Hinge effect/weak points/intercourse

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Lostandsad

For those who've had the hinge effect/hinge points/weak points on their penis and has improved them over time through traction or VED, how long did it take for you to comfortably have penetrative sex again?

I feel that these hinge points make my penis feel like it's in sections. That there's no structural support in those areas, sort of a bit hollow compared to other parts in a sense? When it's flaccid, it's kind of too elastic, in a bad way.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

markdubby

i havent had sex yet, but out of my 3 scars, two have healed pretty well with continued traction using the PMP. i had a floppy glans but this is improving by the month to what it used to be. i assume depending on your routine, the scars eventually get softer and more malleable, and dont impede blood flow and tunical expansion during erection leading to a fix of the deformities
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
10 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PM

Lostandsad

Thanks for the reply mark. Floppy glans is a pretty accurate description of what's occurring. Can you describe the way it is improving? When you feel the area where the hinge point is, does it feel like it has more substance? Does the tissue feel thicker?  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

Nolte94

26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
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Only 5-10° left 🥳

nemo

Have you researched extra corporal grafting, specifically with Dr. Christine?  This seems to have a lot of promise insofar as "filling in" indentations and making them structurally sound.

I've been looking into it myself should my indentation progress. It's, comparatively, much less invasive than an implant, and you're not giving up any natural erection ability (assuming your erections are still good).

Just a thought,
nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Lostandsad

Quote from: Nolte94 on September 16, 2021, 10:24:31 AM
4 months

Hey Nolte, how bad was your hinging? Was there pain/soreness when you touched the area?

Quote from: nemo on September 16, 2021, 10:36:42 AM
Have you researched extra corporal grafting, specifically with Dr. Christine?  This seems to have a lot of promise insofar as "filling in" indentations and making them structurally sound.

I have not looked into that surgery. Is that the same as excision and grafting, which comes with the risk of Erectile Dysfunction? If it is, I'd rather not risk that and go for the implant if I go the surgery route.

When erect it's not visibly an indent, hopefully it doesn't get to that point. Semi erect and flaccid I can notice it more, especially when I press against it with my fingers. It will press in and cause it to hinge, and it's sore. Man I hate this disease.

MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

Shane43

Hi loastandsad, I reposting a response i had on another thread that may be of help. My hinging only happens when i am erect.


Extra Tunical Grafting (ETG) is not the same as partial excision and grafting (PEG) and ETG is much less invasive and I recommend others to seriously consider it for that reason, and also if you have a weak erection because there is greater risk of Erectile Dysfunction problems post PEG surgery. I have a very strong erection, so Dr. Levine said that fact, along with the severe indentation and large (1.5 inch x 0.5 inch) calcified plague at the base and top (dorsal) of my penis makes me a good candidate for PEG. He thinks the excision of the large plaque at the surface of the dorsal base will be easier than most excisions and necessary to allow the graft to reform well. Of course, each doctor has their preferred methods given their own personal training/experience, and Dr. Levine is a world renown expert at PEG, so naturally he would lean toward that procedure. I did ask him about ETG and he said that it is a viable option, but he worried that the large plague I have would inhibit reformation of the tissue and that it's location is almost ideal for removal (excision). Dr. Levine told me he has never had a patient (out of thousands) with an erection as strong as mine suffer any Erectile Dysfunction problems after PEG and since my excision should be straightforward (dorsal and at the base) he is not concerned about Erectile Dysfunction with me. I am still nervous as hell and not yet 100% I will go through with it. Will wait 6 months using PMP and see what he says then.
62YO, hourglass indent/hinging at base 30deg bend up 3cmx2cm hard plaque at dorsal base. No ED. 3 rounds Xiaflex decreased plaque/indent/hinge/bend. 1 year later, penis went from 7.5 to 5.5 in, but only 15 degree bend and no hinging.

Lostandsad

Thank you Shane, that was very informative. I'm in the same boat as you, I just got started with PMP traction so I will wait and see if that improves my case at all first. I got my VED too, hope that helps as well.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

nemo

Yeah, ETG is nothing like excision and grafting, it's basically taking a piece of graft material (bovine, cadaver, etc.) and overlaying you're existing tunica. Supposedly, you can fill the indentation, and your tunica attaches to the graft material, making it quite strong and visually straight. I believe Dr. Leu pioneered the procedure.

Check out benjamin62's posts on the procedure. He had it done with Dr. Christine and is quite happy.

nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

markdubby

Quote from: Lostandsad on September 15, 2021, 05:00:25 PM
Thanks for the reply mark. Floppy glans is a pretty accurate description of what's occurring. Can you describe the way it is improving? When you feel the area where the hinge point is, does it feel like it has more substance? Does the tissue feel thicker?

quite simply with traction the scars start by getting softer at first, and then slowly breaking up and becoming smaller (at least they have in my case). as this happens it seems that the elasticity of the penis goes back to what it once was (almost).

due to the last scar i have its quite difficult to gauge the overall shape of everything, but my first plaque, which was also the largest one, is barely feelable by hand.

I first noticed it in february and pretty much now it's gone. same thing is happening to the second one and i hope will happen to the third!
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
10 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PM

Lostandsad

That's great news for you man, and thanks for the explanation. What's your PMP routine like? 6-8 hours a day is pretty hardcore. I put in 4-5 hours myself today. I'm gonna try to do another 2-3 before I sleep.

And thank you nemo, I should consider it if things don't get better, but knowing myself, I'll probably still head straight to the implant route.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

markdubby

i try to at least get 4 hours a day. when i manage i get 6 hours in and maybe 1-2 days a week i get more than 6. i stopped logging everything so can't tell for certain, but consitency is key. it takes a while to see results but in my case they happen all of a sudden (rather than gradually).

give it a go for 6 months and see how it goes, by then you will know if things work or don't!
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
10 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PM

Lostandsad

Do you use the rod extender? Or the belt? The extender pushes down on my urethra when I lay down and do a straight up stretch, pretty bothersome for me.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

markdubby

yeah rod extender. you get used to it! make sure you lube the bottom part and your ballsack as well to avoid chafing the skin (which is what i'm going through now, very painful  :'()
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
10 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PM