Lee's Story & Implant Journal - Followed by infection & malleable implant

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Stepone

Thanks for update.
It is interesting how bruising takes time to appear.
I remember when cycling I caused a bruise too. It is a process.
I am retired, but when I went back to choir the following week, I took a special cushion with me too.
I sent an email to the choir director prior to my return that I had a "man urology surgery" and no one asked any questions.
Everyone was very caring and supportive, I assume they all thought it was my prostate, lol.
If anyone would have asked I would have told them I had some surgery on my penis. When I told my brothers and sisters, I had a penile implant, no one asked any questions, lol big time!
My family has always been shy when it comes to anything related to sex. Not me, I was ready to show and tell, lol again!
Stay safe
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Stepone

Lee, I too have small balls and sack. Some guys had problems reporting that the pump fought with their testicles. I had no problem.
I am remembering more about the pump. So the top of the pump goes into the underside of your penis with all the tubes. Because of this the actual button area and release area are close to the underside of the penis.
I seem to remember having difficulty finding it at first, because initially it is right against the penis.
Overtime it will gradually loosen and drop down a little, I think that's why I was instructed to GENTLY pull on the pump.
Ask for a model if they haven't already given you one.
You have plenty of time to figure that out and you can do that when you take  warm baths and explore.
StepOne
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

Post-op day 6---Not much to report.  I have stopped taking the oxycodone and am controlling pain with the tylenol.  After not being able to have a bowel movement Monday through Thursday, I finally broke through yesterday and things are getting back to normal today.  So another hurdle overcome.  Still having mild discomfort in the scrotum at times and in the area of my lower abdomen where the reservoir has been placed.  But swelling is decreasing and my wife says I seem to be healing well.  I now understand that I have to wait until day 10 post-op before taking warm baths, 2-3 per day.  So that will be this coming Wednesday.  Well that is about all for now.  Lee









 
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

Thanks for your report.
We all have different pains at different places.
I never had any reservoir placement pain. Mine was mostly penis and ball sac.
If you could post a copy of your post op instructions minus your personal identification information, etc. that would be great.
I added you to my personal prayer list, so I am praying for a good recovery. I had a friend named Lee, so yours is easy to remember.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Stepone

Lee there is another video with helpful hints.
YouTube.com/watch?v=tcQgJB3kbO0
StepOne
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

StepOne--Thank you for the video.  I am on post-op day 13.  I have my first post-op check with Dr. Lentz's PA this Wednesday, August 24.  Pain has been fairly manageable but worsened Friday and Saturday.  The pain is in the area of the left upper groin and lower abdomen where the reservoir has been placed.  The pain seems to be predominantly on the left side of the groin and scrotum.  This past Thursday (post-op day 10) I started taking warm baths twice a day for 20 minutes each.  Seems to be helping.  I am actually sitting on an ice pack now.  I guess I have two questions at this point.  How long can I expect the pain and discomfort to persist?  And how much discomfort am I looking to experience with the removal of stitches this coming Wednesday. I believe this also the appointment where the PA will inflate and deflate the Titan.  Any guidance or comments on the pain issues would be appreciated.  Lee  
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

I don't remember pain from where the reservoir was placed.
My penis seemed to hurt.
I am on the thin side, so maybe there was not a lot of cutting with me in the abdomen.
Your doctor should be able to figure that out and let you know.
They did not remove my stitches as they were self dissolving.
My scrotum hurt really bad around the stitches.
So when I had to pump and deflate it was very painful.
I forgot my pain pills, so be sure to take one before and have another just in case. I forgot my pills and I was in a lot of pain deflating and driving home. Tylenol did nothing.
I would email them and say you are still having abdominal pain. See what they say, maybe there is a valid reason. I am sorry, but I don't recall abdominal pain at all.
But of course we all are built differently.
Let us know what happens.  
Big hugs
StepOne
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

StepOne---That is promising about the stitches dissolving.  I have pain around the stitches as well, particularly if I move too quickly.  Today has been a better day.  So will the PA inflate and deflate me and then I do it during the same appointment as well?  Really appreciate your input--Lee
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

Lee, my stitch area hurt too.
Sporadic shots of pain.
The PA inflated me and the pain was so bad, I told her to stop and let me do it.
Then she said let me show you how to deflate and I said NO.
I need a minute to breathe! Lol
I deflated, but it was painful.
It's so much better to do while sitting in a warm whirlpool with a cocktail, lol
Who knows how they do it now, it's been over 3 years.
Big hugs
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

StepOne---Thanks for all the great information.  I think I will have a backup plan of staying in Raleigh overnight if I do not feel I can make the drive back home after the appointment on Wednesday.  I will let you know how it goes.  Lee
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

Sounds like a plan. If you take pain pills with you or take one when you get there you may be ok. But I had neither and I should have asked for something for the pain. I thought I could handle it, but I couldn't get home fast enough to get some of my meds and lie down.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

Post-op day 17---Yesterday (post-op day 16) I traveled the 5 1/2 hours to Raleigh for my first post-op visit at Dr. Lentz's office with PA Ian Hunter.  I was very apprehensive about the pain I might encounter with having the stitches removed.  However, that went very well with little pain experienced.  However, there was some blood.  (After I got home --again a 5 1/2 hour trip home--there was significant blood on my jock strap and underwear. I would have freaked out if not for my wife who is a nurse).  Anyway, the PA had asked if I was having any pain prior to getting started and I advised him I was having fairly consistent discomfort where the reservoir had been placed (lower left side of abdomen and groin area) with discomfort going down the left side of the groin. (The PA indicated that this is where the tubing from the reservoir to the pump was placed).  The PA after removing the stitches showed me what the Titan implant looked like that was now inside my body.  He showed me where the pump mechanism and where the deflate mechanism were located.  He also pumped me up just slightly beyond the approximate 20% inflation level I had been left at post surgery and then showed me how to deflate.  I was able to use the inflate bulb but could not locate the deflate mechanism in my small shrunk up ball sack.  It is much easier to locate everything during a warm bath
with the scrotum relaxed by the warm water.  So I have challenges ahead as the PA wants me to start cycling once a day between now and when I see Dr. Lentz for my second post-op appointment on September 21. I had watched a video some time ago so was fairly familiar with
what the Titan looked like and where everything was located.  When I started taking warm baths on post-op day 10 I was able to easily located the pump bulb which is at the bottom of the Titan implant. The deflate mechanism is right above the inflate bulb.  In any event I have some work to do but will try to remember StepOne's guidance that this is a marathon not a sprint.  Fortunately, my wife was able to come with me yesterday and did 80% of the driving.  I would be lost without her. Last night, I did have a lot of burning pain, again where the reservoir has been placed and down the left side of the groin where the tubing has been placed.  It is better sitting up this morning.
  I had more pain and discomfort this afternoon where the reservoir and tubing from the reservoir are located.  The pain is a burning type pain that seems much worse when standing.  The burning sensation subsides when I sit down and is more of an aching type pain.  Tonight I am going to work on trying to completely deflate the implant it is in approximately in the same state of inflation as immediately post surgery.  I will do this while taking a warm bath. I sent in a request to the nurse today for a refill on the Neurontin, but have't heard back yet.
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Hawk

Good report Lee.  I think you just have to outlast the pain.  We all have different experiences, and while your pain may not be just like mine, healing and pain reduction will take place.  You will NOT have daily improvement.  That bounces around, but you should have weekly improvement.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Stepone

Yes excellent reporting.
Sorry about the continued pain.
Interesting you had stitches to remove, mine were self dissolving.
Could you update your signature with the month and date of your implant and the 22cm + 2?
I'll pray for you for speedy recovery, but sadly it takes a while.
Stay safe and say hi to the mrs.
A year from now, this will be a distant past.
Big hugs to both of you
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Hawk

I also had stitches to remove at week two (I Think).  Dr. Eid told me I could get my local urology office to do it.  I set the appointment, and I only saw a beautiful nurse who was quite interested in the implant.  I had no bleeding or discomfort.  I would be concerned that bleeding might indicate I could introduce infection from sitting in a tub of water.

I am not sure you can tub-soak with dissolvable stitches.  I was tub-soaking at day three.

Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Lee1979

Thanks to both Hawk and StepOne for the encouraging words and guidance.  This Board is a blessing.  Post-op Day 18 AM--Took neurontin last night and slept fairly well.  Pain is tolerable lying down.  I have found I can sleep on my side to some extent with a pillow between my legs.  My major issue now, besides the pain is not feeling at all that comfortable using the deflate button.  Post-op Day 18 PM --Pain today has at times has been significant.  So I left a message on the nurse's line and then sent a message to Dr. Lentz on Duke My Chart this afternoon.  The nurse called Dr. Lentz and he directed her to call me back with some specific instructions.  He was concerned about the issue of bleeding from the removal of stitches and did not want me to take any more baths until the wound healed completely.  He also did not want me to cycle or tug on the pump ball for the time being.  The nurse spent quite a bit of time speaking to me.  She indicated that Dr. Lentz wanted me to report on my progress on Duke My Chart on Monday morning.  She also told me that Dr. Lentz told her to tell me that the pain I was experiencing on the left side of my groin was not unusual at this point and that I could use a hot pack on the affected area.  
I was very impressed with how quickly the nurse contacted Dr. Lentz and how quickly she relayed his instructions to me.  Wish I could say the same for PA Hunter who had still not responded to my message that I sent him yesterday.  But clearly, if you are one of Dr. Lentz's patients from surgery, his office has been instructed to keep a close eye on messages sent to his attention.  The nurse said that for now they would keep my appointment with Dr. Lentz as scheduled for September 21, but if my situation worsened they would get me in sooner.  I requested a refill on the neurontin prescription yesterday afternoon and it was in at my pharmacy first thing this morning.   Although in pain, I feel better tonight.  Hawk is right, I just have to out last the pain.  And as StepOne has repeatedly told me, it is a marathon not a sprint.  Heck, no where to go but forward. Lee  
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Lee1979


Post-op Day 37

I regret I have not been more consistent in my reporting.  I will now try to catch up.  

I continued to have significant pain in the left side of my groin. It has now resolved. It was a burning pain that at times would be extreme. The only relief for this pain was to sit down.  When I would sit down the pain reduced by at least 90%. I found that being on my feet for almost any period of time brought on the pain.  So I reported back on Monday, August 29, 2022  the information on DukeMyChart and Dr. Lentz's office scheduled me to come in to see him on Thursday, September 1.  By September 1, the pain in the left groin area was starting to diminish but I attempted to keep the appointment, a five and half hour trip to Raleigh from Southwest Virginia.  I ran into car problems about 45 minutes into the trip and had to turn around and come back home and reschedule the appointment for the next week on Thursday, September 8.  By the time I made the trip to Raleigh on September 8, the pain on the left side of my groin had almost completely resolved, but I still felt I needed to see Dr. Lentz to let him check and make sure everything was OK. I needed to get his clearance to begin cycling with the pump.  As to the pain in the left side of the groin, I estimate it lasted about 10 to 12 days with a gradual lessening of pain over the last five to seven days.  I still get a twinge of pain there from time to time but nothing like when it first started.  I used Aleve and Tylenol on an alternating basis to deal with the pain and also got a  refill on the Neurontin medication.  

Back to my appointment with Dr. Lentz on September 8.  He inflated me and deflated me. I asked if would inflate me again so I tried  to deflate myself.  I was very apprehensive about making sure I could deflate the implant.  This was one of the main reasons I felt I needed to keep the September 8 appointment even though the pain in the left groin area had pretty much resolved.
I was able to partially deflate--Dr. Lentz came back in to see how I was doing and helped me finish the process of deflation.  I had been unsure as to whether I had to continue to press on the deflate button while squeezing my penis.  Dr. Lentz explained that was not necessary as the Coloplast Titan release was a one touch system.  

Flash forward to present.  I have been cycling with the pump for about a week now while taking a hot bath each day for about 30 minutes, spending 15 minutes inflated. Just getting 15 minutes in is extremely painful. I had a real problem initially depressing the pump bulb and am still trying to getting the hang of it.  I am using the two handed method --one hand to steady the bulb and the the thumb on the other hand to press down on the bulb.  The pump bulb is not easy to depress and takes quite a bit of force.  Maybe it will get easier with time.  I am having a lot of pain in the penis when it is inflated.  It has not been easy to go the full 15 minutes of inflation with the pain but I am doing it.  My wife, the sweet and nice nurse of a couple weeks ago has changed into drill sergeant mode.  Geez!  

With deflation, I am going through the push the deflate button and squeeze the penis three times as per the instructions, but finding I am doing it a couple more times after getting out of the bath to be sure I am fully deflated.  I have lost about a half inch in length, with length at four and half inches with the implant inflated.  With the the VED, I had 5 inches in length and 5 inches in girth.  I do have about 5 inches in girth with the implant inflated.  Hopefully with a 22 cm +2 Coloplast Titan I will be a grower with time and effort.
This is all I have to report for now. I will try to report on at least a weekly basis going forward. Lee  
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Sonic

Seems like you are taking small steps forward towards getting better. Based on other guys journals your pain while inflated will definitely go away with time and you probably will regain that lost size for sure.

Keep on pumpin as they say..  ;)
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Stepone

Thanks for your detailed report.
So my 22cm implant gave me 7" with 6 to 5.5" girth solid.
My penis grew over 18 months.
So I am thinking with your 24cm, you should do well, but you need to feel the pain and stretch your penis.
Yes pain was frequent and diminished with time, but no pain, no gain.
I used to get up early in the morning, pump my penis up and walk around naked drinking my coffee and reading emails. I tried to do an hour every day. Sometimes the hour seemed to be like hours, but I managed through it.
There is a pop song called "pump it up" that I find amusing.
Stay in touch
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Lee1979

Thanks Sonic and StepOne for the replies. I will shoot for thirty minutes inflated.  I was never very well endowed to begin with so I was somewhat surprised on ending up with a 22 cm +2 titan.  I know Dr. Lentz will not oversize so I will keep working on it.  I must be making some progress because it hurts like hell.
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

Lee,
The pain will gradually decrease.
I sometimes had a beer in afternoons when I inflated to full the pain.
Of course Tylenol would help sometimes too.
I remember as do others on here have commented, when the pain goes away, you are no longer stretching, so that means no more gains. So several of us said we missed the pain.
StepOne
Keep on pumping...
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Waveboy

Hello Lee

I just finished reading your story and sounds a lot like mine. I just had my revision July 19,2022. I too have a 10+ wife that has been my nurse (which was a nurse before we met). I also suffered with PE most of my life.
You will read up here different sizes (mine a 24cm titan). If you read on your operative note or on paperwork you received about your titan it should say how much of your titan was placed inside and how much was outside, which changes with each person. For example: mine was 24 and I had 12cm inside and 12cm outside but that was how my body was. In my prime I was 6.5 inches in length and a good girth. Now 8 wks out with great hard on I am 5 1/4 length and girth and straight. The titan stretches in both length and girth so there is light at the end of the tunnel!

Glad you hung in there with insurance and deciding to get titan ipp!  Glad yal stayed couple night post surgery. My 1st one was 4 hours away and they messed me up and we came home couple hours post surgery. Took 9 hours to get home with my wife stressed out!

We will keep you in our prayers and pray for your drill sergeant! Trust me they are the best support

waveboy out
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

Waveboy

to also add to my note Lee. I am a positive person even through my botched surgery. Now 8-9 weeks out of revision a great thought to keep in your head as I do in mine. I talked in note about measurements. If you measure your length now you will NEVER be any shorter!!!!!!! It just gets bigger and better!
As far as the PE yes it was a downer in the past. remember that( in the past)! Now even if you loose that round early you will look down and it still be rock hard! You decide when it goes down not your PE!
You have control!

we be praying together!

waveboy out!
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

Lee1979

Hello Guys, Lee's wife here, to give an update with Lee's permission. He's been covered up with work at his job.

All is going very well. Completely healed and doing good with his morning exercise in a warm bath. He is up to about 25 minutes now inflated and is measuring 5 1/4th inches length, and 5 inches girth.

He still has moments of a twinge of pain out of the blue, but told me that he had been warned about that here. It was unusual that he had so much pain on one side after the surgery, but that eventually went away. We found one other man who was on another forum and had written about his experience about this pain as well. It eventually went away for him, too.

We've had one attempt at sexual intercourse, about a week ago. That went well and was a success but painful for both of us.
He is still having some pain fully inflated, and I am still working on the estrogen replacement and over time, I think the pain will go away for both of us. Lee also had some labs come back that showed he was low on DHEA and Pregnenolone, so he is taking supps of those now and they have just started to increase his sex drive and give him a bit more energy. He does take Testosterone replacement and those levels are good.

Dr. Lentz has been wonderful to work with throughout. He kept telling Lee to call or make an appointment to come in (always within just a few days) if he had a concern. Telephone calls were always promptly returned within a few hours or even less. Dr. Lentz was always very compassionate to Lee's concerns and issues.

Lee will be back in here as soon as his work lets up a bit!

A big "Thank-you" to all of you who offered advice, concern, prayers, and friendship. It's meant so much to him.
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Mikel7

It's all good news as this has been a long haul for both of you! Continued success. I have also been on full TRT replacement for 18 years now and I could not survive without it. He may like the pregnenolone cream if he can get a provider to prescribe it.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Pfract

Warms my heart to see a man with a supporting wife to go through this ordeal. Wishing you both a renewed and fulfilling sex life for years to come.

Glad to know that things are going will with lee!

Lee1979

Post Op Day 67.  I have been remiss in posting this past month.  Generally, I have been making steady progress.  I cycle every morning in a warm to hot bath and there is still pain when fully inflated but it is more manageable now.  I want to thank everyone for all the support and encouragement over the past two plus months.  I still get the pain out of nowhere in the scrotum from time to  time, but that issue is also becoming less frequent.  I am pretty much back to where I could get in terms of length and girth with the vacuum pump pre-surgery, so any gains from here on are icing on the cake.  The most important plus has been no more vascular leakage.  It is so great to pump up and know I am in total control and can take my time.  I can honestly say that the penile implant surgery was well worth the pain and recovery experience.  Dr. Lentz has been terrific as a doctor and a surgeon.  I highly recommend him.
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

Lee
I am so happy you are doing well.
We all say, your pain will become less over time...and it will.
The fantom pain is weird, but it will continue for years, but it is short and not long lasting. I guess I am going on 4 years now since my implant and although much less frequent, I still get it maybe once a month.
It's only been a few months for you now, so it's way to soon to imagine how good it will be and where you will be a year, two years, etc. I must tell you, it really does get better and better and better.
I never could have imagined how much better sex could get. I think most of us don't appreciate what we have until we loose it.
You are doing fine. Stay patient and consistent.
No pain = no gain.
Big hugs for you and your wife.
StepOne
PS, I have a lady friend that was experiencing vagina pain with sex. Her doctor put her on a cream and also told her to get a dildo to help open her up, since she hadn't had sex in over a year.
She told me last week, her pain is gone and she and her husband are back to having regular mind blowing sex. But, it too was a process for her.
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Sonic

Hey Lee! Really nice to hear about your progress and the fact that everything seems to go well. I also saw the post from your wife great to see that you have such a supportive wife.

Quite a few people on here have made implants so you will always have a lot of info and support from them on here.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Waveboy

hello lee
great to hear your recovery. Yes you and I are on same timelines and have great spouse's! I was also pumping with VED. It was optioned to me to use VED after implant just after me asking can I use it to speed up things. I tried it once and I don't suggest it. For one it pulls the one tube up  from reseviour  and you get a stabbing pain from it and two with a titan thats the one spot that there could be weakness over time and that pressure on it could make that get there faster. So mine was a once and done with the VED. Just putting that out there because we are men and we all will go through the thoughts.
Yes my measurements are the same as yours. I am bigger in girth than before but 1/2 inch shorter but I am happy with it and as it expands over next months and years it just gets better!

waveboy out!
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

Lee1979

Waveboy--Man, I am so glad to hear of the success with your revision surgery.  You and I are very blessed to have such supportive wives.  Still getting back into the groove with the wife but the early results are beyond encouraging.  Thank you for all the encouragement and prayers.  The penile implant surgery was definitely the right decision for me.  God Bless!  Lee  
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Lee1979

Stepone and Sonic, thank you for all the encouragement these last several months.  I feel like a man that has cleared the last mountain and am now looking at the promised land.  It looks great and feels great!  Lee  
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Waveboy

Great news Lee!!!!
keep ya head up..  Haha had to say it! Yep that promise land. woohoo.

waveboy out!
50 yo male
Factor 8 Hemophilia
4x inguinal hernia repairs,w/mesh
ED -Meds stopped working.
Peyronies x 2 yrs
AMS 700 CX 21cm w RTE 10/2021/Dr. Rafael Carrion @USF Tampa
Revision 07/2022 Titan XL 24cm no RTE/ Dr. Tariq Hakky@Atlanta Cosmetic Urology

Lee1979

Hello Everyone,
I've come back to the forum to post about an issue I'm having some 16 months post surgery, and need some advice.

I've been doing really well with the pump and my sex life. However, about a month ago I noticed tenderness around the prostate area and a feeling of unease. I felt around and no pain anywhere in the pump area. My family doc put me on Bactrim for 2 weeks for a possible prostate infection to clear it up. A few days later I noticed a nickel sized place at the top of my scrotum, right under the base of my penis. At this point, I called Dr.Lentz's office and went in to be seen last Friday.

He told me that I had a pocket of infection, and he did some blood work. I told me to continue on and finish up the Bactrim until he had the labs back. He said if the labs were fine, he'd feel a lot better about the situation.

This morning I checked my Duke MyChart. The labs were there and WBC, ESR, and C-Reactive protein were elevated. Less than an hour later I received a call from Dr. Lentz. He told me that because of the lab values, he felt I had infection in the pump area and to begin a prescription of Clindamyacin. He said that the pump needed to come out and a non-inflatible placeholder implant put in. At some point he may be able to do a third surgery to replace the Coloplast. He's interrupting his vacation and flying back in to do the surgery on the 26th. He said to plan to stay overnight to receive IV antibiotics.

We don't know how I got an infection this far out. Dr. Lentz said this was fairly rare. Any ideas or advice for me?  

Thanks, Lee
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Stepone

Lee, it is strange.
It's a good thing you have Dr. Lentz.
I am sure he will take good care of you.
Be safe
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Hawk

I have heard Dr. Eid say that infection can occur at any time.  He did not break it down to how common it is by month or year after implant.  Dr. Lentz is definitely taking the right steps to deal with this.  Best wishes and please keep us posted.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Lee1979

StepOne and Hawk--thanks for the replies. I'm starting to feel sorry for myself on top of the confusion of why this has happened--along with a lot of anger building up.

I was told yesterday by Dr. Lentz that the recovery from this surgery will be similar to the first.

Do we have anyone on the forum that has gone through a removal surgery for infection post implant? I was searching but didn't have any luck.--Lee
 
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Hawk

Lee, I don't think there is currently anyone active that has gone through this.  We did have one or two who experienced a similar situation, but they had the implant before they found the forum, so their posts were not in real-time.  

I know your primary concern is for your outcome as it should be, but your experience and outcome, as well as the way you navigate this, will be priceless information and support for others.

As far as I know, Dr Lentz is a skilled, competent implant doctor.  I think you are in good hands for a good outcome.  The decision to use a mailable implant to preserve size is the correct one.  There are still men who opt for that implant today. As I recall, you are married, with a very supportive wife. I think your healing will be quicker and less painful than your inflatable implant.  I also think that since you are married and not trying to hide this, your sexual intimacy with your wife will only take a brief hit. You will make it through this, and we are here rooting for you.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Lee1979

Hawk--thank you for the support--I'm going to hang onto those words as I go through the next several weeks.
Do you want me to start a new thread on the removal and recovery? I'll try to make it as detailed as possible for other men who might have to go through this unfortunate circumstance.--Lee
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Hawk

Lee, My opinion is that it is only a complete story if it is part of your ongoing story.  I changed the name of your journal to reflect the content and make it easier for others to We have a lot of stories without significant difficulties.  It is important for men to understand that there are risks even with good surgeons and men who do everything right.  It gives a realistic picture that is needed.  We don't need to sum up implants with the phrase, "And they all lived happily ever after."

I would encourage Dr. Lentz to give you the largest malleable implant he can.  My experience with malleable implant stories is limited, but I think you will be relatively happy after learning the nuances of hiding it. If you drive yourself crazy comparing it to your inflatable implant, you will fret yourself crazy, but if you compare it to days of unreliable erections, you will be static.  Perspective is everything.  
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Stepone

Lee, I am so sorry you have to go through this.

Sadly, with any surgery there is always a small percentage of infections and it's a huge bummer that you got that small percentage. I can't imagine!!!!!

I had surgery from Dr. Lentz 4 years ago and was fortunate to not get any infection. It is so odd, your infection took so long to appear. I am curious as to why Dr Lentz said it took so long. It would be interesting to share what he says.

Prayers for your successful repair,
StepOne
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC

Pfract

I am sorry to hear you went through this lee! It is in fact very uncommon, like others said that this happened so long after your implant. I remember reading about this and Dr.'s place a malleable to address the infection but after a certain time they give you the ok to have another revision to switch back to a three piece. Sending you words of encouragement as you go through these hard times!

Lee1979

Hi Guys, Lee's wife here.

Thank you Hawk and StepOne, Pfract, for the messages of support.

It's December 26, about 8:30 at night. Lee is in a hospital room at Duke Raleigh recovering. We drove down this morning, a five hour trip for his two o'clock surgery.

Dr. Lentz came in to see us in Pre-Op and explained that with Lee's labs pointing towards infection/inflammation, and his pain and a hardness in certain areas around the implant, the weird swelling that looked nickel sized at the base of his penis, that it must come out. Even though it looked better than it had a week or so prior when he saw Lee proving the Clindamycin had helped, there was more hardness in the area than previously.

Dr. Lentz explained that with every implant, there is exposure to a minimal amount of bacteria during insertion. He said that usually, the area around the implant seals off very quickly and that minimal amount of bacteria stays tucked away and usually never causes an issue. But rarely, sometimes it does.

The reason why now, after all this time, will remain a mystery. I did mention that Lee had a rapid weight loss of over 30 lbs. in the last year-but in addition, he had quite a bit of muscle atrophy all over from that weight loss. His family doctor put him on Ozempic for his diabetes, and it was worked very well at keeping his A1C down around 5-6 and controlling his appetite.

He hasn't been sick in the last year. Nothing that would lower his immune system function. His labs four months ago for a wellness check with his family doctor showed a completely normal labs including a CBC and Metabolic Panel. Yet, that's around the time he started feeling "run down" and complaining of feeling really tired at times, and wanting to nap after work before dinner and around noon for a few hours on the weekends. There was one weekend that he did run a low grade fever, but it was gone in 24 hours. After that, he started to complain at times of feeling unease, like something was off. So, we feel that this infection started back four months ago.

As before, Lee was treated very well by his nurses and Anesthesia Tech Pre-Op. Every effort was made to make sure he was comfortable and he didn't wait long to be taken into surgery.

After surgery, Dr. Lentz called me personally while I was in the waiting room. He sounded both concerned and relieved at the same time. The first thing he said to me was that we got it in the nick of time-that if we had waited another week to ten days, we would have had a serious problem to deal with. So even though the Bactrim and Clindamycin had helped, it wasn't enough to stop what was coming. He said that the cylinders and pump and reservoir were surrounded by a thick, tea-colored infection, which he felt was a weaker bug but nonetheless there was quite a bit of it. He has cultured it. He said however, that a week to ten days would have seen that turn to pus and more serious.

As of now, his pain is being well controlled with Oxycodone every four hours. He said when he came to from surgery, his pain was a 9 out of 10, but the Post-Op nurse got it under control quickly for him.

Dr. Lentz said he sized him about as aggressively as he could with the malleable implant. He told Lee that in time he could come back and try an inflatable implant like again, but I'm not sure Lee will. It would have to be a dandy of a thing to make him want to go through all of that again and the risk of infection.

Tomorrow morning the plan is for him to be discharged. He will have the catheter removed, but the JP drain will stay for a few days, and I'll remove that as I did in his previous surgery. He has staples in and will have to come back to have those removed. Dr. Lentz is checking him often-first for staple removal in two weeks and in six weeks.

We are going to stay two nights at the Hampton Inn 1/2 mile down from the hospital, and re-assess then how he feels and if we can make it back home in a somewhat comfortable way for him with pain meds.

I'll update again tomorrow evening. He could really use your prayers and good thoughts.He is really down about all of this.  
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Hawk

Thanks for updating us.  Just for the record, antibiotics NEVER resolve an implant infection. They only make you feel enough improvement to put off the inevitable surgery until you have a total mess and maybe go septic.

I am anxious for Lee to feel better physically and psychologically.  I will be anxious to hear back once he is healed, but I am not at all sure that both of you won't find the new implant to be as satisfactory as the one that was removed.  It might cause him some inconvenience when not in use because it remains fairly rigid, but when having intimate time, I see no downside.

Both of you are in our thoughts and prayers.  Keep us posted.

Hawk,Founder/Administrator
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Lee1979

Lee's wife here.

Hawk, very true about antibiotics-especially with an infection around an implant. I once had an acquaintance who had breast implants done. A very smart lady, a wonderful nurse who knew what to look out for in the way of complications. Within a week she was septic and passed away.

Dear men, NEVER ignore symptoms of infection. Lee has been lucky in that he had time to get the care he needed and his system fought it off for awhile. That is not always the case. And, he was running out of time. Another week to 10 days and we would have had a major problem and scare. I cannot emphasize this enough, along with Hawk's warning.

If you have pain, swelling, hardness of the tissue along the implant, weakness and tiredness, a low grade fever or worse-seek help immediately.

Lee has told me that he was afraid it was just all in his head, that it would go away and he didn't want to bother me or take time off from work (lots of stress from heavy case load and County Supervisors needing things done) that possibly was really nothing to come back down to North Carolina and waste time during the week.

Now on to where the situation stands today on 12/28. He wasn't released from the hospital until 7 p.m. last night, and received another round of Vancomycin and Zosyn, Fluconazole during the day. He was given Neurontin, Oxycodone 5 mg., and Meloxicam for pain for 7 days. He is also to take Bactrim twice a day for five days, and Augmentin twice a day for fourteen days. His re-check and to have staples out is January 17.

His recovery is different this time. He has much less pain, and is sleeping very well. A healing sleep. He hasn't had an Oxycodone since midnight last night, and he managed to walk down to the breakfast room here at the hotel and have breakfast this morning. That wore him out and he is back in the room sleeping. He is going to take a pain pill before we start our trip home, and we will take out the JP drain this evening if drainage is minimal. He hasn't had to use any ice packs or the boppy pillow to sit on.

We don't know much about the malleable implant, we just went with Dr. Lentz's advice and were relieved with Hawk's comments about it. I know Lee will let you know how that is working out. I really don't think he will have another inflatable implant. This has been a truly scary experience.

I want to sing the praises again of Duke Raleigh hospital where Dr. Lentz practices. The nurses and assistive personnel were all top notch and he received excellent care. Dr. Lentz flew back out to his vacation early the next morning after Lee's surgery and his PA, while very young, took good care of Lee yesterday. I thanked Dr. Lentz for interrupting his vacation to come back to care for Lee and he was so kind about it all.

This will probably be the last post from me, and Lee will update you all tomorrow. Take good care of yourselves and always be proactive about your care. Thank you all for what you do here on the forum, you are lifesavers and a needed, compassionate ear to listen and give advice when needed.
 
Age: 65
Symptoms: ED, bend in penis-degree unknown, no morning wood, severe venous leakage. Tried: Viagra, Cialis, Levitra, and used vacuum pump. Penile implant surgery performed by Dr. Lentz, Duke, 8-8-22.  Received a Coloplast Titan, 22 cm +2.

Sonic

Really sad to read about what has happened to Lee. What a wonderful wife you are and thanks for giving these thorough updates. It sounds like he is on the right path and that is at least something good in the midst of all this trouble. I hope all goes well sending both of you my thoughts and love.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Stepone

Wow, so hard to read. I too was a Dr Lentz patient, but as I have read, sometimes bad things happen.
My thoughts go out to Lee and his wife. I can't imagine what he is going through.
I am so glad his wife spoke so highly of Dr. Lentz.
I wish Lee a speedy recovery and still wonder how this infection took so long to materialize.
StepOne  
Nesbit surgery 2015, 66 years young, Titan Implant 4/25/19, 22cm, Dr. Lentz, Duke University NC