Dr. Fraser acknowledged that he undersized you?  I would insist on that.  I also might consider making him tentatively schedule a revision, THEN tell him you want to see if you can regain some length with VED/Traction and get his approval to try it and postpone a revision until you see the results and decide.  Then if you inadvertently damaged the implant (unlikely), it is not on you.

This is just what I would do.  It is my personality and my perspective on the situation.  Yours might decide on a different course and it still be a reasonable approach. 
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Jimmi85

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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #95 on: April 01, 2022, 12:20:44 PM »

I actually asked Mr Fraser about VED use a week ago and this was his response:

Risk with VED after implant is disruption by traction on suture line. Just don’t do it

I am very much in two minds. If it aint broke don't fix it, but, if it could be better and bigger then is a further surgery worth the risk of infection/time off work/another 4 weeks of recovery.

Anyway, i have emailed my surgeon and my lovely Coloplast rep to get their views. 

Maybe I am best to let it be for 6 months, see what growth I get and then re-assess the situation whilst possibly looking onto VED and traction.
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Hawk

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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #96 on: April 01, 2022, 08:43:25 PM »


Risk with VED after implant is disruption by traction on suture line. Just don’t do it


I am not sure I understand that sentence.  If he is saying either the VED or Traction is disruptive to the suture line....what suture line is that?   There are studies of using VEDs after implant.  Dr. Eid gave me permission although I really was not that interested in doing it.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Jimmi85

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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #97 on: April 02, 2022, 03:04:46 AM »

I’m not too sure either tbh, but the sensible in me says I must listen to my surgeon, the curious side of me says just do it but be careful…

Anyway, this was his response to my query about being undersized:

“Re sizing: it is 100% correct. Cylinder tips sit under the glans, not in it
Ultimately the size loss as a result of your Peyronie’s determines size and all I ask is you leave is inflated for an hour once (or maybe twice per day). You will be at your final position at about a year and size changes are, as we discussed, not guaranteed nor are they in any way as important as function. Go out and use and enjoy it “

And this was my reps response to the same question, note, both were sent the same photos as I attached on my previous post:


Good afternoon James,
 
Thanks for your email. I know it will often feel like you have been undersized but remember the cylinders do not go into the head of the penis.  The cylinders just go into the erectile tubes called the corpus cavernosum. The glans is made up of different tissue called the corpus spongiosum. Depending on male anatomy, sometimes the tips will feel short, but they will be correctly positioned. It’s good you get glans engorgement.
 
Happy to call you Monday and talk this through,”
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37 yr old type 1 diabetic. Implanted with a 18cm Titan by Michael Fraser 14/2/22 using scrotal incision. Has implant due to 70 dorsal curvature, erections were average ore surgery

Hawk

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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #98 on: April 02, 2022, 09:12:45 AM »

I am calling “non-sense and cover-up” or “Bull $h!/“ on those statements.  It makes me angry because it is one thing to short cylinder a man but far worse not to own it. Only one other man on this forum had cylinders that did not extend into the glans and he had it corrected by Dr. Eid.

If you are so inclined to spend $ 300 for an unbiased 2nd professional opinion you could set up a video conference with Dr. Eid. 

Another gauge is to ask - if you did not get erections, would a partner notice anything unusual about your penis and could you have regular satisfying intercourse?  Most of us with a properly functioning implant feel like we have the penis of a healthy 20 year old man and would be a star at an orgy even with zero natural erection.  Most men who get implants in the world have Erectile Dysfunction

You are very fortunate to have a fully functional penis BECAUSE you get natural erections.
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

tshug

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Re: A young(ish) Diabetics Implant Journal- WARNING EXPLICIT PICS!
« Reply #99 on: April 02, 2022, 02:06:49 PM »

I’m the unlucky man Hawk refers to who was shorted on my first surgery. My surgeon also insisted that everything was alright and that he could fix things by stitching my glans to lift it up and correct the drooping. At that point I decided to video consult with Dr Eid and after just one look on the video call he immediately said I was undersized and would need to have a revision to correct it. I also got a 2nd opinion from Dr Kramer who also said I would need a revision.

I decided to have Dr Eid do the revision and I’m very very thankful I did. He did a great job replacing my original 15cm CX with a 20 cm Titan. Now the tips are in the glans where they belong and there is no more drooping. The end result is that I now nave a straight hard penis when inflated and my wife and I are very happy!

Jimmi85 good luck going forward.
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71 Yrs old
Radical prostatectomy in 2017.
That surgery left me incontinent
2018  implanted AUS 800 artificial Urinary Sphincter
Erectile Dysfunction & Peyronies
AMS CX Penile Implant Surgery 12/16/2020
Revision- CX replaced with a Titan 20cm + 1 rte 10/26/21 Dr Eid
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