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Welcome to Dr. Landon Trost - Directly answering member questions in the "Medical Professionals" section below the Treatment boards. https://www.peyroniesforum.net/index.php/topic,16512.0.html

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Author Topic: Curious Questions.  (Read 660 times)

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Wilson

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Curious Questions.
« on: July 17, 2021, 02:59:37 PM »

Hi Dear Friends. I want to ask people who had a successful surgery. So, I have a two questions related surgery and my current main symptoms. 1) Will the surgery remove the disgusting wound discomfort which I got after injury and suffer it almost 10 years and it’s like the salt on the wound feeling almost 24/7. 2) Will the surgery remove this second classic symptom? I mean not the curvature, as I don’t have a curvature, but my member becomes hard in a calm/relax state like a stone without reason and it destroys my mind almost every day 24/7 as I can not normally sitting nor walking sometimes. I don’t want to misinform people here, because I don’t know the name of this symptom nor how it’s called, maybe it is “hardflaccid” like most people mention this “word” here sometimes. I really don’t know, but I know that it destroys my mind almost every day. So, will the surgery remove this two symptoms? Will the surgery remove this Demon’s crap? Many Thanks in advance. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Benraycamp0

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Re: Curious questions.
« Reply #1 on: July 17, 2021, 03:02:49 PM »

Have you considered looking into pelvic floor exercises to help with the Hard Flaccid? Some men find pain relief as well. A visit to a pelvic floor specialist might be helpful as well!

https://www.reddit.com/r/Hard_Flaccid_Syndrome/
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26 years old. 20 degree upward curve with slight clockwise twist. Symptoms onset Dec 20.
Dr. Levine says it's not Peyronie's Disease but a slow healing wound. Saw him Mar 21 and May 21.
Traction (PMP) and supplements per Dr. Levine's recommendation.

Wilson

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Re: Curious questions.
« Reply #2 on: July 17, 2021, 03:29:49 PM »

Benraycamp0, Many Thanks for the help. I’m not sure, because I don’t know the name of this stupid symptom as I don’t want to misinform people with my symptoms, but my member become like a stone in a relax state with no reason as I already said and unfortunately we don’t have this “specialist” in my backward country. Probably, I need to travel to another country to find this “specialist”. I have really tired of these Demon’s symptoms. I don’t know when this nightmare will finally finish. Stupid disorder. Thanks for reply.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Benraycamp0

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Re: Curious Questions.
« Reply #3 on: July 22, 2021, 09:45:29 AM »

Your symptoms sound more like Hard Flaccid than Peyronie’s Disease. Please read up about Hard Flaccid and see if your symptoms line up with it.

Pelvic floor exercises may be your solution!!
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26 years old. 20 degree upward curve with slight clockwise twist. Symptoms onset Dec 20.
Dr. Levine says it's not Peyronie's Disease but a slow healing wound. Saw him Mar 21 and May 21.
Traction (PMP) and supplements per Dr. Levine's recommendation.

Wilson

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Re: Curious Questions.
« Reply #4 on: July 22, 2021, 12:56:33 PM »

Benraycamp0, Many Thanks for reply. I hope and dream that it is not a peyronie disorder. In March, I was diagnosed with a venous leakage by the professor Miroslav Djordjevic in Serbia. So, the final conclusion, whether I have peyronie or not, can say only a specialist like Mr. Levine, but I need to meet with him first as I live in a backward country like the North Korea and it costs a titanic efforts for people in my country to get a foreign visa for the modern international countries. Many Thanks for the concerns. I really appreciate that! Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

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Re: Curious Questions.
« Reply #5 on: August 02, 2021, 08:20:54 PM »

Yet, I’m asking people who had a successful surgery. I want to ask about comparison between post-surgery sensation and pre-peyronie sensation. My main question for you - So, is your current quality and feelings (sensation/sensitivity) during your “love” is the same now after your surgery as it was prior to pre-peyronie state? Many Thanks in advance.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

LWillisjr

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Re: Curious Questions.
« Reply #6 on: August 03, 2021, 09:53:34 AM »

I had a very successful surgery. But I have no way to answer if surgery will address your issues. Everyone is different, and how your body reacts is different.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
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Wilson

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Re: Curious Questions.
« Reply #7 on: August 03, 2021, 03:41:32 PM »

LWillisjr, I got you. Many Thanks for the fair answer. All the Best. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

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Re: Curious Questions.
« Reply #8 on: August 05, 2021, 10:38:15 AM »

LWilliSjr, One more question, please, Are you happy with your personal experience by Dr. Levine? Do you recommend him? Many Thanks in advance. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

mst1622

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Re: Curious Questions.
« Reply #9 on: August 05, 2021, 11:10:30 AM »

LWilliSjr, One more question, please, Are you happy with your personal experience by Dr. Levine? Do you recommend him? Many Thanks in advance. Sincerely.


Look at Daremo story. He has certain problems with him.

I wouldn't choose him. As I can see on this forum, the best reviews has Dr Brian Christine and Dr Joel Gelman.

Just couple days ago, I spoke with daved2 who had two surgeries with Kuehhas (failed) and then 3rd with Gelman. He said that he is now "straight like an arrow"...
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LWillisjr

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Re: Curious Questions.
« Reply #10 on: August 05, 2021, 12:09:25 PM »

I guess it is likely any one doctor would have some disappointed patients. If you look on this forum I think you will find an overwhelming number are happy with Levine. Including myself I highly recommend him. He has specialized in Peyronies treatment for almost 25 years now. I think Dr Brian Christine and Dr Joel Gelman are somewhat newer and are establishing a name for themselves which is good.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
My History

Wilson

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Re: Curious Questions.
« Reply #11 on: August 05, 2021, 02:06:37 PM »

LWillisJr, I got you. Many Thanks for reply. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

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Re: Curious Questions.
« Reply #12 on: August 05, 2021, 02:16:37 PM »

Mst1622, Hi Bro. Many Thanks for reply. I know that Daremo has a problems with him now, but I wanted to hear exact opinion related Dr. Levine from one of the main moderators of our main forum to be sure. Regarding, Mr. Gelman, as I already said, he honestly said that he mainly accepts people with a curvatures only and it’s mean that he probably doesn’t take a people with a complex peyronie, though I will try to write him again in order to ask about treating a complex peyronie cases. About Dr. Brian Christine I wrote in my previous topics that he is a complex man meaning that he takes peyronie people randomly, depending on his mood, I guess. He even can refuse to help with no reason to his own neighbors, again depending on his mood. Many Thanks for the concern. All the Best. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

mst1622

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Re: Curious Questions.
« Reply #13 on: August 05, 2021, 06:36:07 PM »

It is worth to notice that grafting surgery is much more risky than plication. Maybe that is why some people have some problems after surgery in this surgical technique.
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Wilson

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Re: Curious Questions.
« Reply #14 on: August 05, 2021, 08:34:06 PM »

Mst1622, Thanks for advice. Actually, I don’t know, whether I need surgery or not and I don’t know which type of surgery is fitting for me. For almost 10 years of suffering, I have never met a true specialist as I living in a backward country with a stupid doctors. I traveled this March to snobbery Serbia and was diagnosed with a venous leakage only by “Belgrade Center for Genital Reconstructive Surgery”. These idiots just wasted my time, wasted my expectations, wasted my travel money and they writing that they treat all genital anomalies, according to their stupid website, but the reality is that they don’t care and even don’t know Peyronie’s issue. It’s - Wrong. They just misleading and disinform poor people like me. I can’t believe that I trusted to Serbian Medical Web-Marketing Propaganda and moved there as a naive person. Moreover, this snobbery racist country took 200 Euro for check Covid PCR-Test, which costs in my country only 15$, otherwise I would stuck in this medieval balkan country and their airport would close the door for me. Better to travel for medical help to the USA, I think. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

LWillisjr

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Re: Curious Questions.
« Reply #15 on: August 06, 2021, 06:43:17 PM »

I might add that Levine doesn't always do grafting. He suggests the surgical method that is best for your particular symptoms. I had a 70 degree sharp upward curve. At that time intercourse was not possible with my wife. Levine considered that a severe curve and my surgery involved "Excision and Grafting". Which mean he actually cut out the plaque and then replaced it with graft material. I am still super happy with the result.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
My History

Wilson

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Re: Curious Questions.
« Reply #16 on: August 06, 2021, 07:55:44 PM »

LWillisjr, Many Thanks for hope. Anyway, I will try to travel to USA, depsite it’s hard in general and especially, during Covid times. As I said I was naive and trusted to Serbian Medical Web-Marketing Propaganda and wasted my time having came there, figured out Belgrade Genital Team don’t care and don’t know Peyronie disorder, they are busy with transgender people. So, that was my travel experience in Serbia. Now, I will try to travel to the USA. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

LWillisjr

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Re: Curious Questions.
« Reply #17 on: August 06, 2021, 08:18:29 PM »

Wilson,
I believe some of the U.S. doctors will do a phone/video consult. I know Levine does this. They will want you to send information and pictures in advance and then will discuss with you. You might try this first.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
65y/o  13 years Peyronies free
My History

Wilson

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Re: Curious Questions.
« Reply #18 on: August 06, 2021, 08:49:38 PM »

LWillisjr, I don’t trust in this video hassle consultations anymore as in this winter I spoke with retired old clown so-called “Professor” Tom Lue from UCSF who charged 651$ for 15-20 minute video consultation and recommended me viagra. I hoped to hear such words like “come to me and we will start treatment as soon as possible”, but he talked like a talker about general things and his satisfied face was like “don’t come to the US now”. So, he charged my money and vanished saying me “Goodbye” with a satisfied face. And afterwards, I don’t want these hassle stupid video consultations anymore. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

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Re: Curious Questions.
« Reply #19 on: August 09, 2021, 09:14:38 AM »

LWillisjr, Though, I was sitting in cafe yesterday thinking “why not”. Maybe a good idea as I talked with Levine’s office secretary around 3 months ago and she told me that his phone consultation costs approximately 200$ and it’s good price, especially for the own health care. Though, I lost a faith in a consultations after old clown-donkey Tom Lue and snobbery Serbia. I think, I will probably listen your advice and probably will make a call to Mr. Levine for the further conclusions. Maybe that’s a really good idea. Many Thanks for advice. All the Best. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist

Wilson

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Re: Curious Questions.
« Reply #20 on: August 15, 2021, 03:53:42 PM »

Hi friends. I want to ask you about Dr. Tariq Hakky, though it’s doesn’t relate to my topic. So, I’m seriously going to visit Dr. Levine or B. Christine firstly, but yesterday lurking the internet, I suddenly found Dr. Tariq Hakky, read some reviews and started consider him for a third opinion. So, who had experience with this doctor? Is he a good specialist or he is another dangerous person like Kuehhas-Egydio? Moreover, I don’t want repeat my mistake experience like it was with Genital Belgrade Team, who pretended to be like serbian scientist Tesla in urology, but figured out that they don’t care and simply don’t know peyronie field. As I already said that these idiots wasted my time, wasted my expectations, and wasted my travel money. So, who had a personal experience with Dr. Hakky? Many Thanks in advance. Sincerely.
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Young and regularly thinking about this issue
Peyronie's without curvature since April 2012 due to injury
Almost constant discomfort and Loss of penile sensation
Still fighting - trying to find a top famous specialist
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