New member with many questions

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QuestionGuy

I have been diagnosed with sepital peronies. I believe I am suffering from POST-Finesteride syndrome. I was on FIN for about 1 year and been off for almost 3 years and here is a link to my full story. My post here rambles, but if I wait to get it perfect I'll never post and never get the benefit of your responses.

Sorry i cant post links. If interested in my story seach propeciahelp for my posts (same username)


Currently my other issues are:

- loose scrotum - testicles and penis seem visibly distended. (like some breeds of dogs where genetailia seems barely connected)
- loss of libido
- hydrocole & varicole (wonder if these injuries are related to loose scrotum)
- orgasms often not pleasurable
- No spontaneous erections - few morning erections - erections pivot at the base
- irregular shape at base of penis - loss of girth near base
- clumpy solid ejaculations (without the large volume of syrupy liquid, like before FIN... could that be prostate?)

Went to see doctor Goldstein and he put me on clomophine & anastrozole.  He identified a tangible cordlike structure running from the tip, down way into beyond where either of our fingers could go. Also revealed to me that there is virtually no sensation in the head or sides. (heat-cold-vibration) Also: virtually all ligament over the pelvis is deteriorated away.

I am also on Testosterone  cream and Viagra (low dose) to try to help the numbnessand increase blood flow (per Dr. G). Dr G. says the T cream administered locally will not effect global T levels, but I wonder? I am on clomaphine and armidex and wonder about the T cream. Anyone use these treatments?

I am also using : L-Carnatine, Zinc (ZMA), C,D,E, BCAA, L-Agrenine, Tryrosine, Meletonin

AS I stated above,  have hyroccole on one side, varicole on the other side, peyronies and also the suspension ligament is all but withered away.I am good mechanically, but have way reduced sensation (as in : I have to look with my eyes to validate that I am still erect and penetrating partner.

Not sure what my next move is at this point. Try to Boost the hormones to try to fix the environment that allowed the peyronies to thrive....or....aggressively try to treat it separately.

I understand that peyronies is classically thought of as a bend or curving of the penis, but what I ,and some others seem to be getting is sometimes refered to as sepital peyronies where there is a cordlike structure going throughout the length of the penis. I am guessing that as more and more of the structure is comprised of scar tissue, that leaves less normal erectile tissue and possibly damages nerves. I am wondering if blood flow could be the common denominator..

I think just the general hormone imbalance from the PFS could also have created the breeding ground for this.

Another very likely theory is that allthough peyronies does not always cause ED. ED causes peyronies (heres how) :FIN caused some ED (erection was not as ridge as pre-FIN) Using a "less than "rock hard" penis for penetration is thought to be a common way to bend, break or snap tissue and then the scar buildup cycle begins. No one knows why some people get penis injuries and it heals while others have the scar tissue thing run amuck.


Questions:

Are these other supplements like Coq10 and ubiquinol worth pursuing?

Is The baseball bat like structure a concern, in that if the base gets much narrower the laws of phisic will pervent a proper erection? currently its  holding its own, but it pivots at base. I hear it called "hourglass" but I have more of "baseball bat".





chefcasey

Questionguy:

I think I can answer some of your concerns as it relates to the peyronies like symptoms.  Yes it's true that Peyronies Disease is usually characterized as a curvature of the penis, but it can manifest itself in all sorts of penile deformity.  The thing that causes the odd shapes, bends, and curves, is scar tissue either in the tunica, which encircles the two erectile bodies, or like what you said in the septum, which runs down the center.  When someone has a curve to one side, that means there is scar tissue on that particular side.  However if the hourglass shape is present, then that means there is scar tissue running on both sides or in a circular pattern around the penis.  

I too have the type of effect that you have, although mine is more midshaft, so it looks like the typical hourglass more than the baseball bat type that you describe.  If you have that shape, you must also have scar tissue in the tunica and not just the septum, since the septum is just in the center and the tunica runs around the whole shaft.  I also have it in the septum too, with only a small chordlike structure, although that's where most of the pain is (I think there's more nerves there).  I think it is good to be taking coq10 or ubiquinol, and if not more importantly, pentoxifylline.  There is evidence for both that they can reduce pain, stop inflammation, and perhaps reverse the process to some extent.  pentox should also help with bloodflow and erections as well.

It is also possible that since you have had ED prior to developing it, that there could be fibrosis in the erectile bodies themselves.  Did your doctor send you for a penile ultrasound? or an MRI?  I think these tests can determine where and what exactly the problem is.  I don't really know too much concerning your other symptoms, but someone else on the board should be able to help.

QuestionGuy

ChefCasey - thanks for the reply.

I take all the vitamins and am now curious about  verapamil & interferon. If not injections, at least the creams. I see talk of a "window of reversability" before full calcification occurs, but i also see that most docs lean twords non-invasive approaches.

i probobly should craft a separate post for each and/or do some searches to see what others are saying.