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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: Only science backed treatments should be allowed  (Read 833 times)

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Forgen

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Only science backed treatments should be allowed
« on: August 14, 2021, 02:58:00 PM »

And only products that are meant for the penis. Hirudoid is NOT meant for penis and should neve have been allowed to be suggested.

Can we monitor content better and have it approved first?

Frederich zuckermann, Gabriel and others have most likely permanently harmed others with their irresponsible posts.
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35 yo. 35 degree bend left. Major Erectile Dysfunction now because of hirudoud cream. Take the supps/meds in survival guide.

LWillisjr

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Re: Only science backed treatments should be allowed
« Reply #1 on: August 15, 2021, 08:41:50 PM »

It is not possible to pre-read and approve every post. We don't have a staff for that nor is it necessary. We do read and warn users if the start to violate any forum rules like bashing other member, offensive language, behavior, etc.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
My History

Hawk

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Re: Only science backed treatments should be allowed
« Reply #2 on: August 15, 2021, 10:14:17 PM »

Forgen,

Is it ok if I set you up as a moderator and put you in charge of approving all posts that meet your personal standard?
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Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Asphyxia

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Re: Only science backed treatments should be allowed
« Reply #3 on: August 16, 2021, 07:40:04 PM »

frederich mentioned that he does not know if its safe
That means use at your own risk

Theres a pinned post by neov on the alternative treatment section that warns people about using alternative treatments

not everything can be approved or disapproved if it isnt well researched, if you dont want to take major risks then dont try any alternative treatments.
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Age:23. Onset of symptoms: september 2020.
Curve mostly semi erect about 60 degrees, slight pain
Tried short & prolonged fasts, keto,carnivore, traction and most of the supplements.
Severe digestive issues, probably an autoimmune disorder

Forgen

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Re: Only science backed treatments should be allowed
« Reply #4 on: August 16, 2021, 09:05:08 PM »

Yup. True.  I did use it and now will pay the price. Bad idea. That's on me.

But I got the idea here based off of others who experimented on themselves with a product with no scientific evidence that it was safe. A product not meant for the dick. But zuckermann, Gabriel (both mia now) raved about it and so did several others so I said why not? Maybe I had a bad reaction with my meds/supplements. Who knows? But I know it harmed me. I don't need a lab test to confirm, Hawk, I know me and I know my dick and I have some basic logic. The timing was so clear. Hirudoid hurt my dick. And a doc I consulted confirmed it can weaken tissue. So I want people to be warned to stay away. If you're reading this and on the fence about it, you're stupid. No one gave an account like mine before or I would have stayed clear.

So, a main point in all of this is that these EXPERIMENTAL ideas should be listed in a section called EXPERIMENTAL with a clear warning in the description that these are not science based and are amateur guesses. They are RISKS!

To call these experiments "alternatives" is false advertising. It is dangerous.. the name alternative gives these amateur experiments legitimacy. If you see a doctor in alternative medicine is he going to be experimenting on you?  No. His methods will have some history.

So,  I think these experiments should be corralled by this site and its many moderators ( you aren't that popular guys, you get maybe 400 vistors a day who are mostly guests, so please spare me that this site's content is too much) should move anything not on the survival list or a category already to experiments.

Let's help others keep their health and keep bad ideas out.

That's what I am getting at. And screw zuckermann and hirudoid forte.
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35 yo. 35 degree bend left. Major Erectile Dysfunction now because of hirudoud cream. Take the supps/meds in survival guide.

Nolte94

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Re: Only science backed treatments should be allowed
« Reply #5 on: August 17, 2021, 12:32:23 AM »

Worst idea ever. Without trying new treatments, I would still taking Potaba Glenwood, which haven't had any good effects on my Peyronies Disease.
Thanks to PTT, VED, Tadalafil and a few supplements I notice very good improvements and can have sex again without pain and a minimal curvature. All of these things are NOT 100% scientifically explored and some men experience worsenings with PTT, but not every story can be a success.
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26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

Forgen

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Re: Only science backed treatments should be allowed
« Reply #6 on: August 17, 2021, 03:11:49 AM »

Tadalafil - scientifically proven to improve erections
Traction - scientifically proven to improve curve, length, erection quality
VED - cannot verify if scientifically proven, but used often in penis rehabilitation, and often doctor recommended
CoQ10, ALCA, Arginine - all good for your health and harmless

None of these were EXPERIMENTAL when you tried them. Hirudoid is. See the difference?
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35 yo. 35 degree bend left. Major Erectile Dysfunction now because of hirudoud cream. Take the supps/meds in survival guide.

Nolte94

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Re: Only science backed treatments should be allowed
« Reply #7 on: August 18, 2021, 03:45:04 AM »

Tadalafil - scientifically proven to improve erections
Traction - scientifically proven to improve curve, length, erection quality
VED - cannot verify if scientifically proven, but used often in penis rehabilitation, and often doctor recommended
CoQ10, ALCA, Arginine - all good for your health and harmless

None of these were EXPERIMENTAL when you tried them. Hirudoid is. See the difference?

Tadalafil improves erections, but it's not scientifically proven for Peyronies Disease. The medication leaflet says that this med is not allowed to take if you have Peyronies Disease. See the difference?  ;)
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26 years old, first symptoms since August 2020, 45° bend to the left, hinge effect and pain at the beginning
‐---
Daily Tadalafil
Traction with PMP
VED with one cylinder
Acetyl-L-Carnitine, Tensiologes, Coq10 and healthy food
----
Only 5-10° left 🥳

nemo

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Re: Only science backed treatments should be allowed
« Reply #8 on: August 18, 2021, 05:28:09 AM »

Forgen, I realize you're in a panic thinking you've somehow harmed yourself with Hirudoid, and I appreciate and sympathize with what you're going through.

But based purely on the anecdotal experience of this forum (including mine) I think you'll find most guys that tried Hirudoid didn't really feel it did anything for pain, much less deformity. Based solely on my experience, I just don't feel like it penetrated enough to even turn off (or reduce) the aching sensation from my lesion. So, I gave it just a few tries and abandoned it as being of no help.

I seem to recall most guys were very hopeful and then tried it and the results were ... meh.

So, based on that, I have a really hard time believing Hirudoid penetrated the various layers of skin and tissue on your penis to permanently ruin your erections. I suspect the reason this cream is advised not to go on the genitals, is the exposure (on a man and woman) of soft, internal tissue - meaning they don't want you getting this inside your pee hole or inside a woman's labia, etc. Same as they don't want you getting it inside your eyes or mouth. It's probably an irritant in such a situation.

If it were capable of going inside your tunica and destroying your erectile function, why wouldn't it destroy muscles and joints where it is applied elsewhere? To me, it just doesn't make sense.

When I'm panicked, my erections are crap. I have a suspicion you've become so freaked out that yours are the same. But I feel like you're connecting the dots in a way that doesn't really make sense. The fact is, you could be suffering Erectile Dysfunction AND be using Hirudoid - that doesn't make one follow the other.

Just my two cents. But as I said, I understand your panic. I just think you've mistakenly attributed Erectile Dysfunction to the Hirudoid, when it's far more likely the Peyronies Disease or even your own psychology are the more credible suspects.

Regardless, I hope your situation improves quickly and clearly. I really do.

Best,
Nemo
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50 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred in 2013. Have now begun a third episode in 2021. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline.

howtheheck

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Re: Only science backed treatments should be allowed
« Reply #9 on: August 18, 2021, 05:46:26 AM »

He is gone...been banned.  read the note underneath his name....
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56 years old.  Westerner (Expat) living in China, Single, 4/21 start. Various natural topicals & orals, will use home ESWT machine.  05/24 started TCM with TCM herbs acupuncture.  06/02/21- Restorex, also noticed slight dorsal curve late 06/21

nemo

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Re: Only science backed treatments should be allowed
« Reply #10 on: August 18, 2021, 06:53:55 AM »

I hope that's a temporary ban - the guy is in a state of panicked anxiety. This disease has a knack for short-circuiting our thought process, all too frequently.

Nemo
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50 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred in 2013. Have now begun a third episode in 2021. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline.

Winter

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Re: Only science backed treatments should be allowed
« Reply #11 on: August 18, 2021, 01:04:08 PM »

I hope that's a temporary ban - the guy is in a state of panicked anxiety. This disease has a knack for short-circuiting our thought process, all too frequently.

Nemo

Nemo, if you ask me, I don't think he was a serious member.
I'd say he's Jan.Schaller (or Matty, Peter123, or many other aliases of the same person), who occasionally comes up here with new profiles, just to create confusion and demotivate anyone trying any alternative method other than doing almost nothing. What I think he did in the past. Perhaps he is seeking a kind of equalization of an injustice he feels has been committed against him, inducing others to follow the same path. I can only speculate.

His praise of some of the survival guide's actions, in my understanding, was just to lure people into trusting him as a reasonable person.
But anyway, this is just my suspicion. But he's likely to show up again sometime in the future, as he has nothing better to do with his life than holding an endless grudge against this forum.
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40 yo, married. Onset on 07/20. Flare up on 07/21
Deep indentations on ventral and dorsal area while erect. No erectile dysfunction. 20° up congenital. It still hurts; Taking pentox, Cialis, supplements, keto diet, VED and manual traction.
God bless

Mikel7

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Re: Only science backed treatments should be allowed
« Reply #12 on: August 19, 2021, 06:04:29 AM »

We are all adults here and should act like it.  Members who do not follow the rules are subject to a higher authority and dealt as such. We should all play nice,
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Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.
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