Why do they offer so many types of surgery’s?

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Curvekiller94

I don't understand the way doctors treat this. I also don't understand  the types of surgeries that are offered. It seems like most of them are extremely high risk to patient satisfaction.

I'm not a doctor but after dealing with this for a year. I would say this to my patients that have Peyronies(espically under 40).

You  can try traction now. But I would wait for your initial pain to die down. Then start traction. In the mean time take daily cialis and pentox to keep healthy erections.

Once feeling better start with low tension pmp 4-6 hours per day for a few months

If that doesn't work then restorex

Then if that is still not working, say hey you could deal with this stuff or you could get an implant and never deal with this again.

You will need a surgery every 10 years but all the patients are extremely satisfied with it and it will bring back options to the bedroom for you  that you've been deprived of.

I understand it's probably not what you exactly want, but even if you took the lowest satisfaction revision number (example revision 5 seems to be the most risky) it is still wayyy less risky than grafting, plication, or pretty much any other surgery for this.


In my opinion it would eliminate a ton of stress from young people if the doctors just gave them a clear path.  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Benraycamp0

I don't think you can make a generalized statement like that.

I think everything you said makes sense up until the part that an implant is right for everyone. Each Peyronie's Disease case is different from another. In some cases, excision and grafting or plication (at the hands of a top surgeon) makes way more sense than an implant.

The right approach is that after all conservative treatments are tried, go and consult with top surgeons and discuss options. For example, if two top surgeons are convinced they can fix you up with grafting or plication, it might be worth it.
26 years old. 20 degree upward curve with slight clockwise twist. Symptoms onset Dec 20.
Dr. Levine says it's not Peyronie's Disease but a slow healing wound. Saw him Mar 21 and May 21.
Traction (PMP) and supplements per Dr. Levine's recommendation.

Curvekiller94

I didn't say it was right for everyone. But for younger patients doctors always wanna do grafting or plication. I think that's pretty silly given there satisfaction rates and the amount that young dudes like to bang
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Curvekiller94

I just think it's Wrong that you qualify for that they want you to have Ed. When it's one of the only surgeries that actually gives you ability back. Not that the other ones can't. But this one would make some things better than they ever were. And mentally I think it is much less of an impact on a man knowing after he has been injured that he is reinforced. Not maybe could be reinforced.  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Mikel7

You must realize that each Dr has their own protocol for treating a man with peyronies.  Insurance companies dicktate (pun) when and what kind of surgeries are covered or not. I saw 4 separate heart surgeons who had 4 different forms of treatment. Each Dr was governed by my insurance company saying I must use these heart drugs first before they would even consider covering my heart surgery.

Peyronies Dr's who have success with their patients stay with their protocol.  I am sure they each have a formula in determining which kind of surgery is needed if any.  Insurance also plays into this I'm sure.

I do not see getting an implant as a kind of last resort.  I see it as a successful option for a patient that fits the criteria for one.  My heart Dr said I only needed a specific kind of  surgery for now.  If my heart fails the annual tests he gives me then we go to the next level of surgery. I don't see that as a failure.

Peyronies clearly affects our penises but I am under the assumption that it can affect our psyche more negatively than one realizes and how we deal with that is how we can overcome it.

Also I believe that old guys like to bang a lot too.



Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Curvekiller94

For sure that makes sense. I guess if it's not broke don't fix it lol.


Yeah true people in general like to bang.  the problem is implants aren't recommended for young patients for some reason. And it makes me hesitant to want to get one.

But even several revisions down the road is a safer surgery than grafting in my opinion that is based on patient satisfaction rates. And it's the only thing that can almost garuntee you get your functionality back. For people that have many more years of  life etc. it would be a huge mental weight lifted if the doc would suggest an implant (just to let the patient know there are near cures obviously with downsides. But as far as getting finctionality and even size back it seems like the safest route to go. Every surgeon who does grafting says it won't feel like your pre peyronie penis. But I've heard many implant people say the opposite once they've gotten used to it.  . Sure I'd have to adjust to pumping up but I think if it wasn't looked at as a last resort and more of the common treatment it would be way easier just to suck it up and get one.


The only reason I am waiting is to make enough money too lol. I'm a working engineering  student I have other health problems too and it's BS that it's not a suggested treatment because my Heathcare doesn't cover it. It's especially bs because such a few percentage of people actually have this that you would think health care would cover the implant just for Peyronies not ed. Not to mention no good dick docs in Wisconsin.
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Lostandsad

I understand where you're coming from, but damn bro, you should give yourself more time to see if it gets better, no? I have similar symptoms to you and almost the same scar/plaque location(on the left base, where my scrotum meets my penis) and I'm only over a month in.

Having an implant suggested so early makes me lose hope that I can even beat this thing. I also think it's a huge mental struggle for young guys like us... well I know for me personally I don't even want to think about an implant right now.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

GaussRifle

There is varying opinion. But if you look ar Dr. Trost protocol he follows, he mentions if you have peyronies with Erectile Dysfunction, an implant is the recommended choice these days. If you have indentation/hourglassing or a severe bend...none of these can be treated with plication... only grafting or am implant. Grafting will  likely reduce erection hardness if not cause complete Erectile Dysfunction. I have read very good reports on Bucol Mucosa Grafts though. Also... for grafting they report Erectile Dysfunction rates after taking pdie5 inhibitors..  which seems to be that you'll be stuck with cialis or viagra basically lifelong if you get grafting done. What are the remaining alternatives... an implant? Also, the top implant specialist from Mayo. DR. kohler has mentioned on Mayo podcast that most pdei5 inhibitors only work well the first 5 years... after which the body doesn't respond as well to them.


Old dudes like to bang too... but do they like to bang as often as a guy in their 20s... . I think not.  Would you rather have a geat working dick that won't let you down pre 50s or post 50s if you had to pick one.  
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

GaussRifle

Lostandsad... let me be clear. There is no beating this thing. Fibrosis cannot be reversed completely based on current medicine. Best case scenario is to get a penis in working order good enough for satisfying sex. That is what doctors define as success. There is absolutely nothing that will make your penis exactly like pre peyronies... my doctor made that clear to me on the very first meeting.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Lostandsad

Glad I don't have bad Erectile Dysfunction at the moment, I'd have to agree that an implant seems best for those with severe Erectile Dysfunction + peyronie's. And yeah you're right... not being able to reverse fibrosis and getting our penis back... that's the depressing truth of all this. I still can't give up just yet though. I'm hoping everything I'm doing at least slows it down and I can get into a long term chronic phase with no pain or changes to the curve.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

Curvekiller94

For sure man it's good to wait. In fact one of the best surgeons in the world Dr. Eid has his patients wait 18months before surgery.

For me it is a way to keep moving forward. the implant isn't giving up it's just a solution so I won't have to think about this anymore. Our friend "Torto" from Brazil had his surgery and at first it sounds hard. But ever since his last sex session he hasn't even logged back in because it was so good lol.

Sex used to be a wonderful way for me to blow off steam during high stress, relax,  and connect with my gf.  I don't want to end my 20's with a dick I can't do much with and is uncomfortable. I'm tired of worrying all the time after sex like am I sore because of sex or is my peyronies getting worse.


These are only  my opinions but I think it is a better option for me. Im almost positive if I don't I will have another injury and end up shorter and needing one anyways. Might as well just nip it in the bud as the saying goes.



in short I want to not worry about my errections, not worry about injury from non risky sex, not do traction, and not worry if I can do a position of not, and I really miss having girl on top.

Those are my reasons  


28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Lostandsad

I respect that. I'm the same as you, sex is a great way to relieve stress, and being able to freely masturbate or have sex really f's with you mentally. Those are all very valid reasons, especially worrying about positions... that's the worst.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

GaussRifle

Worth a consultation by a top specialist... just go speak and listen to what they have to say.
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

Curvekiller94

Oh yeah totally. I'm not just going to dive in but if I can't do what I want to sexually I will just get an implant then I won't have to deal with it. At least I know I won't shrink or break. I'm still far out from those 18months. So I have a lot of waiting to do. I was thinking of starting traction again I've just been so busy lately it's been hard to.  
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Curvekiller94

The reason I posted it is because even when it looks like all hope is lost you can still regain functionality and maybe even be better off in some categories than you were before. With good surgeons and implants it does mean we don't have to alter our sex lives.  if enough time passes and the problem isn't fixed I don't see why you would not get implanted. I think it should be more encouraged for younger patients. I can't guarantee I will even live to 60 or 70 or 80. But I can agree I want to F~@< and mastubrate ASAP without care.
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Curvekiller94

I don't think girls mind the implant thing anyways. I told my gf and she thought it was hot that I wouldn't have to take a break
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Lostandsad

Typo in my other post. Meant to write "not being able to"**

If all else fails in a couple years, I'll probably go see Dr. Eid about an implant. Hopefully he's still doing them by then
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

dontgiveup2021

Quote from: Curvekiller94 on September 05, 2021, 04:39:13 PM
I don't think girls mind the implant thing anyways. I told my gf and she thought it was hot that I wouldn't have to take a break

How does the sensation with an implant is? I didnt read many things about implants... but the succes rate of the implants combined with the fact that you stay strong as long as you want sounds encouraging... i am just curious about sensation? Will it be the same ? are you actually feeling pleasure and stimulation in your penis?
23 years old
Injured my penis 7th March 2021
2 lumps on each side of the penis, one at the base , the other on the top of the penis. Curved Penis. ED since before injury( probably psychological)
Currently taking arginine, carnitine, pine bark, cq10

Curvekiller94

Apparently that is the same. I will be having a teleconference with Dr Eid to discuss further matters.

//****dr. Eids reply
Thank you for your email.
I recommend a Telemedicine consultation. Please take pictures of the erect penis and send them to me before the consultation. Indeed an implant may very well be your best option at this point. We will discuss. If interested please contact janice@urologicalcare.com for additional information and scheduling.
//****
28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Mikel7

Keep us posted on your consult.  Remember make a list of questions for the Dr.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Curvekiller94

My telemedicine appointment is set up for Oct. 14th with doctor EID at 4 pm.

To me this is even more evidence that I should most likely just get an implant. It also makes me wonder why it isn't a more common practice to have an implant in younger patients to prevent further injury to install implant. I may be able to live with how I am now provided there are no further set backs. But considering the instability and the pain I get post sex and post masturbation I have a feeling I will have another flare up as I constantly have mini flare ups. I can handle another large flare up so I really would like an implant.  There is a memeber TDIX who wishes he would've gotten his implant sooner as well as a few others that say I shouldve skipped the Xiaflex or penile shots and just got the implant but it wasnt offered. I think they should be offered over risky shots foshhooo

"
-   I agree that Peyronies Disease is uncommon in younger men.
-   I don't mean to be discouraging at all with this comment, but in my experience, those who do get it in their teens, 20's, or 30's tend to experience a worse condition overall (unfortunately).  Younger men who truly have Peyronies Disease tend to get more distinct areas of disease (i.e. new diseased areas, new reactivation), worsened hourglass / indents, more length loss, etc.  My theory on this is that it likely is a more severe genetic variation in these men.  The same thing happens with many cancers as well.  Those who get various cancers at a younger age often have more severe genetic abnormalities in cancers which are genetically linked (which is why they get it at a younger age). "

28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Mikel7

This is a very good thing that you are doing!  You are being proactive. Now I want to tell you to get out a notebook with clean paper and start writing your questions down for the DR.  Each day you may come up with a different question or you are wondering about something else - write that in your notebook and you will get a clear picture of your thoughts.  On the day of your appointment you will have everything you need answered there.  I have done this more times that I can remember.  Good success!!
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Curvekiller94

Sorry for the delay on my reply thank you for the praise Mike.

I just had my appointment with dr. Eid. Things went pretty well it was a web appointment I paid the 285 bucks outta pocket.

He thought the implant was a good route to go for me. He said I still have some homework to do but thinks it would fix majority of my problems if not all.

For pain - he said he isn't sure why but an implant generally fixes Peyronies pain

For stability - the implant  would fix my lack of stability

Curvature - I will most likely not be completely straight but much straighter than I am now and way more sturdy

For my indent/hour glassing - he said it may or may not fix this over time it may be able to expand it, but isn't a garuntee because my indent is so close to the base

My age - im 27 years old As far as for being young he said that isn't an issue and has patients that are as young as 17. He said having multiple revisions isn't an issue. He also said there wasn't an increase in risk for me being young. I still need to wait another 8 months or so before he will be willing to do surgery.

It is a lot to think about, but so far no doctor has offered me any real solutions to this problem besides him. He was understanding and really listened to what I had to say.


28 y/o
sex injury - gradually got worse
Hard flaccid, Indentation bottom left close to my body,  mild twist left
28° up 28° Left
official diagnosed @26 peyronies w/pain
Pentox, cialis, NSAID, tramadol(as needed)
Sciatic  pain radiates penis to foo

Mikel7

That is awesome news!  I can say that you should be feeling pretty good about your appointment with him.  He is a highly respected surgeon with an excellent patient bedside manor. These 2 qualities are very hard to find in a Dr.  He is being honest with you. Sit back and re-digest your conversation you had with him.  I think he gave you great advice and you should heed it.  
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)