Cdub's Injury Diary

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cdub

NOTE *** This first post on this topic starts with a cut and paste from my prior topic.  That topic got scrambled with some software glitch.  The posts start with the oldest post at the top and continuing down to the newest.  This topic is active and open for responses.

cdub Injury Diary
« on: April 13, 2020, 07:10:59 PM »

This is for my reference to my situation and, hopefully, road to recovery.  Also, to hopefully help anyone that is experiencing a similar issue that is not Peyronies.

If you look at my Intro post, you will see my story, so I won't repeat that in its entirety.  What I will do is give a brief overview of what's going on here.

I suffered an injury that was the result of either penis enlargement (stretches and jelqing) and/or rough sex with my partner while she was on top riding me and excessive masturbation/edging.  The penis enlargement injury happened in mid-February, there was some pain but no visible signs of deformity, but I believe it led up to my situation.  The deformity I first noticed on either Monday or Tuesday 3/16 & 3/17.  This was after a Friday night of rough sex in a session where she was on top, and then that Saturday & Sunday, I masturbated a lot and did a lot of edging to porn.

I saw Dr. Levine on Friday, 4/3, and his diagnosis was that I did not have Peyronies, and no scarring or plaques were observed in his testing.  His answer was that I had an injury, and now I have an abnormality that may or may not go away.

My plan of action is the following:
1. take the VitaFLUX supplement that he recommended me to take
2. limit masturbation to 2 times per week and use my fleshlight only for this
3. no limitations on sex with my partner, which is usually 2 times a week, except being very gentle when she is on top and long strokes in and out when we are getting rough in other positions (as I fear a mid-thrust).

I've attached pictures of my erect penis.  The injury is on the right side, a little below halfway down.  It shows up when I'm erect but not really when I'm flaccid.  The pictures don't really do it justice as I can't ever seem to get a good picture of it no matter what I do, but the dent looks much more noticeable in person (take my word for it, LOL).  It doesn't really show up in flaccid pictures.  I suppose I could show pictures of my erect left side of the shaft too, just for comparison (normal side vs. non-normal side).  Pictures to follow.
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By Pfract
« Reply #1 on: April 14, 2020, 01:51:44 PM »

Curious about this supplement he told you to take? And thank you for sharing your story with us

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By RandyPE
« Reply #2 on: April 14, 2020, 03:16:10 PM »

I found this link on Amazon for VitaFlux - it looks like a standard Arginine product to help increase blood flow, etc.  Good luck Cdub - we're all pulling for you.

https://www.amazon.com/VitaFLUX-Extra-Strength-Arginine-Performance/dp/B07X4YN737
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By cdub
« Reply #3 on: April 15, 2020, 01:41:27 AM »

The VitaFLUXX contains the following ingredients: Arginine, Citrulline, Carnitine tartrate, Magnesium & Zinc
.
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By: jj21
« Reply #6 on: April 16, 2020, 08:27:36 AM »

If you're looking to save money, you can do what most of us do, which is purchase the ingredients in Vitafluxx separately.

Also, my doctor said the same thing - it wasn't Peyronies but an injury that caused deformity. 2 years later, I'm in the same boat with just minimal improvement.

So you may want to consider the best-known treatments (pentox, Cialis daily, traction, VED, heat therapy).
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By: cdub
« Reply #9 on: May 17, 2020, 06:45:06 PM »

Here is my supplement stack. I'm trying for 1 month, possibly more, to see if this helps.

Arginine 3000 mg (take 2/day, 1500 mg)
Citrullene 1000 mg (take 2/day, 500 mg)
Acetyl-L-Carnitine 2000 mg (take 2/day, 1000 mg)
Ubiguinol CoQ-10 400 mg (take 2/day, 200 mg)

This is based on reading on this forum and some others over the years.  I've used Arginine and Citrulline on and off over the years and just recently with the Dr.-recommended VitaFluxx supplement.  This time I've opted to just get them by themselves and add in as much as I'd like per dose.

Acetyl-L-Carnitine I've never used before, but it's been recommended on this forum.  Same with the CoQ-10.  I'll see how this goes.  Hoping it may help.  I still use heat (rice sock) a few times a day.  My masturbation I've been good and bad with.  I know I still need to cut this down more and use the fleshlight only when I do.  I broke up with my girlfriend, so no regular fun time currently :(.  I didn't break up with her because of this there were 2 other big reasons that I won't get into here.

Hoping to get pictures on here someday.

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By: cdub
« Reply #10 on: May 21, 2020, 01:38:04 AM »

Had the follow-up evaluation with Dr. Krengel in Hinsdale, Illinois.  I know a lot of people highly regard Dr. Levine out of Chicago as being one of the best for Peyronies, and I think he probably is, but I want to say I hold Dr. Krengel in pretty high regard too.  He really took the time to sit down with me and listen to my situation, my concerns and give me a complete and thorough diagnosis.  He confirmed Dr. Levine's assessment that this is not Peyronies.  Furthermore, his diagnosis is that I had a tear in my Corpus Cavernosa from the things I was doing (jelging/stretching/edging), and I really need to stop doing these things to myself.  I had seen Dr. Krengel years ago as I had a tear in the other side of my penis (corpus cavernosa) that time from hanging weight off my unit (Bib Hanger from PE).  That healed up eventually.  It never got as bad as this one, though, indentation-wise.

Dr. Krengel's hands-on analysis was again there is was no calcified plaques observed just like Dr. Levine had diagnosed.  He said yes, I did have the tear that I had, but it wasn't the same as Peyronies.  In time my indentation may or may not go away, but I should not have any calcification occurring.  Because my erection quality isn't really suffering as a result of all of this, I'm fully functional, and pain is minimal. He mainly just recommended that I do not ever return to PE and try to move on with my life and be less fixated by this stuff.  Cutting down masturbation will help with my recovery and, in the long run, being fixated on things.  I mentioned maybe wanting to see a sex therapist, and he thought that would be a good idea and referred me to a few.

My plan at this point is to continue with the supplements I listed in the previous post in this thread.  Been on that blend for 3 days, and so far, I am noticing a difference in my erection quality, but also, I have been limiting my masturbation to once every 3 days, so that's helping too.  Continue with heat application thru rice sock for 10-20 minutes at a time, a few times a day.  No more PE.  And really just waiting for this to take care of itself.  I will plan to follow up appointments with both Doctors in the coming months, will see how I feel.  I do get some pains in the area of the injury at times, but they are not real sharp pains, and they are very fleeting when they happen.  If this persists, I will probably go back to see Dr. Levine first as he was doing the ultrasounds as well, and I'd like to know if they see any changes in the tissue thru that and not just the hands-on observation.

The plan right now is follow-up appointments with both Doctors in 3-6 months.  3 months for Levine would be the first week of July.  3 months for Krengel would, of course, be late August.

If you need a good Urologist, I highly recommend either Dr. Levine or Dr. Krengel.
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By:cdub
« Reply #15 on: June 28, 2021, 09:21:55 PM »

Checking in as it's been a while.

A quick recap is I have 2 indentations on the right side of the shaft of my penis.  Dr. Levine and another Urologist confirmed my injury was not Peyronies back in the Spring of 2020.  The initial injury was in March 2020.

Since all of this has happened, I noticed periodically that my right testicle was sometimes sitting higher up in my ballsack.  I didn't think too much of this initially, but I did notice.  Fast forward to the Fall of 2020, and the testicle was now constantly sitting up very high, sometimes basically just sitting to the right of the base of my penis.  This, while not only uncomfortable, looks quite odd, makes my scrotum look like a deflated balloon where the testicle normally sat in the scrotum.  I'm constantly readjusting myself my whole life. I've been used to that testicle hanging freely and not being bunched up by the base of my penis shaft.  Really not that painful, but extremely annoying.  Also, during sex, the right testicle often retracts into my body now, and I just look odd down there with that going on and the big indentations on the right side of my shaft and at the base of my right side on the shaft.

I went and saw the other Urologist about the testicle issue first.  In my mind, it is a direct correlation to the injury I had in 2020 as the testicle is retracting on the right side exactly in the area where I had the injury, and I hadn't really had any issues with this testicle retracting like this until after the injury.  He would not confirm that and basically would say the 2 issues were independent of each other.  He said it's a normal reflex, and upon physical examination, everything was normal and that I was fixated on this issue.  He really made me feel like I was wasting his time.  This exam was back in April of this year.  I don't know that I will go back to see him again with any issues that pop up.  Up until that visit, he was very understanding and professional.

I had a follow-up with Dr. Levine last Friday.  Unfortunately, I wasn't even able to see him.  I only saw his assistant.  The assistant told me the testicle issue was normal as well and that it happens to a lot of men.  I tried to tell him the events leading up to this as well, but it didn't seem like he was interested either.  I guess the bottom line is how this came about doesn't change too much of anything. It's still happening.  Dr. Levine's assistant did say that it's the result of the Cremaster Muscle being weak there.  He said it's normal, and not much I can do about it.  I told him about the initial exam I had last year with Dr. Levine (I'm sure he was able to read my file anyway) and told him how the right side where the indentations happened seem like they stabilized.  I did mention that it seems like I'm having vein issues now at the base at the top and left side of my penis near the base.  He did a physical exam, didn't notice any calcifications or plaques, and didn't notice any abnormalities in the veins of my penis.  I insisted that I wanted an Ultrasound done to rule out any Peyronies and to ensure that other issues aren't getting worse as a lot of my problems are more apparent when my penis is erect.  They wouldn't do it that same day, so I had to schedule 4 weeks out, so now waiting until July 16th to see Dr. Levine.  I will be calling in this week to ensure that I see Dr. Levine.

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By: cdub
« Reply #16 on: June 28, 2021, 09:41:56 PM »

So my latest appointment was last Friday with Dr. Levine's assistant, and I told about all of that in my previous post.

Well, this all unfolded last Saturday (literally the next day after seeing his assistant).

So I was dealing with the testicle issue and learning to live with the two gouges out of my shaft.  During this time, I have been fully functional when it comes to sex, and my girlfriend pretends not to notice the indentations or the strange movement of the testicle.  She has been very good to me through all of this.

Well, now I have another issue flaring up down there.  We had sex 3 times last Friday night.  The first time she was pretty wet at first, but as I went along, she was drying up a little.  We did it doggy style, and I started hammering away at her. At one point, I did think it was getting a little dry and that maybe I should have stopped and we should add some lube.  Well, I just kept going, and not much longer I came.  We lay around and have pillow talk for 20-30 minutes and then decide to go again.  This time everything is very wet, and no issues with any dryness.  More pillow talk for 20-30 minutes, and she's frisky again, and that gets me going.  I kind of had to force the erection the last time (I was maybe 50-75% erect on initial penetration?).  After some thrusting, I feel I'm pretty much at full erection, and we have another go around for the night, this time much shorter than the previous two go-arounds.  I remembered thinking as I got started with round 3 that maybe it wasn't such a good idea and maybe my penis needed to rest for the night, especially because I was kind of forcing the erection.  I wasn't feeling sore, but it wasn't that hard initially.

The next morning after she left, I felt pretty horny still, and I went to masturbate.  As I started to stroke, I noticed about halfway down on my shaft. It feels like a big bump in the middle of my shaft at the top.  The area around it seemed to sink some.  I'm not sure if that was just because the bump was raised so much more it made everything else around it seem 'sunk.'  I iced my penis throughout the day Saturday and Sunday and was taking aspirin.  Today I'm still icing and switched to Ibuprofen.  I'm hoping this will help with any swelling and get the 'bump' to go away faster.

Initially, I thought the bump might be related to the vein issues that kind of sprouted up at the bottom of my shaft on the lower left side and at the middle of the base of my penis, where it meets my abdomen.  I started thinking maybe I have Mondor's Disease or Sclerosing Lymphangitis.  Some of what I read makes sense for what I'm currently experiencing.  Later today, I started to think, maybe I ruptured my penis?  It wasn't extremely painful, though nor is there a lot of discoloration?  I thought maybe it was a small rupture?  Or maybe I bruised my penis there?  Again not much pain and no bruising that I can see.  Tonight I did get myself worked up a little just to make sure this is real that I really am feeling this big bump at the middle of my penis.  So slowly, I did work up an erection to about 80-90% erect.  Yes, it's very real and very noticeable.  I can feel it in my hand where this big bump now sits in the middle of my shaft when erect.  I don't really feel any bump/swelling, pain, or discoloration when I'm not erect.  But probably about 50% erect, and anything beyond that, I can feel the bump.  It's very foreign and odd to me.

My plan is to keep with the icing and Ibuprofen going forward and hope that it goes away on its own.  Also, abstain from masturbation for a while and sex for at least a week (my girlfriend will be in Texas this week, so that helps), and if/when we do again, everything will be very gentle for some time.

I'm waiting to see Dr. Levine again for 3 more weeks :(.  I've thought about trying to see if I can get into Dr. Krengel again, though, if I can earlier than Dr. Levine?  I want to make sure he could do an ultrasound on me, though where my penis is in an erect state, as that is when my issues show up the most.  Not sure if I should contact Dr. Krengel again though, I'm afraid he will just try and tell me this is all in my head again.  One thing Dr. Krengel had suggested was seeing a sex therapist, and actually, I do think that may help me some, just to talk about some of this.
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By: cdub
« Reply #17 on: June 29, 2021, 12:37:04 AM »

Okay, I'm starting to have a meltdown tonight.  As I went from thinking I had Mondor's Disease →  Sclerosing Lymphangitis → Broken Penis → Bruised Penis → , and now I finally think that what I have is Peyronies,  :'(

I just want this roller coaster to be over already and some sense of normalcy, not this continuing saga of injuries coming out of nowhere every few months F^@$!ng up my penis.  2 big indentations on my dick, a right testicle that now sits at the base of my penis, and now a large bump in the middle of my penis which is in line horizontally where the large indentation on the right side of my shaft is.  I think I was misdiagnosed last year and that the condition has worsened.

I have an appointment to see Dr. Levine on July 16th, but that seems so far away now.  I will call the office tomorrow and see if I can get this moved up at all in spite of my most recent circumstances.

I think my relationship with my girlfriend is over at this point.  She shouldn't have to put up with this crap.  This is so crazy to me.  One stupid idea to do the PE newbie routine for a year, thinking I had nothing to lose but time and everything to gain, is literally destroying my penis.

I don't know what to do right now.  Try to get into see another Urologist in the meantime but also see if I can get imaging done sooner with Dr. Levine?

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By:cdub
« Reply #18 on: June 29, 2021, 11:53:50 AM »

Well, pretty much no sleep last night.

I have a CT Scan for my groin later today for another issue I've been having.  It got me wondering if I can perhaps use that imaging for Peyronies diagnosis?

As for this current situation, I was able to call this morning and got my imaging date moved up with Dr. Levine from the 16th to the 8th.  So that is a plus.

I tried calling all around the greater Chicago area to see if I could get in to see any Urologist today, but no luck.  I was able to schedule an appointment tomorrow at 10:30 am with Dr. Jagan Kansal. According to his website, he specializes in Peyronies treatment and diagnosis.  Another Urology clinic also referred me to him when I told them what I suspected I had, so he may be of help as well.

The Urologist I've seen on and off over the years, Dr. Krengel, has no availability until late August.  So not looking at him anymore.

I know I don't have a diagnosis yet, and believe me, I don't want Peyronies, but after hours of reading and watching videos, I just don't see what else this could be.  I got myself to a fully erect state last night to be sure what I was seeing.  I have a very large prominent bump on the Dorsal side of my penis, right in the middle of my penis. This is also in line with where the initial big indentation is on the right side of my shaft from last year.  This new bump is very big, makes my penis look bloated, and I'd probably refer to the bump as a bulge more so than a bump.  Looks grotesque to me.

Anyway, I will try to get some rest now. I called off work this morning and taking tomorrow morning off too now to see Dr. Kansal.
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By: cdub
« Reply #19 on: June 29, 2021, 05:03:14 PM »


The more I think about my current situation, here is what I think happened to me.

I did the PE stretching and jelqing in January and February of 2020.  I started to have some pain, so I stopped.  My girlfriend and I had a crazy night of sex on a Friday night in March, the next day, I masturbated at least 5 times, and I think at one point on Saturday or Sunday, I tried doing some stretches and jelqing again.  With the stretches, I really overdid it and yanked on my penis hard in the flaccid state.  That Monday or Tuesday, she came over to my house again, and I noticed the big indentation in my penis on the right side.  I saw Dr. Levine, and he did an ultrasound in a flaccid and erect state and noted I did not have Peyronies.  Dr. Krengel did not do an ultrasound but evaluated me in a flaccid state and agreed with Dr. Levine.

I think Dr. Levine & Dr. Krengel were correct that at that time, I did not have any Peyronies.  After these consultations, it seemed I developed the 2nd indentation at the base of my penis on the right side, about an inch below the bigger indentation on the same side.  It may have developed around the same time, but I just didn't notice it right away.  Around this time, I started having issues with my right testicle moving up and sitting by the base of my penis instead of its normal hanging spot in my scrotum.  As the year went on, testicle issue I noticed more and more.  The indentations, while very noticeable, only really posed an issue when I masturbated, and I had to change up my hand position and grip at times, otherwise, with sex, I didn't notice the indentations impeding anything.  The testicle did and still does contract into my body during sex quite often, looks weird, and feels a little uncomfortable, but otherwise, I've been fully functional sex-wise.

Finally, what I'm getting at is because of the indentations, I feel that the stability of my penis was compromised so I was now much more prone to buckling not only in a fully erect state but, of course, even more so in a semi-erect state.  Last Friday night, I had sex with my girlfriend 3 times.  The last time I went in semi-erect and kind of had to force it until I became fully erect.  I've done this before and never any issues.  I suppose this bump could have resulted from Saturday morning even if we just did it 1 time Friday night, and I was at full erection.  The trauma to my penis over time had reached its breaking point, and thus the bump developed.

So really, what I'm trying to say is my initial injury, while not Peyronies, really set the stage as far as me developing Peyronies.  I know I still don't have a clear-cut diagnosis, and I should have one tomorrow after I see Dr. Kansal, but at this point, I really don't see what else this current bump could be.

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By: cdub
« Reply #20 on: 7/1/2021at 08:10:02 PM »

saw Dr. Jagan Kansal on Wednesday morning.

He palpitated my flaccid penis and said he could not find any plaques, and there was no indication that my condition was/is Peyronies.  That is a relief for now.  He said that mainly what I need to do right now is rest as he thinks my main issue here is overuse, and that is why I'm dealing with a swelling/ridge in the erect state.  Things should go back to normal over time.  He prescribed me Meloxicam (15 mg/1x/day).  He said it was ok to take L-Arginine as well right now.  Right now, I'm taking the following:

Meloxicam 15 mg/1x/day
L-Arginine 1000 mg/3x/day = 3000 mg total
Vitamin E 90 mg, which 2000 IU/3x/day = 6000 IU

I was icing initially but stopped. I will start that again too.  I did ask about Pentox but and he nearly prescribed it, but he thought Meloxicam is a better choice for me currently.  Also, I asked about taking some low-dose Viagra as I have some on hand from previous Bluechew subscriptions.  He said he would not advise it right now, as that is counter-intuitive right now as my penis needs to rest now, not be stimulated.

The large bump/ridge or whatever if it is swelling like from a bruise it's not really painful, it's not discolored, and it doesn't seem to give when I press on it or move with the skin during an erection.  It's very strange to me.

Dr. Kansal never saw me in the erect state, so he was not able to observe the ridge directly as it doesn't really show up in the flaccid state.  I did show him a picture of my penis in the erect state, so he was able to see it.

I didn't really get a firm answer as to what it was that I'm dealing with. Mainly he said that I overused my penis, and I need to allow it time to rest now.  I asked if this was Peyronies, Mondors, Lymphangitis, or even Cancer, and he said it is not any of those things.

I have a follow-up with Dr. Kansal on July 14th.  I may or may not go as I have an appointment with Dr. Levine on July 7th and am set to do an ultrasound.  I will see how I look on the 6th.  If the swelling has gone down quite a bit, I may just see if I can re-schedule the appointment with Dr. Levine for a few weeks out as I'd like the swelling to heal quite a bit before I get shots into my penis again.

Thank you to Ben Ray Camp thru all this.  You've been a great person to talk to and share ideas and information with.  I hope your situation gets better as well.  I will be in touch with you.

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By: cdub
« Reply #24 on: 7/2/2021 at 12:04:48 AM »

Picture of my penis.  The current injury is mid-shaft, where I have very large swelling, but at this angle, it is not very apparent.  Injuries from March 2020 are easily seen, however, on the right side of my shaft.  Large indentation on the right side about mid-shaft. and Also another indentation on the right side at the base.

https://imgur.com/ZYjmB8W

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By: cdub
« Reply #24 on: 7/2/2021 at 12:07:48 AM.»

Side angle shows a good view of the current injury (6/26/21), which is the prominent bump/swelling mid shaft.  Also below that is the indentation injury from March of 2020 that I was told by Dr. Levine & Dr. Krengel is not Peyronies.

https://imgur.com/uARDAwp
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By: cdub
« Reply #24 on: 7/2/2021 at 12:06:48 AM »

A close-up of the dorsal bump from the side.  The current diagnosis is this is not Peyronies.  I have not done Ultrasounds yet.  Hoping this goes down and goes away and that this does not become a permanent fixture on my penis.

https://imgur.com/n9f8XJL

Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

I'm actually starting to think my recent injury was a Penile Fracture.  I wish I would have asked Dr. Kansal if that is what I might have, but he is the Dr. too so if it is I guess he's supposed to be able to tell if that is what it is. 

I guess the reason I over looked penile fracture is I did not have any blood or discoloration, and I did not hear a pop, nor could I pinpoint a moment where I felt a pain when it happened.  I have no recollection of it happening.  The only way I noticed was the next day when I went to masturbate and I felt a large bump in my penis on Saturday morning.  Also, I hadn't really felt any pain until Monday & Tuesday nights when I got myself erect on purpose just to take pictures.  And even then the pain was only later when I went to go to sleep and I was flaccid but the pain was minimal.  The last 2 days I have gotten a little pain here and there.  Swelling is as much as it was since Saturday morning, nothing has changed. 

I'm worried that I will have another deformity now from what might be a Penis Fracture.  I see Dr. Levine on the 7th at 8 am for ultrasound.  Will be interesting to see what he thinks in flaccid palpitation and if he sees anything in flaccid ultrasound.  The bump is noticeable only when I get semi-erect to erect.  In flaccid state it's not noticeable, Dr. Kansal couldn't find any signs of Peyronies in flaccid state but did not do ultrasound. 

I continue taking the medication for the inflammation, and vitamin E, not sure if I should add Arginine back in or not.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Okay by process of elimination the only thing I can come up with anymore is that I had a Penile Fracture.  The worst part about all of this is all my symptoms were so delayed that I didn't rush to the ER to have this looked at which looks now like what I should have done. 

What should have been done:

1. Go to ER
2. Get Ultrasound to confirm Grade of Fracture
3. Have Surgery depending on Grade?

The injury occurred Friday night, I didn't notice anything until Saturday morning, maybe around 11 AM?  I wasn't able to see a Urologist until Wednesday morning.  I was so concerned that I had Peyronies, Mondors, or Lymphangitis, I never thought it could be a penis fracture as my penis was not in pain, I never heard a pop, and I did not have extreme discoloration or bleeding.  I did/do, however have a large hematoma that only presents itself when erect and doesn't seem to be noticeable in a flaccid state. 

Does any of this make sense for a penis fracture?  Aren't hematomas noticeable in both erect and flaccid states?  How could the Urologist I saw on Wednesday not diagnosis this as a Penis Fracture?  He said there were no signs of Peyronies in palpitating my flaccid penis, but never did an ultrasound and only saw my erect penis in the pictures I provided below.  I can't believe I never asked about Penis Fracture!  I'm hoping right now that I have a low grade penis fracture (if I have one) as I did not have all of those other symptoms, however the hematoma does seem pretty large to me as you can see in my pictures:


https://imgur.com/uARDAwp
https://imgur.com/n9f8XJL

Is there such a thing as a sprained penis?  Scared that I will have Erectile Dysfunction going forward now and not much I can do about it as I missed the window of immediate treatment that is so vital with a penis fracture.   :'(
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Mikel7

Dr Levine should give you a correct diagnosis. I assume he is going to do an ultrasound?  He is my Dr
and I do like his approach to diagnosing. He will answer all of your questions so have a list ready.  Good luck. 
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

cdub

Hi Mikel7,

Yes I have an Ultrasound scheduled with Dr. Levine at 8 am on Wednesday morning.  I'm looking forward to seeing him as I think the other Doctor didn't diagnosis me properly and missed the Penile Fracture because I did not have classic symptoms.  It will be interesting to see what Dr. Levine sees on the flaccid and erect ultrasounds.  My swelling has not gone down at all yet and I'm starting to get some pain when I pee which to me is indicative that I may have a little bit of damage on the urethra as well.  I'm hoping the grade of the PF is low enough that the Tunica and Corpora Cavernosa were badly bruised thus the hematoma but not punctured at all because I did not see any blood or discoloration.  It will be a long weekend and next few days until I see him. 

Thank you
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

I had my appointment with Dr. Levine last Wednesday morning at 8 am. 

No findings in the flaccid ultrasound (US).  Erect US showed what Dr. Levine said was a fibrotic nodule/cyst, not a hematoma like I had thought.  He said he was not able to palpate a plaque though.  His diagnosis was that I have Peyronies-like symptoms but I could still be in the slow healing wound camp.  He said the fibrosis was most likely from a microtear in the tunica (so a microfracture of the penis).  The treatment right now is to treat this like it is Peyronies for 3 months and see if I make any improvements.

I will be taking:
Pentox 400 mg, 3/day
Cialis, low dose 5 mg before bed
Vitaflux 2 capsules 2 times/day = 4 capsules daily

Starting Traction therapy soon and trying to decide if PeniMasterPro or Restorex is the right one for me.  Been reading a lot about these.  I'm pretty sure I could consistently do 4 hours/day with PMP on weekdays then 6 hours/day on weekends.  Using the Restorex for 60-90 minutes/day with potentially similar results is appealing though.  My situation is I have a fibrotic cyst on the septum, dorsal side of penis.  Right now no curve but it seems like it's starting to push to the left.  Pain has been minimal and indentations from previous injuries (March 2020, not peyronies) on the right side of shaft.  I'm going to reach out to Dr. Trost and see what his thoughts are on my situation and if the Restorex might be of benefit.  Especially since I don't seem to have a curvature up or down if I would need to stretch up or down on the glans?

God bless you all.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

I reached out to Dr. Trost in an email yesterday.  I heard back from him today!  He said there was limited things he could say to me directly concerning my situation as I'm not one of his patients, but he did speak in generalities.  He said someone in my shoes had two options:

1. Wait until I see curvature, deformity or length loss then start traction to deter/correct these things.
2. Start traction right away, and if there weren't any specific area of curvature just do straight traction only. But if any developed do counter bending against it.

Also he did mention that Ultrasound is not very good at detecting the extent of fibrosis/nodularity.  Since Peyronies Disease plaques are made of the same tissue as the normal penis, it's difficult to know where disease starts and where it ends.  So he wouldn't put too much weight/emphasis on an ultrasound finding.
I did follow up with asking if he thinks I should consider if I should see about getting an MRI done to get a more definitive diagnosis?  Will report back on what he says.

I'm anxious to get started with traction so I will order the Restorex tonight and see if I can get it over-nighted for Monday or Tuesday delivery.  I just don't want to lose more time.  The time commitments on PeniMasterPro just seem to be too overwhelming and I'm not sure that I can meet those regularly. 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Just a weekly update on my condition.

I received the Restorex early last week.  Did the beginner workout without issue.   I awoke late that night I got up to use the restroom and noticed swelling on my shaft on the left side near the head.  No pain really but it looked unsightly to me.  I iced it some and also did a light gauze wrap around my penis and finally went to bed a like 3 am? 

I decided to stop using the Restorex right away as it looks like the tension from the Restorex was too much too soon for my penis.  I will hold onto the Restorex for now in-case it comes in handy for counter-bending in the future but I don't think it's a go for me and will probably end up selling it.

I purchased the PMP this weekend and should arrive this week.  Also, I've been binge watching Neo's videos on Youtube which are very informative and inspire hope. 

Going forward my plan is to really limit masturbation, maybe 1/week or 1/every 2 weeks.  Sex is about every 2 weeks already so not limiting that but I am going to be very careful and any sexual activity will be very slow and not rough at all.  Also will only be cumming once per session in the time being for sex.  It's a catch 22, if you don't use it you lose it but at the same time I think I have to be very careful for sometime.  Also, I've finally come to realize how important all sexual activity is risky for me if my erections are not very strong.  Because of the large indentation on the right side of my shaft that can be and I believe has been a very risky deal for me if I have sex/masturbate with subpar erections as my penis is much more likely to buckle and in my recent case last month a microfracture was most likely the result of this buckling.  Also, it's important to note for me on days where I'm not having sex or masturbating, No Edging!  Edging is counter-intuiative to all of this.  Even though I would not be cumming I would still be stimulating the penis and not really giving my penis the day off!  All this has made me realize how I look at porn way too much and it should not be something I do daily. 

My plan is to also start using heat.  I have to read up more on this as well.  I know going over 40°C can cause cell death so I will be making sure I do not over heat.  I will be using the rice sock method.

Hand traction sounds good and I know one needs to be very careful not to overdue the pressure/tension.  Also, I know Neo says it's not necessarily about tension but stretching to induce blood flow into the penis especially parts of the penis that are damaged to promote a healthy penis and potentially healing and remodeling.  For me I think using an actual device may be more beneficial mainly because I hope to stretch enough to fill in the indentations and thus have a stronger penis less susceptible to buckling. 

Penis feels pretty good today.  Still notice the large bump in the middle of my penis.  It feels like the size of a marble.  Can definitely feel it in flaccid state this last week.  I know at the beginning of this injury even thru when I say Dr. Levine on 7/07 it didn't seem to present itself in the flaccid state.  I suppose this is part of the healing and scar formation process.  Also, I did see the full clinical summary from the 7/07 visit.  Dr. Levine did say I had a small hematoma in that report but the main bulge is no doubt now the spetal fibrosis (not a cyst).

My injury from the Restorex hasn't seemed to heal up yet, but also hasn't gotten worse.  In erect state it's gone but flaccid it feels kind of puffy and puffs out, but if I press on it, it feels like a indentation/crevice in my penis.  Not painful at all, but still something I'm concerned about.  I'm wondering when the PMP shows up if I should wait until this recent injury completely clears up or if waiting will do more harm then good.  I wish I never ordered the Restorex and used it.  My penis clearly wasn't ready to use it.

Anyway, that's all for now.  Girlfriend will be coming over tonight and planning to have sex, again careful, slow and controlled and only if my erection is solid, which I think I'll be fine there as she really turns me on, I haven't gotten off since Monday?  And my morning erections have been crazy good. 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

My self diagnosis of my current injury is a tear in the superficial fascia from using the Restorex.  I know it's an amateur diagnosis, but it's the best I can come up with based off my knowledge and what I know about tears of other tissues in the penis (buck's fascia and tunica) which would cause a penile fracture.  I'll see Dr. Levine on the 27th so I'll get answers then at that point.  Right now I'm just resting my penis, no attempts at traction until he gives me the green light, even then will be proceeding with extreme caution and will only be using the PMP going forward as I don't trust that the Restorex can work for me.

I plan on updating this thread weekly with my hopeful progression into penile health. 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Pfract

Hey! I  just read your post about restorex and the small hematoma. Have you reached out to Dr. Trost yet? Have you contacted customer support? it is the first time i hear about such an issue happening post traction. Shocked!

What was the beginner workout you mention?

cdub

Hi Pfract,

Yes I emailed Dr. Trost about Restorex and about my injury.  He thought that maybe my penis wasn't sitting in the clamp correctly?  But I'm pretty positive that it was.  I didn't really have too many issues getting situated with the device and doing the full 10 minute workouts each time.  I went over the manual a few times and watched all the how to videos before I attempted the 1st Day workout. 

I've not contacted customer support at Restorex.  From what I was told Restorex is non-refundable.  I guess I should check and see if they will accept a return. 

I sent another email off to Dr. Trost tonight to see if he's ever heard of a patient getting injured like I did from Restorex?  I mentioned that I think I tore either the dartos fascia or tunica dartos.  I also mentioned all of my symptoms. 

I'm stopping any forms of physical treatment until I see Dr. Levine next Tuesday.   Really sucks that I had this most current injury.  In my mind it is directly related to the Restorex and not advancing of Peyronies, but I may be wrong. 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Will be doing a follow-up with Dr. Levine tomorrow.

I will not be having any Ultrasound done so no induced erection.  Interested only in having flaccid palpation done.
I had last seen Dr. Levine on the 7th so approximately 20 days ago.  Since then the nodule on my penis which was really only present when I was erect has become less apparent when I'm erect.  The nodule is still visual though and palpable but the swelling is decreased in the erect state.  Meanwhile in the flaccid state is it much more pronounced, very palpable, it feels like a fleshy marble in my dick.  It seems pretty large size.  So will have Dr. Levine see what he thinks here.  I'm hoping it's just normal scarring associated with a penile fracture and doesn't necessarily mean I will have Peyronies.  I have noticed the past few days that it seems like I have a thin guitar like string running from this nodule up the shaft of my penis on the right ventral side.  This little string isn't really noticeable erect but I find it when I'm flaccid.  I do have to kind of look for it.  So maybe I should back off a little as maybe I'm aggravating it? 

And of course there is now the crevices on the left side near the head of my penis now thanks to the Restorex device.  The skin is still puffy there after 2 weeks.  No pain, but if I press on the skin it feels like a crevice/indentation in the tissue.  I think this was a tear in the dartos fascia. 

I did masturbate on Saturday after not doing anything since the Sunday before when my girlfriend and I had sex.  My plan now is to not masturbate now for at least 2 more weeks.  Sex probably won't be for another week as I won't see my girl until then.  Might postpone any sex for awhile too, she is supportive, but it hurts to not be able to share that intimacy with her and feel like I'm now lacking there,  :(

Been trying to use heat a few times a day.  Waiting to see what Dr. Levine's assessment is before I attempt any traction especially considering the new injury that the Restorex gave me.  I may need to wait and let that fully heal before I try anything traction wise.  Also, going to be extremely careful/vigilant if/when I attempt traction again as I may not be a good candidate for it.

Praying that tomorrow goes okay, that yes he can palpate the scar tissue from the microfracture in the flaccid state but that it is still not a firm diagnosis of Peyronies.  Also, wonder what his thoughts are on the Restorex injury and if he will confirm it is a tear in Dartos fascia?  And if the guitar string I kind of feel is anything to be worried about.  Trying to stay positive no matter the outcome tomorrow. 

Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

uhm

Quote from: cdub on July 27, 2021, 12:23:34 AM
Will be doing a follow-up with Dr. Levine tomorrow.

I will not be having any Ultrasound done so no induced erection.  Interested only in having flaccid palpation done.
I had last seen Dr. Levine on the 7th so approximately 20 days ago.  Since then the nodule on my penis which was really only present when I was erect has become less apparent when I'm erect.  The nodule is still visual though and palpable but the swelling is decreased in the erect state.  Meanwhile in the flaccid state is it much more pronounced, very palpable, it feels like a fleshy marble in my dick.  It seems pretty large size.  So will have Dr. Levine see what he thinks here.  I'm hoping it's just normal scarring associated with a penile fracture and doesn't necessarily mean I will have Peyronies.  I have noticed the past few days that it seems like I have a thin guitar like string running from this nodule up the shaft of my penis on the right ventral side.  This little string isn't really noticeable erect but I find it when I'm flaccid.  I do have to kind of look for it.  So maybe I should back off a little as maybe I'm aggravating it? 

And of course there is now the crevices on the left side near the head of my penis now thanks to the Restorex device.  The skin is still puffy there after 2 weeks.  No pain, but if I press on the skin it feels like a crevice/indentation in the tissue.  I think this was a tear in the dartos fascia. 

I did masturbate on Saturday after not doing anything since the Sunday before when my girlfriend and I had sex.  My plan now is to not masturbate now for at least 2 more weeks.  Sex probably won't be for another week as I won't see my girl until then.  Might postpone any sex for awhile too, she is supportive, but it hurts to not be able to share that intimacy with her and feel like I'm now lacking there,  :(

Been trying to use heat a few times a day.  Waiting to see what Dr. Levine's assessment is before I attempt any traction especially considering the new injury that the Restorex gave me.  I may need to wait and let that fully heal before I try anything traction wise.  Also, going to be extremely careful/vigilant if/when I attempt traction again as I may not be a good candidate for it.

Praying that tomorrow goes okay, that yes he can palpate the scar tissue from the microfracture in the flaccid state but that it is still not a firm diagnosis of Peyronies.  Also, wonder what his thoughts are on the Restorex injury and if he will confirm it is a tear in Dartos fascia?  And if the guitar string I kind of feel is anything to be worried about.  Trying to stay positive no matter the outcome tomorrow.

Best of luck tomorrow man,
Please keep us updated
25 yrs Old
Began 2021 with pain & deformity, Unknown cause
The bend has reduced significantly on its own, I'm left with 2 large lumps on each side at the base

cdub

Thank you for the kind words uhm.

I had the checkup with Dr. Levine last Tuesday.  I wanted to wait before updating my thread here as I tend to misinterpret and/or miss some things during the appointment that I later see in the Clinical Summary. 

Dr. Levine didn't give a 100% firm diagnosis of Peyronies, but the Summary states, "it does appear now that he has evolving fibrotic nodule within the septum in the mid shaft consistent with Peyronies Disease likely this point".  So that of course wasn't what I wanted to hear but I do have to live in reality.  He wanted me to come in for a follow-up in 30 days and he is going to perform an Ultrasound with no injection so flaccid only. 

The other issues I was concerned about?  The injury I attribute to the Restorex he said is likely a transverse circumflex vein, he said this has nothing to do with the Peyronies process.  The much bigger issue right now is the large marble-like nodule in the mid shaft.  And then the guitar-string like chord I thought I was seeing?  He wasn't able to palpate that and didn't think that was an issue.  In the last few days I haven't noticed the guitar string anymore. 

He did comment that my flaccid penis showed excellent elasticity, so that is a positive to take out of this appointment.  Which too me shows that my nodule/scarring hasn't hardened yet and I have some opportunity to prevent it from 'healing' in that scarred non elastic state.

He said I'm good to go with the PenimasterPro.

So here is where I'm at right now for my treatment. 

Continue with Oral Medication (Pentox, Cialis, and Vitaflux)
Using heat a few times a day (Rice Sock, not more than 40°C)
Penimaster Pro (slowly increasing time and tension)
Limit masturbation to once every 1 or 2 weeks
Very slow controlled sex when I have it (about 1/week?, my girlfriend is supportive)

Cialis I was having some bad back pain and pain in my quads.  I backed off from the prescribed 5mg/day down to 2.5 mg/day and that seemed to help for a few days, but I've been back at the 5 mg/day for about 5 days now and no issues.

I have noticed what seems to be some hour glassing on the dorsal left side though.  From the cyst up to the glans of the penis while I'm erect.  It just doesn't seem to fill out as much.  Which I'm thinking is likely the progression of Peyronies and that the nodule is preventing normal blood flow thru that area of my penis during erections.

For the Penimaster Pro.  It took a bit to read thru everything and watch the videos but I feel I'm pretty well set up with this now.  I'm committing to the PMP for traction as I feel this is my best chance to stop the progression of the Peyronies and hopefully fill in some of the bad dents I got last year (March 2020).  Those dents on my right side I firmly believe are why I'm currently at where I'm at.  The dents created instability in my erections and over time lead to the microfracture and hematoma which lead to the nodule which may be and most likely is Peyronies.  I'm being cautious.  Of course I want my old penis back before all of this but I'm also realistic knowing that is probably not in the cards.  At the same time I have to prepare myself mentally for if my penis changes more for the worse, but we will cross that bridge when and if I ever get to it.  I'm trying to keep a positive mind and stick to my treatments.  Also I'm trying to keep smiling knowing that everyone has battles they have to fight in life, and this my battle that I will fight,  :)

I'm going to add a separate post for my PMP traction log and how I'm doing there.




Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

I did a few days of traction with 0 tension on the PMP just to get used to setting up and using it. Below are the dates I've done tension and the hours so far:

8/01 Sunday 1 hour 230 grams
8/02 Monday 3 hours 230 grams (two sessions at 1.5 hour each)
8/03 Tuesday 3 hours 230 grams (three sessions at 1 hour each)

My plan is to slowly increase time and tension both.  Also I will work up to longer sessions.  Right now I think 1 hour per session works best for me and of course followed by breaks in between.  Wednesday & Thursday I plan on doing 4 hours each day.  Friday & Saturday on to 5 hours, and then Sunday onto 6 hours.  Not sure when I will increase the tension, probably sometime in the next day or two going to 460 at the end of sessions.

I am finding the PMP to be fairly comfortable.  I need to order more sluices, diaphragms, and gel to make sure I have plenty on hand throughout all of this.  I'm still having some issues with making sure the glans isn't slipping.  This is some growing pains, some of it was making sure I had the right color sluice/diaphragm setup, also adding the narrow split adapter, and finally I was not sucking the glans in deep enough into the glans chamber at the start.  I think I have that part figured out now.

One cool thing I think that may end up working out for me is I'm pretty sure I will be able to wear this at work during the day.  Where I work I have my own private lab and I wear a lab coat.  So the lab coat should provide plenty of opportunity to conceal this puppy while I'm using it.  This will help immensely to get hours in on this device.  I'm hoping I can eventually average 8 hours a day.  My plan is to start wearing this at work next Monday the 9th.

All for now.  Best wishes to everyone on here.  We are very lucky to have each other to share information, ideas, and support with each other here.  God bless you all. 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Time for my weekly update on this thread.  I was able to do stretching ever day with the PMP.  I use the rod system.

1st Week Total Time Stretching: 24 hours (3.42 hours/day average)

I mostly stretched at 230 grams.  At the end of the week I started doing 460 grams in a few of the later sessions on Friday & Saturday.

Notes from the sessions.  It got more comfortable to setup and use the PMP as the week went on.  I'm almost out of the Gel that comes with it.  I ordered more yesterday and more medium diaphragms.  I need to order more medium sluices (urologyhealthstore.com is out of these until late August).  I will look and see what I can use for replacement for the Gel until the new pack comes.  I thought about Honey.  Other guys recommended Astroglide Heavy Silicone Gel.  Will look around for this.  I also thought about Glycerin or maybe making my own gel using Xanthan Gum or Guar Gum, we use these at my work and they can get pretty thick and viscous. 

I started wearing the PMP rod system at my work this week.  This has worked great to increase my hours throughout the day.  It is a little tough messing with the PMP throughout the day and trying to conceal everything.  Because of wearing a lab coat and having my own lab this has been an option.  I always have the PMP pointing straight up while I wear it at work.

My goals for the 2nd week are to hit 32 hours wearing the PMP for the week.  4 hours a day on weekdays and 6 hours on weekends.  This would be 4.5 hours/day average.  Also 460 grams all week.  The following week (week 3) I plan on adding 0.50 cm to the rods. 

I wear the PMP for 1 hour per session.  I've been playing around with some 1.5 hour sessions too, but I prefer the 1 hour sessions followed by a 20-30 minute break before starting another session.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Weekly update:

Week 1 Traction Report: 24 hours, 230 grams tension
Week 2 Traction Report: 31 hours, 230-460 grams of tension
Total Hours: 55 hours

I ran out of Pro Master Comfort & Care gel/cream that comes with the PMP earlier this week.  I used some honey one day, it worked okay.  I ended up using the Astroglide Premium Silicone Gel some too, this ended up working okay but not near as sticky.  I was able to get new Pro Master C&C gel/cream by the week's end.  Also ordered more medium sluices but need to get in more medium diaphragms. 

Noticed this week that my penis is less filled out in erect state on the left side, not just on top of my penis.  Also, noticed in flaccid state that this side of my penis seems less filled out too when I'm in the full stretch with the PMP, like you can see the hourglassing even in the flaccid stretched state.  When I'm semi flaccid it does seem to want to curve some to the left.  But with full erection I'm still straight.  I think I recall Neo saying in his videos that he tended to notice new curves in his flaccid penis before he saw them in his erect penis.  I'm hoping my stretching is warding off any curvature in the erect state. 

Going to play around with the Strap method for PMP while I'm at work and also to fight off curvature to the left by maybe Strap stretching to the right?  I'm thinking a combo method of 3-4 hours/day with the Strap at work then 3-4 hours/day with the Rods at night might work well for me.  I can do the Rods at work but I think the Strap might prove easier to use at work, more concealable.  Going to play around with this some and see what I think.  Might just stay with the Rod system altogether.

On another note, I added the smallest Rod Extender tonight (0.5 cm) to each side.  Also, having a tough time tonight getting my glans sucked into the PMP Chamber.  I changed out the sluice & diaphragm as these were both over 2 weeks of use old.  I checked the Ball Pump, that seemed to be fine.  I've gotten the PMP to work, but doesn't seem to be sucking in the glans very well.  Wondering if PMP Chamber that houses the glans on mine might be faulty or perhaps the rotary valve could be?  If I have to get a replacement PMP that will suck as I'd lose probably a week of stretching, would do light hand stretching if that were the case for a week.  Will see if I have more issues as the week progresses.

Also noticing some very hard little gravel-like pieces close to my glans on ventral side close to where the issue is with the Circumflex Vein that had popped out a few weeks back.  I wonder if this is part of the CV issue, if it's part of that vein?  At times it feels like a hard squiggly vein, other times it feels like little tiny bits of gravel or very hard?  Some times I can't even find it though.  I will have to keep monitoring that.  I wonder too if this has anything to being in the PMP chamber so long up there?  But this doesn't show up on the other side beneath the glans so I think it's most likely part of the CV issue or Peyronies progression. 

All for now.  Keep fighting this demon of a disease fellas and God bless you all!  :)
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Mikel7

Quote from: cdub on August 15, 2021, 11:35:29 PM
Also, having a tough time tonight getting my glans sucked into the PMP Chamber.  I changed out the sluice & diaphragm as these were both over 2 weeks of use old.  I checked the Ball Pump, that seemed to be fine.  I've gotten the PMP to work, but doesn't seem to be sucking in the glans very well.  Wondering if PMP Chamber that houses the glans on mine might be faulty or perhaps the rotary valve could be?

I have noticed sometimes right after I change to a new diaphragm it seems to be a challenge also. I think it is just the strength of the new latex not being used. After a couple of days it gives a little more. I doubt that your chamber is faulty.  The company will replace it at no charge if you purchased it from them.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

cdub

Thanks Mikel7,

I got so frustrated this morning with nothing working that I called off work and went home early.  Just want to get this figured out. 

That is a good point about the new latex being used.  I'm going to play around more today with the different latexes I have here.  I actually changed out to new latex because yesterday when I went to use the PMP it didn't seem like I was getting good suction.  I had heard that usually these last about 2 weeks, which was right where I was at so I figured it was the latex going bad.  I'm going to try the old latex and see how that works again. 

I did call UrologyHeatlhStore (where I purchased my PMP kit from).  I talked to their customer service and she's having me inflate the Chamber with the new diaphragm on it but with it unattached to me.  She told me to let it sit for a bit (1/2 hour or hour) and see if it deflates, this should show if there is a slow leak.  Might have to try that with a few diaphragms as the problem could be a diaphragm or it could be the glans Chamber.  I did mention what you said about he newer latex not being very elastic at first when a new one goes on, she said that does happen sometime too and sometimes takes time to break a new one in.

Thanks will report back on what the solution ends up being.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Mikel7

Also for your info I stopped using their diaphragms and am only using latex balloons. I have a posting about how I utilized this mod. --->https://www.peyroniesforum.net/index.php/topic,14580.msg131431.html#msg131431
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

markdubby

i had a similar problem, i think the bayonet is faulty (as i used it without problems since feb). anyhow i sent it back to the company i got it from, they should sort a replacment
30, ~20-30 degrees right bend beginning of 02/2021. Small plaque under gland on right side of the shaft
04/21 Plaque right side under glans
07/21 plaque by base
10 deg curvature at base + narrowing
1.8 g Citrulline 2-3 g ALCAR, 6-8h daily with PM

cdub

Weekly update:

Week 1 Traction Report: 24 hours, 230 grams tension
Week 2 Traction Report: 31 hours, 230-460 grams of tension
Week 3 Traction Reprot: 21 hours, 230 grams tension
Total Hours: 76 hours

My goal was to hit > 5 hours per day average.  That didn't happen.  Two things, I had to take a step back on hours because I was on vacation and just had a tough time getting the time in.  So I tried to do 3 hours/day as maintenance and that's exactly where I ended up. 

The other issue is I couldn't seem to get good suction this week.  At the beginning of the week I added 0.5 com to the rods.  Also, I jumped around this week between small diaphragm/sluice, medium diaphragm/sluice, combos of small and medium diaphragms and sluices mixed up (small diaphragm/medium sluice and visa versa), also used the Split adapter (the larger one) at times.  The Split Adapter I find to be painful when my penis slips throughout the stretch.

The main things that seem to be working for me now:
Using Medium Diaphragm & Medium Sluice
No Split Adapter
Using Hose Application System
Allowing glans to fill out a little bit before suctioning the glans into the chamber

Also by mid-week I removed the extra 0.5 cm rods that I added as I don't think my penis was ready for the extra length yet.  And I'm okay stretching in the 230 gram tension for now if need be but I push to be in 460 grams about 1/2 way through each hour long stretch session.

Tonight starting the week off at 3 hours with 230-460 grams tension.  Tuesday I have a follow up with Dr. Levine.  I am making no more excuses and I've fully accepted the fact that I have Peyronies and expect Dr. Levine give me a full Peyronies diagnosis on Tuesday.  I know I'm not in good penile health.  But I have a road map on how I can improve my situation and that is what I'm sticking to.  Dr. Levine will be doing a flaccid Ultrasound only on me on Tuesday, no erect US. 

One other thing to note this week is I stopped taking Cialis on Thursday as I felt I might be having some side affects to it.  Still not sure with that and will get Dr. Levine's take on Tuesday.

God Bless you all.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Weekly update:

Week 1 Traction Report: 24 hours, 230 grams tension
Week 2 Traction Report: 31 hours, 230-460 grams of tension
Week 3 Traction Report: 21 hours, 230 grams tension
Week 4 Traction Report: 15 hours, 230-460 grams of tension
Total Hours: 91 hours

I had some major developments this week.  My Traction Hours were down this week for a big reason.  I saw Dr. Levine on Tuesday 8/24.  I was resigned to the fact that I have Peyronies.  I was expecting a full diagnosis as such.  To my shock that was not what happened on Tuesday.

I came in for a general checkup, palpate flaccid but also flaccid Ultrasound (US) only, no erect US.  In the palpation I told him I may have a new development near the glans on the ventral side, felt like a squiggly vein or something but very hard when I'm erect, sometimes feels like calcified bone!  It's weird though because sometimes when flaccid I can't even find it.  He was completely dismissive of this and told me I may have thrombsed a vein.  He was eager to do the US on my flaccid. 

They did the flaccid US and he pointed out that my large nodule was actually liquid filled.  He said we should consider draining it.  I asked when, and he said now.  I asked so is my nodule a plaque?  He said no, it is an injury but not a plaque.   A few minutes later they were using a needle to pull this liquid out.  Some thick old blood quickly deflated out of the nodule and into the syringe. 

I asked if this is Peyronies then or beginning Peyronies.  He adamantly said, no this is not Peyronies at 2 different times during the visit.  He said my nodule was a hematoma.  He did say Peyronies could develop but as of now he said I don't have Peyronies or in the beginning stages of Peyronies.  I said, what about some of the slight hour glassing I'm getting on the left side as well as how my penis is not fully filling out on the dorsal side between circumscion scar and the glans also on the left side?  He said, no that is not Peyronies.  If I remember right he said that is a result of the hematoma blocking off some of the blood vessels to those sides. 

My nodule (the drained hematoma) is not completely gone, it is now about half the size it was.  He said it may reabsorb in about a year.  It may stay the same, or it might try and refill as well.  I'm scheduled to come back in 3 months for another assessment.  I think I might give this 2 weeks and see if the hematoma starts to go down more or if it seems like it is refilling.  Right now with it being about 1/2 the size it was I think we still need to try and drain some of the remaining liquid.  So if it doesn't go down in size in 2 weeks I will schedule again to have him do another flaccid US to see if there is enough liquid in there again to do a 2nd pass at draining it.

I can not tell you how shocked I was on Tuesday to have all of this unfold like this.  At the same time I'm still treating myself as if I have Peyronies as I want to make sure my situation does not get worse.  So I'm continuing with the Oral treatments in my signature, also continuing with traction with the PMP.  I'm hoping this can fill out my dents on my right side which led me to all this instability.  And I'm also restricting masturbation to about 1/week or 1/every 2 weeks.  Sex no limits, but I don't see my girlfriend that often right now.  In both cases, masturbation and sex, all very slow and controlled. 

I wanted to wait to post all this until I got the full summary report from Dr. Levine but it has not arrived yet and I'm moving next week so my mail may take even longer with stuff being forwarded.  I will update this as soon as I receive that report as I'm sure I missed some things or mis-interpeted some things too. 

I'm still shocked.   God bless you all.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

AverageBloke

Thats great news, I would trust Dr Levine's opinion. Do you have a photo of how the nodule/hematoma looks?
Peyronie's Disease
Titan Touch 22cm - Dr Clavell 06/04/22

letzgo

Early 30s
Flaccid Pain, Lump appears when erect from injury
Married.

Mikel7

That is awesome news!  Dr Levine is very good at diagnosing and I like his bedside manor. He is a straight shooter.  I would still be careful with things though as you are healing now from all of this.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

cdub

Quote from: AverageBloke on August 29, 2021, 06:34:54 PM
Thats great news, I would trust Dr Levine's opinion. Do you have a photo of how the nodule/hematoma looks?


https://imgur.com/uARDAwp
https://imgur.com/n9f8XJL

Sorry was away for bit as I was moving and getting settled into the new house. 

Also @ Mikel7.  Yes you are right Sir I do need to be careful still.  Still continuing with Penimaster Pro Stretching and just being careful with sex and masturbation.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Lostandsad

So you've seen Dr. Levine twice and both times said you don't have Peyronie's? That should be a huge relief. Also, isn't it a bad idea to do traction when you don't have Peyronie's?
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

cdub

Hi Lostandsad,

I've seen Dr. Levine 3 times I think now since this last injury at the end of June of this year and yes he still hasn't confirmed it's Peyronies.  This last time though he adamently answered when I asked if I had Peyronies or was at the beginning stages that No this was not Peyronies.  It could develop into that but currently he said no.  So yes a relief in a way but I know I'm no out of the woods yet and I still need to be careful.  Which brings me to my next paragraph below...

Saw my girlfriend last Wednesday night, hadn't seen her in over a month.  We were both very turned on, and honestly things had been going so good the past few weeks with my injury that I got some hubris over the situation and kind of forgot I had any issues.  Big mistake.  I was too aggressive for sure in bed and the next few days I was sore in the direct area where my injury/hematoma is.  I took some anti inflamatories and iced a little. Yesterday and today I've finally started to feel better.  Scary situation I nearly jeopardized everything being as stupid as I was.  As I said I've been feeling better the past few days so hopefully this was a small set back and and I will continue on the road to some sense of recovery and normalcy.  As a result I stopped stretching with the PMP the last few days as I wanted the aches/pain to stabilize again before I get back to that.  I think in the next few days I'll be good to start up again with that, but slowly of course.  A big part of helping my dick feel better is just not touching the damn thing, and that includes edging and/or even looking at porn.

That kind of answers your other question Lostandsad.  No, guys do traction that don't have injuries at all and are just looking for length/girth gains.  Problem is, done incorrectly and they can end up with deformities and Peyronies if not done right.  I'm kind of in that camp from my original injuries.  Now as far as traction for me now I'm doing it right and I feel it is my main weapon to help fight against Peyronies.  I'm hoping over time I can 'fill in' the dents in my penis and help return better stability to my erections. 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Lostandsad

Thanks for the update. Be careful man, be so aggressive next time  :)
MIA - nothing works after 5 months
supplements and pharmaceuticals I've tried:
cialis, pentox, magnesium chloride, dim, turmeric, hyaluronic acid, vitamin k2, paba, l-arginine, l-citrulline. either get surgery (and possible ed), get implant, or pray

cdub

Back on the horse this week. 

Logged 27 total hours with the Penimaster Pro for the week.  I use the metal rods.  Tomorrow starts a new week.  I plan on upping my time next week to over 30 total hours and will be adding some small extensions to the rods tomorrow to kick off the week. 

Staying away from porn, edging, and masturbation is helping.  It's tough but it's helping.  And when I do masturbate I go slow and under control.  The ejaculations are intense because I don't cum for days.  Sex with girlfriend is when I see her which is only once/week or every 2 weeks.  And with that very controlled.  I do get a little worked up at times but quickly remember I need to be careful for some time.  She has been a better voice of reason when it comes to that. 

Seeing Dr. Levine this coming Friday.  I'm hoping he can do another flaccid ultrasound and if we see fluid and enough fluid in the hematoma that maybe he can make another pass with the needle and attempt to drain the remaining fluid there.  Will give an update next week on how all that goes. 

God Bless you all.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Update:

Last week I only logged 22 hours with the PMP because I did some edging one night and got sore, so had to back down on all stretching.  Also had my folks at my place during the weekend so less privacy.  This week has been going better as far as time is concerned for PMP stretching.  Also I'm upping my duration in the stretch instead of just 1 hour sessions I've increased my sessions to 1 hour and 30 minutes per session and digging this so far.  Also, decided to try wearing the PMP while I drive to work and that's working out well.  Will probably do that again tomorrow and do this on the way home as well. 

I saw Dr. Levine last Friday.  He did another flaccid US and said there wasn't really anything to drain at this point.  He had a much harder time finding where the cyst/hematoma was.  Dr. Levine said I had a dramatic improvement from when he did the draining on August 24th.  His words, over 2,000% improvement!  He was pretty happy for me.  He told me I could come off all meds now if I wanted and I could even stop the PMP.  But he did suggest maybe staying on the low dose cialis and vitafluxx until he sees me again which most likely won't be until April for a checkup.  I will probably stop the Cialis in November.  Also, I'm continuing with the PMP as I'm hoping to see if I can 'pop out' the dents.  I don't have hi expectations but if I can even improve the stability something like 25% down there I'll be pretty happy.   

All and all my recovery has been going about as good as one could hope for considering the circumstances I had transpire in the last year (2 indentations in 2020 that led to instability which ultimately led to a microfracture, now recovering).  While I'm not technically diagnosed with Peyronies right now, I know I have a ways to go yet and I must be careful.  It seems every week or 2 weeks right now I end up getting sore down there either from over doing it with masturbation/edging or with sex.  My goal for October is No Fap or edging (so far so good) as I think this will help things become more stable down there.  Sex I do need to be more careful with though, at times I get a little over confident.  Sex is happening about once every week or every 2 weeks, so it's not happening all the time, but even then I still gotta be careful.

Last thing I asked about VED again, and Dr. Levine said I should just stay away from any further maneuvers for now.  He's probably right.  And I did inquire about grafting to fill in the dents should they be bigger problems in the future and he said that may be possibility if further issues develop, here's hoping that it never comes to that and things keep improving. 

God bless you all.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Quote from: cdub on October 06, 2021, 01:05:18 AM
It seems every week or 2 weeks right now I end up getting sore down there either from over doing it with masturbation/edging or with sex.  My goal for October is No Fap or edging (so far so good) as I think this will help things become more stable down there.  Sex I do need to be more careful with though, at times I get a little over confident.  Sex is happening about once every week or every 2 weeks, so it's not happening all the time, but even then I still gotta be careful.

Just giving an update as it's been over a week.  The quote above seems to ring true.  I was going along pretty good earlier this week and was on pace to hit 35+ hours, maybe 40 hours for the week in stretching with the PMP but I had another small setback because of over doing sex.  I've stuck to the no FAP for October, so far have not done that at all.  It is a little tough at times but I'm making due.  Had sex with my girlfriend on Thursday night twice and that made me a little sore again.  Not as sore as I was a few weeks back when I got sore from sex, but enough to take notice for sure.  This time the recovery has been a little shorter as well.  I cut back on the stretching the last few days of the week to give my penis a little time to recover.  No stretching at all on Friday, only 1 hour yesterday, and shooting for 3 hours today. 

Going forward I will continue No FAP for October and in November I will limit to only 2 times (once every 2 weeks) slow and controlled.  Sex, the only limits I'm putting on that are of course going slow and controlled, but also only once per session with my girlfriend, meaning I only cum once.  Although the Dr. said I'm good to go, I know my body, and I'm finding that I'm okay with 1 round, but anything beyond that is dangerous territory for me right now.  So this will be part of my recovery abstaining from multiple rounds for awhile, probably a few more months.  Anyway, just giving an update, mostly for my own records.

Oh still mostly doing 1.5 hour PMP stretch sessions and liking that.  Also, plan on adding another small spacer to the rods in a few days. 

Cheers all!
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

25 hours logged this week in the PMP. Didn't get as many hours in the last few days because I was at a convention, but still managed to work a few hours in there.

Lately I've noticed I'm concerned myself with caring too much if I'm getting a maximum stretch and if I can add a spacer to the rods.  I backed off this week and realized again that this is not a race and long hours under low tension may work better.  It's definitely easier on my unit if I do it this way.  I've been stretching the last few weeks covering all the bars, basically putting the screws all the way down. 

The last 2 days I've went back to just doing 230-460 grams of tension and this seems to be more comfortable for me, I can get more hours in with less stress to my penis, which ultimately may be better.  Going to continue on this path for some time.  May go up to 690 grams of tension but no huge push to go beyond that anytime soon.

Keep fighting gents. 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Mikel7

I can only do light traction. When I have increased the tension I have to take more frequent breaks. I'm at 11 months now with PMP and it has been a while since I added a spacer.  Slow and steady is the key.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

orriw

Hello, your injury and progression sounds so far like mine. However the difference between us is you can maybe be very lucky that you dont have some cruel long lasting flaccid pain like i do. Basically hours of painful soreness after errection, sex can be gentle, still painful.
You notice the doc said you have little scar tissue. Keep an eye on this. Maybe you are lucky and its not directly connected to a nerve like with me, and so you have no pain. I advice you really be careful i have chronic flaccid pain its no fun. Do you have pain after doing traction?
27y, injured at 21 y!

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

cdub

Hi Mikel7 & orriw,

Thank you for responding to my posts.  Lately I've been slipping out of the PMP, this really only tends to happen at work. 
The best way for me to get into the PMP is to get myself a little filled out or aroused so the glans is fuller like when I have an erection, if I don't then this is where I notice I have more issues with my glans slipping out during the stretch.  I have a few ideas about this. 

1. maybe I need to replace the diaphragm again soon.  It's been about a week and a half I think?

2. I get my glans filled out' slip the PMP on then let my erection or semi-erection go down before locking the penis in the chamber to the rod system.  Then I put the PMP upright and pull up my pants and go back to work.  I think while I'm up walking around at work this causes my penis to start to move some and eventually slip out.  I don't tend to have this problem at home because I don't walk around as much at home.

3. I think I was moving too fast, trying to add spacers.  I took one of the smallest spacers out a few days ago and I'm back at 460-690 grams of pressure instead of the nuts screwed all the way down.  This seems to help some.

4. Lastly 1 hour sessions seem to work best for me.  If I try to do 1.5 hour sessions this is where I tend to get more slippage.

orriw, thanks man I'm trying to take it easy and careful.  For the month of October I'm doing No FAP to see if I can do it.  I did masturbate 1 time though.  Otherwise I haven't cum at all from masturbation.  Bad thing is I do find myself edging here and there which is just as bad.  Only limits on sex right now are only 1 and done for me, no round 2 as I tend to get sore (over do it) if I do.  Also still trying to take it easy on the aggressive sex as that may no longer be in the cards for me, and trying to just slow things down and learn how to be a more romantic lover with my girlfriend.  We only see each other about once every week or ever 2 weeks so it's pretty infrequent.  Sorry to hear you are still experiencing pain.  For me pain is not very often, right now it's mainly if I over do it with sex or masturbation (too often or too long duration, or too aggressive).  Otherwise things have been pretty manageable on that front.  Still according to Dr. Levine I do not have Peyronies.  I will follow-up in April or if I have issues between now and then.  But until then just continuing taking it easy on my unit.  November I will re-introduce masturbation back into the fold, maybe once a week or every 2 weeks, and I need to cut down on edging for sure.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Logged 32 hours in this week with the PMP stretcher.  That's an average of 4.5 hours/day.  I need to increase this.  Today I'm trying to start the new week off right, goal is to hit 7 hours. 

Noticed a few things this week.  All the slipping of the PMP coming off during the stretch only seems to happen at work, and when I'm at work I stretch in the upright position.  At home if I stretch downright position I don't experience slipping.  My plan this week for work is to keep stretching upright position (as that is the most comfortable under my clothes, and least noticeable in my opinion), but I will not put the screws down as much.  So basically at work I will get the hours in but the stretch won't be as strong, this should reduce slipping.  Also I might add back the piece I used at the very start to help keep my head in the chamber (I don't remember the name of that piece it comes with the PMP).  I'll see about that as that usually caused a little pain close to the glans near the end of my 1 hour stretch sessions.

My plan for at home remains the same.  No added piece for the glans, and continue with the screws pushed down further for a stronger stretch and stretching downward.

So basically my plain is now 2 fold.
1. at work upright stretching but lighter stretch (to reduce slippage, but still put in the hours to get a stretch)
2. at home downward stretching with stronger stretch

Next week I may add another spacer to the rods.

Other thing I'm dealing with is it seems like I'm getting pain too often now after sex and it always takes a few days to recover.  The problem is 3 fold (duration, intensity, and number or rounds of penetration).  I need to cut duration down some, definetely need to keep the intensity level down (this is hard because sometimes I feel normal and forget I have issues down there, only to be sore afterward), and finally I think for a bit I'm a 1 and done guy.  Anything beyond 1 round of coitus it seems I have issues with soreness the next day.  I think if I focus on these 3 things and continue with my treatment I should be giving myself the best chance to make as good as a recovery as my situation may permit.

Also, today is the last day of No FAP October for me.  I've done well, only 1 day in the middle of the month I fapped.  I did edge way more than I should have though.  November I'm not going to continue with the No FAP, just limit masturbation to once a week or 2 weeks.

And finally one last note.  A few days ago my girl and I had sex 3 times in one night, during that session I did mis-thrust at one time.  Very scary.  I felt some slight pain but I was okay.  That happened on the first sexual escapade of the night.  So we did 2 more times after that climax.  Again some pain but I've managed to feel pretty good after a few days.  The key is to get to a point where pain is not a regular re-occurrence after sex and my paragraph a few paragraphs back outlined my plan on how I plan to accomplish this. 

Thanks
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

Asphyxia

I had similar problems with the pmp, i wrapped a plaster or two around the split adapter in order to minimize pain near glans and also to increase the split adapter size by a bit.
I posted pictures in the end of this post if you are interested
https://www.peyroniesforum.net/index.php/topic,16023.msg142534.html

It helped but not enough, phallosan forte solved these problems for me
Age:23. Onset of symptoms: september 2020.
Curve mostly semi erect about 60 degrees, slight pain
Tried short & prolonged fasts, keto,carnivore, traction and most of the supplements.
Severe digestive issues, probably an autoimmune disorder

cdub

Thanks for posting that Asphyxia.  I will consider doing something like that.  I will play around some this week with the split adapters again and/or the smaller sluice.
I think the problem for me is that I don't have a very large glans.  If I stimulate myself some before I apply the glans chamber that helps.  But this raises other concerns for me, I often find if I don't stimulate myself to near full erection I don't get a very good seal in the chamber.  I remember Neo saying in some of his videos that you should try and lay off over stimulating your penis, that you should give it time to heal, try to take some time not to masturbate, or erection checks.  With me getting myself hard every time I go to put the glans chamber on I wonder if the constant stimulation to my penis is hindering some of the healing process? 
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Weekly update.  Logged 35 hours total this week in the PMP.  That is a 5 hour/day average.  My best week yet.
Plan is to try and hit 6 hours/day this week.  Will see what I can do.  I did okay last week at work limiting my stretch time to only 1 hour sessions and I stripped out some of the spacers making the stress not as strong.  I didn't slip as much while at work.  Again this is straight up stretch.  At home is straight down and out.  I added the original 2 small spacers back and added a third small spacer this week, it went pretty good at home doing the stronger stretch.  Might look at adding another spacer next week.  I'm finding overall I do best in 1 hour sessions than 1.5 hour sessions.  So sticking back with 1 hour sessions.

No sex this week so nothing to report there as far as any pain afterward.  Did masturbate a few times, also a little bit of edging which I need to stop completely.  Today I'm starting my 15th straight week of PMP.  Weeks 4-7 were low on hours spent stretching but other than that I've been pretty consistent from week 8 and on.  My plan is still to use the PMP for a year and see if it helps me with 'popping out' the dents.  So quite a ways to go yet.  I'm considering VED in future if the the PMP doesn't help with the dents.  I feel my dents may be too risky in the long run for a chance to re-injure and fracture.  So I'm hoping over time this stretching will help encourage new cell growth that can fill in those dents.  I sometimes wonder though if even if I do get new cell growth that the cells will just replicate like the current ones and stay in a dented in fashion, so all I might really be doing is adding some length but potentially but still stuck with those damn dents.  And if that is the case I wonder if added length would make my situation worse?  We'll see.  In the meantime sticking to it and TRYING...to remember to be careful!

Best wishes to you all and God bless.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Weekly update. 34 hours this week, so almost 5 hour average.
Gotta hit 6 hour average this week, that's the goal.

Played around with the pieces that you use to make the chamber shorter diameter,  I dont recall the term. They work well while stretching, and really help limit slipping, but they are really rubbing and drying out the portion of skin just below my glans.

I've found the best way for me to prevent slipping is less spacers in the rods for my straight up sessions  (at work). Then at home with my added spacers I can go for a stronger stretch with out much slippage when I stretch straight down or out. 

1 hour sessions stretching up. And 1.5 hour sessions stretching down or out.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Weekly update.

38.50 hours logged this week with the PMP.  My best week yet.  Slowly building my time up.

I can usually only do one or two 1.5 hour sessions otherwise the area where the PMP presses around my penis starts to get sore!  If I stick to 1 hour sessions that doesn't seem to be a problem as much.

This week I focused on just a small amount of being filled out before I attached the PMP to my penis or none at all.  This worked well this week.  And also this is good because I'm not bringing myself to an erection or near erection everytime.  I think it's important in the healing process to keep erection frequency down (maybe 1 to 2 times a week) to help keep inflammation low. 

Had sex on Monday, girlfriend was here for my birthday.  I find that if I go 1 and done right now that is best for me and very careful with intensity and duration of that encounter and I seem to be okay.

One thing I noticed more earlier this week is it does seem that my penis does curve to the left more before and after erections.  I don't know maybe that is in my head?  I know Neo says that getting curvature pre and post erections is not a good sign, it's not normal and could be a sign that one is in pre-peyronies.  As far as my erections they are good but my penis is still deformed.  I'm hoping over time with this stretching it will help my erections fill out more and 'hide' my deformities to where I look more normal.

I was a little down on Tuesday morning after the night before.  Didn't like the way my penis looked after sex and had some light soreness.  So Tuesday I wrote myself some goals to remember going forward and texted that to my email.  They are the following:

Goals.
1. Do not let get worse (I know I have very limited control over this, but I've got my eye on things and I'm being proactive)
2. Pain free after sex (seems this is getting better where I have less and less pain each time, duration, intensity, and frequency!)
3. Heal to where my condition is stable (this is huge, and where I will feel I can start to move on more with my life)
4. Improve my condition, not to where I was at but functional, healthy and a new me. (goes with above)
5. Move on with my life (ultimate goal, where I don't have to think about this anymore, but be careful to never make it worse)
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

orriw

Were you officially diagnosed with Peyronies Disease ? Do you have scar in ultrasound?
27y, injured at 21 y!

Reinjured late 2019 when having sex with weak errection.
No curvature, but rotation of the base to the left about 30degrees
Main problem: chronic flaccid pain.

Trying different stuff now

cdub

No, Dr. Levine still has not diagnosed me as having Peyronies, which I definitely do not want.  But I'm still trying to recover from the microfracture trauma that I endured at the end of June 2021.  As a result of that trauma, I had a hematoma that Dr. Levine drained about 2 months later.  That hematoma was about the size of small marble now it's half that size, maybe the size of a pea now?  It's more of a nodule/scar now.  Hasn't calcified.

I have other abnormalities going on as a result from the microfracture.  My penis isn't filling out fully upon erection, this is most likely from the nodule.  Having some curvature issues pre and post erection but my erections are still straight.  Also, as a result of the microfracture I do have a kind of bump where the nodule is during an erection. 

Before all of this happened, I suffered a large indentation on my penis on the right side about halfway up and also at the base on the same side.  These injuries were the result of traction by hand done very forcefully (this was in early 2020).  These indentations lead me to the microfracture.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Weekly update, only logged 22 hours because of Thanksgiving.  Also, I decided to switch over to the smallest size diaphragm and sluice (green). Did that all week with one of the chamber spacers or whatever they are called to help keep my glans sucked in better in the chamber and prevent any slipping.  I might consider the larger size chamber spacer (even smaller diameter) to help prevent slipping as well.  These plastic spacer things help but sometimes they kind of hurt getting in and out of the chamber. 

Will keep this approach this week, but might consider trying induce a very slight erection, to better fill out my glans, then place the glans chamber on.  Wait for any sign of erection to mostly go away, and then finally attach to the rods and begin my stretch.  This might be the best thing for me.  Slightly filled out glans should help with glans chamber attaching, but then waiting for any amount of erection to go down before actually starting the stretch in the rods to protect against potential damage while stretching partially erect.

Will only update this thread once a month going forward or if a big breakthru happens good or bad. 

One more note, no masturbation or sex this week and did very little edging if not none looking at porn this week which is great.  Morning erections are great, still taking the 2.5 mg Cialas though so that is helping there I presume.

Best wishes all!
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Checking in at the beginning of the year here.

I've finally figured out that low stress traction at longer hours is better than high stress traction at lower hours. 

For the longest time I had used the Medium Sluice/Diaphragm combo with the PMP.  As I started to add more length to the rods I was noticing I was slipping too much during the stretch.  So, I played around the last few weeks with adding split adapters to the Medium Sluice/Diaphragm, then I went to the small Sluice/Diaphragm without the split adapter and also tried with the split adapter.  After all of that I had too many issues with the skin on my glans using the small sluice/diaphragm or using the split adapters for either medium or small setup. 

All and all I'm back where I started, just using the Medium Sluice/Diaphragm and no split adapter.  The key for me is to get myself slightly filled out (almost semi erect) then secure the glans chamber and start the stretch after the penis has went limp again.  Also, ensuring I don't try and max out the traction (not putting the screws all the way down) has made all the difference.  The last few days I'm just waiting for my skin issues to clear up from using the small sluice/diaphragm and/or split adapters.  One more day and then I will start slowly with the Medium setup again.  My goal is 6 hours per day, so 42 hours per week, I will add hours slowly and moisturize afterwards! 

My next appointment is with Dr. Levine on April 1st.

Sex is okay, I still get sore post coitus and I have to ensure my Frequency, Intensity, & Duration are not over done (FID). 
Erections are straight and strong and my girlfriend really turns me on and is still very understanding.  No curvature with erections to report, so that is good.

Still have the two indentations on the right side of my shaft.  The lump in my penis is pea sized (same size since this hematoma was drained).  My erections still have an abnormal large bump in the middle of my penis (dorsal) where that pea sized lump is.  I'm hoping Dr. Levine might be able to drain this next time again?  Also, seriously considering ETG (extra tunical grafting) for the very large indentation I still have on the right side of the shaft as this is where my penis is still very vulnerable and prone to buckling. 

One more thing, my plan is to add very light VED to my daily routine as I go forward to see if this helps 'pop' out the dents, will start that in February (baby steps).  Also making sure to use Petroleum Jelly or other skin moisturizers post stretch to ensure my skin doesn't get as bad as it did the past few weeks as the skin is a very limiting factor if you are not careful. 

-Cheers all and Good Luck and God Bless
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Just eased back into stretching tonight.  After my 2nd set of 1 hour stretching.  I look down at my glans and I have a blister on the head of my penis now.  First time with a blister and I had been stretching since August.  I just don't get it.... I'm beside myself right now on how pissed off I am about this.  Gonna have to wait another week or more for my damn skin to heal up again.

Will be looking to find a different stretching device.  Will probably just look at the PE boards for advice as the only things recommended here are the PMP and Restorex.  And neither are an option for me.  Restorex has given me a prominent circumflex vein sticking out that I never had before.  And PMP has been one thing after another with trying to get the settings right. 

Might just go to manual traction like Neo does. 

I'm pissed but this BS is not going to stop me.  I will continue with traction one way or another.  I am determined to fix this crap.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

Update on my situation.  I had scrapped using the PMP, was having too much slippage and I tried everything and the last straw was it was deforming the glans of my penis.
Since then I did some manual stretching for a very short bit.  I'm still reconsidering maybe giving Restorex another try and only doing very light stretching with it for some time.
I'm just not so sure that the Restorex or Traction in general can ever correct the indentations I have or improve them.  The only benefit I see from traction right now is preventing any curving, possibly.

I see Dr. Levine this coming Friday for my 6 month checkup.  He will do Ultrasound on flaccid and erect.  Some of my goals/questions are as follows:

-if the small pea sized lump still appears to be fluid filled in the flaccid Ultrasound, I will ask that he attempts to drain it again
-I want to inquire about seriously doing the Extra Tunical Grafting on my large indentation, it appears that things are stable and I'm very afraid on another fracture in my current state

For the ETG I'll be considering Dr. Levine, but also will consider Dr. Christine, and Dr. Lue.  I'm hoping that surgery can put an end to this nightmare for me and I can recover from that and learn to live with the penis I have and not worry about this stuff anymore.
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.

cdub

 A lot to go over from yesterday's appointment with Dr. Levine. 

I should have checked again a few weeks in advance to confirm, as they weren't set up to do Ultrasound on me in either state, of course. :-\  I had to talk them into it, and insurance might not cover it so I might be out $1,600 or whatever the fee was... >:(.  F~@< it I needed it done and I wanted answers.

Flaccid US and Erect US they weren't able to see any plaques in my penis or see the hematoma filled with fluid anymore like they were last August before they drained it.  So nothing to try and drain even though I still think by feel there might be reason to try and drain what little is still in there?  My thoughts are if I can decrease this pea sized lump even more it will help my penis fill out more when erect and may even go away altogether on it's own.

I talked about potentially wanting to have Extra Tunical Grafting done on the large indentation I have.  Dr. Levine said ETG will NOT add any structural support to my erect penis, that it is for cosmetic use only. 

Mainly what I got from today's visit is that Dr. Levine thinks I've recovered pretty well from the penile microfracture I had last June.  My erections are good without the addition of cialis or viagra and no hinging when having sex.  He advised to try to carry on with my life and not think about this as much.  He thinks that I'm thinking about this too much.  Basically my penis has some deformities now but it's straight when erect, able to penetrate, and yes minimal pain after sex, but just have to be careful with certain positions and make sure my erections are good for sex and use viagra or cialis if needed. 

He said if I'm still concerned about my penis appearance than ETG is an option but again it won't provide structurally support.  He did bring up a product called Penuma, which is a girth implant.  I had never heard of it.  Didn't think much about it at the time but looked it up when I got home.  I wished I would have asked him if this will add support to an erect penis?  Seems like it might.  I looked on this forum and did not see anything about it. It's a silicone sleeve that gets sowed into your shaft.  Looks great but, it's still surgery and invasive.  I'll probably create a separate topic on this in the implants forum.  Surprised it's never been mentioned in this forum before as it's been out for awhile.  For me, ETG would be cheaper and less invasive, it would address my large indentation.  The Penuma on the other hand costs quite a bit more, is more invasive, but not only would it address my indentation it would help make my penis more uniform overall (cover the large bump from the hematoma, and slight wasting I have on the left side.  Not sure if either really can offer structural support?  I will be getting second opinions from other doctors.

During my visit after they gave me the 2nd shot to take the erection down, after they left the room I noticed my penis swelled up a big hematoma looking ball on the right side. I called out for help and his TA, Gina came in and helped address that.  She said that is not uncommon.  They had me stay about another 1/2 hour squeezing my unit to help the blood go down and get the hematoma to go away.  She said it will cause some bruising but it's not a hematoma like with a penis fracture.  I didn't have any pain.  Today I have dark bruising and still some slight swelling.  Just using ice today on that.  Sick of any injuries down there anymore!

We did talk about Penis Excision and Grafting (PEG).  Very invasive and not something I'm interested in especially considering my erections are good.  My main concerns are still the large indentation that could lead to buckling and another fracture and the soreness I get sometimes after sex if I go too frequent, intense, or the duration is too long. 

2 odd things he said to me that stuck out during this visit:

1. Originally I got the large indentation on the right side of my penis in March of 2020, then in June of 2021 I had the microfracture right at the site of where the indentation was, he said the two were not related which I do not believe at all.  I think this is basic physics if you look at my penis.  My penis was compromised at that location and I had the microfracture right in that spot.

2. He said Peyronie's is a 1 and done injury/disease.  That guys don't get a case of peyronies have a plague or more develop and then months later or years later have spontaneous injuries that result in more plaques in other places on the penis.  I always thoguht, once you get Peyronies your penis is susceptible to more abnormal wound healing and that is why we talk about the different phases of the disease.  That kind of blew my mind of everything I thought I knew about Peyronie's.   

My plan right now is get some second opinions about ETG and Penuma and see if either help with structural support.  If I see another Dr. in person will probably not vow to have induced erection again, that whole swelling thing post 2nd shot was scary enough.  My plan if they need to see my erect penis is to show pictures and create a clone using the clone a willy thing. 

In the meantime I think I will give my penis a break for a bit (still monitor for any potential curving) but I do know when I was recovering from Hernia surgery at the start of this month (for about 10 days I didn't even think about my penis let along do any stretching.  My penis felt very good then, not pain at all.  Only got pain again when I started sex again but I think that was mainly for going way too long of duration.  I'm still considering either using Restorex at very low tensions and for greater frequency.  I cannot use the PMP or like devices those things deform the head of my penis, not a trade off I'm desperate enough to take one.  Or the other option commit to traction by hand and re-watching Neo's videos for tips on that. 

Thanks all and God Bless
Age: 44
Large Indentation 3/16/20, lead to Penile Microfracture on 6/26/21.  Still suffering from large indentation, some wasting on other side of penis and large nodule when erect in center of penis (dorsal). Penis is straight & erections are good.