Inner penis treatment (narrowing/fibrosis)

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parrotpink

Thanks all for the great forum.

Does anyone have any tips for treating fibrosis and possible narrowing/dent on the inner penis. My suspected fibrosis (and I got some evidence with ultrasound) is actually past the base, down by the left side (which make sense since the left chamber fills out slower/less). Anyone has something similar? How have you treated it and have you had success?

Oddly enough, my flaccid has become more pronounced (longer) and less sensitive (like an overstretched rubberband)? Can anyone relate?


Side note, I have issues with glans sensitivity and low libido. Has anyone successfully treated that as well?
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Combat-lizard

Same here!! I can't feel scar tissue but pain originates at the inner penis like right behind the ballsack. Also on the left and the left side is just so much smaller than the right. It's hell and I can't figure it out. Probably need an mri cause there is too much flaccid pain in my case, Like just an ultrasound and exam could hurt it. Also can't even turn it straight to peer  when flaccid or I get horrible pain  
24M, dent injury on left side base, no scar tissue yet, flaccid pain

taking L-Citrulline 1500mg, ALCAR 1500mg, COQ10 300mg

parrotpink

Sorry to hear about the pain. I have little to no pain (some soreness) and my dent/narrowing not quite that far back (around on top of ball sack if that makes sense). Make sure its not pelvic floor tightness in your case. Pain also likes to radiate so just because it hurts in one spot doesn't mean the issue is exactly there if that makes sense.
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Bud luck

I have exactly the same symptoms. The more I strech it , the worse it gets. At this point my only two options are: Extra Tunical Grafting or Penis implant
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

itsjustatest

Hi folks, I have the exact same thing. I can now feel a sort of hardness (plaque?) inside when I get hard. If you look at my previous posts, that's the "nodule" I'm talking about. For some reason, I'm starting to see a little bit of narrowing at the base of the penis so I suppose that the narrowing has already started "inside" for a while and is simply extending.

I'm getting a penile MRI with injection in a few days so I'll probably get more information then. In the meantime, I'm taking Pentox 3x a day + Cialis 5mg/day + I will start VED and traction soon. I don't know to what extent this will help.  
22 y.o

Erectile dysfunction, although apparently no venous leak
Weird nodule under the superficial dorsal vein at the root of the penis, possibly remnant of Mondor's (?)
Apparently no plaques

Have a loving girlfriend who I will marry

GaussRifle

Are you getting an mri or ultrasound and is the injection xiaflex ?
26 year old
45-50 degree downward curve with an indentation on one side when erect.
Using RestoreX and Xiaflex injections
Taking coq10 with daily Cialis 5mg.

itsjustatest

MRI. Had an ultrasound a while back but radiologist couldn't see anything. I think my case was still too minimal for things to be seen. The literature suggests that MRI is a better imaging tool than doppler ultrasound for Peyronie's.

The injection will be Edex. Xiaflex is used to destroy plaques and is not used as part of imaging.  
22 y.o

Erectile dysfunction, although apparently no venous leak
Weird nodule under the superficial dorsal vein at the root of the penis, possibly remnant of Mondor's (?)
Apparently no plaques

Have a loving girlfriend who I will marry

jj21

Is restoreX and VED not effective for this?

I think I udnerstand what you mean - the fibrosis is too close to the base or inside the pubic region ?

Sorry if I have misunderstood you.

I did find a lot of improvement from VED, just started RestoreX.

Hope you guys found some kind of treatment by now.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Bud luck

The more traction I do the worst it gets, my injured area is becoming weaker and narrower, to the point that barely can hold the penis during erection, it keeps progressing after 28 months, nobody is helping me, I'm depressed 24/7. How come there is nobody in the whole world that can help me?
My penis when is hard looks like this:
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Bud luck

But 10 seconds after the erection when is going down it drops to the left. Soon I'm getting medical insurance, I need to get ultrasound and know what I have. Is this Peroynes? Corporal fibrosis? A new type of damage that I'm the only man in the world that has it?
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

Ineedtosleep

Bud luck,

Are you taking anything that is considered an anti androgen i.e. finasteride, minoxidil, ketocanazole, etc.?

Are you taking care of yourself outside of just treatments for your penis alone? The body is a whole system, and you need to put yourself in a position to allow it to heal. Your stress and depression alone can make it very difficult for your body to regulate itself and healing.

Exercise, sleep, diet, sunshine, social connectedness, eudaemonic happiness: these fundamental things have direct and indirect impacts that can profoundly contribute to your healing process. I know that it's a chicken and an egg thing, where Peyronies precipitates depression, but your depression is also a driver to many other things that can then exacerbate whatever is going on with your dick.

Also, a lot of your symptoms indicate a highly dysfunctional pelvic floor (hourglassing, torsion to the left, etc.). This could be dysautonomic  regulation of your pelvic floor, in which case stress and constant thinking about it is futile. From my own experiences, I know how powerful the human mind is and what it's capable of when you get out of its way (or feed it negative information and thought all day). Taking a break from all things penis related for a long time I.e forums, looking at it every 30 mins, etc. can actually really benefit people because it helps to restore the normal backend, non conscious functioning of your brain and systems that might be dysregulated at the moment.  
25, Peyronies Disease from Finasteride in 2019 - Overcame PFS ~2 years - Am focused on preventing size loss/regaining size

Ineedtosleep

Also, have you taken objective measurements of your penis and tracked your disease progression? You should have, if it's deteriorated as much as you have claimed. I ask because your thoughts vs. reality can be very different and drive a lot of unnecessary stress and suffering. I've measured mine, and interestingly, some of the times where my deformity/girth APPEARED worse/less, it was actually larger and better than in the past. It's good to have numbers to know exactly which direction your progression is heading.  
25, Peyronies Disease from Finasteride in 2019 - Overcame PFS ~2 years - Am focused on preventing size loss/regaining size

Bud luck

Ineedtootslep, thank you very much for your comments. My hormones got messed up years ago after my vasectomy, years later I got on TRT, the trauma was caused by a Trimix injection. I'm on Testosterone, so maybe the Testosterone is creating more problems that helping me. And I also masturbate 2 times a day, and keep doing traction daily. I'm completely obsessed about my penis, my depression is over the roof.
I will follow your advice, I will stop obsessing about it, I will stop doing traction, I will stop masturbating, and I will go to an endocrinologist to check on my hormones. Actually you gave me really good advices, thank you  
My first symptoms started early in 2019
I tried Traction device, Pentofixiline, Q10, TRT, L-Argenine, cialis
I have narrowing/dent/hinge on the left side of my shaft
My ED is getting worse
Had a PRP shot Aug 2021
I have a girlfriend
Age 46

jj21

Try to abstain from masturbating twice a day. Could be causing more harm.
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm +1cm RTE, Partial revision 27th June 23 (fix pump, remove 10ml reservoir).

Mikel7

Testosterone replacement if not done by an educated physician can do more harm than good.  I have been on full replacement now for 18 years and it took several different Dr's  until I found a hormone specialist who knew how to manage and treat it.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)