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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: How to deal with timelife pain?  (Read 857 times)

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Jack1909

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How to deal with timelife pain?
« on: November 04, 2021, 07:47:15 AM »

No way around it, pain comes and goes and there is no way to prevent it. Plaque, or whatever it came from surgery, pushing against a nerves, maybe some of them entangling..well, I realized I'll be having pain all my life. Bad time, struggling to do things but what gets me most ttroubles is having a shower, and also dressing is complicated. Funny things some moments I dont'have pain at all, even for weeks, and some I have pain 24h basically..options are less than suboptimal..

well, just ventig out not even a propositive thread
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31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe Erectile Dysfunction after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works

SerenityPrayer

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Re: How to deal with timelife pain?
« Reply #1 on: November 20, 2021, 10:00:59 PM »

Hi Jack,

Re: "Funny things some moments I don't have pain at all, even for weeks, and some I have pain 24h basically."

Do you notice the times of lower pain or increased pain are correlated with anything in your life? Times of stress, times of relaxation? Times of high physical activity versus lower physical activity? Or is it just random?

I've noticed the "good days" and "bad days" thing for me too. I'm trying to unlock this mystery.
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45 y/o, married, Peyronie's started Oct 2019, flaccid: pain/discomfort, erect: sensitive and some pain, flaccid: slight bend/dent on left side, erect: no bending (yet), took ibuprofen and tylenol for pain, searching for treatments to reduce pain

orriw

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Re: How to deal with timelife pain?
« Reply #2 on: December 05, 2021, 08:35:35 AM »

Hello SerenityPrayer this is a very good approach and i am trying the same. As for Jack: Unfortunetely he never respons to his own topics. So we have to guess.
But i refuse to think it's all just in our head the pain, there can also be still a source. Only 1/4 of all chronic pain is neuropathic. For my case, which is not Peyronies Disease, but rather an injury to the Penis or maybe ligaments, i will persuade my doctor to do an MRI of the pelvic, of the penis, i wan't everything checked. There will be some small damage that can be seen and i will have that surgery. At my own risk. But i will not give up so quick!
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25y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

Christopher1

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Re: How to deal with timelife pain?
« Reply #3 on: January 19, 2022, 08:32:39 PM »

For neuropathic pain, you can try gabapentin or Lyrica.

Or alpha lipoic acid, which is natural. It would have to be higher doses though.
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Snake Diet + 5-day fasts + pentox + NeoV's stretching routine. Curvature 99% gone.

I also used Todd Capistrant's "Fascial Distortion Model" to help my curvature. Start slowly.

SerenityPrayer

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Re: How to deal with timelife pain?
« Reply #4 on: January 21, 2022, 09:38:03 PM »

Yes, I saw a new doc today who prescribed gabapentin. So it's good to hear your suggestion. It helps give me some confidence. We'll see how it works out. Cheers.
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45 y/o, married, Peyronie's started Oct 2019, flaccid: pain/discomfort, erect: sensitive and some pain, flaccid: slight bend/dent on left side, erect: no bending (yet), took ibuprofen and tylenol for pain, searching for treatments to reduce pain

MarkDS

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Re: How to deal with timelife pain?
« Reply #5 on: January 22, 2022, 09:17:25 AM »

I’m the same.  Sometime and go a few weeks without much discomfort, and then I can go a long time with dull pain, tingling and burning.

It does seem worse in times of stress,  it may be that the pain causes the stress…I’ve not figured it out yet 😕
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49 yrs old, Married
Peyronie’s started 2016
Upward curve of 100 degrees  
Incision/grafting surgery in 6/2019.  Resulted in loss of length of around 1.5 inches, residual curve of over 40 degrees, some Erectile Dysfunction
12/2019 had failed skin anchoring procedure

orriw

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Re: How to deal with timelife pain?
« Reply #6 on: March 09, 2022, 02:26:59 PM »

Yes, I saw a new doc today who prescribed gabapentin. So it's good to hear your suggestion. It helps give me some confidence. We'll see how it works out. Cheers.

Hello SerenityPrayer how is your Gabapentin treatment going? I 've just finished 3 months of Pregabalin and unfortunately no benefits for my pain.
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25y, injured at 21 :/

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now
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