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Author Topic: I have to accept that my penis is damaged and non functional  (Read 1107 times)

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Bud luck

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I have to accept that my penis is damaged and non functional
« on: January 13, 2022, 09:59:47 PM »

After trying everything for over two years after my injury, I arrived at the conclusion that I have to accept my condition. Is been getting worse no matter how many different things I tried to stop the progression, the PRP injection probably was the worst "therapy" I tried, it made my condition worse, it was a risk that I took and got bad results from it. I'm very depressed by the way my penis looks and feels, but I don't want to enter in a depression because I need to be productive, I have to be mentally strong and accept it once for all.
I reach to the men of this forum, because you are the only ones who can understand what I'm going through, nobody else would. I'm still with my girlfriend of 3 years, I love her so much and I feel awful that for the last month we only had intercourse once, is getting very hard for me to get a proper erection, she doesn't like kisses, hugs or anything like that, she just show physical affection through sex, and mostly getting penetration, I'm about to lose her. I will be single for life,unless I find a woman who only likes oral or that doesn't like sex. I can't believe I ended up like this for injecting Trimix, I didn't even need it but I trusted the "Doctor" that convinced me that the injections were safer than Cialis, I tried to sue him and the "clinic" that destroyed my life without luck, even the medical board didn't support me, I wish I never went there, I'm being cursed
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #1 on: January 14, 2022, 12:30:43 AM »

You have my support, Bud Luck. I’m really sorry to hear of your issues. If I can be of any help or you just need someone to talk to, feel free to private message me.
Best regards,

Jan
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #2 on: January 14, 2022, 12:37:56 AM »

Thank you Jan, I know I'm not alone. I think because my problem came from an injury maybe I made a mistake treat it like it was Peroynes.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

RichardWilson99

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Re: I have to accept that my penis is damaged and non functional
« Reply #3 on: January 14, 2022, 02:03:38 AM »

Hey Bad luck,

Have you talked to your girlfriend about what is going on in your life?
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31/Single
Injury Nov 2019, bend 15deg, loss of erections, dent and hard-flaccid
VED, cialis 5mg on/off
EQ medium (with pills), no NTE.  Lost 1+ inches length, lots in girth. Some loss of sensation. Considering implant to restore full sexual function

Tobyg

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Re: I have to accept that my penis is damaged and non functional
« Reply #4 on: January 14, 2022, 02:18:55 AM »

I am in the same position as you, I no longer try useless treatments, everything is a waste of time, stress and money.
It's disappointing that science hasn't achieved anything yet, it seems like it's not easy, but I grew up believing in scientists.
Do not regret the PRP, we all try something wrong, it is just one more stain on the tiger, because this is a disgrace.
Let's keep dreaming of a cure, that's free.
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30 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #5 on: January 14, 2022, 08:35:00 AM »

RichardWilson99, when I talk to my girlfriend about how I feel about my injured penis, she doesn't want to hear it, she tells me that I have to forget about it and move on, she is not supportive. My girlfriend is been against all the "therapies" I tried to correct the problem, she always tell me to leave my "penis" alone, and she is probably right. I think I made my condition worse by doing Traction, and for doing the PRP= increase collagen, so means more scar tissue
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #6 on: January 14, 2022, 09:42:30 PM »

That is possible Bud Luck. Sometimes doing nothing, watchful waiting is all there is. Depends on your age. I wanted plication surgery and Dr Lue said at 63 I would risk a 40% Erectile Dysfunction rate, which it too high for me or for him. Not much left for me sadly. Younger guys are in a better position and have more options. Maybe you have more options, Bud Luck. I only wish I had had that plication surgery Dr Lue suggested in 2015 when I was 56. You‘re young enough you have options I don’t have. I sure wish the best for you. Gute Besserung (get well.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #7 on: January 14, 2022, 09:51:40 PM »

I have narrowing, wasting, dent.. plication is only for a curve, due to my deformity I'll have to do excision/Incision of a graft, but my erections are not strong enough for that type of surgery.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #8 on: January 14, 2022, 10:23:43 PM »

Look man, it sounds like you are a good candidate for an implant. As much as I know you are against implants, I ask you to open your mind for one second as reconsider. Even if say there is a problem with the implant, at least you will have lived knowing you tried.

The reality is that you cant do many things to help yourself in your position, but there is one thing and you are most certainly a prime candidate for it and that is the implant. Whether you take this issue and a question of pride or dignity, or you look at it as a financial hardship, or even a matter of taking too much time off, just do the one thing you can do and get the implant. Live a life with the things you want: a strong, straight erection and a lot of sex.

This is coming from a 20 YO who is likely getting it soon. Im in college man and my sex life has been totally interrupted by this damn thing. Im gonna do everything I can to get it back and if that means getting an implant, then [email protected]< it, i will wear on my sleeve and rock that crap!
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #9 on: January 14, 2022, 10:44:33 PM »

I admire your courage Westerntown, but there are some of us here, myself included, who are dead set against implants. If you want one, that’s great and I wish you the best. Maybe for you that’s the best option. That’s a thing for you and your doctors to decide. For me, implants are completely out of the question. For me? Never in a million years.  But, that’s just my choice for me. After all, I lived 56 years with an 8 inch Penis, no Erectile Dysfunction, and it was as straight as an arrow.  Now, I’m not in that shape anymore. Sorry to say. But, for some of us implants are simply not an option. We’d rather live with what we’ve got. But, you are young, and not to discourage you, whatever you do, I wish you the best with your decision.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #10 on: January 15, 2022, 02:21:16 PM »

It depends how moderate your situation is. You have “no erectile dysfunction” in your bio and you also seem to be dealing with a curve. Bud Luck here has hourglassing which is rather uncomfortable to have sex with and also sounds like he is dealing with a very real and severe type of Erectile Dysfunction. I have discussed with bud luck in the direct messages and he himself has mulled over the implant idea. It’s not my job to get anybody over the fence, but I certainly am here to help reassure him there are possibilities out there other than a life of anguish.

Again, to each their own. I totally stepped out of my realm here but I’d hope that my intentions were clear to only be of help.

Best,
Westerntown
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #11 on: January 15, 2022, 03:34:31 PM »

I'm not strong enough mentally to have an implant, you have to be mentally ready to go for it. And base of my horrible previous experiences with "Doctors".....
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #12 on: January 15, 2022, 04:25:58 PM »

Yes westerntown, I think erectile dysfunction is a major factor in weighing the pros and cons of an implant. But with good erectile functioning, I think the other deformities, though unsightly, might be best addressed with less radical measures, preferably non-surgical ones, if possible. After all, we are dealing with functionality on the one hand (erectile dysfunction, assuming the pills aren’t effective) vs the cosmetics of the disease (bends, Hourglassing, shortening). If you have zero erectile functioning unresponsive to drug therapy,  I have to agree there’s not much left out there but an implant. But if erectile function is good, I think the risk /benefit analysis weighs heavily against the risks of surgery of an implant in favor of less invasive means (Xiaflex plus traction).

But, I still have to respect men who say „no implant under any conditions“ even if for them it could mean a totally sexless life with no erectile ability. It’s a highly personal and complex decision with Erectile Dysfunction  playing a big role and relationship status.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #13 on: January 15, 2022, 04:33:47 PM »

Again, there is varying degrees to erectile dysfunction. For myself, I can get erect with cialis and stimulation, but the erect ion is never RIGID. If somebody can get a satisfactory erection with just Drugs, then they are not an implant candidate. I am not one of those people and from what I read, Bud Luck may not be either. Sounds like you are tho.

I don’t recommend any man to have a sexless life. If they want to, sure, but they shouldn’t force themselves to from a place of being anti implant. That doesn’t sound healthy.

To each their own
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #14 on: January 15, 2022, 04:55:39 PM »

Now I have severe Erectile Dysfunction, my penis is in the worst shape ever, I still get erect but is a weak erection and I ejaculated fast. I feel like the penis has no tissue on my injured area, is probably calcified. What is affecting me the most is that was my fault for injecting Trimix on my penis, why did I do it?, How the companies that sell Trimix have the courage to say that they are safe?, Trimix injections using a device is even worst, the device pushes the syringe with too much force to the delicate penis tissue, and then I got more damage from the P-shot, I will never learn.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #15 on: January 15, 2022, 06:40:42 PM »

Yes, westerntown, I think we are totally in agreement. I think of Peyroines as being split into  two categories of harm: harm to functionality and cosmetic harm. The analysis is easier that way. I start with functionality, being erectile functioning. If you can get a good firm erection with or without the pills, you’ve at least got functionality, which is the most important. Then you only have to be concerned with the cosmetics, and whether you can live with the damage Peyronies Disease has done cosmetically. Some damage is minor, some major. The cosmetic harm is loss of length, bending, hourglassing, that sort of stuff. If functionality is there, I agree, implants should not be an issue. (But I have heard of guys opting for an implant because they couldn’t correct for an extreme 90 degree bend, and that’s perhaps the exception and makes total sense. But, that’s not the norm). Non-invasive methods are always safer than surgical one, so to correct bends and possibly length loss, Xiaflex and traction are good alternatives. But, if the functionality is gone, total Erectile Dysfunction without the pills helping, then an implant is a no brainer. That’s all there is and it makes total sense. That or a sexless life, which I just think isn’t an option for most of us, I agree. And you are right, there are varying degrees of Erectile Dysfunction. That’s where it can get tough. If the erectile strength just isn’t enough, with the pills, then yes, the balance tips in favor of implants because not only do you fix Erectile Dysfunction with it but the cosmetic issues too. Implants are a bit like the nuclear option. But, I wouldn’t go there too fast, unless the Erectile Dysfunction was a major problem. For me, Erectile Dysfunction has never been the problem, and I don’t know why, just the cosmetic issues(bending and shortening). Now, I’m down to 5.5 inches (from a considerably longer number, and a 30 degree bend I think. But, if I could straighten it out and restore the length to just 6 inches, I’d be satisfied. At least I’d be in the normal size range and have a straight penis. But, for others it’s a lot more complicated unfortunately. Peyronies Disease is a very multifaceted disease.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #16 on: January 15, 2022, 07:18:55 PM »

In no way shape or form do i recommend xiaflex over an implant. you should take a look at what xiaflex is doing to the penises of men before you recommned it or even even endorse it. Xiaflex is a terrible creation, a sort of good-intention-bad-reality type thing. think dementors from harry potter
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #17 on: January 16, 2022, 12:49:40 PM »

I had Xiaflex recommended to me with traction, by a Peyroines specialist a few years ago, but I never started the treatments. I only read it improved but didn’t fully correct all bending, and I saw a few pictures afterward that didn’t look that good (swelling , bruising) so that was a bit of a turn off. But others here have said it’s no more painful than a wasp sting. So I’m a bit unsure of it. What’s your thoughts on Xiaflex? Instead of saying I „recommend“ it, you are right. I should say it’s an option. I probably should only recommend it if I’ve had it and it worked well. Again, what do you of Xiaflex?
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

RichardWilson99

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Re: I have to accept that my penis is damaged and non functional
« Reply #18 on: January 17, 2022, 12:10:04 AM »

BadLuck,

Can you try to talk to a sex therapist? I assume your girlfriend doesn't want to join you in that from how you describe her, but it might be really beneficial to you. I also understand that if you're not ready for an implant mentally, you're not ready, that's completely fine!  What is more important is you get into therapy, and probably a sex therapist, to discuss how you can navigate this tough situation.

Forgetting about it is tough: your mind is instinctually focusing on it because it's vital to your survival.  But your partner is not wrong as well, you should stop bringing it up with her because it's not helping your relationship.

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31/Single
Injury Nov 2019, bend 15deg, loss of erections, dent and hard-flaccid
VED, cialis 5mg on/off
EQ medium (with pills), no NTE.  Lost 1+ inches length, lots in girth. Some loss of sensation. Considering implant to restore full sexual function

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #19 on: January 17, 2022, 03:54:23 PM »

Sex therapist?, thank you for your advice. The problem that I have is due to consequences for trusting "Healthcare professionals and their safe methods". Why did I get Erectile Dysfunction from a safe vasectomy?, why did I get a trauma from a safe Trimix injection?, why did I get worsening narrowing from a all natural safe P-shot?. I can't believe I end up with a deformed useless penis due to other people actions, when they all say that is rare? I'm the 1% who gets all the issues. I need to learn and listen from men that have no sex and they are content with their lives, I can't continue seeking "safe" therapies trying to correct my penis, because I always get worse. I know a man who doesn't have any sex or masturbation for 12 years!!! And he is happy with his life, he is my role model
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

wtrenton

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Re: I have to accept that my penis is damaged and non functional
« Reply #20 on: January 17, 2022, 06:00:24 PM »

In no way shape or form do i recommend xiaflex over an implant. you should take a look at what xiaflex is doing to the penises of men before you recommned it or even even endorse it. Xiaflex is a terrible creation, a sort of good-intention-bad-reality type thing. think dementors from harry potter

Xiaflex is used all the time. What’s your concern with it? What is it doing to men’s penises and how common a problem is it?

I’ve had 10 rounds of xiaflex dating back to May 2021. 2 more and I’m done in a couple weeks. Aside from being shorter, my curve is down to 5 degrees or so and the pain is almost entirely gone.
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43 y/o
Peyronies Disease diagnosis Dec 2020
Numerous plaques; curve up&left combnd. 30 deg.
7 mos of Pentox did nothing
Completed 10 Xiaflex injections w/ Dr. Lue, Feb 2022
RestoreX limited use
Curve almost entirely gone
Lost length 1-3/4" still trying to restore

Tobyg

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Re: I have to accept that my penis is damaged and non functional
« Reply #21 on: January 17, 2022, 06:24:46 PM »

My functioning also got much worse thanks to the doctors for an unnecessary circumcision.
Sex therapy is useless for this problem, at least in my case it was useless
I knew a person who had problems after a vasectomy, but I don't remember what problems.
I think I have damaged the pudendal nerve too...
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30 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #22 on: January 18, 2022, 12:52:37 AM »

I had a vasectomy after my daughter and two sons were born because my ex wife pressured me into it. I think the vasectomy damaged me and I had it reversed and made my ex wife pay for it. Afterward, I got a normal sperm count, thanks to an amazingly  good Canadian urologist and the scrotal scar disappeared. I’m glad I had the vasectomy reversed because vasectomy increases your risk of prostate cancer.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

RichardWilson99

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Re: I have to accept that my penis is damaged and non functional
« Reply #23 on: January 18, 2022, 04:03:43 AM »

Badluck,

I see. If celebacy is what you want I still would consider talking to a sex therapist.  They help you deal with all issues around sex.  I understand you don't want to have sex anymore, but I'd bet you're not alone in that sentiment when it comes to patients of a sex therapist.  The forum can't specifically replace therapy, especially face-to-face (even virtual) therapy.  Please consider it and give it a shot.
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31/Single
Injury Nov 2019, bend 15deg, loss of erections, dent and hard-flaccid
VED, cialis 5mg on/off
EQ medium (with pills), no NTE.  Lost 1+ inches length, lots in girth. Some loss of sensation. Considering implant to restore full sexual function

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #24 on: January 18, 2022, 08:03:37 AM »

Celibacy is not what I want, but unfortunately it became my only "safe" option. I'm been damage by the "Doctors" and now Celibacy became my only option, I'm not willing to install an implant in my body because I always get problems for anything that I do: vasectomy, Trimix and P-shot, all of them messed up my genitals and penis. I'm been extremely unlucky, I'm been the 1% that got problems from a suppose "safe" procedures or treatments. I'm about to lose my dear girlfriend and become a single man for the rest of my life.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #25 on: January 18, 2022, 02:40:26 PM »

Look at the bright side Bud Luck, your not 20. You made it to 46. Its a hard situation for everybody, but you cant focus on things that you have no control over. You have to focus on the things you CAN do.

I agree this disease is the most damned thing a man can go through, but without suffering, how would we become strong.
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

GaussRifle

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Re: I have to accept that my penis is damaged and non functional
« Reply #26 on: January 18, 2022, 02:51:58 PM »

Bud luck you cannot lose hope. If you at 46 will lose hope what about us guys at 26 ?? You atleast have something to lose ... a girlfriend.  I never experienced a girlfriend for more than 2 weeks in my life due to peyronies. Have I given up hope... no ? Because I have no other choice... I will make it work one way or the other.

Also, what makes you trust doctors blindly ? I knew from the beginning , any injection into your penis has chance of scarring....trimix is notoriously known for causing scarring .. a simple Google lookup will bring it up.

Also, you are fine with not trying out an implant but to be celibate ? Makes no sense to me. You need to visit top doctors only. . I don't know what kind of doctors you have been visiting. But my peyronies specialist at Mayo Clinic warned against Pshot and all these BS injections with little to no benefit.


Point is I feel you have been trusting wrong doctors.... don't trust anyone... do your own research. And if you do decide to get an implant.... please only go to the very best like Dr. Eid.


Also if your erection strength is decent and all you want is to correct the wasting /narrowing thinning then please consider Exrra Tunical Grafting which will add circumference to your deformity without reducing erection..... this is not plaque incision where your erection quality worsens.   Please read up on this... even Dr. TROST is impressed at how well this works.


Do not give up.... fight it like a damn soldier. You made some bad choices so be it... now all your bad luck is used up... only good luck left in the future :)



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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #27 on: January 18, 2022, 03:12:20 PM »

Thank you. My erections are not great, maybe I should try Extra Tunical Grafting, or maybe an implant. I'm been thinking about an implant constantly, I'm just too scare, I don't know if I'm mentally prepared for an object in my body, but my depression is increasing, I'm so lost
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #28 on: January 18, 2022, 03:31:05 PM »

there is a member here on the forum who got the ETG with dr brian christine. He even shared the youtube video of the doctors procedure, It came out very clean adn good looking and the member and I have discussed that he has no bad side effects at all. He still gets great rock hard erections. I highly recommend you explore this path.
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #29 on: January 18, 2022, 03:53:41 PM »

Thank you very much to everyone for the suggestions, thanks GOD Mr Hawk created this forum. I'll call Dr Trost and see what he thinks, I also called Dr Jonathan Clavell to know what he thinks.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #30 on: January 18, 2022, 04:35:56 PM »

I just talked to Dr Jonathan Clavell office, the implant surgery is $20000 without insurance, if there is a problem with the implant and I have to do surgery again, it will be another $20000, forget it, can't afford it. Next step is talk to Dr Trost
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

RichardWilson99

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Re: I have to accept that my penis is damaged and non functional
« Reply #31 on: January 20, 2022, 06:27:19 AM »

Did the doc say its another 20000? I think if there is problem with implant it should be covered by some type of warranty? Then you would probably play OR fees and doc fees, maybe only 10k? Check that out.

I think it's worth it. I've been losing inches, losing confidence, feel like you as well.  I'm ready to get an implant either in the summer or in the winter.  It does suck to have this object in my body, and it may go terribly wrong.   But EVERYONE that's gotten one hasn't regretted it except for those that didn't go to even semi-decent surgeons, let alone the best.

Once you get your sex life back, you won't be single.  Honestly at your age, having the implant is going to be amazing because women at your age will be a lot more mature about recognizing that life has it's ups and downs and things aren't a fairytale.  They'll love that you can get it up whenever!!
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31/Single
Injury Nov 2019, bend 15deg, loss of erections, dent and hard-flaccid
VED, cialis 5mg on/off
EQ medium (with pills), no NTE.  Lost 1+ inches length, lots in girth. Some loss of sensation. Considering implant to restore full sexual function

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #32 on: January 20, 2022, 08:57:15 AM »

The coordinator told me that if is inflating pump won't be another $20000, but if is something else it will be. I'm trying to save money to go back to Barcelona, Spain and retire earlier, I can't  spend thousand of dollars in further revisions, nothing is guaranteed.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #33 on: January 23, 2022, 12:24:50 AM »

There must be options other than implants. I have no erectile dysfunction, just bending.  And I’m 63. It‘s  tragic that no one cares about male sexuality after age 50 (they’re like „you’ve had your kids. Why do you care?“)  Well, good sexual functioning is important to a man till the day he dies.

I can’t do surgery with a 40% chance of Erectile Dysfunction, so that’s out. I have no Erectile Dysfunction, so that makes implants out, so what am I to do? Travel to the US and spend 20,000USD on Xiaflex? I guess that’s it. This is a horrible disease. 
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #34 on: January 23, 2022, 12:30:47 AM »

If you don’t have erectile dysfunction, is 30 degrees up curve a problem for intercourse?
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Mikel7

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Re: I have to accept that my penis is damaged and non functional
« Reply #35 on: January 23, 2022, 04:05:23 AM »

Intercourse is doable with a 30 degree curvature. I also have been left with a 30 degree curve.  It can be a nice tool to hit a woman's G spot. Be creative. :)
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #36 on: January 23, 2022, 08:49:38 PM »

What bothers me most is the loss of length this rotten disease causes. I’m down to 5.5 inches from a much larger size in my younger (pre-age 56 years)  and I probably lost girth too. So, that’s why I’m hoping I can go to the US and get Xiaflex that might be the answer. Any surgery is out.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #37 on: January 23, 2022, 09:38:31 PM »

Xiaflex can have serious side effects, you better check on Xiaflex reviews, because some of them are horrendous
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Caseyjones01

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Re: I have to accept that my penis is damaged and non functional
« Reply #38 on: January 24, 2022, 09:31:43 AM »

Xiaflex is definitely a gamble. For some men I think the injection is the thing causing the aggrevation to the plaque. My doc and a few other I consulted with said it would help me. The first injection was ok, but the second caused a small hematoma and any stretching to the penis caused excessive pain, I did not see the point to continue because the pain was too much and seemed only to be causing more damage. I have always had problems with even light stretching at times, so maybe that is an indication that xiaflex will not work for me. Only problem is I found out after and it cost me another inch and another 30° and 12grand out of pocket. Was in the same boat with regards to an unsupportive girlfriend that just caused me more pain, had to let her go. I'm not saying you have to do this, in my case I had painful elections and just giving her a hug would give me so much pain at times because I would get an erection immediately, the pain would be so bad where I would even have to go and lie down and take pain meds.
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37 Years Old
April 2019; pop sound from BJ
Diagnosed Sept 2019. Possible 2nd injury
Have 2 very large plaques and loss of size and girth
Pain for 2 years
Tried VED, Traction, Xiaflex
Pentox 3 times 2.5 mg Cialis daily started Colchicine 2/17/20

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #39 on: January 25, 2022, 09:07:08 PM »

Thanks Casey for your input. Yes, that’s what worries me about Xiaflex. It’s not the be all to end all, that’s for sure. I don’t want to mess myself up even more than I’m already messed up. I wish they did penile transplants.  :-*

And I’m sorry but implants are out. Not only expensive, but the thought just gives me nightmares.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #40 on: January 26, 2022, 12:41:04 PM »

What about a transplant is so amazing that the implant is able to give you nightmares, but you’re “wishing” they did transplants. You realize if you got a penile transplant the nerves would have to take time to grow in. You would have a penis attached to you with no sensation or function. Finally let’s say the nerves grow, the host (your body) can/will reject the transplant. Look up the army veterans who have gotten limb transplants. Their bodies reject the limb after X amount of years.
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #41 on: January 27, 2022, 12:58:59 PM »

There’s only been about 2 penile transplants ever done, so this was just thinking out loud and not to be taken too seriously. Implants are done regularly, but they are not something I’d be interested in. Implants are too scary to even think about.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

GaussRifle

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Re: I have to accept that my penis is damaged and non functional
« Reply #42 on: January 27, 2022, 02:08:35 PM »

Torsten, people need implants all the time, hip , joint, bone, you name it, and there is an implant for it. Heck, even breast implants for women. It’s obviously scarier than not having any foreign object in your body, but for people with no alternative what is the choice.
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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

westerntown

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Re: I have to accept that my penis is damaged and non functional
« Reply #43 on: January 28, 2022, 01:40:06 AM »

What’s truly scary is not having sex again. That’s what’s scary
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20, late 2020 masturbation injury leads to semi erect hourglass, then try manual stretching leads to pudendal neuralgia like symptoms, corpus spongiosum and glans do not fill, severe Erectile Dysfunction- floppy unstable erections that feel like water balloon .

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #44 on: January 28, 2022, 09:00:21 PM »

Gaussrifle and westerntown, oh I agree with you dudes totally. And you both are young guys. I got Peyroines around the median age, which is 55 (I got this crappy disease at 56- what luck. And my dad had it but I had no idea till my mom told me his was like a banana later in life, but he wasn’t the kind to care).

Not having sex again is scary. Yes. Totally agree, but what if you’re like me and have no Erectile Dysfunction and just are just messed up and have a shrunken down penis! That’s a bummer. They tell me my length is „average“ but that’s no solace since I was used to a heck of a lot bigger and straight as an arrow penis too. Now I have this mess to deal with. I really sympathize with you younger guys because when I was your age I had never heard of Peyroines. No problems at all till 56. But, now everyone’s attitude is „Well, your 63, so what do you care?“ Well, I care a lot! Even at 63, it’s not like „game over for you pal. You’ve had your kids.“ Huh? Yeah, my sons are 27 and daughter 31, but what’s that got to do with anything. I’m not dead yet!

I just can’t do the implant deal. It’s like a one way street. And with good erectile function, all I have left is Xiaflex. Hope that works and I have to fly to the States for that and it costs a ton. (So do implants).  8)
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #45 on: January 28, 2022, 09:08:50 PM »

And you know, I wanted to say one thing. This disease is a bugaboo to treat. It’s extremely difficult! All we have is surgery or Xiaflex with Traktion. All the urologists say they have either little experience with it or it’s hard to treat, like the German urologists have told me. Well thanks a lot. Only in the US do few doctors care enough to do anything about it. That annoying.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

Bud luck

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Re: I have to accept that my penis is damaged and non functional
« Reply #46 on: January 28, 2022, 10:00:01 PM »

Well, here in the US the treatments are the same as in Europe. For my hourglass shape the only treatment is surgery: implant or Extra Tunical Grafting.
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My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My Erectile Dysfunction is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #47 on: January 28, 2022, 11:40:33 PM »

Budluck, did they tell you in the US you’d risk 40% Erectile Dysfunction with tunica grafting, like with me? I would have had the surgery if there were no Erectile Dysfunction risk. But, when I was 56 (a lot older than you) Dr Lue never mentioned it. I wish I had had the surgery then, that was dumb of me. Now I’m too old without the Erectile Dysfunction risk, and I sure don’t want that. I’d look into that tunica grafting if I were your age. I wish you all the best my friend. Let us know what you decide. I personally would not have an implant. But, that’s just me. Others are certainly entitled to disagree and I respect that. But not for this man. No thanks to an implant.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany

GaussRifle

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Re: I have to accept that my penis is damaged and non functional
« Reply #48 on: January 28, 2022, 11:56:58 PM »

Torsten, pthis is nit the graft you are thinking about. We are talking about extra tunical grafting, not plaque infusion/excision grafting. This procedure doesn’t cause Erectile Dysfunction at all because your existing tunica is not touched at all. They just add the layer on top of the defect to thicken it up,this incorporates with your natural tunica over time and gives you more stability. This is Avery recent procedure that began being used first in 2018 and it has been catching on since, due to not effecting erection quality at all.
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26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Torsten64

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Re: I have to accept that my penis is damaged and non functional
« Reply #49 on: January 29, 2022, 02:29:01 PM »

Gaussrifle, the extra tunica grafting technique must not have been the one Dr. Lue was talking to me about, because that was 2015 and you said this technique came out in 2018. But I saw him again in early 2020 and he didn’t mention this newer technique. If it never caused Erectile Dysfunction, I think he would have mentioned it. Hard to say. He just said Xiaflex and traction.  I’ll have to research the extra tunica grafting technique. Thanks for pointing this out.
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63, Peyroines since 2014, no Erectile Dysfunction, lost relationship over it. Tried Pentox, did nothing. Don’t think traction will work. Lost length, bend upward maybe 30 degrees. From Jever, Germany
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