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NOTE *** This first post on this topic starts with a cut and paste from my prior topic.  That topic got scrambled with some software glitch.  The posts start with the oldest post at the top and continuing down to the newest.  This topic is active and open for responses.

cdub Injury Diary
« on: April 13, 2020, 07:10:59 PM »

This is for my reference to my situation and, hopefully, road to recovery.  Also, to hopefully help anyone that is experiencing a similar issue that is not Peyronies.

If you look at my Intro post, you will see my story, so I won't repeat that in its entirety.  What I will do is give a brief overview of what's going on here.

I suffered an injury that was the result of either penis enlargement (stretches and jelqing) and/or rough sex with my partner while she was on top riding me and excessive masturbation/edging.  The penis enlargement injury happened in mid-February, there was some pain but no visible signs of deformity, but I believe it led up to my situation.  The deformity I first noticed on either Monday or Tuesday 3/16 & 3/17.  This was after a Friday night of rough sex in a session where she was on top, and then that Saturday & Sunday, I masturbated a lot and did a lot of edging to porn.

I saw Dr. Levine on Friday, 4/3, and his diagnosis was that I did not have Peyronies, and no scarring or plaques were observed in his testing.  His answer was that I had an injury, and now I have an abnormality that may or may not go away.

My plan of action is the following:
1. take the VitaFLUX supplement that he recommended me to take
2. limit masturbation to 2 times per week and use my fleshlight only for this
3. no limitations on sex with my partner, which is usually 2 times a week, except being very gentle when she is on top and long strokes in and out when we are getting rough in other positions (as I fear a mid-thrust).

I've attached pictures of my erect penis.  The injury is on the right side, a little below halfway down.  It shows up when I'm erect but not really when I'm flaccid.  The pictures don't really do it justice as I can't ever seem to get a good picture of it no matter what I do, but the dent looks much more noticeable in person (take my word for it, LOL).  It doesn't really show up in flaccid pictures.  I suppose I could show pictures of my erect left side of the shaft too, just for comparison (normal side vs. non-normal side).  Pictures to follow.
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By Pfract
« Reply #1 on: April 14, 2020, 01:51:44 PM »

Curious about this supplement he told you to take? And thank you for sharing your story with us

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By RandyPE
« Reply #2 on: April 14, 2020, 03:16:10 PM »

I found this link on Amazon for VitaFlux - it looks like a standard Arginine product to help increase blood flow, etc.  Good luck Cdub - we're all pulling for you.

https://www.amazon.com/VitaFLUX-Extra-Strength-Arginine-Performance/dp/B07X4YN737
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By cdub
« Reply #3 on: April 15, 2020, 01:41:27 AM »

The VitaFLUXX contains the following ingredients: Arginine, Citrulline, Carnitine tartrate, Magnesium & Zinc
.
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By: jj21
« Reply #6 on: April 16, 2020, 08:27:36 AM »

If you're looking to save money, you can do what most of us do, which is purchase the ingredients in Vitafluxx separately.

Also, my doctor said the same thing - it wasn't Peyronies but an injury that caused deformity. 2 years later, I'm in the same boat with just minimal improvement.

So you may want to consider the best-known treatments (pentox, Cialis daily, traction, VED, heat therapy).
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By: cdub
« Reply #9 on: May 17, 2020, 06:45:06 PM »

Here is my supplement stack. I'm trying for 1 month, possibly more, to see if this helps.

Arginine 3000 mg (take 2/day, 1500 mg)
Citrullene 1000 mg (take 2/day, 500 mg)
Acetyl-L-Carnitine 2000 mg (take 2/day, 1000 mg)
Ubiguinol CoQ-10 400 mg (take 2/day, 200 mg)

This is based on reading on this forum and some others over the years.  I've used Arginine and Citrulline on and off over the years and just recently with the Dr.-recommended VitaFluxx supplement.  This time I've opted to just get them by themselves and add in as much as I'd like per dose.

Acetyl-L-Carnitine I've never used before, but it's been recommended on this forum.  Same with the CoQ-10.  I'll see how this goes.  Hoping it may help.  I still use heat (rice sock) a few times a day.  My masturbation I've been good and bad with.  I know I still need to cut this down more and use the fleshlight only when I do.  I broke up with my girlfriend, so no regular fun time currently :(.  I didn't break up with her because of this there were 2 other big reasons that I won't get into here.

Hoping to get pictures on here someday.

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By: cdub
« Reply #10 on: May 21, 2020, 01:38:04 AM »

Had the follow-up evaluation with Dr. Krengel in Hinsdale, Illinois.  I know a lot of people highly regard Dr. Levine out of Chicago as being one of the best for Peyronies, and I think he probably is, but I want to say I hold Dr. Krengel in pretty high regard too.  He really took the time to sit down with me and listen to my situation, my concerns and give me a complete and thorough diagnosis.  He confirmed Dr. Levine's assessment that this is not Peyronies.  Furthermore, his diagnosis is that I had a tear in my Corpus Cavernosa from the things I was doing (jelging/stretching/edging), and I really need to stop doing these things to myself.  I had seen Dr. Krengel years ago as I had a tear in the other side of my penis (corpus cavernosa) that time from hanging weight off my unit (Bib Hanger from PE).  That healed up eventually.  It never got as bad as this one, though, indentation-wise.

Dr. Krengel's hands-on analysis was again there is was no calcified plaques observed just like Dr. Levine had diagnosed.  He said yes, I did have the tear that I had, but it wasn't the same as Peyronies.  In time my indentation may or may not go away, but I should not have any calcification occurring.  Because my erection quality isn't really suffering as a result of all of this, I'm fully functional, and pain is minimal. He mainly just recommended that I do not ever return to PE and try to move on with my life and be less fixated by this stuff.  Cutting down masturbation will help with my recovery and, in the long run, being fixated on things.  I mentioned maybe wanting to see a sex therapist, and he thought that would be a good idea and referred me to a few.

My plan at this point is to continue with the supplements I listed in the previous post in this thread.  Been on that blend for 3 days, and so far, I am noticing a difference in my erection quality, but also, I have been limiting my masturbation to once every 3 days, so that's helping too.  Continue with heat application thru rice sock for 10-20 minutes at a time, a few times a day.  No more PE.  And really just waiting for this to take care of itself.  I will plan to follow up appointments with both Doctors in the coming months, will see how I feel.  I do get some pains in the area of the injury at times, but they are not real sharp pains, and they are very fleeting when they happen.  If this persists, I will probably go back to see Dr. Levine first as he was doing the ultrasounds as well, and I'd like to know if they see any changes in the tissue thru that and not just the hands-on observation.

The plan right now is follow-up appointments with both Doctors in 3-6 months.  3 months for Levine would be the first week of July.  3 months for Krengel would, of course, be late August.

If you need a good Urologist, I highly recommend either Dr. Levine or Dr. Krengel.
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By:cdub
« Reply #15 on: June 28, 2021, 09:21:55 PM »

Checking in as it's been a while.

A quick recap is I have 2 indentations on the right side of the shaft of my penis.  Dr. Levine and another Urologist confirmed my injury was not Peyronies back in the Spring of 2020.  The initial injury was in March 2020.

Since all of this has happened, I noticed periodically that my right testicle was sometimes sitting higher up in my ballsack.  I didn't think too much of this initially, but I did notice.  Fast forward to the Fall of 2020, and the testicle was now constantly sitting up very high, sometimes basically just sitting to the right of the base of my penis.  This, while not only uncomfortable, looks quite odd, makes my scrotum look like a deflated balloon where the testicle normally sat in the scrotum.  I'm constantly readjusting myself my whole life. I've been used to that testicle hanging freely and not being bunched up by the base of my penis shaft.  Really not that painful, but extremely annoying.  Also, during sex, the right testicle often retracts into my body now, and I just look odd down there with that going on and the big indentations on the right side of my shaft and at the base of my right side on the shaft.

I went and saw the other Urologist about the testicle issue first.  In my mind, it is a direct correlation to the injury I had in 2020 as the testicle is retracting on the right side exactly in the area where I had the injury, and I hadn't really had any issues with this testicle retracting like this until after the injury.  He would not confirm that and basically would say the 2 issues were independent of each other.  He said it's a normal reflex, and upon physical examination, everything was normal and that I was fixated on this issue.  He really made me feel like I was wasting his time.  This exam was back in April of this year.  I don't know that I will go back to see him again with any issues that pop up.  Up until that visit, he was very understanding and professional.

I had a follow-up with Dr. Levine last Friday.  Unfortunately, I wasn't even able to see him.  I only saw his assistant.  The assistant told me the testicle issue was normal as well and that it happens to a lot of men.  I tried to tell him the events leading up to this as well, but it didn't seem like he was interested either.  I guess the bottom line is how this came about doesn't change too much of anything. It's still happening.  Dr. Levine's assistant did say that it's the result of the Cremaster Muscle being weak there.  He said it's normal, and not much I can do about it.  I told him about the initial exam I had last year with Dr. Levine (I'm sure he was able to read my file anyway) and told him how the right side where the indentations happened seem like they stabilized.  I did mention that it seems like I'm having vein issues now at the base at the top and left side of my penis near the base.  He did a physical exam, didn't notice any calcifications or plaques, and didn't notice any abnormalities in the veins of my penis.  I insisted that I wanted an Ultrasound done to rule out any Peyronies and to ensure that other issues aren't getting worse as a lot of my problems are more apparent when my penis is erect.  They wouldn't do it that same day, so I had to schedule 4 weeks out, so now waiting until July 16th to see Dr. Levine.  I will be calling in this week to ensure that I see Dr. Levine.

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By: cdub
« Reply #16 on: June 28, 2021, 09:41:56 PM »

So my latest appointment was last Friday with Dr. Levine's assistant, and I told about all of that in my previous post.

Well, this all unfolded last Saturday (literally the next day after seeing his assistant).

So I was dealing with the testicle issue and learning to live with the two gouges out of my shaft.  During this time, I have been fully functional when it comes to sex, and my girlfriend pretends not to notice the indentations or the strange movement of the testicle.  She has been very good to me through all of this.

Well, now I have another issue flaring up down there.  We had sex 3 times last Friday night.  The first time she was pretty wet at first, but as I went along, she was drying up a little.  We did it doggy style, and I started hammering away at her. At one point, I did think it was getting a little dry and that maybe I should have stopped and we should add some lube.  Well, I just kept going, and not much longer I came.  We lay around and have pillow talk for 20-30 minutes and then decide to go again.  This time everything is very wet, and no issues with any dryness.  More pillow talk for 20-30 minutes, and she's frisky again, and that gets me going.  I kind of had to force the erection the last time (I was maybe 50-75% erect on initial penetration?).  After some thrusting, I feel I'm pretty much at full erection, and we have another go around for the night, this time much shorter than the previous two go-arounds.  I remembered thinking as I got started with round 3 that maybe it wasn't such a good idea and maybe my penis needed to rest for the night, especially because I was kind of forcing the erection.  I wasn't feeling sore, but it wasn't that hard initially.

The next morning after she left, I felt pretty horny still, and I went to masturbate.  As I started to stroke, I noticed about halfway down on my shaft. It feels like a big bump in the middle of my shaft at the top.  The area around it seemed to sink some.  I'm not sure if that was just because the bump was raised so much more it made everything else around it seem 'sunk.'  I iced my penis throughout the day Saturday and Sunday and was taking aspirin.  Today I'm still icing and switched to Ibuprofen.  I'm hoping this will help with any swelling and get the 'bump' to go away faster.

Initially, I thought the bump might be related to the vein issues that kind of sprouted up at the bottom of my shaft on the lower left side and at the middle of the base of my penis, where it meets my abdomen.  I started thinking maybe I have Mondor's Disease or Sclerosing Lymphangitis.  Some of what I read makes sense for what I'm currently experiencing.  Later today, I started to think, maybe I ruptured my penis?  It wasn't extremely painful, though nor is there a lot of discoloration?  I thought maybe it was a small rupture?  Or maybe I bruised my penis there?  Again not much pain and no bruising that I can see.  Tonight I did get myself worked up a little just to make sure this is real that I really am feeling this big bump at the middle of my penis.  So slowly, I did work up an erection to about 80-90% erect.  Yes, it's very real and very noticeable.  I can feel it in my hand where this big bump now sits in the middle of my shaft when erect.  I don't really feel any bump/swelling, pain, or discoloration when I'm not erect.  But probably about 50% erect, and anything beyond that, I can feel the bump.  It's very foreign and odd to me.

My plan is to keep with the icing and Ibuprofen going forward and hope that it goes away on its own.  Also, abstain from masturbation for a while and sex for at least a week (my girlfriend will be in Texas this week, so that helps), and if/when we do again, everything will be very gentle for some time.

I'm waiting to see Dr. Levine again for 3 more weeks :(.  I've thought about trying to see if I can get into Dr. Krengel again, though, if I can earlier than Dr. Levine?  I want to make sure he could do an ultrasound on me, though where my penis is in an erect state, as that is when my issues show up the most.  Not sure if I should contact Dr. Krengel again though, I'm afraid he will just try and tell me this is all in my head again.  One thing Dr. Krengel had suggested was seeing a sex therapist, and actually, I do think that may help me some, just to talk about some of this.
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By: cdub
« Reply #17 on: June 29, 2021, 12:37:04 AM »

Okay, I'm starting to have a meltdown tonight.  As I went from thinking I had Mondor's Disease →  Sclerosing Lymphangitis → Broken Penis → Bruised Penis → , and now I finally think that what I have is Peyronies,  :'(

I just want this roller coaster to be over already and some sense of normalcy, not this continuing saga of injuries coming out of nowhere every few months F^@$!ng up my penis.  2 big indentations on my dick, a right testicle that now sits at the base of my penis, and now a large bump in the middle of my penis which is in line horizontally where the large indentation on the right side of my shaft is.  I think I was misdiagnosed last year and that the condition has worsened.

I have an appointment to see Dr. Levine on July 16th, but that seems so far away now.  I will call the office tomorrow and see if I can get this moved up at all in spite of my most recent circumstances.

I think my relationship with my girlfriend is over at this point.  She shouldn't have to put up with this crap.  This is so crazy to me.  One stupid idea to do the PE newbie routine for a year, thinking I had nothing to lose but time and everything to gain, is literally destroying my penis.

I don't know what to do right now.  Try to get into see another Urologist in the meantime but also see if I can get imaging done sooner with Dr. Levine?

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By:cdub
« Reply #18 on: June 29, 2021, 11:53:50 AM »

Well, pretty much no sleep last night.

I have a CT Scan for my groin later today for another issue I've been having.  It got me wondering if I can perhaps use that imaging for Peyronies diagnosis?

As for this current situation, I was able to call this morning and got my imaging date moved up with Dr. Levine from the 16th to the 8th.  So that is a plus.

I tried calling all around the greater Chicago area to see if I could get in to see any Urologist today, but no luck.  I was able to schedule an appointment tomorrow at 10:30 am with Dr. Jagan Kansal. According to his website, he specializes in Peyronies treatment and diagnosis.  Another Urology clinic also referred me to him when I told them what I suspected I had, so he may be of help as well.

The Urologist I've seen on and off over the years, Dr. Krengel, has no availability until late August.  So not looking at him anymore.

I know I don't have a diagnosis yet, and believe me, I don't want Peyronies, but after hours of reading and watching videos, I just don't see what else this could be.  I got myself to a fully erect state last night to be sure what I was seeing.  I have a very large prominent bump on the Dorsal side of my penis, right in the middle of my penis. This is also in line with where the initial big indentation is on the right side of my shaft from last year.  This new bump is very big, makes my penis look bloated, and I'd probably refer to the bump as a bulge more so than a bump.  Looks grotesque to me.

Anyway, I will try to get some rest now. I called off work this morning and taking tomorrow morning off too now to see Dr. Kansal.
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By: cdub
« Reply #19 on: June 29, 2021, 05:03:14 PM »


The more I think about my current situation, here is what I think happened to me.

I did the PE stretching and jelqing in January and February of 2020.  I started to have some pain, so I stopped.  My girlfriend and I had a crazy night of sex on a Friday night in March, the next day, I masturbated at least 5 times, and I think at one point on Saturday or Sunday, I tried doing some stretches and jelqing again.  With the stretches, I really overdid it and yanked on my penis hard in the flaccid state.  That Monday or Tuesday, she came over to my house again, and I noticed the big indentation in my penis on the right side.  I saw Dr. Levine, and he did an ultrasound in a flaccid and erect state and noted I did not have Peyronies.  Dr. Krengel did not do an ultrasound but evaluated me in a flaccid state and agreed with Dr. Levine.

I think Dr. Levine & Dr. Krengel were correct that at that time, I did not have any Peyronies.  After these consultations, it seemed I developed the 2nd indentation at the base of my penis on the right side, about an inch below the bigger indentation on the same side.  It may have developed around the same time, but I just didn't notice it right away.  Around this time, I started having issues with my right testicle moving up and sitting by the base of my penis instead of its normal hanging spot in my scrotum.  As the year went on, testicle issue I noticed more and more.  The indentations, while very noticeable, only really posed an issue when I masturbated, and I had to change up my hand position and grip at times, otherwise, with sex, I didn't notice the indentations impeding anything.  The testicle did and still does contract into my body during sex quite often, looks weird, and feels a little uncomfortable, but otherwise, I've been fully functional sex-wise.

Finally, what I'm getting at is because of the indentations, I feel that the stability of my penis was compromised so I was now much more prone to buckling not only in a fully erect state but, of course, even more so in a semi-erect state.  Last Friday night, I had sex with my girlfriend 3 times.  The last time I went in semi-erect and kind of had to force it until I became fully erect.  I've done this before and never any issues.  I suppose this bump could have resulted from Saturday morning even if we just did it 1 time Friday night, and I was at full erection.  The trauma to my penis over time had reached its breaking point, and thus the bump developed.

So really, what I'm trying to say is my initial injury, while not Peyronies, really set the stage as far as me developing Peyronies.  I know I still don't have a clear-cut diagnosis, and I should have one tomorrow after I see Dr. Kansal, but at this point, I really don't see what else this current bump could be.

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By: cdub
« Reply #20 on: 7/1/2021at 08:10:02 PM »

saw Dr. Jagan Kansal on Wednesday morning.

He palpitated my flaccid penis and said he could not find any plaques, and there was no indication that my condition was/is Peyronies.  That is a relief for now.  He said that mainly what I need to do right now is rest as he thinks my main issue here is overuse, and that is why I'm dealing with a swelling/ridge in the erect state.  Things should go back to normal over time.  He prescribed me Meloxicam (15 mg/1x/day).  He said it was ok to take L-Arginine as well right now.  Right now, I'm taking the following:

Meloxicam 15 mg/1x/day
L-Arginine 1000 mg/3x/day = 3000 mg total
Vitamin E 90 mg, which 2000 IU/3x/day = 6000 IU

I was icing initially but stopped. I will start that again too.  I did ask about Pentox but and he nearly prescribed it, but he thought Meloxicam is a better choice for me currently.  Also, I asked about taking some low-dose Viagra as I have some on hand from previous Bluechew subscriptions.  He said he would not advise it right now, as that is counter-intuitive right now as my penis needs to rest now, not be stimulated.

The large bump/ridge or whatever if it is swelling like from a bruise it's not really painful, it's not discolored, and it doesn't seem to give when I press on it or move with the skin during an erection.  It's very strange to me.

Dr. Kansal never saw me in the erect state, so he was not able to observe the ridge directly as it doesn't really show up in the flaccid state.  I did show him a picture of my penis in the erect state, so he was able to see it.

I didn't really get a firm answer as to what it was that I'm dealing with. Mainly he said that I overused my penis, and I need to allow it time to rest now.  I asked if this was Peyronies, Mondors, Lymphangitis, or even Cancer, and he said it is not any of those things.

I have a follow-up with Dr. Kansal on July 14th.  I may or may not go as I have an appointment with Dr. Levine on July 7th and am set to do an ultrasound.  I will see how I look on the 6th.  If the swelling has gone down quite a bit, I may just see if I can re-schedule the appointment with Dr. Levine for a few weeks out as I'd like the swelling to heal quite a bit before I get shots into my penis again.

Thank you to Ben Ray Camp thru all this.  You've been a great person to talk to and share ideas and information with.  I hope your situation gets better as well.  I will be in touch with you.

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By: cdub
« Reply #24 on: 7/2/2021 at 12:04:48 AM »

Picture of my penis.  The current injury is mid-shaft, where I have very large swelling, but at this angle, it is not very apparent.  Injuries from March 2020 are easily seen, however, on the right side of my shaft.  Large indentation on the right side about mid-shaft. and Also another indentation on the right side at the base.

https://imgur.com/ZYjmB8W

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By: cdub
« Reply #24 on: 7/2/2021 at 12:07:48 AM.»

Side angle shows a good view of the current injury (6/26/21), which is the prominent bump/swelling mid shaft.  Also below that is the indentation injury from March of 2020 that I was told by Dr. Levine & Dr. Krengel is not Peyronies.

https://imgur.com/uARDAwp
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By: cdub
« Reply #24 on: 7/2/2021 at 12:06:48 AM »

A close-up of the dorsal bump from the side.  The current diagnosis is this is not Peyronies.  I have not done Ultrasounds yet.  Hoping this goes down and goes away and that this does not become a permanent fixture on my penis.

https://imgur.com/n9f8XJL







Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums