How much did your live change since you got Peroynes?

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Bud luck

Since I got Peroynes I became obsessive with my penis shape, I'm constantly thinking about what can I do to get better, angry at myself for getting Trimix injections when I didn't really need them( Trimix caused this disease). I don't enjoy sex with my girlfriend as much as before the Peyronies. On the other hand, this disease made me a stronger person, focusing more in my inner self. The hardest part for me, is the loss of volume, my indentation is deep and makes my penis narrower. For the guys that just have a slight curve without losing any girth or length won't probably as hard, but losing girth is devastating 😢.  I still can have erections, but it takes little longer than before.
So, the question are for all of you:
1. Do you feel angry, depressed, anxious, hopeless?
2. If you are in a relationship, how Peroynes did affect the relationship?
3. Did you become stronger mentally or weaker, or the same?
4. Which therapies did you try to correct Peroynes? did they work or didn't? (Peyronies treatments have NOTHING to do with the psychology board - Administrator)

I find therapeutic to share my thoughts with other people with the same condition, we all share the same condition
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Sayedd087

I have the same problem as you , and I am younger than you only 21 guy who never have sex in his life imagine that
I lost a lot of my length and girth and can't live with myself very painful life
Replace this text with critical info about your case
such as age
first symptoms (deformity, Erectile Dysfunction)
official diagnosis
treatments tried
relationship status
Etc

Ehiz

Same here. 23 and never had sex. Just wondering what I did to deserve this disease. Lost so much length and girth with worsening curvature.

I get that it may be possible to still have sex and find women who will love you. But how am I supposed to reveal my disfigured penis to a woman for the first time ever all while dealing with the insecurity of being a virgin?

This just doesn't make any sense.  
20s
Year of Onset - 2012
Bend to the left and downward with pain. Suspected erectile dysfunction.
Currently on coq10 and acetyl l carnitine.
Have limited access to good doctors in my country.

Asphyxia

I have a slight curvature with no loss of girth or length but with pain yet its affecting me much more than people here would probably expect which is understandable

I was depressed before peyronies began but now its worse but different, i never would imagine that while being in a worse situation and feeling even more hopeless i could try to fight even harder.
I was trying to keep healthy before, but now im like an obsessive naturopath wannabe hoping for the best, expecting the worst and ignoring my thoughts in the process

Im not in a relationship and i was never too interested in a repationship but now it feels like an unachievable dream that is desired and undesired at the same time, probably because peyronies lowered my confidence and im scared to use my penis.

I would say i became more detached as in feeling of depersonalization which probably means im stronger and weaker at the same time, supressed emotions enable me to carry on with my mission, but at the same time they are buried and arent dealt with, which is probably why im having scary dreams of suicide and death, it happens during the day too but that was something i was used to, but sleep definitely became a thing that i dread aswell
In general i feel like a robot with a certain task, but nothing is enjoyable or desirable and if i find myself daydreaming of my problems being solved and my life going back to normal im usually frustrated at the distance between what the current reality is and what i wish it would be like.

admittedly i encourage the supression of my emotions, been vaping weed for the first 6 months 24/7, now vaping nicotine
Which is the biggest vice i currently allow myself in order to not lose my mind

I guess another reason why its so debilitating is that i cant engange in hobbies either, atleast not for now while im in pain, plus my dick is attached to this device most of the day so id rather not do anything but stand, walk, sit or lay, it gives a feeling of being trapped in your own body which promotes the feeling of being trapped in my own mind.

Most of my anxiety is around being in the active phase and just how much longer will it last, how much worse will it get, will i get another flare-up after i enter stable phase, will i be able to ever use my dick the way i want to use it and not only in a way that i can use it,
i couldnt possibly know the answers until time will tell, so like most people i try to think of what im currently able to do and i try to think less of what i ought to be doing, it puts too much pressure on me to strive for a lifestyle that will eventually leave me weary and burned out from being too proactive, goal oriented and dissapointed when my efforts dont pay off.



I recently became reluctant to share my feelings too much in this forum for some reason, probably because im sounding like a broken record with not much positivity to share, and im not really understanding the rules of this board thoroughly even though i tried to,  but you asked it so i hope it helps.
Age:23. Onset of symptoms: september 2020.
Curve mostly semi erect about 60 degrees, slight pain
Tried short & prolonged fasts, keto,carnivore, traction and most of the supplements.
Severe digestive issues, probably an autoimmune disorder

Bud luck

Asphyxia sharing your thoughts helps you and helps me, peroynes is something hard to share with people that don't have it
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Asphyxia

It definitely helps me and im glad it helps you too, it is indeed hard to share with those who dont have it, i still keep it a secret.

I did it to myself and its kind of shameful and also its not a conventional or appropriate topic to discuss with family members
Especially when i want to guard them from feeling my pain

Its kind of funny and sad how im scared that someone will walk in my room and find all these therapy devices  ::)

Age:23. Onset of symptoms: september 2020.
Curve mostly semi erect about 60 degrees, slight pain
Tried short & prolonged fasts, keto,carnivore, traction and most of the supplements.
Severe digestive issues, probably an autoimmune disorder

Tobyg

Will there be a solution for the next 5 years? I cannot project anything, my case is getting worse little by little, and the symptoms are unbearable to try to "live" today.
I see that there are studies in different places, but at the same time I think they will not solve it in time.
I have just improved my pelvic floor, just doing some contractions with the anus, I feel better but I am never satisfied, the fibrosis in the penis is very annoying
32 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.
Frequent urination.

gobbler

i was depressed before peyronies but it was a game changer. it completely dismantled my ideas about sex and dating and for the longest time I was certain I would commit suicide before 30. I am not suicidal anymore but I am definitely extremely angry and upset about this, nobody should have to suffer this a nonsensical condition and not even get proper support by so called experts. this will be a part of me for my entire life, whether peyronies keeps improving or not(I highly doubt it will). I now despise anything sexual, when ever I come into contact with the topic I have to be careful not to get carried away by automatic thoughts that would destroy me if I let them. I have gotten better at doing this but I hate it just as much if not more as I did 2 years ago when I got the first indentation.

i do fundamentally believe that among many other things, peyroneis has sealed the death sentence for my dating and sex life, when I look at my dick I feel shame and disgust, I cannot experience sexual pleasure anymore. last time I could enjoy masturbation is almost 2 years ago. it really affected my mental health in a major way but it also pushed me over the edge and I realized that I need to change and get help and make changes myself or I will in fact kill myself, I thought about that a lot but I would not consider it anymore.

so in some way you could say it has done something positive for me(getting help) however that I would not really agree with, I could have gotten help anyway down the line and then id not have a dysfunctional penis right now and it would have spared me from so much suffering. when I think back at those nights I get physically sick, I can feel it in my stomach. I realize that it is my responsibility to get things in order in my life, nobody will save me if not for myself. am I still depressed? oh yes. but I am still on a process, its a long way towards healing. a long long way.

but I am not fine. its not like most people know about this though so outside I am just a lazy young college student who has few friends. most people would not understand this and even if, who would want anyone to know this? so I just eat it up, I hang with people and they think I feel good but inside there is massive tension and desperation.

i once was obsessed with sex, nowadays I just do not want to be alone and find someone who actually cares and likes me. I have quite numbed down on this. but I am not in a position right now to get this, not everyone is equal and some just do not deserve this in life even though society loves to do lip service on this one and good feel talk is their bread and butter. whatever
diagnosed with peyronies disease in Feb. 2020
mid 20
tried VED without much success, Cialis and potaba
single

Hawk

Quote from: gobbler on January 07, 2022, 12:28:50 PM
I once was obsessed with sex, nowadays I just do not want to be alone and find someone who actually cares and likes me.

That is the most important sentence in your post. That IS a positive result. You are NOT troubled, and your life has NOT changed because of Peyronies Disease. It has changed because of what you think about Peyronies Disease. If you felt, "I still have a lot to offer, AND I will perfect other aspects of my attractiveness better than any other guy. I will be the one to understand what women really seek and provide it." --> THEN your attitude, mental health, happiness, social life would be entirely different.

So the question is, when will you work on your mind that is tricking you into choosing the miserable path when a much brighter path lies right in front of you. How will you go about controlling your thoughts rather than have random, compulsive, or ruminating thoughts control your life? You deserve happiness. your lack of happiness has much more to do with your mind than with your penis.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

deliverance

Quote from: Bud luck on October 08, 2021, 12:47:00 PM

1. Do you feel angry, depressed, anxious, hopeless?
2. If you are in a relationship, how Peroynes did affect the relationship?
3. Did you become stronger mentally or weaker, or the same?


1. I'm 30, had Peyronies for 5 years and a plication surgery 3 years ago, that was about 50% successful. I have gone through most of those emotions, not depressed in that way but very, very worried at times, especially shortly after the surgery. Most of all i've been angry. Nowadays i can channel it to different creative outlets but i think it will be with be for the rest of my life, and i'm OK with that.

2. I was in a relationship for 4 of those first years. The relationship took a huge blow due to my general well being during the period before and after the surgeries (that were extremely problematic for several reasons). I'd say the relationship (that was 7 years long) most definitely pushed towards the end faster because of how i changed mentally during this period.

3. Both. I've become much stronger mentally in the way that, how much worse can it get? It is what it is. BUT, i've also lost alot of confidence becoming single and having a slaughtered dick.

Bud luck

I just want to thank Hawk for creating this Forum, Thank you Hawk  
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Sonic

Personally I've taken it really bad. I was only 27 when I got it. My erections was one of few things about my body i was really happy with. Could get super hard really fast with very solid rigidity and also it was really stable when penetrating. Now I have problems with eq although it's getting better but the instability due to my narrowing is a plague. Problem with this disease is the instability that narrowing causes so that even for me with a mild 20 degree right curve sex has become very bothersome.

A mildly curved penis in itself is not that troubling but a laterally curved penis with scar tissue in it causes your dick to bend each time you penerate which is a big risk factor for further trauma. This causes psycholocial issues where you keep being anxious about it and this anxiousnes leads to stress which very likely leads to worsening of the disease.

This is why I have a theory that so many of us become worse even after entering the stable phase because the constant stress and worrying just makes the disease progress and become worse.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.