I feel demotivated using my VED after reading what Dr Trost had to say about it

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porterrobinson

I was very hopeful about using the VED but it just made sense to me, my main problem is not curvature which is very minimal and would in itself not bother me at all, it is the indentation and one sided hourglassing and loss of girth in that area that is extremely bothersome and gives me penis an instability but it also just feels overall much less enjoyable to use my dick. it made sense that the negative pressure of the vacuum pump pulls out the affectes tissue restoring girth.

based on Dr Trost however someone who has probably seen it all it does not work very well for this kind of deformity at all. nothing seems to. for curves there is injections, surgery, traction. what is there dor wasting and hour glassing? i cannot even get surgery because nobody would operate on me as theyd need to do a grafting surgery which is high risk low quality outcome.

has anyone seen any results with the ved? please tell me about it. I am particularly(only actually) interested in anecdotes on indentations and hourglass deformities. i am scared there is nothing i can do to imrpove this condition
single, mid 20
diagnosed early 2020
indentation 20 degree bent to left, recurrence with new indentation below glans
tried vacuum device with no success

Bud luck

My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Bud luck

My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

porterrobinson

I want to recover the lost girth. nobody would ever do an implant in my case as it is not severe enough and also i am too young and have no erectile dysfunction. i am looking for other solutions
single, mid 20
diagnosed early 2020
indentation 20 degree bent to left, recurrence with new indentation below glans
tried vacuum device with no success

Bud luck

There is a member on this forum that he achieved to fix his hourglass and dents with manual traction, I don't know, I'm been doing traction and doesn't seem to work for me, maybe would work for you
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Kobegianna

I am in exactly the same boat as you. I also talked to Dr Trost and I agree with him. I honestly just tried ved and traction because what else can you do? but I truly believe at least for wasting and Hourglassing ved and traction will do nothing. I stopped completely I do not want to injury myself more or cause more damage. there's just now way that ved is causing enough stretch to do anything to ""pop" out an indentation or stretch out the hourglassing
34 yrs Old, Healthy very active
Possibly injured penis or took too much Cialis
Symptoms starting January-February 2021
First dent seen April 4, 2021, painful erections

Hawk

Dr. Levine did a small study, years back, in which traction was reported to help hourglass deformity although I am not sure how strictly it was conducted or how objective it was.  Also, I think there is some success with the 3 cylinder VED from Agusta with hourglass deformity.

All of this however has NOTHING to do with ED ant this board is "VED's, Rings, Devices to Treat Erectile Dysfunction".  This post will be moved to the Peyronies Disease treatment area
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

jj21

I'm not sure what you mean by "wasting" - narrowing ?

I do know about a year or two back I had dents and hinges - using VED for 2-3 months definitely increased girth, ED and curvature. (Unfortunately I overpumped and damages further which set me back years.

Every case is individual and I just know a lot of users (including myself ) have found success from VED usage. Others prefer traction.

Hopefully that may give you some hope. I know how hard it can be thinking nothing will cure you.  
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Nolte94

Never give up!

Many urologist said to me, that only surgery could bring me my "old penis" back, but PTT reduced my curvature from ~45° to ~10° and the daily pain has gone.

Your problem with hourglassing and instability could be improved with traction, too. But you have to give it more than 1 try. Continuity and patience are very strong skills to fight against Peyronies Disease. In my case, VED was only a little extra, because I think, that traction with lower tension over a longer time combined with the natural cell renewal is the best treatment without higher risks.
26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Bud luck

Well, I just talked to an Urologist that told me that he recommended VED for fibrosis not traction, traction is recommended for a curve but not for fibrosis that causes hourglass/narrowing/dent. I don't have plaque. I have fibrosis and he told me that the VED won't get rid of the fibrosis but at least will keep the blood flow to maintain good erections, but he is against traction. Well, every Urologist think differently on what to do for our condition.
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

pey ron

@Bud Luck: mind sharing who is the urologist that recommended VED?
Please go to PROFILE then FORUM PROFILE to replace this signature line text with your profile info such as
age, date of onset, symptoms, treatments tried,
relationship status, etc
** You will waste less time and get better answers **

Bud luck

Is an Italian urologist that works in Barcelona, Spain. The Doctor name is Nicola Tartaglia, he is considered one of the  best in Spain  
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

James884

God there's so many of us with this flaccid hourglassing fibrosis. I genuinely feel so much empathy for all of us. I know the pain you all feel.
37 year old
Penile fracture 2018 - Not a lot of problems
A year later priapism due to prescription drugs. The priapism exacerbated the original fracture site/scar. Now I've got a constant dull pain when flaccid

Sonic

Quote from: James884 on September 19, 2022, 09:04:40 AM
God there's so many of us with this flaccid hourglassing fibrosis. I genuinely feel so much empathy for all of us. I know the pain you all feel.

If the hour glassing goes away when erect there's nothing to worry about. Maybe I misunderstood your message, it sounds like only flaccid issues? If hour glassing is there while erect then yes it's a very hard condition to treat. I have it myself dent. I've read guys who has had the mildest dents/hourglassing problems you could imagine and still ended up needing implants.

I think specifically for people who already suffered depression once you get this disease it intensifies drastically.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Bud luck

My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46