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Wilson

Hi, Dears. I don't know what to say. I was born in a wonderful nickelodeon era after the collapse of the stupid cursed prison called "Soviet Union" similar like in the Anna Movie. So, I was growing in computer era and was very happy that I was born during Nickelodeon - Fox Kids TV understanding that most soviet people didn't have such interesting things to do at that time living like in a medieval ages. I had a wonderful childhood, then a wonderful school times came to my life, where most my mates loved me. Moreover, since childhood I thought that God always protects me and I will be forever happy and risky. How wrong I was. Suddenly, 2012 April changed my life on «before» and «after». I don't know the peace now and I blame my destiny every day, even though the injury was my fault, I'm still demanding the some compensation from our God. I absolutely forgot the rest.

Every day I think about this curse. I know only sadness and regret like in the ButterflyEffectMovie. Daily, I blame myself that I was born in a happy nickelodeon era and then I destroyed everything wonderful I had in my super great life by my wrong actions. I can't sleep now. And, understanding that unfortunately we don't have a time machine yet, destroying my mind. In short, this curse wasted 10 years of my life like wasted my years in a toilet and destroyed whole my life, destroyed my mental state as If I was in a World War 1 or World War 2. And such things like a loss of business company with millions of dollars is nothing compared to this stupid Demon's disorder. By the way, The most internet with the different medical articles and references say that the modern frequency of this curse - 10 %, So I'm not good in a math, but it's means an approximately millions sufferers all over the world and what we see, this main forum has only 20,000 members, maybe some sufferers don't have access to the internet as living in a backward countries, but 20.000 gives a thoughts sometimes of a two options that we either the most unlucky-unfortunate group of people in this world like in the Final Destination Thriller Movie and Saw Horror Film waking up together in one dark room for "surviving" or we are chosen club by Some "Matrix" System like the Matrix Movie in order to check our Viking Spirit either, though I doubt about this second "chosen Matrix" option.

Regarding to the peyronie psychological symptoms - it's give me a one day of a good positive mood that I will definitely overcome it, but the another day - I feel very bad thinking that I stuck and trapped in this crap forever as if I stuck in my own body. So, This mixing mood making me zombie step by step and it's very hard to live with this Demon's peyronie crap as it's really destroys my mind almost 24/7. My American friends, as far as you understood that I'm living in a backward dictatorship country and my crap journalists will not care about male's disorders. So, Friends, you or your friends might have a serious number of american journalists, or you can easily find them within the USA. Please, Talk anonymously with your serious american journalists, definitely - anonymously and serious american journalists will probably start to shame urologist community, and probably, uros will start to do something, otherwise this stupid Demon's disorder will probably attack the future generations too.

Sounds a bit childish and naïve, but It's much better than to sit and wait some miracle or magic. This stupid Urologists only created stupid traction-mraction since 1743 (almost 300 years) and they still don't understand that it's not a curvature issue, but a complex issue including: feeling, sensation, sensitivity. Please, Talk! No one deserves it. In addition, I want to say that I will not appear in this main forum anymore as it's reminds me about this nightmare - Peyronie and I'm starting to fight with my inner Demons like in the Max Payne PC Game. Moreover, to see a random people here, who had been living with this scary condition almost 80 years and the same time seeing people who still sitting in this main forum since 2005 - it's really scary to see, weird and scary sight in general and I'm mean random people, not a moderators, because our moderators with a titanic efforts trying to help us.

So, I'm grateful to our main forum creator Hawk and other moderators for a great help, concern and titanic input for helping people like me, especially I'm very grateful to Old Man for his motivation and strong personal advices, and I'm glad that I was talking with people here during this 1 year. I'm also grateful to this main forum that I found doctors I need. Soon, I will definitely travel to Dr. Levine or B. Christine either, who know their work in this field very well, I will travel there, despite stupid Covid boards difficulties. I hope that my input during this year in this forum also helped people with a curious information related to the snobbery Serbia and retired money maker - Professor <name removed, slanderous comments not allowed>. So, as far as you understand in my topics related to my March Travel in Serbia, I don't know, Friends, I was naïve and I trusted to Serbian medical web-marketing Propaganda, then arrived and figured out that "Belgrade Center for Genital Reconstructive Surgery" absolutely don't know Peyronie's disease and don't care about Peyronie. It's completely wrong that they misleading people writing in their websites that they can treat all genital anomalies, but in a reality as I said these idiots don't know peyronie and don't care about peyronie sufferers. They are completely idiots, because I wasted my time, wasted my travel money, wasted my expectations, faced with their snoberry racist people in a cafe and shops within a town, wasted my money on their stupid check PCR-Covid Test for 200 Euro, which costs 15$ in my country, It was a bad medical travel experience I ever seen in my whole life.


Regarding Professor <Name removed - slanderous comments not allowed> as I already said, he became old retired money maker and businessman, who took 651$ for his stupid 15 Minutes Video Consultation, Recommended me stupid Viagra and Disappeared like a conman saying me "Goodbye". So, Friends, you know now everything about those doctors above I mentioned. I think I helped a bit to this main forum with my small input and information related some doctors and travel countries. So, maybe I will probably come back here in near future, in case of the successful surgery and professional care by Dr. Levine or B. Christine in order to report about this medical travel, though not sure about my possible return to this main forum. Apologize for too long topic and Apologize for my poor English.

Wish you All the Best. Goodbye!  
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

nemo

Man, you gotta edit your post and segment it into paragraphs, please. It's near impossible to read one continuous block of text a mile long.  

Regards,
Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Wilson

Nemo, I can't as there is no "modify" button anymore. Unfortunately, this "button" disappears after 2-3 times. So, I hope that moderators of this board will divide my long topic into segments/paragraphs. Many Thanks for your reply. All the Best. Goodbye!
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

LWillisjr

members are allowed to edit their posts up to 30 minutes after posting. After which the function to modify is removed.

I took the liberty to format you post for you, and I had to edit slightly as we don't allow slanderous comments towards any individual.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Wilson

LWillisjr, I got you. Many Thanks for correcting my long post. As I already said in my long topic that I will not appear in this main forum anymore, because it's constantly reminds me about this scary nightmare and I'm starting to fight with my Demons like in the Max Payne PC Game. Soon, I will travel to american peyronie specialists and hope that they will tremendously help me. So, I'm starting a new wonderful life. Many Thanks for the regular help and Many Thanks for the concern. All the Best. Goodbye!
Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Tobyg

I agree, this is a big red pill. just like circumcision.
I also had a beautiful childhood, maybe we are paying for that (?), I really would like a miracle of science, but I think we do not deserve it, since we do not organize ourselves to spread this disease or invest in our own laboratory, we want magic solutions and we are comfortable waiting for other people to get us out of this nightmare.
20 thousand registered, not registered I think there are more. although we still seem few in millions of people
32 years,injured at 25.
Slight curve, narrowing and retraction in flaccid and semi-erect.
Loss of sensitivity due to peyronie and circumcision  moderate erectile dysfunction, pain.
I improved the pelvic floor with kinesiology.
Frequent urination.

Lostandsad

I feel your pain man. Life was great before this crap happened. I'm scared I'll be one of the long term sufferers and I'll always be battling this.

They need to tackle the root of this problem, which is penile fibrosis. Who knows if there will ever be a cure, since fibrosis in general is an extremely difficult problem to solve.

This disease really sucks. I wish you the best of luck in finding the treatment you are looking for.  
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

Mikel7

I know that this disease is very horrific for us men.  You need to have something called hope. In this world today we are surrounded with things that can upset us every day. Will you dwell on this or find something you can dwell on that is good? I could give you a list of awful negative things that has occurred  to me over the past 60 years but would that help you? I find that looking for the good and hoping for a better today your outlook will be better.  Things will end well if you change your attitude.  Say to yourself that today is going to be better!  I will make it through this.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)