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cdub

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Cdub's Injury Diary
« on: July 02, 2021, 09:31:12 PM »

NOTE *** This first post on this topic starts with a cut and paste from my prior topic.  That topic got scrambled with some software glitch.  The posts start with the oldest post at the top and continuing down to the newest.  This topic is active and open for responses.

cdub Injury Diary
« on: April 13, 2020, 07:10:59 PM »

This is for my reference to my situation and, hopefully, road to recovery.  Also, to hopefully help anyone that is experiencing a similar issue that is not Peyronies.

If you look at my Intro post, you will see my story, so I won't repeat that in its entirety.  What I will do is give a brief overview of what's going on here.

I suffered an injury that was the result of either penis enlargement (stretches and jelqing) and/or rough sex with my partner while she was on top riding me and excessive masturbation/edging.  The penis enlargement injury happened in mid-February, there was some pain but no visible signs of deformity, but I believe it led up to my situation.  The deformity I first noticed on either Monday or Tuesday 3/16 & 3/17.  This was after a Friday night of rough sex in a session where she was on top, and then that Saturday & Sunday, I masturbated a lot and did a lot of edging to porn.

I saw Dr. Levine on Friday, 4/3, and his diagnosis was that I did not have Peyronies, and no scarring or plaques were observed in his testing.  His answer was that I had an injury, and now I have an abnormality that may or may not go away.

My plan of action is the following:
1. take the VitaFLUX supplement that he recommended me to take
2. limit masturbation to 2 times per week and use my fleshlight only for this
3. no limitations on sex with my partner, which is usually 2 times a week, except being very gentle when she is on top and long strokes in and out when we are getting rough in other positions (as I fear a mid-thrust).

I've attached pictures of my erect penis.  The injury is on the right side, a little below halfway down.  It shows up when I'm erect but not really when I'm flaccid.  The pictures don't really do it justice as I can't ever seem to get a good picture of it no matter what I do, but the dent looks much more noticeable in person (take my word for it, LOL).  It doesn't really show up in flaccid pictures.  I suppose I could show pictures of my erect left side of the shaft too, just for comparison (normal side vs. non-normal side).  Pictures to follow.
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By Pfract
« Reply #1 on: April 14, 2020, 01:51:44 PM »

Curious about this supplement he told you to take? And thank you for sharing your story with us

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By RandyPE
« Reply #2 on: April 14, 2020, 03:16:10 PM »

I found this link on Amazon for VitaFlux - it looks like a standard Arginine product to help increase blood flow, etc.  Good luck Cdub - we're all pulling for you.

https://www.amazon.com/VitaFLUX-Extra-Strength-Arginine-Performance/dp/B07X4YN737
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By cdub
« Reply #3 on: April 15, 2020, 01:41:27 AM »

The VitaFLUXX contains the following ingredients: Arginine, Citrulline, Carnitine tartrate, Magnesium & Zinc
.
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By: jj21
« Reply #6 on: April 16, 2020, 08:27:36 AM »

If you're looking to save money, you can do what most of us do, which is purchase the ingredients in Vitafluxx separately.

Also, my doctor said the same thing - it wasn't Peyronies but an injury that caused deformity. 2 years later, I'm in the same boat with just minimal improvement.

So you may want to consider the best-known treatments (pentox, Cialis daily, traction, VED, heat therapy).
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By: cdub
« Reply #9 on: May 17, 2020, 06:45:06 PM »

Here is my supplement stack. I'm trying for 1 month, possibly more, to see if this helps.

Arginine 3000 mg (take 2/day, 1500 mg)
Citrullene 1000 mg (take 2/day, 500 mg)
Acetyl-L-Carnitine 2000 mg (take 2/day, 1000 mg)
Ubiguinol CoQ-10 400 mg (take 2/day, 200 mg)

This is based on reading on this forum and some others over the years.  I've used Arginine and Citrulline on and off over the years and just recently with the Dr.-recommended VitaFluxx supplement.  This time I've opted to just get them by themselves and add in as much as I'd like per dose.

Acetyl-L-Carnitine I've never used before, but it's been recommended on this forum.  Same with the CoQ-10.  I'll see how this goes.  Hoping it may help.  I still use heat (rice sock) a few times a day.  My masturbation I've been good and bad with.  I know I still need to cut this down more and use the fleshlight only when I do.  I broke up with my girlfriend, so no regular fun time currently :(.  I didn't break up with her because of this there were 2 other big reasons that I won't get into here.

Hoping to get pictures on here someday.

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By: cdub
« Reply #10 on: May 21, 2020, 01:38:04 AM »

Had the follow-up evaluation with Dr. Krengel in Hinsdale, Illinois.  I know a lot of people highly regard Dr. Levine out of Chicago as being one of the best for Peyronies, and I think he probably is, but I want to say I hold Dr. Krengel in pretty high regard too.  He really took the time to sit down with me and listen to my situation, my concerns and give me a complete and thorough diagnosis.  He confirmed Dr. Levine's assessment that this is not Peyronies.  Furthermore, his diagnosis is that I had a tear in my Corpus Cavernosa from the things I was doing (jelging/stretching/edging), and I really need to stop doing these things to myself.  I had seen Dr. Krengel years ago as I had a tear in the other side of my penis (corpus cavernosa) that time from hanging weight off my unit (Bib Hanger from PE).  That healed up eventually.  It never got as bad as this one, though, indentation-wise.

Dr. Krengel's hands-on analysis was again there is was no calcified plaques observed just like Dr. Levine had diagnosed.  He said yes, I did have the tear that I had, but it wasn't the same as Peyronies.  In time my indentation may or may not go away, but I should not have any calcification occurring.  Because my erection quality isn't really suffering as a result of all of this, I'm fully functional, and pain is minimal. He mainly just recommended that I do not ever return to PE and try to move on with my life and be less fixated by this stuff.  Cutting down masturbation will help with my recovery and, in the long run, being fixated on things.  I mentioned maybe wanting to see a sex therapist, and he thought that would be a good idea and referred me to a few.

My plan at this point is to continue with the supplements I listed in the previous post in this thread.  Been on that blend for 3 days, and so far, I am noticing a difference in my erection quality, but also, I have been limiting my masturbation to once every 3 days, so that's helping too.  Continue with heat application thru rice sock for 10-20 minutes at a time, a few times a day.  No more PE.  And really just waiting for this to take care of itself.  I will plan to follow up appointments with both Doctors in the coming months, will see how I feel.  I do get some pains in the area of the injury at times, but they are not real sharp pains, and they are very fleeting when they happen.  If this persists, I will probably go back to see Dr. Levine first as he was doing the ultrasounds as well, and I'd like to know if they see any changes in the tissue thru that and not just the hands-on observation.

The plan right now is follow-up appointments with both Doctors in 3-6 months.  3 months for Levine would be the first week of July.  3 months for Krengel would, of course, be late August.

If you need a good Urologist, I highly recommend either Dr. Levine or Dr. Krengel.
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By:cdub
« Reply #15 on: June 28, 2021, 09:21:55 PM »

Checking in as it's been a while.

A quick recap is I have 2 indentations on the right side of the shaft of my penis.  Dr. Levine and another Urologist confirmed my injury was not Peyronies back in the Spring of 2020.  The initial injury was in March 2020.

Since all of this has happened, I noticed periodically that my right testicle was sometimes sitting higher up in my ballsack.  I didn't think too much of this initially, but I did notice.  Fast forward to the Fall of 2020, and the testicle was now constantly sitting up very high, sometimes basically just sitting to the right of the base of my penis.  This, while not only uncomfortable, looks quite odd, makes my scrotum look like a deflated balloon where the testicle normally sat in the scrotum.  I'm constantly readjusting myself my whole life. I've been used to that testicle hanging freely and not being bunched up by the base of my penis shaft.  Really not that painful, but extremely annoying.  Also, during sex, the right testicle often retracts into my body now, and I just look odd down there with that going on and the big indentations on the right side of my shaft and at the base of my right side on the shaft.

I went and saw the other Urologist about the testicle issue first.  In my mind, it is a direct correlation to the injury I had in 2020 as the testicle is retracting on the right side exactly in the area where I had the injury, and I hadn't really had any issues with this testicle retracting like this until after the injury.  He would not confirm that and basically would say the 2 issues were independent of each other.  He said it's a normal reflex, and upon physical examination, everything was normal and that I was fixated on this issue.  He really made me feel like I was wasting his time.  This exam was back in April of this year.  I don't know that I will go back to see him again with any issues that pop up.  Up until that visit, he was very understanding and professional.

I had a follow-up with Dr. Levine last Friday.  Unfortunately, I wasn't even able to see him.  I only saw his assistant.  The assistant told me the testicle issue was normal as well and that it happens to a lot of men.  I tried to tell him the events leading up to this as well, but it didn't seem like he was interested either.  I guess the bottom line is how this came about doesn't change too much of anything. It's still happening.  Dr. Levine's assistant did say that it's the result of the Cremaster Muscle being weak there.  He said it's normal, and not much I can do about it.  I told him about the initial exam I had last year with Dr. Levine (I'm sure he was able to read my file anyway) and told him how the right side where the indentations happened seem like they stabilized.  I did mention that it seems like I'm having vein issues now at the base at the top and left side of my penis near the base.  He did a physical exam, didn't notice any calcifications or plaques, and didn't notice any abnormalities in the veins of my penis.  I insisted that I wanted an Ultrasound done to rule out any Peyronies and to ensure that other issues aren't getting worse as a lot of my problems are more apparent when my penis is erect.  They wouldn't do it that same day, so I had to schedule 4 weeks out, so now waiting until July 16th to see Dr. Levine.  I will be calling in this week to ensure that I see Dr. Levine.

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By: cdub
« Reply #16 on: June 28, 2021, 09:41:56 PM »

So my latest appointment was last Friday with Dr. Levine's assistant, and I told about all of that in my previous post.

Well, this all unfolded last Saturday (literally the next day after seeing his assistant).

So I was dealing with the testicle issue and learning to live with the two gouges out of my shaft.  During this time, I have been fully functional when it comes to sex, and my girlfriend pretends not to notice the indentations or the strange movement of the testicle.  She has been very good to me through all of this.

Well, now I have another issue flaring up down there.  We had sex 3 times last Friday night.  The first time she was pretty wet at first, but as I went along, she was drying up a little.  We did it doggy style, and I started hammering away at her. At one point, I did think it was getting a little dry and that maybe I should have stopped and we should add some lube.  Well, I just kept going, and not much longer I came.  We lay around and have pillow talk for 20-30 minutes and then decide to go again.  This time everything is very wet, and no issues with any dryness.  More pillow talk for 20-30 minutes, and she's frisky again, and that gets me going.  I kind of had to force the erection the last time (I was maybe 50-75% erect on initial penetration?).  After some thrusting, I feel I'm pretty much at full erection, and we have another go around for the night, this time much shorter than the previous two go-arounds.  I remembered thinking as I got started with round 3 that maybe it wasn't such a good idea and maybe my penis needed to rest for the night, especially because I was kind of forcing the erection.  I wasn't feeling sore, but it wasn't that hard initially.

The next morning after she left, I felt pretty horny still, and I went to masturbate.  As I started to stroke, I noticed about halfway down on my shaft. It feels like a big bump in the middle of my shaft at the top.  The area around it seemed to sink some.  I'm not sure if that was just because the bump was raised so much more it made everything else around it seem 'sunk.'  I iced my penis throughout the day Saturday and Sunday and was taking aspirin.  Today I'm still icing and switched to Ibuprofen.  I'm hoping this will help with any swelling and get the 'bump' to go away faster.

Initially, I thought the bump might be related to the vein issues that kind of sprouted up at the bottom of my shaft on the lower left side and at the middle of the base of my penis, where it meets my abdomen.  I started thinking maybe I have Mondor's Disease or Sclerosing Lymphangitis.  Some of what I read makes sense for what I'm currently experiencing.  Later today, I started to think, maybe I ruptured my penis?  It wasn't extremely painful, though nor is there a lot of discoloration?  I thought maybe it was a small rupture?  Or maybe I bruised my penis there?  Again not much pain and no bruising that I can see.  Tonight I did get myself worked up a little just to make sure this is real that I really am feeling this big bump at the middle of my penis.  So slowly, I did work up an erection to about 80-90% erect.  Yes, it's very real and very noticeable.  I can feel it in my hand where this big bump now sits in the middle of my shaft when erect.  I don't really feel any bump/swelling, pain, or discoloration when I'm not erect.  But probably about 50% erect, and anything beyond that, I can feel the bump.  It's very foreign and odd to me.

My plan is to keep with the icing and Ibuprofen going forward and hope that it goes away on its own.  Also, abstain from masturbation for a while and sex for at least a week (my girlfriend will be in Texas this week, so that helps), and if/when we do again, everything will be very gentle for some time.

I'm waiting to see Dr. Levine again for 3 more weeks :(.  I've thought about trying to see if I can get into Dr. Krengel again, though, if I can earlier than Dr. Levine?  I want to make sure he could do an ultrasound on me, though where my penis is in an erect state, as that is when my issues show up the most.  Not sure if I should contact Dr. Krengel again though, I'm afraid he will just try and tell me this is all in my head again.  One thing Dr. Krengel had suggested was seeing a sex therapist, and actually, I do think that may help me some, just to talk about some of this.
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By: cdub
« Reply #17 on: June 29, 2021, 12:37:04 AM »

Okay, I'm starting to have a meltdown tonight.  As I went from thinking I had Mondor's Disease →  Sclerosing Lymphangitis → Broken Penis → Bruised Penis → , and now I finally think that what I have is Peyronies,  :'(

I just want this roller coaster to be over already and some sense of normalcy, not this continuing saga of injuries coming out of nowhere every few months F^@$!ng up my penis.  2 big indentations on my dick, a right testicle that now sits at the base of my penis, and now a large bump in the middle of my penis which is in line horizontally where the large indentation on the right side of my shaft is.  I think I was misdiagnosed last year and that the condition has worsened.

I have an appointment to see Dr. Levine on July 16th, but that seems so far away now.  I will call the office tomorrow and see if I can get this moved up at all in spite of my most recent circumstances.

I think my relationship with my girlfriend is over at this point.  She shouldn't have to put up with this crap.  This is so crazy to me.  One stupid idea to do the PE newbie routine for a year, thinking I had nothing to lose but time and everything to gain, is literally destroying my penis.

I don't know what to do right now.  Try to get into see another Urologist in the meantime but also see if I can get imaging done sooner with Dr. Levine?

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By:cdub
« Reply #18 on: June 29, 2021, 11:53:50 AM »

Well, pretty much no sleep last night.

I have a CT Scan for my groin later today for another issue I've been having.  It got me wondering if I can perhaps use that imaging for Peyronies diagnosis?

As for this current situation, I was able to call this morning and got my imaging date moved up with Dr. Levine from the 16th to the 8th.  So that is a plus.

I tried calling all around the greater Chicago area to see if I could get in to see any Urologist today, but no luck.  I was able to schedule an appointment tomorrow at 10:30 am with Dr. Jagan Kansal. According to his website, he specializes in Peyronies treatment and diagnosis.  Another Urology clinic also referred me to him when I told them what I suspected I had, so he may be of help as well.

The Urologist I've seen on and off over the years, Dr. Krengel, has no availability until late August.  So not looking at him anymore.

I know I don't have a diagnosis yet, and believe me, I don't want Peyronies, but after hours of reading and watching videos, I just don't see what else this could be.  I got myself to a fully erect state last night to be sure what I was seeing.  I have a very large prominent bump on the Dorsal side of my penis, right in the middle of my penis. This is also in line with where the initial big indentation is on the right side of my shaft from last year.  This new bump is very big, makes my penis look bloated, and I'd probably refer to the bump as a bulge more so than a bump.  Looks grotesque to me.

Anyway, I will try to get some rest now. I called off work this morning and taking tomorrow morning off too now to see Dr. Kansal.
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By: cdub
« Reply #19 on: June 29, 2021, 05:03:14 PM »


The more I think about my current situation, here is what I think happened to me.

I did the PE stretching and jelqing in January and February of 2020.  I started to have some pain, so I stopped.  My girlfriend and I had a crazy night of sex on a Friday night in March, the next day, I masturbated at least 5 times, and I think at one point on Saturday or Sunday, I tried doing some stretches and jelqing again.  With the stretches, I really overdid it and yanked on my penis hard in the flaccid state.  That Monday or Tuesday, she came over to my house again, and I noticed the big indentation in my penis on the right side.  I saw Dr. Levine, and he did an ultrasound in a flaccid and erect state and noted I did not have Peyronies.  Dr. Krengel did not do an ultrasound but evaluated me in a flaccid state and agreed with Dr. Levine.

I think Dr. Levine & Dr. Krengel were correct that at that time, I did not have any Peyronies.  After these consultations, it seemed I developed the 2nd indentation at the base of my penis on the right side, about an inch below the bigger indentation on the same side.  It may have developed around the same time, but I just didn't notice it right away.  Around this time, I started having issues with my right testicle moving up and sitting by the base of my penis instead of its normal hanging spot in my scrotum.  As the year went on, testicle issue I noticed more and more.  The indentations, while very noticeable, only really posed an issue when I masturbated, and I had to change up my hand position and grip at times, otherwise, with sex, I didn't notice the indentations impeding anything.  The testicle did and still does contract into my body during sex quite often, looks weird, and feels a little uncomfortable, but otherwise, I've been fully functional sex-wise.

Finally, what I'm getting at is because of the indentations, I feel that the stability of my penis was compromised so I was now much more prone to buckling not only in a fully erect state but, of course, even more so in a semi-erect state.  Last Friday night, I had sex with my girlfriend 3 times.  The last time I went in semi-erect and kind of had to force it until I became fully erect.  I've done this before and never any issues.  I suppose this bump could have resulted from Saturday morning even if we just did it 1 time Friday night, and I was at full erection.  The trauma to my penis over time had reached its breaking point, and thus the bump developed.

So really, what I'm trying to say is my initial injury, while not Peyronies, really set the stage as far as me developing Peyronies.  I know I still don't have a clear-cut diagnosis, and I should have one tomorrow after I see Dr. Kansal, but at this point, I really don't see what else this current bump could be.

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By: cdub
« Reply #20 on: 7/1/2021at 08:10:02 PM »

 saw Dr. Jagan Kansal on Wednesday morning.

He palpitated my flaccid penis and said he could not find any plaques, and there was no indication that my condition was/is Peyronies.  That is a relief for now.  He said that mainly what I need to do right now is rest as he thinks my main issue here is overuse, and that is why I'm dealing with a swelling/ridge in the erect state.  Things should go back to normal over time.  He prescribed me Meloxicam (15 mg/1x/day).  He said it was ok to take L-Arginine as well right now.  Right now, I'm taking the following:

Meloxicam 15 mg/1x/day
L-Arginine 1000 mg/3x/day = 3000 mg total
Vitamin E 90 mg, which 2000 IU/3x/day = 6000 IU

I was icing initially but stopped. I will start that again too.  I did ask about Pentox but and he nearly prescribed it, but he thought Meloxicam is a better choice for me currently.  Also, I asked about taking some low-dose Viagra as I have some on hand from previous Bluechew subscriptions.  He said he would not advise it right now, as that is counter-intuitive right now as my penis needs to rest now, not be stimulated.

The large bump/ridge or whatever if it is swelling like from a bruise it's not really painful, it's not discolored, and it doesn't seem to give when I press on it or move with the skin during an erection.  It's very strange to me.

Dr. Kansal never saw me in the erect state, so he was not able to observe the ridge directly as it doesn't really show up in the flaccid state.  I did show him a picture of my penis in the erect state, so he was able to see it.

I didn't really get a firm answer as to what it was that I'm dealing with. Mainly he said that I overused my penis, and I need to allow it time to rest now.  I asked if this was Peyronies, Mondors, Lymphangitis, or even Cancer, and he said it is not any of those things.

I have a follow-up with Dr. Kansal on July 14th.  I may or may not go as I have an appointment with Dr. Levine on July 7th and am set to do an ultrasound.  I will see how I look on the 6th.  If the swelling has gone down quite a bit, I may just see if I can re-schedule the appointment with Dr. Levine for a few weeks out as I'd like the swelling to heal quite a bit before I get shots into my penis again.

Thank you to Ben Ray Camp thru all this.  You've been a great person to talk to and share ideas and information with.  I hope your situation gets better as well.  I will be in touch with you.

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By: cdub
« Reply #24 on: 7/2/2021 at 12:04:48 AM »

Picture of my penis.  The current injury is mid-shaft, where I have very large swelling, but at this angle, it is not very apparent.  Injuries from March 2020 are easily seen, however, on the right side of my shaft.  Large indentation on the right side about mid-shaft. and Also another indentation on the right side at the base.

https://imgur.com/ZYjmB8W

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By: cdub
« Reply #24 on: 7/2/2021 at 12:07:48 AM.»

Side angle shows a good view of the current injury (6/26/21), which is the prominent bump/swelling mid shaft.  Also below that is the indentation injury from March of 2020 that I was told by Dr. Levine & Dr. Krengel is not Peyronies.

https://imgur.com/uARDAwp
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By: cdub
« Reply #24 on: 7/2/2021 at 12:06:48 AM »

A close-up of the dorsal bump from the side.  The current diagnosis is this is not Peyronies.  I have not done Ultrasounds yet.  Hoping this goes down and goes away and that this does not become a permanent fixture on my penis.

https://imgur.com/n9f8XJL

Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
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cdub

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Re: Cdub's Injury Diary
« Reply #1 on: July 03, 2021, 01:33:39 AM »

I'm actually starting to think my recent injury was a Penile Fracture.  I wish I would have asked Dr. Kansal if that is what I might have, but he is the Dr. too so if it is I guess he's supposed to be able to tell if that is what it is. 

I guess the reason I over looked penile fracture is I did not have any blood or discoloration, and I did not hear a pop, nor could I pinpoint a moment where I felt a pain when it happened.  I have no recollection of it happening.  The only way I noticed was the next day when I went to masturbate and I felt a large bump in my penis on Saturday morning.  Also, I hadn't really felt any pain until Monday & Tuesday nights when I got myself erect on purpose just to take pictures.  And even then the pain was only later when I went to go to sleep and I was flaccid but the pain was minimal.  The last 2 days I have gotten a little pain here and there.  Swelling is as much as it was since Saturday morning, nothing has changed. 

I'm worried that I will have another deformity now from what might be a Penis Fracture.  I see Dr. Levine on the 7th at 8 am for ultrasound.  Will be interesting to see what he thinks in flaccid palpitation and if he sees anything in flaccid ultrasound.  The bump is noticeable only when I get semi-erect to erect.  In flaccid state it's not noticeable, Dr. Kansal couldn't find any signs of Peyronies in flaccid state but did not do ultrasound. 

I continue taking the medication for the inflammation, and vitamin E, not sure if I should add Arginine back in or not.
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

cdub

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Re: Cdub's Injury Diary
« Reply #2 on: July 03, 2021, 05:13:04 AM »

Okay by process of elimination the only thing I can come up with anymore is that I had a Penile Fracture.  The worst part about all of this is all my symptoms were so delayed that I didn't rush to the ER to have this looked at which looks now like what I should have done. 

What should have been done:

1. Go to ER
2. Get Ultrasound to confirm Grade of Fracture
3. Have Surgery depending on Grade?

The injury occurred Friday night, I didn't notice anything until Saturday morning, maybe around 11 AM?  I wasn't able to see a Urologist until Wednesday morning.  I was so concerned that I had Peyronies, Mondors, or Lymphangitis, I never thought it could be a penis fracture as my penis was not in pain, I never heard a pop, and I did not have extreme discoloration or bleeding.  I did/do, however have a large hematoma that only presents itself when erect and doesn't seem to be noticeable in a flaccid state. 

Does any of this make sense for a penis fracture?  Aren't hematomas noticeable in both erect and flaccid states?  How could the Urologist I saw on Wednesday not diagnosis this as a Penis Fracture?  He said there were no signs of Peyronies in palpitating my flaccid penis, but never did an ultrasound and only saw my erect penis in the pictures I provided below.  I can't believe I never asked about Penis Fracture!  I'm hoping right now that I have a low grade penis fracture (if I have one) as I did not have all of those other symptoms, however the hematoma does seem pretty large to me as you can see in my pictures:


https://imgur.com/uARDAwp
https://imgur.com/n9f8XJL

Is there such a thing as a sprained penis?  Scared that I will have Erectile Dysfunction going forward now and not much I can do about it as I missed the window of immediate treatment that is so vital with a penis fracture.   :'(
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

Mikel7

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Re: Cdub's Injury Diary
« Reply #3 on: July 03, 2021, 05:52:11 AM »

Dr Levine should give you a correct diagnosis. I assume he is going to do an ultrasound?  He is my Dr
and I do like his approach to diagnosing. He will answer all of your questions so have a list ready.  Good luck. 
Logged
Lump April 2020, age 60 , Dr Levine 6-26-20,
Dorsal Curve 11-1-20 , Peyronies
Vit E400mg, COQ10, ALCAR, Heat Therapy, Penimaster, Pentox, Cialis
had SNHL 7-31-20 - Stopped all Meds because ototoxicity  Heat/traction/VED are working.

cdub

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Re: Cdub's Injury Diary
« Reply #4 on: July 03, 2021, 03:19:26 PM »

Hi Mikel7,

Yes I have an Ultrasound scheduled with Dr. Levine at 8 am on Wednesday morning.  I'm looking forward to seeing him as I think the other Doctor didn't diagnosis me properly and missed the Penile Fracture because I did not have classic symptoms.  It will be interesting to see what Dr. Levine sees on the flaccid and erect ultrasounds.  My swelling has not gone down at all yet and I'm starting to get some pain when I pee which to me is indicative that I may have a little bit of damage on the urethra as well.  I'm hoping the grade of the PF is low enough that the Tunica and Corpora Cavernosa were badly bruised thus the hematoma but not punctured at all because I did not see any blood or discoloration.  It will be a long weekend and next few days until I see him. 

Thank you
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
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cdub

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Re: Cdub's Injury Diary
« Reply #5 on: July 10, 2021, 01:34:39 AM »

I had my appointment with Dr. Levine last Wednesday morning at 8 am. 

No findings in the flaccid ultrasound (US).  Erect US showed what Dr. Levine said was a fibrotic nodule/cyst, not a hematoma like I had thought.  He said he was not able to palpate a plaque though.  His diagnosis was that I have Peyronies-like symptoms but I could still be in the slow healing wound camp.  He said the fibrosis was most likely from a microtear in the tunica (so a microfracture of the penis).  The treatment right now is to treat this like it is Peyronies for 3 months and see if I make any improvements.

I will be taking:
Pentox 400 mg, 3/day
Cialis, low dose 5 mg before bed
Vitaflux 2 capsules 2 times/day = 4 capsules daily

Starting Traction therapy soon and trying to decide if PeniMasterPro or Restorex is the right one for me.  Been reading a lot about these.  I'm pretty sure I could consistently do 4 hours/day with PMP on weekdays then 6 hours/day on weekends.  Using the Restorex for 60-90 minutes/day with potentially similar results is appealing though.  My situation is I have a fibrotic cyst on the septum, dorsal side of penis.  Right now no curve but it seems like it's starting to push to the left.  Pain has been minimal and indentations from previous injuries (March 2020, not peyronies) on the right side of shaft.  I'm going to reach out to Dr. Trost and see what his thoughts are on my situation and if the Restorex might be of benefit.  Especially since I don't seem to have a curvature up or down if I would need to stretch up or down on the glans?

God bless you all.
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

cdub

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Re: Cdub's Injury Diary
« Reply #6 on: July 11, 2021, 08:02:49 PM »

I reached out to Dr. Trost in an email yesterday.  I heard back from him today!  He said there was limited things he could say to me directly concerning my situation as I'm not one of his patients, but he did speak in generalities.  He said someone in my shoes had two options:

1. Wait until I see curvature, deformity or length loss then start traction to deter/correct these things.
2. Start traction right away, and if there weren't any specific area of curvature just do straight traction only. But if any developed do counter bending against it.

Also he did mention that Ultrasound is not very good at detecting the extent of fibrosis/nodularity.  Since Peyronies Disease plaques are made of the same tissue as the normal penis, it's difficult to know where disease starts and where it ends.  So he wouldn't put too much weight/emphasis on an ultrasound finding.
I did follow up with asking if he thinks I should consider if I should see about getting an MRI done to get a more definitive diagnosis?  Will report back on what he says.

I'm anxious to get started with traction so I will order the Restorex tonight and see if I can get it over-nighted for Monday or Tuesday delivery.  I just don't want to lose more time.  The time commitments on PeniMasterPro just seem to be too overwhelming and I'm not sure that I can meet those regularly. 
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

cdub

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Re: Cdub's Injury Diary
« Reply #7 on: July 18, 2021, 05:45:21 PM »

Just a weekly update on my condition.

I received the Restorex early last week.  Did the beginner workout without issue.   I awoke late that night I got up to use the restroom and noticed swelling on my shaft on the left side near the head.  No pain really but it looked unsightly to me.  I iced it some and also did a light gauze wrap around my penis and finally went to bed a like 3 am? 

I decided to stop using the Restorex right away as it looks like the tension from the Restorex was too much too soon for my penis.  I will hold onto the Restorex for now in-case it comes in handy for counter-bending in the future but I don't think it's a go for me and will probably end up selling it.

I purchased the PMP this weekend and should arrive this week.  Also, I've been binge watching Neo's videos on Youtube which are very informative and inspire hope. 

Going forward my plan is to really limit masturbation, maybe 1/week or 1/every 2 weeks.  Sex is about every 2 weeks already so not limiting that but I am going to be very careful and any sexual activity will be very slow and not rough at all.  Also will only be cumming once per session in the time being for sex.  It's a catch 22, if you don't use it you lose it but at the same time I think I have to be very careful for sometime.  Also, I've finally come to realize how important all sexual activity is risky for me if my erections are not very strong.  Because of the large indentation on the right side of my shaft that can be and I believe has been a very risky deal for me if I have sex/masturbate with subpar erections as my penis is much more likely to buckle and in my recent case last month a microfracture was most likely the result of this buckling.  Also, it's important to note for me on days where I'm not having sex or masturbating, No Edging!  Edging is counter-intuiative to all of this.  Even though I would not be cumming I would still be stimulating the penis and not really giving my penis the day off!  All this has made me realize how I look at porn way too much and it should not be something I do daily. 

My plan is to also start using heat.  I have to read up more on this as well.  I know going over 40°C can cause cell death so I will be making sure I do not over heat.  I will be using the rice sock method.

Hand traction sounds good and I know one needs to be very careful not to overdue the pressure/tension.  Also, I know Neo says it's not necessarily about tension but stretching to induce blood flow into the penis especially parts of the penis that are damaged to promote a healthy penis and potentially healing and remodeling.  For me I think using an actual device may be more beneficial mainly because I hope to stretch enough to fill in the indentations and thus have a stronger penis less susceptible to buckling. 

Penis feels pretty good today.  Still notice the large bump in the middle of my penis.  It feels like the size of a marble.  Can definitely feel it in flaccid state this last week.  I know at the beginning of this injury even thru when I say Dr. Levine on 7/07 it didn't seem to present itself in the flaccid state.  I suppose this is part of the healing and scar formation process.  Also, I did see the full clinical summary from the 7/07 visit.  Dr. Levine did say I had a small hematoma in that report but the main bulge is no doubt now the spetal fibrosis (not a cyst).

My injury from the Restorex hasn't seemed to heal up yet, but also hasn't gotten worse.  In erect state it's gone but flaccid it feels kind of puffy and puffs out, but if I press on it, it feels like a indentation/crevice in my penis.  Not painful at all, but still something I'm concerned about.  I'm wondering when the PMP shows up if I should wait until this recent injury completely clears up or if waiting will do more harm then good.  I wish I never ordered the Restorex and used it.  My penis clearly wasn't ready to use it.

Anyway, that's all for now.  Girlfriend will be coming over tonight and planning to have sex, again careful, slow and controlled and only if my erection is solid, which I think I'll be fine there as she really turns me on, I haven't gotten off since Monday?  And my morning erections have been crazy good. 
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

cdub

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Re: Cdub's Injury Diary
« Reply #8 on: July 20, 2021, 02:48:46 AM »

My self diagnosis of my current injury is a tear in the superficial fascia from using the Restorex.  I know it's an amateur diagnosis, but it's the best I can come up with based off my knowledge and what I know about tears of other tissues in the penis (buck's fascia and tunica) which would cause a penile fracture.  I'll see Dr. Levine on the 27th so I'll get answers then at that point.  Right now I'm just resting my penis, no attempts at traction until he gives me the green light, even then will be proceeding with extreme caution and will only be using the PMP going forward as I don't trust that the Restorex can work for me.

I plan on updating this thread weekly with my hopeful progression into penile health. 
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

Pfract

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Re: Cdub's Injury Diary
« Reply #9 on: July 20, 2021, 11:49:44 PM »

Hey! I  just read your post about restorex and the small hematoma. Have you reached out to Dr. Trost yet? Have you contacted customer support? it is the first time i hear about such an issue happening post traction. Shocked!

What was the beginner workout you mention?

cdub

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Re: Cdub's Injury Diary
« Reply #10 on: July 21, 2021, 10:16:32 PM »

Hi Pfract,

Yes I emailed Dr. Trost about Restorex and about my injury.  He thought that maybe my penis wasn't sitting in the clamp correctly?  But I'm pretty positive that it was.  I didn't really have too many issues getting situated with the device and doing the full 10 minute workouts each time.  I went over the manual a few times and watched all the how to videos before I attempted the 1st Day workout. 

I've not contacted customer support at Restorex.  From what I was told Restorex is non-refundable.  I guess I should check and see if they will accept a return. 

I sent another email off to Dr. Trost tonight to see if he's ever heard of a patient getting injured like I did from Restorex?  I mentioned that I think I tore either the dartos fascia or tunica dartos.  I also mentioned all of my symptoms. 

I'm stopping any forms of physical treatment until I see Dr. Levine next Tuesday.   Really sucks that I had this most current injury.  In my mind it is directly related to the Restorex and not advancing of Peyronies, but I may be wrong. 
Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

cdub

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Re: Cdub's Injury Diary
« Reply #11 on: July 27, 2021, 12:23:34 AM »

Will be doing a follow-up with Dr. Levine tomorrow.

I will not be having any Ultrasound done so no induced erection.  Interested only in having flaccid palpation done.
I had last seen Dr. Levine on the 7th so approximately 20 days ago.  Since then the nodule on my penis which was really only present when I was erect has become less apparent when I'm erect.  The nodule is still visual though and palpable but the swelling is decreased in the erect state.  Meanwhile in the flaccid state is it much more pronounced, very palpable, it feels like a fleshy marble in my dick.  It seems pretty large size.  So will have Dr. Levine see what he thinks here.  I'm hoping it's just normal scarring associated with a penile fracture and doesn't necessarily mean I will have Peyronies.  I have noticed the past few days that it seems like I have a thin guitar like string running from this nodule up the shaft of my penis on the right ventral side.  This little string isn't really noticeable erect but I find it when I'm flaccid.  I do have to kind of look for it.  So maybe I should back off a little as maybe I'm aggravating it? 

And of course there is now the crevices on the left side near the head of my penis now thanks to the Restorex device.  The skin is still puffy there after 2 weeks.  No pain, but if I press on the skin it feels like a crevice/indentation in the tissue.  I think this was a tear in the dartos fascia. 

I did masturbate on Saturday after not doing anything since the Sunday before when my girlfriend and I had sex.  My plan now is to not masturbate now for at least 2 more weeks.  Sex probably won't be for another week as I won't see my girl until then.  Might postpone any sex for awhile too, she is supportive, but it hurts to not be able to share that intimacy with her and feel like I'm now lacking there,  :(

Been trying to use heat a few times a day.  Waiting to see what Dr. Levine's assessment is before I attempt any traction especially considering the new injury that the Restorex gave me.  I may need to wait and let that fully heal before I try anything traction wise.  Also, going to be extremely careful/vigilant if/when I attempt traction again as I may not be a good candidate for it.

Praying that tomorrow goes okay, that yes he can palpate the scar tissue from the microfracture in the flaccid state but that it is still not a firm diagnosis of Peyronies.  Also, wonder what his thoughts are on the Restorex injury and if he will confirm it is a tear in Dartos fascia?  And if the guitar string I kind of feel is anything to be worried about.  Trying to stay positive no matter the outcome tomorrow. 

Logged
Age: 41
First Symptoms: Large bump on dorsal shaft 6/26/21
Initial Diagnosis: Fibroitic Nodule/Cyst on Dorsal Shaft, no palable peyronies plaque, but treating as peyronies
Treatments: Pentox, Vitaflux, Cialis, and Traction
Currently Dating

uhm

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Re: Cdub's Injury Diary
« Reply #12 on: July 27, 2021, 04:17:15 AM »

Will be doing a follow-up with Dr. Levine tomorrow.

I will not be having any Ultrasound done so no induced erection.  Interested only in having flaccid palpation done.
I had last seen Dr. Levine on the 7th so approximately 20 days ago.  Since then the nodule on my penis which was really only present when I was erect has become less apparent when I'm erect.  The nodule is still visual though and palpable but the swelling is decreased in the erect state.  Meanwhile in the flaccid state is it much more pronounced, very palpable, it feels like a fleshy marble in my dick.  It seems pretty large size.  So will have Dr. Levine see what he thinks here.  I'm hoping it's just normal scarring associated with a penile fracture and doesn't necessarily mean I will have Peyronies.  I have noticed the past few days that it seems like I have a thin guitar like string running from this nodule up the shaft of my penis on the right ventral side.  This little string isn't really noticeable erect but I find it when I'm flaccid.  I do have to kind of look for it.  So maybe I should back off a little as maybe I'm aggravating it? 

And of course there is now the crevices on the left side near the head of my penis now thanks to the Restorex device.  The skin is still puffy there after 2 weeks.  No pain, but if I press on the skin it feels like a crevice/indentation in the tissue.  I think this was a tear in the dartos fascia. 

I did masturbate on Saturday after not doing anything since the Sunday before when my girlfriend and I had sex.  My plan now is to not masturbate now for at least 2 more weeks.  Sex probably won't be for another week as I won't see my girl until then.  Might postpone any sex for awhile too, she is supportive, but it hurts to not be able to share that intimacy with her and feel like I'm now lacking there,  :(

Been trying to use heat a few times a day.  Waiting to see what Dr. Levine's assessment is before I attempt any traction especially considering the new injury that the Restorex gave me.  I may need to wait and let that fully heal before I try anything traction wise.  Also, going to be extremely careful/vigilant if/when I attempt traction again as I may not be a good candidate for it.

Praying that tomorrow goes okay, that yes he can palpate the scar tissue from the microfracture in the flaccid state but that it is still not a firm diagnosis of Peyronies.  Also, wonder what his thoughts are on the Restorex injury and if he will confirm it is a tear in Dartos fascia?  And if the guitar string I kind of feel is anything to be worried about.  Trying to stay positive no matter the outcome tomorrow.

Best of luck tomorrow man,
Please keep us updated
Logged
22, 25 degree curve both erect & flaccid.
Pain on kegel while erect.

No treatment as of yet.
Waiting to see urologist.
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