My positive story w a man with Peyronies Disease

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Woman_withman_pd

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Stabler

Hello and welcome to our forum!

We always want to hear positive stories about couples it's always positive for the members to see. It would be great if your could share details out him so we can get an idea of what he's been doing and how you have managed the relationship. So many have trouble figuring out how to start and where to go once they learn about Peyronies and it will help us to help you if we have this information.

We look forward to hearing from you more

Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

Woman_withman_pd

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GaussRifle

Hawk is that you from a different account giving us false hope ? Lol... just joking. Good to know, I just hope the younger girls my age group in their 20s are mature enough to understand this like you have. Thanks for sharing your success with us though and taking the time to make an account and post this just to give us guys some hope. This means a lot to us !
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

PeyroniKirai

Woman_withman_pd,
Thank you for sharing this and don't worry about being "vulnerable" because (a) the forum is completely anonymous and there are people in it from all over the world so no one could ever guess anything about you, but also (b) what you are talking about isn't embarrassing or shameful or dangerous - in fact you are saying some wonderful stuff and the people on the forum will all benefit from it.

I once told a girlfriend I had a bent dick.  She laughed and said, "oh, then maybe it will hit just the right spot!" and the conversation became very relaxed.  It sounds like what you're saying is that intimacy and a loving feeling is important to you, and that as a woman you don't have some porno-movie image in your mind of what sex is meant to be (e.g. vigorous/powerful/piston motion/large organ etc.).  Any of us who have been with enough women know that some women don't need any of that to be turned on.

So of course you don't need to give any details you don't feel comfortable giving, but it would be educational to the forum members if you could explain from a woman's perspective why it is that having a boyfriend who has Peyronie's doesn't bother you, why your sex life is still fulfilling, why your boyfriend doesn't need to have "performance anxiety", etc.  Any of these things would be great to hear more about.

Thanks for joining the forum!
Age 64, Peyronie's history 4 years, left side hourglass, 20-degree bend to left, no ED

Hawk

Welcome to the forum/  I have been swamped and just caught this, but I consider your message as important and any message on this forum, including medical advice.  I hope you will stay.  We have a public board, "Women speak out  I think you alone or you and your partner could have a very positive impact.  Even if you only stayed for a year or less, your posts would be seen for decades, seen by couples who have won't even experience Peyronies Disease for years to come.

Thanks for your taking the effort to register and post.."
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Woman_withman_pd

I wanted to put out a message of Hope. Even though there is no cure we have a very happy relationship even with Peyronies Disease. And then realized by one comment of the permanence of putting words out there. And wasn't sure if I could go into details yet with some of the questions. Perhaps in time.  
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Mikel7

Getting input from a woman is very helpful to all of us men here.  Women can add an emotional uplifting to us that we all need regarding this.  Please add your thoughts and comments - you just don't know how lifesaving your words can be!
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)